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Doctor Help For Florida
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Ok this is my first post as I'm new to celiac. I'm trying to find a good doctor around the Lakeland Florida area. I don't mind driving a little bit as my health is more important than convenience. My primary care doctor is sort of an idiot for lack of better words and wouldn't do any tests when I told him the symptoms I was having, such as constant diarea, sore joints, constant weakness and weird blood sugar readings. My mother in law is a RN in Texas and she was actually the one that said it sounds like it could be celiac disease after the glucose tests came back negative for diabetes. Any help anyone can provide is greatly appreciated.

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Ok this is my first post as I'm new to celiac. I'm trying to find a good doctor around the Lakeland Florida area. I don't mind driving a little bit as my health is more important than convenience. My primary care doctor is sort of an idiot for lack of better words and wouldn't do any tests when I told him the symptoms I was having, such as constant diarea, sore joints, constant weakness and weird blood sugar readings. My mother in law is a RN in Texas and she was actually the one that said it sounds like it could be celiac disease after the glucose tests came back negative for diabetes. Any help anyone can provide is greatly appreciated.

Cleveland Clinic or Mayo Clinic are two I'd suggest. I think Cleveland Clinic is closer to you...the closest Mayo Clinic is in Jacksonville, about four hour's drive time, possibly more. Good luck!

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I am not sure what you are looking for or how far you want to travel. I was impressed with Dr. Kharrazian's book, but he is selective with the cases he takes and he is across the country (he is in CA), but he has trained doctors who use his methods. They use herbs, supplements, and natural methods to promote healing. They focus on diet since digestion is so key to health. They focus on testing and functional ranges.

If I lived closer I would try to see Dr. Danny Quaranto in Vero Beach, FL - http://www.amfcc.info/Index.htm

If I had money and lived in the area I might see Dr. Steven Noseworthy in Sarasota/Bradenton, FL

Another option would be Dr. Lee S. Barbach in Miami, FL - www.miamithyroiddoc.com

Dr David Peterson works long distance - http://www.wellnessalternatives-stl.com/staff.htm

Dr Mark Flannery also works long distance - http://www.livehealthwise.com/Dr-Mark.html - I have "seen" him and it was not a good fit, but my boyfriend liked his responsiveness and other things about him

Hope this helps. I would be interested in what you find since finding a good doctor is so difficult.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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