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Confused...please Help


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4 replies to this topic

#1 imsohungry

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Posted 25 April 2011 - 10:03 AM

Hi everyone,

I'm 5'8" tall, and I've lost down to 105 pounds (last time I checked)....I'm still losing a pound or two a week b/c of the diarrhea.

Celiac has definitely been ruled out as a dx, but I wonder about gluten intolerance.

Here's my question: Could foods without gluten give me "D" if I'm still eating foods with gluten? In other words, I ate a well-washed plain potato for breakfast and it gave me "D", but it doesn't have gluten and there is no damage to my villi. Could the fact that I still have gluten in my diet at other meals be what made the potato upset my stomach?

I just don't know anymore!!! Please help!

Thank you so much!
Julie
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#2 GlutenFreeManna

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Posted 25 April 2011 - 10:16 AM

Hi everyone,

I'm 5'8" tall, and I've lost down to 105 pounds (last time I checked)....I'm still losing a pound or two a week b/c of the diarrhea.

Celiac has definitely been ruled out as a dx, but I wonder about gluten intolerance.

Here's my question: Could foods without gluten give me "D" if I'm still eating foods with gluten? In other words, I ate a well-washed plain potato for breakfast and it gave me "D", but it doesn't have gluten and there is no damage to my villi. Could the fact that I still have gluten in my diet at other meals be what made the potato upset my stomach?

I just don't know anymore!!! Please help!

Thank you so much!
Julie


Hi Julie,

How was Celiac ruled out? Unless you have another disease diagnosis that is for sure causing the diarhea, you may still have Celiac with negative test results. The tests are very often false negative (meaning you have celaic disease but test negative). About 20-30% of celiacs test negative. However if you had even one positive test you have celiac without a doubt. There are not false positives. The good news is if you go gluten free and it does not work you can still be tested for other things. As to your question about eating some meals gluten-free and other meals with gluten, yes the gltuen can have a delayed reaction--for some people up to 3 days. When I get any accidental gluten I don't feel the effects of it untilt he next day and then the symptoms last for up to a week. In order to try the diet you cannot do it half way or cheat. You need to be 100% gluten-free to see if it helps and you need to try it for several months before deciding it doesn't help. One reason for trialing it so long is that it takes a while to learn everything that could contain gluten. For example if you put butter on that potato and the butter had crumbs you couldn't see from using it on toast or bread before you used it on the potato then the butter has been cross contaminated (cc) with gluten and can make you sick. Learning things like this takes time. The good news is you don't need a doctor's approval or diagnosis to go gluten free.
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#3 mamaw

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Posted 29 April 2011 - 06:44 PM

Have you been checked for C-Dif ? Parasites? Do you take probiotics? A friend of mine has chronic D ,been through a million tests the end result is the body does not have enough friendly bacteria...
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#4 Salax

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Posted 02 May 2011 - 10:31 AM

My first thought is: Crohn's disease (http://en.wikipedia....Crohn's_disease). Have you been tested? It has many of the same symptoms of Celiac, which still could be the problem, but...I would think they should be testing you like crazy.

I am 5'8, and I know the lowest point on our weight scale is 125, so I know your underweight.

Personally, I would go to the doctor or hospital an not leave until they help fix you. :angry:
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Salax
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#5 Juliebove

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Posted 02 May 2011 - 11:33 PM

You could have some sort of food allergy. I have an IgG allergy (some would say intolerance) to eggs. It's a delayed reaction so I didn't figure it out for a long time.

When daughter was diagnosed with an egg allergy, I quit eating them too. Then some time later I got some egg salad from a salad bar. I ate it and the next day I got D. Still not making the connection, I ate the rest of it and about 2 hours I got D. I suspected a problem with eggs.

Some time went by. Had some eggs that I had bought for husband but he didn't eat. I boiled them and made egg salad. Ate some. Next day got D. Then still didn't learn. Ate more the next day and got D. 2 hours later.

Suddenly it dawned on me! All those times I was eating eggs for breakfast instead of cottage cheese and the D. soon followed... It wasn't just nerves from knowing I had to drive in NY traffic. It was the eggs!

Finally went in for allergy testing. Dr. told me I was extremely allergic to something and could I guess what it was? Yep. Eggs!
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