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Charcot-Leyden Crystals?


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7 replies to this topic

#1 melgag21

 
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Posted 25 April 2011 - 11:51 AM

Has anyone ever had a stool test show Charcot-Leyden crystals? Ova and parasites were negative. I haven't received results from my celiac workup yet, only the stool results. I had a biopsy and it showed inflammatory cells and intraepithelial lymphocytes and rare villi. This diagnosing process is taking longer than I like, in the meantime I'm in pain and misery! I have no idea if I am celiac or not, and neither do the doctors. The GI office I go to is not very helpful. Thanks for any advice!
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#2 Dixiebell

 
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Posted 25 April 2011 - 03:55 PM

Hi melgag21.
I searched Charcot-Leyden crystals and found this:
http://www.udel.edu/...372/Ch-lyd.html Charcot-Leyden crystals are formed from the breakdown of eosinophils and may be seen in the stool or sputum of patients with parasitic diseases. The crystals are slender and pointed and stain purplish-red in the trichrome stain, as shown in this image. These crystals can appear in a variety of sizes and only indicate an immune response, but the cause may or may not be a parasitic infection.
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#3 ravenwoodglass

 
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Posted 26 April 2011 - 03:03 AM

What did they mean by 'rare villi'? If that means that most villi were blunted or absent that is consistent with celiac as are the other findings on the scope. Since you have had the scope if you have already had blood tests go ahead and give the diet a good strict try.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#4 melgag21

 
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Posted 26 April 2011 - 03:11 AM

Hi! This forum is great! So much good information.

I had a colonoscopy and EGD 2 weeks ago. The small bowel biopsy states:

"Mild nonspecific chronic inflammatory changes with an increase in mixed inflammatory cells in the lamina propria and a few intraepithelial lymphocytes within the crypts and rare villi with good overall preservation of the villi."

WHAT?!? I'm so confused!

I am still waiting on the celiac bloodwork.

My stool sample was negative for ova and parasites but says there are Charcot-Leyden crystals in it.

My doctors office is....less than helpful.

I'm at a loss. Has anyone had results like these? Could it be celiac disease? My symptoms include- weight loss, diarrhea, whole body aches, fatigue, irritability, stomach pains...

Thanks so much!
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#5 melgag21

 
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Posted 26 April 2011 - 03:12 AM

I have no idea what they mean by rare villi. I am so confused! I just posted another thread with the exact terms they used. I hate waiting and not knowing.

Dixiebell- I found that same site. I teseted negative for parasites. I am just so confused and frustrated.

Thanks everyone!

:)
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#6 ravenwoodglass

 
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Posted 26 April 2011 - 08:36 AM

Your issues could definately be celiac related. No matter what the test results are you should do a good strict trial of the diet after you are done testing. The changes you have that were found in the biopsy are consistent with celiac that has not yet progressed to full villi destruction.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#7 melgag21

 
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Posted 28 April 2011 - 11:02 AM

I got a paper in the mail today from the GI. It said my celiac workup was negative. The doctor had said she would be shocked if it was negative. I don't go back until June! Should I go gluten free until then? Or no, in case they redo the tests? Should I try Enterolab? I had an abnormal small bowel biopsy and stool sample so I have no idea where to go now.
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#8 Roda

 
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Posted 28 April 2011 - 11:34 AM

Hi! This forum is great! So much good information.

I had a colonoscopy and EGD 2 weeks ago. The small bowel biopsy states:

"Mild nonspecific chronic inflammatory changes with an increase in mixed inflammatory cells in the lamina propria and a few intraepithelial lymphocytes within the crypts and rare villi with good overall preservation of the villi."

WHAT?!? I'm so confused!

The way I understand the report is that you have inflammatory changes/increased inflammatory cells in the lamina propria
and they found some intraepithelial lymphocytes (white blood cells) in the following two places: 1. crypts 2. villi (rare being just a few?)

Sounds like you have early changes consistant with celiac without the villi damage. If this is the case then consider yourself lucky to find out before the villi were destroyed. Give gluten free a try until your next appointment (you said you had blood work already) and see if it improves your symptoms.
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Me:
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease


DS2(age 9):
celiac disease(positive IgA tTG, no biopsy- 11/2010)


DS1(age 13):
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.





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