Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Charcot-Leyden Crystals?
0

8 posts in this topic

Has anyone ever had a stool test show Charcot-Leyden crystals? Ova and parasites were negative. I haven't received results from my celiac workup yet, only the stool results. I had a biopsy and it showed inflammatory cells and intraepithelial lymphocytes and rare villi. This diagnosing process is taking longer than I like, in the meantime I'm in pain and misery! I have no idea if I am celiac or not, and neither do the doctors. The GI office I go to is not very helpful. Thanks for any advice!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi melgag21.

I searched Charcot-Leyden crystals and found this:

http://www.udel.edu/medtech/dlehman/medt372/Ch-lyd.html Charcot-Leyden crystals are formed from the breakdown of eosinophils and may be seen in the stool or sputum of patients with parasitic diseases. The crystals are slender and pointed and stain purplish-red in the trichrome stain, as shown in this image. These crystals can appear in a variety of sizes and only indicate an immune response, but the cause may or may not be a parasitic infection.

0

Share this post


Link to post
Share on other sites

What did they mean by 'rare villi'? If that means that most villi were blunted or absent that is consistent with celiac as are the other findings on the scope. Since you have had the scope if you have already had blood tests go ahead and give the diet a good strict try.

0

Share this post


Link to post
Share on other sites

Hi! This forum is great! So much good information.

I had a colonoscopy and EGD 2 weeks ago. The small bowel biopsy states:

"Mild nonspecific chronic inflammatory changes with an increase in mixed inflammatory cells in the lamina propria and a few intraepithelial lymphocytes within the crypts and rare villi with good overall preservation of the villi."

WHAT?!? I'm so confused!

I am still waiting on the celiac bloodwork.

My stool sample was negative for ova and parasites but says there are Charcot-Leyden crystals in it.

My doctors office is....less than helpful.

I'm at a loss. Has anyone had results like these? Could it be celiac disease? My symptoms include- weight loss, diarrhea, whole body aches, fatigue, irritability, stomach pains...

Thanks so much!

0

Share this post


Link to post
Share on other sites

I have no idea what they mean by rare villi. I am so confused! I just posted another thread with the exact terms they used. I hate waiting and not knowing.

Dixiebell- I found that same site. I teseted negative for parasites. I am just so confused and frustrated.

Thanks everyone!

:)

0

Share this post


Link to post
Share on other sites




Your issues could definately be celiac related. No matter what the test results are you should do a good strict trial of the diet after you are done testing. The changes you have that were found in the biopsy are consistent with celiac that has not yet progressed to full villi destruction.

0

Share this post


Link to post
Share on other sites

I got a paper in the mail today from the GI. It said my celiac workup was negative. The doctor had said she would be shocked if it was negative. I don't go back until June! Should I go gluten free until then? Or no, in case they redo the tests? Should I try Enterolab? I had an abnormal small bowel biopsy and stool sample so I have no idea where to go now.

0

Share this post


Link to post
Share on other sites

Hi! This forum is great! So much good information.

I had a colonoscopy and EGD 2 weeks ago. The small bowel biopsy states:

"Mild nonspecific chronic inflammatory changes with an increase in mixed inflammatory cells in the lamina propria and a few intraepithelial lymphocytes within the crypts and rare villi with good overall preservation of the villi."

WHAT?!? I'm so confused!

The way I understand the report is that you have inflammatory changes/increased inflammatory cells in the lamina propria

and they found some intraepithelial lymphocytes (white blood cells) in the following two places: 1. crypts 2. villi (rare being just a few?)

Sounds like you have early changes consistant with celiac without the villi damage. If this is the case then consider yourself lucky to find out before the villi were destroyed. Give gluten free a try until your next appointment (you said you had blood work already) and see if it improves your symptoms.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,695
    • Total Posts
      921,779
  • Topics

  • Posts

    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,701
    • Most Online
      3,093

    Newest Member
    Dtroutmann
    Joined