My Husband Was Just Diagnosed
Posted 03 May 2011 - 10:55 AM
Posted 03 May 2011 - 07:36 PM
More fruit and veggie snacks, meals that use rice and potatoes rather than bread and pasta, that sort of thing.
Most of the people I know who are underweight, gain a little weight going gluten-free. Most people I've met who are overweight, lose a little on gluten-free.
I'm afraid that his not wanting to give up foods and not wanting to feel out of place may be the one of the big issues, but...was his doctor very clear on exactly what may happen if he continues eating gluten?
The discomfort is not a big deal. What can happen because of the nutritional deficiencies is a HUGE problem. Cancer, other auto-immune diseases developing (diabetes, hypothyroidism, for ex), organ damage, bone and skin problems. The list just goes on and on.
My father was undiagnosed, and then his body kind of hit the wall, as it were, and everything just imploded. In the span of 5 years, he went from a seemingly healthy, athletic man to one who had both hips replaced, most of the discs in his spine herniated, and using a cane before the age of 50. The bottom of his lungs hardened and he has to be on asthma medication, and his heart developed problems so that make him more susceptible to clotting so that he now has to stay on coumadin for the rest of his life.
Really, the problems of NOT going gluten free will lead to a much shorter lifespan, and usually a more painful set of later years as well. Hopefully knowing that may help him decide that inconvenience is worth not feeling terrible.
Gluten free since August 10, 2009.
21 years with undiagnosed Celiac Disease
23 years with undiagnosed sulfite sensitivity
25 years with undiagnosed mast cell activation disorder (MCAD)
Daughter: celiac and MCAD positive
Son: gluten intolerant
Father, brother: celiac positive
Posted 09 May 2011 - 06:31 AM
Posted 09 May 2011 - 11:11 AM
misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010
only YOU can prevent forest fires - smokey t. bear
have a nice day
Celiac.com - Celiac Disease Board Moderator
Posted 10 May 2011 - 10:43 AM
Posted 10 May 2011 - 10:55 AM
Tinkyada makes a really good rice pasta and the corn pastas out there I think are even closer tasting to the real thing. There are some Glutino snacks that are really good- they make a chocolate wafer cookie that tastes like a kit kat candy bar. As someone mentioned Udi's makes the best bread -my kids can't tell the difference except the slices are smaller. They will be selling hamburger and hot dog rolls starting this month-that is something I have not found a good substitution for yet but if they are anything like their bread they sould be yummy! Can't wait.
My husband was just diagnosed with Celiacs today via blood tests and endoscopic biopsy for confirmation. Although he suffers many of the uncomfortable symptoms of the disease, he does not want to give up certain foods and does not want to feel out of place at restaurants or when dining out. I am more than happy to go gluten-free with him and I would love to get rid of all of the wheat products in the house, but he is non-responsive to any of these ideas. Does anyone have any idea's on how I can ease him into eating gluten free? Is there any way to make this diagnosis less depressing? My husband has not lost weight, but has been underweight for most of his life without knowing why until now, if he goes gluten free will he put any weight on? What are some of the delicious gluten free products people have found? Thanks in advance for everyones help.
Posted 10 May 2011 - 05:22 PM
Ancient Harvest pasta has gotten general approval from everyone I've fed it to.
Corn and beans are also easy to sub in. I do a lot of lentil/bean dishes for complex carbs.
2/2010 Malabsorption becomes dramatically noticable
3/2010 Negative IgA EMA; negative IgA TTG
4/2010 Negative biopsy
5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)
5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.
Now, what to do about my cookbook in progress? Make it gluten-free?
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