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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

How Long Until Gluten Leaves The System?
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10 posts in this topic

Dietary FAQ:

I heard that dairy peptides (from casein) leave the body in about 2-4 days and that

gluten takes much longer. How long does it take to eliminate gluten from the system, or at least bring it down to an acceptable level? Is it possible that gluten might never leave the body completely?

We don't know the answer to this. In a study by Paul Shattock, researchers found a 22% reduction in 5 months in children (average age 9). Peptides may leave the body more rapidly in little children because they have accumulated less - they tend to have worse withdrawal symptoms (more vicious but shorter duration).

In Celiac Disease there were still antibody/gliadin complexes found in the body some 7 years after going gluten free, so it is possible that some of the peptides may not leave the body completely.

http://www.autismndi.com/faq/display.asp?c...=20040922164282

I noticed this in the FAQ section of the Autism Network for Dietary Intervention while I was looking for a gluten/dairy free protein bar. Does anyone know if this is true?? Am I going to be tired for SEVEN YEARS?? :( Oh man..! I don't even think I *could* go seven years without an accident! Geez!!! I'm kinda freaked out by this concept! :blink:

Besides that - anybody tried the ANDI bars? :P

- Michelle :wub:

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Most people get better before 7 years go by so I think you will get better before then as well. I was bummed because I had a gluten accident like a month ago and I found out yesterday my intestines still show inflammation from that!!!!

Are you talking about the ANDI little mint bars? They are soooo good..I'm addicted

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If the people they were testing were completly gluten free, then they may have had untreated celiac disease for a very long time and thus accumulated large amounts of gluten. I think that the longer you've had untreated celiac disaes the longer it will take for you to get better. I've been gluten free for over a year and I'm still not myself.

I was bummed because I had a gluten accident like a month ago and I found out yesterday my intestines still show inflammation from that!!!!
oh no :( it's crazy to think that it takes over a moth for the intestines to heal after a gluten accident. I guess that proves that gluten accidents do cause damage. Hope you are feeling better soon.
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I've been gluten free for over a year and I'm still not myself.

My problem I think is I dunno what it is to be "myself" and better.... somedays I wonder if I am expectng too much..... :(

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I get that. I don't know what my real self is, either. I just got some lab tests back yesterday, comprehensive metabolic panel, and I am low on two things now - when I read up on them they both say not a really big deal but probably indicate malnutrition. Hmmm. BTW, I was low on alkaline phosphotase (have been below normal on each of the four tests in the last two years now) and I had a drop in my Bun to below normal. Maybe no big deal but it seems to me that if you have abnormal results, they are abnormal for a reason. I have been having nearly constant IBS for the past two months so maybe I am not absorbing food right. I think after the rheumatologist, my next stop may be the GI.

Stephanie

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.

oh no  :(  it's crazy to think that it takes over a moth for the intestines to heal after a gluten accident. I guess that proves that gluten accidents do cause damage. Hope you are feeling better soon.

Thanks, my actual reaction time was about 2 weeks or so and now I feel good but I still have a little damage from that. Just shows that no symptoms doesn't mean no damage because even the little bit I accidentally had inflammed my intestines. Pumping my body with L-Glutamine now. :D

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Hope you feel better soon Kaiti :)

I was recently glutened also (Damn Tropicana!) and am still feeling the effects of it. It's rough. I had a *lot* of it - and I think I've done a good deal of damage :( I'm hitting the glutamine pretty hard too ;)

I often wonder what I'm really like.. I mean, I just learned about this celiac disease a couple months ago and (even though I've tried) I've made mistakes & don't think I've healed all that much. I wish there was a gluten-free island that I could go to just so I'd be safe. I'd be on the next flight there and stay for a year - just to see who I am :) I vaguely remember a time when I was a little tiny girl - I was hopelessly fascinated by everything, had a beautifully clear mind, felt like giggling all the time, and was so very happy. I embraced and absolutely loved life & people. I like to think that's who I am, buried under this celiac disease. I'm excited to find out - and terribly frustrated when I have a setback. But that's my hope - I want to bring that sparkling little girl out again :)

- Michelle :wub:

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I am so confused by this disease!!! I was diagnoised with Celiac about 3 months ago. My doctor told me that if I see a sadwitch and dont mind being sick to just eat it then. When they first told me I tested positive he also told me "frankly I dont know much about the disease...really no one does." I dont know what to do! I slip up alot with eating wheat and gluten I mean it is in everything!!! So much so that I was thinking of buying stockin it....obviously it is a well used product.

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I am so confused by this disease!!! I was diagnoised with Celiac about 3 months ago. My doctor told me that if I see a sadwitch and dont mind being sick to just eat it then. When they first told me I tested positive he also told me "frankly I dont know much about the disease...really no one does." I dont know what to do! I slip up alot with eating wheat and gluten I mean it is in everything!!! So much so that I was thinking of buying stockin it....obviously it is a well used product.

<{POST_SNAPBACK}>

Whoa Janelson!

Calm down ;) I've read a few of your posts and I understand a lot of what you've been through. I found out (according to the blood tests) that I had celiac disease the day before my first final - then I had the biopsy *during* finals! I was in "gluten-challenge" mode and almost lost my mind. Probably cried more during those couple weeks than any other time in my life. I'm so sorry that your doctor is a punk, but don't worry :) You have found the best source on the planet for learning how to be gluten-free :) You are also among the kindest, most generous, and most knowledgeable people who know exactly what you are going through and really want to help you :) Don't sweat it. If you wonder about anything, use the search function (either in the site or on the forum) and you will find an answer. If that doesn't work, simply post and ask - someone is bound to come to your rescue quickly ;) I know that *I* have been rescued quite frequently here ;) And my diagnosis was probably right about the same time you received yours. If you are intelligent enough to go to college, you are intelligent enough to figure this out. It is not the end of the world.

It sucks - and in the beginning (when you are trying to figure things out) - it sucks *bad*. If you don't believe that I understand, go look at some of my first posts. I was a wreck. And (besides my boyfriend) outside of this forum I have no support system - my family is the absolute worst. But, I've gone to a few GIG (Gluten Intolerance Group) meetings and met a few people (locally) who I've met with once or twice - and it has been wonderful. Look up the GIG and see if there's one in your area. A local source of info will help you to find local restaurants and places to shop.

You are right - gluten *is* in everything - everything that you USED TO eat ;) Now your world is open to discovering all sorts of gluten-free stuff :) There are still a ton of foods you can have! Swedish fish, Mission corn tortillas, Reeses Peanut Butter Cups, Fruits, Vegetables, Cheeses, Meats... etc! The first thing you should do is get the gluten-free list from delphi forums - just so that you can see (all 89 pages) that there are a *lot* of options for you. Also, print up the articles of things you can & cannot have: http://www.celiac.com/st_main.html?p_catid...-12105046052.c1

Above all - start paying attention & reading labels! You will be fine, but don't set yourself up for failure by not reading the label first of every single food you buy or eat.

Hang in there ;) It's not so bad :)

- Michelle :wub:

p.s. It might be in your best interest to take another semester off if you feel like you need more time to adjust to the diet & everything else involved with being gluten free. I was so glad that summer came & I was able to take it off. I've got another month to adjust before school starts, but I've had more "experience" now - you might consider allowing yourself some time to just take care of *you* and not worry about school.

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Hope you feel better soon Kaiti :) 

I was recently glutened also (Damn Tropicana!) and am still feeling the effects of it.  It's rough.  I had a *lot* of it - and I think I've done a good deal of damage :(  I'm hitting the glutamine pretty hard too ;) 

I often wonder what I'm really like..  I mean, I just learned about this celiac disease a couple months ago and (even though I've tried) I've made mistakes & don't think I've healed all that much.  I wish there was a gluten-free island that I could go to just so I'd be safe.  I'd be on the next flight there and stay for a year - just to see who I am :)  I vaguely remember a time when I was a little tiny girl - I was hopelessly fascinated by everything, had a beautifully clear mind, felt like giggling all the time, and was so very happy.  I embraced and absolutely loved life & people.  I like to think that's who I am, buried under this celiac disease.  I'm excited to find out - and terribly frustrated when I have a setback.  But that's my hope - I want to bring that sparkling little girl out again :)

- Michelle :wub:

<{POST_SNAPBACK}>

I apologize in advance for this...

Im just sooooooo sick of this dam diet, watching every little stupid thing that goes near my mouth...I got college coming up in 6 weeks and really need to get healthy FAST!! I WISH it was like the old days...

Coffee, Eggs, 4 slices of toast for breakfast

Maybe a quarter pounder with cheese and fries at Mcdonalds on some days.

and maybe a pizza or cheese pepper steak....(a local restaurant had the greatest bread) for dinner...

Never had a problem digesting ANYTHING!!!

And I STILL can taste a quarter pounder with cheese and its been over a decade since I could have one...

Sorry to one and all!! but I just had to say it to some people who truly UNDERSTAND.

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