Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

I'm Putting Aside The Rice Cakes
0

20 posts in this topic

I'm putting aside the rice cakes, cuz of the accidental ingestion last weekend. I called quaker and, they told me there rice cakes are gluten free, plus I'm putting aside the kraft peanut butter. I'm just scared to eat anything and, fall back to step one..I'v just been on the diet for 4 weeks and, my third week was a wreck, and, now I'm back on the diareeha, I'v had for one week about twice daily all I'v done all week was call the 1-800 no's and, question all the companys, can we really trust the sources?? What can I eat, I'm tired and, depressed :( ..

I'm so scared to lose the weight I put on, I'm a very small man.. :(

I need some positive vibes..

0

Share this post


Link to post
Share on other sites


Ads by Google:

Try eating very simply for at least a week or so. Eat only plain rice, veggies, fruit, meat (no deli meat) and perhaps Lundberg rice cereal for breakfast. Then graduate to adding one item back to your diet at a time and only every three or four days. I, too, had a difficult time with the diet at first. Now I've been on the diet for three years and am doing just fine with it, as long as I stay away from restaurants. Also, If you haven't eliminated dairy products, you must do so for at least 6 or 7 weeks. Many of us are very lactose intolerant until our villi begin to function again and this takes time. Then you can add a little dairy back to see if you can tolerate it. Don't get discouraged, this isn't easy but well worth the trouble in the long run to feel well again. It does take a lot of time and effort, so be patient. Shirley

0

Share this post


Link to post
Share on other sites

I've been gluten-free for over 6 months and have never had an easy time with this diet, so I feel your pain. I had the diarrhea return after 5 months on the diet, and it freaked me out and depressed me. I was convinced something terrible was happening, like refractory sprue or worse. But, it stopped after about ten days, and things are normalizing again. Don't let this setback throw you too much, just eat very simply, go off all dairy, and see if you improve within 2 weeks. If not you can always follow up with your GI doc to see what, if anything, is going on, but most likely it was just accidental gluten ingestion. Strip your diet down to meat and rice and fresh vegetables, and anything else easy to digest. If things get bad you can always take an anti-diarrheal from over the counter. In the meantime change the diet a little and wait for good results!

0

Share this post


Link to post
Share on other sites

don't forget that peanut butter may have bread crumbs in it if the the jar is shared with others in your family who are not gluten-free. (this also goes for butter and jellies). I have separate jars with a big "gluten-free only" mark on the top.

0

Share this post


Link to post
Share on other sites

Which Quacker rice cakes did you have problems with?

I use the plain, salt free for sandwhiches and then eat the carmel corn ones for snacks, as well as a honey nut from a different brand I got in Omaha. Just hoping that the caramel onees aren't bad, since they haven't bothered me.

-Kel

0

Share this post


Link to post
Share on other sites




you are trying really hard mario, and that is all you can ask of yourself. keep up the good work, and we are here for you.

Libby

0

Share this post


Link to post
Share on other sites

awww you guys are all loving friends..I'm inviting you all for fruits and, coffee..hehe

Yeah the doc told me to slack of the dairy..but I really love my morning cereals, they give reason to wake up happy. The doc told me it will subside within 10 days, I really have no cramps at all just a little dizzy..boh don't know why, but I still go out and, drive my car and, go shopping. I also realize all the junk people buy in supermarkets no one reads labels. The doc also told me that yogurt I can have and, i eat the yoplait brand with the fruits inside, I'm doing well with that one, I also called yoplait and, they are gluten free. How many of you can tolerate the artaficiel flavors..

I'm living with my mommy and, she doesn't eat peanut butter or, jams so there's no contamination there for me..

Whay peanut butter do you guys eat???? Kraft is gluten free because I called the company but, I still question the maltodextrine thats in there..I'd like to know what starch is put in there...

anyone.. B)

0

Share this post


Link to post
Share on other sites

Mario-

I'm not sure about the Kraft peanut butter, but I know tht JIF and Skippy are gluten-free...now if I could only get certain family members to take notice of the big black "gluten-free" on the lid and sides and stop leaving crumbs, I'd be all set.

Good luck and I hope you're feeling better soon!

0

Share this post


Link to post
Share on other sites

Mario,

I'm a real peanut butter eater and when I was diagnosed I was told not to eat regular peanut butter. I use Smucker's Natural Peanut Butter. The only ingredients are peanuts and salt. I didn't realize how much sugar was in regular peanut butter until I had eaten this for a while. Jif was always my favorite but it tastes so sweet since I've started eating Smucker's. It does have the peanut oil on the top so when it's opened it has to be mixed a bit. Actually I pour about half the oil off because I don't want all the added calories. Hope this is some help to you. I've noticed you've had several replies about peanut butter.

Good luck with your diet. It just takes time. I've been gluten free for three years and a couple of months ago I started having problems again. I'm sure it was something I'd been eating over a period of time that I didn't realize was not gluten free so I just started eliminating things as many have told you to do. It will work if you'll just be patient..............Judy :rolleyes:

0

Share this post


Link to post
Share on other sites

The reason why I asked about the peanut butter is because it is very nutritional for us celiacs, a couple of rice cakes with peanut butter can make a great daily snack or morning breakfast with cereals gluten-free and, orange juice. I love to slice up a banana and, put some on a rice cake with peanut butter..

i decided to stick to the natural brand rice cakes..

0

Share this post


Link to post
Share on other sites

Mario, have you ever tried almond butter? It makes a great alternative to peanut butter, but like the natural peanut butter, it has to be mixed when you open it, since the oil settles on the top, but once it is mixed well (I let my Kitchenaid do the mixing) and you refrigerate it it stays mixed for quite a long time. The same goes for the natural peanut butter. The natural ones are much healthier than the processes ones that are full od hydrogenated oils and sugar. Hang in their Mario. We all experience a little set back occasionally. I thought I was gluten-free this week, but now I am wondering if I got contaminated somewhere since I'm in the bathroon way too often today and last night I had awful gas pains and bloating. :( It just comes with the territory I guess. You might want to go easy on the yogurt for a while. Just to give your system a break while it is recovering. And I found that Blue Diamond Almond Breeze original flavor is a great milk alternative for cereal. It doesn't overpower the flavor of the cereal. By the way, what kind of cereal are you eating??

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Whats up mariann/ first of have you got messenger for chatting..please say you do..

I'm having the corn pops biologique marked gluten free on them, they are the best I'v tried and, are very cheap 2.99$ a box, I eat two boxes a week..I have one yogurt in the morning, I just feel my stomach and, villi growling when I go to bed, starts around one in the morning and, around 3:00am i need to go and, its my first diareeha kind of watery and, also go back again around 6:00am, diareeha again and, then I'm fine the whole day, off course this is still due to the ingestion of gluten last weekend, which was my birthday, but it will subside as I'm keeping a stricked diet.

I was doing great the first three weeks, eating right I had a nice stool(formed), until last weekend---Poof!! Oh well things will get better

I'd really love to chat.. :)

0

Share this post


Link to post
Share on other sites

Sorry, Mario. No messenger yet. I've never had it, so I guess I don't know what I'm missing...

As for the problems you are having. It could be the yogurt. Did you just recently start having it daily? You may want to give it up for about a week and see if it makes a difference. Of course this all could just be the effects of your accident last week, but the fact that is happens at the same time each day makes me think it is linked to something you eat at about the same time each day (like breakfast). If your breakfast is the same everyday, and you also have the "bathroom adventures" at the same time each day, then that might be an association worth investigating.

Anyhow, I hope you are doing better soon.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

I slept a great night, not once did i go to the bathroom, altho i went this morning and, the stool is reforming, no growling inside all night, i did cut the rive cakes, i did'nt have any yesterday, i bought a new brand from the natural section at lowblaws market store, i haven't tried them yet..I will wait for a while, i also bought the natural peanut butter, i shall wait for that too..I have a celiac party April 15 everyone there will be celiacs and, i will have lots to say..hopefully i'll make a girlfriend.. :lol: you can download messenger, its free and, fun..

let me know..

0

Share this post


Link to post
Share on other sites

where is your celiac party mario? sounds fun.

good luck finding a sensitive-tummied sweetie. you can cuddle and listen to your bellies growl at each other. :rolleyes:

0

Share this post


Link to post
Share on other sites

The celiac party is at the hilton near the airport in Montreal, it is 25$ cost and, we will all eat gluten free and, party and, dance..and, there is a marathon in May..

please guys have you got messenger i really need friends thet understand celiac and, love to chat..

mariocaluori@hotmail.com

0

Share this post


Link to post
Share on other sites

Mario>

What rice cakes did you have problems with?

Peanut Butter> Talk about someone who's addicted to the stuff, lol *points to self* Since I hvae to give up Reese's (milk in the chocolate :(.), I just use the Skippy Honey Nut. It's yummy, it's safe, and I"m the only one in the house who uses that flavour!

Question at large> Today for dinner I had a ham slice, a glass of Cherry Juicy Juicy, and a small bowl of pers. Followed by the horrid pain in my abdomen and then it lodged in my back like my gallbladder used to do. This meal was wheat, glute, and dairy free...help? Mind you, I think my bowels are clean, but that's not the way I like to do it!

-Kel

0

Share this post


Link to post
Share on other sites

heheh thanks libby...see you online..

0

Share this post


Link to post
Share on other sites
What rice cakes did you have problems with?

I think it was the quaker ones..yup, then again I called the company and, they told me they where gluten free..

0

Share this post


Link to post
Share on other sites

Kel,

It may have been the ham. Not all are gluten-free. Or the nitrates if it has any(they are gluten-free, but bother some people). Or it could have been just too much fruit. For a while I was not able to digest fruit without the aid of digestive enzymes. Are you sure the juice was gluten-free? Amazingly enough not all juices are. I just can't believe some of the things they put gluten in. It is also possible that it was not a gluten reaction at all, but another food allergy or intolerance. I don't know what else to say, other than I hope you feel better soon. :(

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,404
    • Total Posts
      917,640
  • Topics

  • Posts

    • celiac disease is psychosomatic
      ...and CoQ10 deficiencies can occur in those taking statin drugs.  Really important to monitor that if you are on statins.
    • Starting out
      I guess you must have to be a member then. I don't know because I am a member. It doesn't cost anything & I've never gotten any junk mail from them or anything unpleasant.  Gee, I didn't even think about that when I posted the link. OOPS! Let me know if you need me to copy & paste it because I will if you want.  
    • Starting out
      Hey, do you have to be a member of Medscape to see the article?  I could not get in pass the sign-in page.  
    • Starting out
      Ugh!  Run from that doctor.  Are you located on Mars?  Kidding aside, here's the deal.  If you go gluten free just to test it out and you feel good, then you might think you have a gluten issue.   A few months or a year go by and you realize that this is HARD.  REALLY HARD.  So, you start to cheat.  You get sloppy.  You start sharing a toaster.  Your symptoms come back, but you don't worry about it or maybe you start to get violently ill.  Symptoms so different from your old symptoms that you think you must have something else.  (You could be the type of person who makes a decision and sticks with it.  But those are rare folks.)   I could go on with more stories, but type in lymphoma in our forum's search box.  Look at member's who were misdirected by their physicians and who have had celiac disease all along.  Now they are dealing with cancer.   It is not my intent to scare you into thinking you have cancer.  The odds of you having it are slim and none.  I am trying to scare you into finding another doctor who really CARES about you and follows a normal standard level of care (like reading currant medical journals or checking Dr. Google, like my ER neighbor doctor does because he can not know everything!) It's just a simple blood test.  So easy.  If negative, then give the diet a try!
    • "Celiac disease prevents absorption of iron"
      Well, you are no longer anemic, so that's great!  As long as you are healed, you should be able to absorb iron easily.   Of course, there could be other issues that would prevent you from absorbing iron as villi damage can occur from many things other than celiac disease.   Want to know for sure where you stand?  Ask your doctor to check your iron and iron store levels the next time you have a physical.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,535
    • Most Online
      1,763

    Newest Member
    Sullyn
    Joined