Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Why Am I Allergic To Everything?
0

10 posts in this topic

It took me nearly 15 minutes to get off the floor to type this out. Everything I touch, eat, drink makes me sicker and sicker. I can go from feeling fine and energetic when I don't eat to literally crying in pain, unable to walk, collapsing on the floor because my muscles ache so much, everything feels massively inflammed, muscle weakness so bad that I can barely lift my arm.

Every diet recommends Fish, Eggs, or all this other food that I can't tolerate. I'm pretty sure it was less than 3 fish oil capsules that did this to me.

These extra foods aren't intolerances because I don't get any gastroinestinal symptoms from anything but gluten. I don't think they are allergies because I've never seen "massive inflammation, muscle weakness, fatigue" to the point where it's crippling as a symptom of a food allergy listed anywhere.

I'm having a hard time finishing any of the diets when most of these "recommended" foods make me feel like I'm dying. Fish. Eggs. Nuts. Avacados. Grapes. Then there's grains and dairy, which I KNOW I react to because I have gastroinestinal symptoms and confirmed celiac etc. but even though they make me feel bad, they don't make me feel NEARLY as fatigued/poorly as fish, eggs, nuts and the other foods do.

Except it's not just food but it's medication too. I'm only 25 and I have celiac disease, sjogrens, chronic prostatitis (probably inflammation related), low testosterone (I get test flu after every injection from the benzyl alcohol?, I can't even take hydrocortisone without it making me pass out for hours. It's made me discontinue every medication except the testosterone. I couldn't even tolerate androgel.

EVERYTHING I touch makes me feel run down. Literally, the only thing that I feel comfortable eating is chicken and olive oil.

Fish is the worst for me, and it's a staple food where I'm from. I grew up on seafood and now literally any bit of it will make me feel like I've lost a ton of blood pressure, and literally make me sit in bed for days unable to move - almost in a dream like state. When I'm like that, it literally feels like it takes more energy and willpower to pick up my arm than it does to benchpress 100 lbs on a good day. Literally, picking up my arm when I feel like that feels like they have 50lb weights attached to them.

My life has been in a see-saw. I'll feel bad, then some days REALLY bad, then some days AMAZINGLY good. Albeit the bad days are far, far more common the good ones. But I don't know. I'm lost... maybe I'd be better off if I let the Dr. put me on a ton of prednisone.

I'm losing faith fast and I need some encouragement and I'm finding it increasingly difficult to follow a restrictive diet when most days I can barely get out of bed and most of the recommended foods cause me to feel worse than when I've been glutened... Sorry for the rant, I just really needed to vent.

Friends and family members aren't really willing to help because I put on a good enough "show" that they think I'm healthy, especially since I usually only leave my house on the days I feel well.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I know how you feel. How long have you been off gluten? Intuitively I think that one of the biggest things you can do to help yourself is to calm down. I know it is really hard to do that but if when your immune system has been tripping for so long because of gluten it becomes hypersensitized to everything. Do you meditate or do deep breathing? When your mind is constantly afraid of everything that you are eating your body will "react" to it because you expect a reaction. Look into rotation diets. These make sure you don't eat the same foods more often than every 4 days. Listen to your body over the doctors. Use sea salt with your meals. It will help your adrenals/blood pressure. Let me know if you have any questions.

-Joe

0

Share this post


Link to post
Share on other sites

I have seen lots of fish oil capsules that are NOT gluten free. I would not go NEAR a fish oil capsule because the supplement and pharma industry is always changing ingredients, and the second you find what is supposed to be a reputable brand, somebody sells the company to the competitor, and the label changes, the ingredients change, and it is screwed up.

Rule: don't eat anything that makes you feel bad, even if recommended. I am on the high end of can eat most things except gluten. If I make a list of suggestions, it is for people to pick and chose from, Not An Edict.

Sometimes people type out their diets and they are eating hardly anything, because they just grew up that way and now are wondering how do the breadless cope? I'm meanwhile looking at their lists, and wondering how does one eat that and live, as it will have no fat and no vegetables or fruit.

Secondly, has anyone tested you for Lyme disease ?

And how about auto immune thyroid, not just thyroid levels ?

Third, make sure whatever a medical professional puts in you is Gluten Free, No exceptions. There are always alternative applications. Eating or getting glutened is going to fool you into thinking it is everything else making you feel awful, whether or not it is.

Forth, the feeling better when you don't eat phase- yeah, that's classic with the auto immune stuff like the sjogrens and the arthritis, until you get the diet lined out on what you can and cannot eat. Run like the wolves. Then crash like one. You see dogs sleeping 18 hours a day. There's a reason for that. ;)

If you really want to feel crappy, go on prednisone for a bit, then taper off carefully.... and a week later, you will feel like **** anyway. This is because steroids suppress your remaining natural hormones while you take them. Steroids are a godsend for emergencies ( I had poison oak all over my face nearly 3 years ago, including my eyelids, plus other areas) but after 2 short rounds of that to knock it back, it took me months to recover. I didn't really have a choice but what can you do. The funny part was at least my joints did not bother me while I was laid flat out for so long, also in a antihistamine and calamine lotion haze. But something changed in my metabolism that round, and I don't like it. On the other hand, I'm still BETTER than I was 10 years ago. B)

0

Share this post


Link to post
Share on other sites

I've been gluten free for over two years. All my gastroinestinal symptoms resolve immediately after going gluten free, and return (along with DH) everytime I'm glutened. I know when I'm glutened and these reactions that I have to these foods are definitely not the same reactions that I get when I'm glutened.

A reaction to gluten can take 3-14 days to resolve, sometimes longer for the DH to disappear.

The reactions I have to these foods last about 6-24 hours, maybe a tad longer, but instead of having any gastroinestinal issues, as I would with gluten, I instead get MASSIVE fatigue, inability to think, crushing weakness, and literally it feels like the blood is draining out of my body.

0

Share this post


Link to post
Share on other sites

Sorry to hear that. I have Fibromyalgia so I know what it is like to be in pain all the time. Just got over another flare and honestly don't know what triggered it. I do know I have to be careful not to overdo things. Perhaps that is what I did. It doesn't seem to take much.

0

Share this post


Link to post
Share on other sites




Sorry to hear that. I have Fibromyalgia so I know what it is like to be in pain all the time. Just got over another flare and honestly don't know what triggered it. I do know I have to be careful not to overdo things. Perhaps that is what I did. It doesn't seem to take much.

I just don't understand why I'm the only person here that reacts this way to food?

It's not like a generally feeling of malaise, it's literally being zombified after eating something that I react to. It may be a combination of anaphylaxis (cause of low blood pressure) mixed with my general fatigue to produce a double whammy effect? I don't know.

That or my pituitary is being attacked and my body can't supply enough cortisol when I'm being "stressed" by introducing an allergen and I'm getting massive fatigue from very low levels of cortisol? That would explain the weakness but not the muscle aches?

0

Share this post


Link to post
Share on other sites

I just don't understand why I'm the only person here that reacts this way to food?

It's not like a generally feeling of malaise, it's literally being zombified after eating something that I react to. It may be a combination of anaphylaxis (cause of low blood pressure) mixed with my general fatigue to produce a double whammy effect? I don't know.

That or my pituitary is being attacked and my body can't supply enough cortisol when I'm being "stressed" by introducing an allergen and I'm getting massive fatigue from very low levels of cortisol? That would explain the weakness but not the muscle aches?

Sorry, I just don't know the answer.

0

Share this post


Link to post
Share on other sites

Okay, I know this is going to sound like a pretty dumb question under the circumstances, woolygimp, but who is recommending these diets for you and why? Have you tried going back to just a very basic diet of say, lamb, rice steamed veggies (I would recommend root but not potato), olive oil, and then adding in just one food at a time once you have stabilized?

0

Share this post


Link to post
Share on other sites

I Know EXACTLY how you feel. I have yet to have met someone like me until now. I want you to know it can get better.. Much Much better. I promise. I am not only allergic to Gluten.. I am allergic to much more. The worst one that gives me pain all over my body is the Weigh. I am also allergic to bakers yeast. I am Allergic to many fruits and veggies as well. I did not know what I was allergic to until I went to a holistic Doctor. I got the tests back that told me everything I was allergic to. Everything Dairy.. I am allergic to rice of any kind. Corn. Corn meal... I can basically only eat meats and some veggies. But you know what?? I have never felt better since I cut it all out. Another thing I think you might want to ask your doctor is for a Candida test. It is a yeast infection in your intestines. It causes all those symptoms as well. I also have that because I had no Idea I was allergic to wheat. That's what caused it. I was eating and eating it . Now I am getting balanced out. You can to. Unfortunately a regular doctor can not perform these types of tests. Only a Holistic doctor can. I am not going to Lie. Insurance does not cover it. It costed about 2 grand to get the tests and correct treatment. BUT IT IS WORTH IT. I hope this helped you hun. I do not wish anyone to feel like I did. But there is hope..

0

Share this post


Link to post
Share on other sites

Welcome to the board, FlebbyDebby. Did you notice that this post is about 18 months old? I have not seen Woolygimp around for a while so I hope she is feeling better.:)

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,345
    • Total Posts
      920,488
  • Topics

  • Posts

    • Karen, the iodine test was a test for DH used in the 'olden' days. Iodine would be swabbed onto a spot and then it would be covered with a bandage. If someone had DH the iodined area would break out in lesions. I don't know how but we do know iodine can activate the antibodies. That is why some of us with DH have to avoid iodine in foods until the antibodies have cleared the dermis. OP, if you haven't been tested for celiac you should be and if you have active lesions a biopsy done next to a lesion by a DH knowledgable dermatologist may help in diagnosis.
    • The gluten-free diet (GFD) is the only validated treatment for celiac disease (celiac disease), but despite strict adherence, complete mucosal recovery is rarely ... View the full article
    • What's an " iodine test"?  Haven't heard doctors doing that to diagnose DH.
    • Hello! I've just been given my blood results and told they are highly suggestive of coeliacs but will have to wait till next month to see the gastroenterologist and who knows how much longer for a biopsy. My igA, igG and tissuetrans igA were all over 250 and tissuetrans igG was the only one that was normal. These results don't mean much to me yet but I'm told they are very high. I'm now quite fearful of how much damage I've gone to myself. I've had stomach problems for 25 years (just turned 40) and have often steered clear of too much bread and pasta for how bloated it made me feel but the symptoms were always vague and inconsistent so I kept eating. I had a couple of boats of gastro in the past few months (thanks kids) which I took a lot longer than normal to recover from which looking back may have been related. Then last Friday I had a blowout with wine, cheese, crackers, pizza and chocolate cake. I'm sure I've probably had blowouts like that before but I have never felt so sick before and am still slowly recovering. This is what finally prompted me to go back to my GP after being fobbed off so many times over the years. So I guess my question and my concern is whether there is still  chance of a false positive with levels like this? I worry what else it might be if not coeliac. I'm also worried that I may have done so much damage to myself that I will have several disorders going on! I'm also still recovering from last Friday and wondering when I'm going to feel better. I've stayed off gluten and dairy since my blood result a couple of days ago but feel like I'm allergic to food in general.  Thankyou!!    
    • Here's what the Klondike Bar makers say on the FAQ page of their website (August 2016): Are your products gluten free? Nope. They are not. We have not validated for gluten free. We do not operate allergen-free manufacturing sites, however we do have allergen management programs in all our facilities. The intent of these programs is to avoid unintentional cross-contamination of allergens between products. Our product labels adhere to the FDA’s strict regulations regarding declaration of ingredients and allergens. We do not use the terms “Natural” or “Artificial Flavorings” to hide the existence of any allergens. RECIPES CAN CHANGE. We strongly recommend that allergic consumers refer to ingredient declarations EVERY TIME they purchase processed foods.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined