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Allergic To Everything. Help! What Can I Eat? Anyone Else Like This?


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#1 MargoS

 
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Posted 06 May 2011 - 02:08 PM

Just when I thought I was getting the hang of being gluten free, my nautropath got results from BioTek's ELISA IgG food testing for some 100 foods. It broke my heart when she came in and announced that I had "major digestive problems." I'm a vegetarian, but now I have no idea of what to eat. Listed as very high reacting foods, includes virtually all fruits and vegetables (except for strawberry, blueberry and plum for fruits; and beet, garlic, mushroom and spinach for vegetatbles). All forms of dairy were high. Corn, of course all wheats and glutens high. Only safe nuts for me are sunflower and peanut and soy was marginal. Grains are all high except for amaranth. Eggs were very high. Sugar high. Yeast very high. For goodness sakes- the only things that were low were meats and seafoods! The vegetables kill me. That's what I eat most of. Am I just suppose to eat salmon the rest of my life? (It was THE lowest allergen tested).

This must be leaky gut, and I must have to go on a rottation diet. But my goodness. Anyone else out there have so many other intolerances? How to you handles it? How do you heal the leaky gut?

Thanks for your help. I am really, really depressed by this...
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Vegetarian since 1993; 12/31/2010 Sudden onset sensitivity to gluten
TTG Antibody, IGA >100
Gliadin Antibody (IGG) 31
Gliadin Antibody (IGA) >100
Endomysial AB(IGA) 1:320
HLA-DQ2 Positive
HLA-DQA1* 02
HLA-DQA1* 05
HLA-DQB1* 0201
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#2 jststric

 
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Posted 06 May 2011 - 04:26 PM

Bless your heart! At least you got your results officially. I had to come up with mine on my own. I Am gluten , dairy, nut, rice and bean intolerant. Dont fit into vegetarian diets OR vegans really. You will find your way, I promise. You will have to READ, READ, READ labels. I have one recommendation.....Sunbutter spread. It's so much like peanut butter only made if sunflower seeds. It's a new find for me. Spend time at a sore or health food store just getting acquainted with products. Subscribe to blogs and magazine such a Living Without. Again....READ and ask lots of questions. I learned ALOT reading others' questions in this forum. You will begin to find your way, I promise.
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#3 Cypressmyst

 
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Posted 06 May 2011 - 06:21 PM

Yes. I am allergic to everything I eat now because my list has been widdled down over the years. My only hope is to heal up my gut which I am working on doing with my doctor. I had bacterial infections and parasites that needed to be taken care of and of course antibiotics cause leaky gut so until they are gone I can't even really start. :(

It is very depressing, but my doc sees a light at the end of the tunnel for me so that keeps me going. Until then I just avoid the foods that cause the biggest acute reactions. I think I'm down to 15 things that I can eat now.

*Hugs
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#4 sb2178

 
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Posted 06 May 2011 - 07:14 PM

My list was not that bad, and I've been able to reintroduce things.

Suggestions:
1) probiotics
2) good vitamin support
3) l-glutamine
4) test before really crossing them off as some items are cross-reactive with environmental allergens like ragweed (I only had symptoms from the very highest scoring items)

Rotate the lowest items, and then gradually re-introduce less allergenic items. I could eat eggs after about one month (limited them for a while), peanut butter again after about 6 months, and dairy (still limited) after 8-9 months. Yeast I find easy to avoid, as I don't bake yeasted items often or buy much in the way of bread.

I would play around with vegetables and fruits. You may not actually react to all of them.
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2/2010 Malabsorption becomes dramatically noticable
3/2010 Negative IgA EMA; negative IgA TTG
4/2010 Negative biopsy
5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)
5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

#5 eatmeat4good

 
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Posted 06 May 2011 - 08:52 PM

Yeah, it is really really hard to realize that fruits and vegetables can make you sick.
My problem is the salicylic acid content. I eat mostly meat, chicken and only a little bit of rice or else I have a problem. I felt my absolute best on a meat and water diet....but I keep hoping to eat more and keep trying to introduce foods but end up not feeling well. It is depressing, I know how you feel. But I decided that I wanna feel better even if I get down to only one food I can eat. Hang in there.
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Healing is a matter of time, but it is sometimes also a matter of opportunity.
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#6 a1956chill

 
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Posted 07 May 2011 - 03:12 AM

I was vegan for most of my adult life.For awhile when my gut was first starting to heal meat was just about the only thing my body tolerated .
Since healing a bit I have been able to add back some fruits and veggies. My body does NOT tolerate most grains (in addition to gluten) .I have found lately I can tolerate a limited amount of corn in pure form (not HFCS )I am currently experimenting with adding back some legumes ( not soy) in the hope that I can reduce the amount of meat I eat.
It is really tough when first starting out but as you heal it does get easier.Give you body the time and sustenance it needs to heal.
((Hugs))
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#7 MargoS

 
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Posted 07 May 2011 - 06:09 AM

Bless your heart! At least you got your results officially. I had to come up with mine on my own. I Am gluten , dairy, nut, rice and bean intolerant. Dont fit into vegetarian diets OR vegans really. You will find your way, I promise. You will have to READ, READ, READ labels. I have one recommendation.....Sunbutter spread. It's so much like peanut butter only made if sunflower seeds. It's a new find for me. Spend time at a sore or health food store just getting acquainted with products. Subscribe to blogs and magazine such a Living Without. Again....READ and ask lots of questions. I learned ALOT reading others' questions in this forum. You will begin to find your way, I promise.


Thanks Jstric, Thanks for the suggestion on Sunbutter-I will try some. Its good to know there is a way around this. Cheers!
  • 0
Vegetarian since 1993; 12/31/2010 Sudden onset sensitivity to gluten
TTG Antibody, IGA >100
Gliadin Antibody (IGG) 31
Gliadin Antibody (IGA) >100
Endomysial AB(IGA) 1:320
HLA-DQ2 Positive
HLA-DQA1* 02
HLA-DQA1* 05
HLA-DQB1* 0201
HLA-DQB1* 0202

#8 MargoS

 
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Posted 07 May 2011 - 06:14 AM

Yes. I am allergic to everything I eat now because my list has been widdled down over the years. My only hope is to heal up my gut which I am working on doing with my doctor. I had bacterial infections and parasites that needed to be taken care of and of course antibiotics cause leaky gut so until they are gone I can't even really start. :(

It is very depressing, but my doc sees a light at the end of the tunnel for me so that keeps me going. Until then I just avoid the foods that cause the biggest acute reactions. I think I'm down to 15 things that I can eat now.

*Hugs

Hi Cypressmyst,
My doctor suggested getting tested for the same things- parasites, bacterial overgrowth, yeast, etc. We'll get results back in a few weeks. Half of me hopes its one of those things so we "know" what is causing this and can treat it. The other half of me dreads any more bad news..."You now have this!" and have to treat it with antibiotics, etc. My doc is a Naturopath so she already mentioned some herbal treatments. She said it depends on how bad it is (if it is positive for one of these things) whether we can use natural herbal remedies or go for aggressive antibiotics.

For you-when did you find out and how long of a treatment have you been/will you be on?

What are your 15 good foods? Good luck and keep me posted!
  • 0
Vegetarian since 1993; 12/31/2010 Sudden onset sensitivity to gluten
TTG Antibody, IGA >100
Gliadin Antibody (IGG) 31
Gliadin Antibody (IGA) >100
Endomysial AB(IGA) 1:320
HLA-DQ2 Positive
HLA-DQA1* 02
HLA-DQA1* 05
HLA-DQB1* 0201
HLA-DQB1* 0202

#9 MargoS

 
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Posted 07 May 2011 - 06:19 AM

My list was not that bad, and I've been able to reintroduce things.

4) test before really crossing them off as some items are cross-reactive with environmental allergens like ragweed (I only had symptoms from the very highest scoring items)

Rotate the lowest items, and then gradually re-introduce less allergenic items. I could eat eggs after about one month (limited them for a while), peanut butter again after about 6 months, and dairy (still limited) after 8-9 months. Yeast I find easy to avoid, as I don't bake yeasted items often or buy much in the way of bread.

I would play around with vegetables and fruits. You may not actually react to all of them.

Hi sb2178,
Thanks- sounds like good suggestions. I actually don't think that I react to many of the foods listed-including fruits and veggies. Maybe I am just not noticing things yet? The only for sure, absolute reactions are wheat/gluten; and I suspect all other grains (except rice, I think is okay). Corn is suspect. If I don't have reactions, do you think that because I have leaky gut, anything getting through into my bloodstream is causing IgG to build up? Nevertheless, I will stop all the high allergens for now and rotate the lowest...thanks for your advice.
  • 0
Vegetarian since 1993; 12/31/2010 Sudden onset sensitivity to gluten
TTG Antibody, IGA >100
Gliadin Antibody (IGG) 31
Gliadin Antibody (IGA) >100
Endomysial AB(IGA) 1:320
HLA-DQ2 Positive
HLA-DQA1* 02
HLA-DQA1* 05
HLA-DQB1* 0201
HLA-DQB1* 0202

#10 MargoS

 
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Posted 07 May 2011 - 06:22 AM

Yeah, it is really really hard to realize that fruits and vegetables can make you sick.
My problem is the salicylic acid content. I eat mostly meat, chicken and only a little bit of rice or else I have a problem. I felt my absolute best on a meat and water diet....but I keep hoping to eat more and keep trying to introduce foods but end up not feeling well. It is depressing, I know how you feel. But I decided that I wanna feel better even if I get down to only one food I can eat. Hang in there.


Eatmeat4good,
That's amazing. I was thinking I would go down that road. Tough for me, being vegetarian (pesco/lacto/ovo)-so looks like I will be eating a lot of seafood. It's really amazing to me that certain foods are safe havens, and that meats are one of them. What does that say about human evolution and adapation? Thanks for your help.
  • 0
Vegetarian since 1993; 12/31/2010 Sudden onset sensitivity to gluten
TTG Antibody, IGA >100
Gliadin Antibody (IGG) 31
Gliadin Antibody (IGA) >100
Endomysial AB(IGA) 1:320
HLA-DQ2 Positive
HLA-DQA1* 02
HLA-DQA1* 05
HLA-DQB1* 0201
HLA-DQB1* 0202

#11 MargoS

 
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Posted 07 May 2011 - 06:26 AM

I was vegan for most of my adult life.For awhile when my gut was first starting to heal meat was just about the only thing my body tolerated .
Since healing a bit I have been able to add back some fruits and veggies. My body does NOT tolerate most grains (in addition to gluten) .I have found lately I can tolerate a limited amount of corn in pure form (not HFCS )I am currently experimenting with adding back some legumes ( not soy) in the hope that I can reduce the amount of meat I eat.
It is really tough when first starting out but as you heal it does get easier.Give you body the time and sustenance it needs to heal.
((Hugs))

Hi a1956chill,
It's so nice to hear from a fellow/former vegan. It must have been tough for you. My husband said last night that he would understand if I needed to start eating meat again. I told him I think I can do it with seafood. We'll see....I am so thankful salmon was okay (the lowest on my list) as its such a healthy protein. I am just worried I will overdo it if that is all I eat...

So what happens to you when you eat rice? That is the one grain I just don't want to go without. (I will, if I hav too....). For me, I'm not really getting any symptoms from rice or the majority of other foods listed as "allergic"- wheat/gluten, and I suspect all other grains are ad-and I think (boo hoo) corn as well. Thanks for your help and encouragement!
  • 0
Vegetarian since 1993; 12/31/2010 Sudden onset sensitivity to gluten
TTG Antibody, IGA >100
Gliadin Antibody (IGG) 31
Gliadin Antibody (IGA) >100
Endomysial AB(IGA) 1:320
HLA-DQ2 Positive
HLA-DQA1* 02
HLA-DQA1* 05
HLA-DQB1* 0201
HLA-DQB1* 0202

#12 11475

 
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Posted 07 May 2011 - 02:25 PM

Sorry to hear you're dealing with this. I am fairly similar. My 'safe' foods number about 10, and the only one of them I actually 'like' is sea salt. But, hopefully things will get better for all of us.

Just wanted to say - (and someone else has mentioned salicylic acid), look into salicylates, amines, and even glutamates. Also have a look at fructose malabsorption. (There is information (good and bad - you just have to search!) on the internet, or you could talk with your health care providers about this.) This may help you to further identify why some foods are making you sick.

Good luck to you!! (And to the other posters who are struggling with having so few foods. It is tough, isn't it. But - there is always hope.)
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#13 a1956chill

 
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Posted 07 May 2011 - 03:14 PM

salmon was okay (the lowest on my list) as its such a healthy protein. I am just worried I will overdo it if that is all I eat...

So what happens to you when you eat rice?

I have depended on rice since going gluten free.I depended on rice during my elimination diet. There were months that just about all I could eat was meat and rice.I believe that is why my body now reacts to rice.I feel that a rotation diet works best for me now . The hard part is having enough safe foods to rotate :P
As my leaky gut heals I am able to add more foods safely back into my diet .Adding probiotics and digestive enzymes have made a tremendous difference
Hang in there it does get easier. :)
  • 1

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#14 jenngolightly

 
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Posted 10 May 2011 - 02:26 PM

Just when I thought I was getting the hang of being gluten free, my nautropath got results from BioTek's ELISA IgG food testing for some 100 foods. It broke my heart when she came in and announced that I had "major digestive problems." I'm a vegetarian, but now I have no idea of what to eat. Listed as very high reacting foods, includes virtually all fruits and vegetables (except for strawberry, blueberry and plum for fruits; and beet, garlic, mushroom and spinach for vegetatbles). All forms of dairy were high. Corn, of course all wheats and glutens high. Only safe nuts for me are sunflower and peanut and soy was marginal. Grains are all high except for amaranth. Eggs were very high. Sugar high. Yeast very high. For goodness sakes- the only things that were low were meats and seafoods! The vegetables kill me. That's what I eat most of. Am I just suppose to eat salmon the rest of my life? (It was THE lowest allergen tested).

This must be leaky gut, and I must have to go on a rottation diet. But my goodness. Anyone else out there have so many other intolerances? How to you handles it? How do you heal the leaky gut?

Thanks for your help. I am really, really depressed by this...

When I started my restrictive diet, I listed all of the things that I COULD eat and then found ways to mix and match them to make interesting meals. I also found that I grew to like foods that I was previously very picky about. I started eating meat and enjoying it, because I had to eat it. You might find that your tastes change because they have to change. I never thought I'd eat hamburger. But I still can't get near a steak. I compromised. You'll find new foods that you didn't know about, too. Fennel. I'm 41 and I never ate fennel before I had to restrict my diet. Now I love it!
  • 0
Jenn
dx celiac 9/2007: gluten-free 9/2007
corn intolerant: corn-free 5/2010
nut allergy: nut-free 8/2010

#15 Cypressmyst

 
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Posted 13 May 2011 - 11:34 AM

Hi Cypressmyst,
My doctor suggested getting tested for the same things- parasites, bacterial overgrowth, yeast, etc. We'll get results back in a few weeks. Half of me hopes its one of those things so we "know" what is causing this and can treat it. The other half of me dreads any more bad news..."You now have this!" and have to treat it with antibiotics, etc. My doc is a Naturopath so she already mentioned some herbal treatments. She said it depends on how bad it is (if it is positive for one of these things) whether we can use natural herbal remedies or go for aggressive antibiotics.


Yeah we aren't a fan of antibiotics either but you don't mess around with H-pylori. It is heinous to get rid of, round two of antibiotics and I'm not sure it did the job. Next is to call in the tactical nukes. :blink:

I've had to cut out lots of nuts even though they are gluten-free certified. Doc thinks it is a mold issue as my reaction isn't the same as a glutening, I have general inflammation throughout my GI system and my cecum doesn't particularly hurt. It always hurts with glutenings.

So we are switching up my probiotics to try to get more good guys in that can handle the little bits of mold on the nuts. Just goes to show that it may not always be gluten. ;)

For you-when did you find out and how long of a treatment have you been/will you be on?



For parasites I found out in December that I had H-pylori and Vibrio. Did a 2 week Prevpac antibiotic and it killed vibrio but not HP. Only weakened that. Then in March I did another 2 week course of some different antibiotics and I test this week to see if it worked. Hard to tell as my gut still hurts. This could be because of HP or just the left over holes.

The treatment to heal my leaky gut started in December and consists of a bunch of supplements at varying levels and glutagenics powder to help build up my gut. But as I said until the infection is taken care of I can't really heal fully. I'd say it could take a good 6 more months of treatment past getting rid of HP.

I also lived on pizza and Guinness. My poor body. :(

What are your 15 good foods? Good luck and keep me posted!


Lets see:
Chicken, beef, eggs, turkey bacon, salad with herbs, tomatoes, peppers, peas, carrots, celery, blue and blackberries, apples, oranges, pears, dates, black beans, potatoes, lentils, olive oil.

Ok more like 20 not 15. :P I've been getting a bit better as I can have potatoes and lentils now without getting sick. B) That is new this week. Maybe just cutting them out for a while helps?

Thank you for your kind words. I will definitely let this forum and others know my progress. ;) And please you do too! We are all in this together! :)
  • 0
Grain Free
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Refined Sugar Free
Preservative Free
Free Range
Free Willy
Freedom's just another word for nothin' left to lose...

...dang...there goes chocolate... :bawl:




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