Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Hello From Scotland


navigator

Recommended Posts

navigator Apprentice

I was diagnosed yesterday and spending the day on the net trying to absorp as much information as possible. There seems to be so much to learn and it's great being able to benefit from the knowledge of people who've been diagnosed for a while.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I was diagnosed yesterday and spending the day on the net trying to absorp as much information as possible. There seems to be so much to learn and it's great being able to benefit from the knowledge of people who've been diagnosed for a while.

Welcome to the party! :)

Link to comment
Share on other sites
nikki-uk Enthusiast

I was diagnosed yesterday and spending the day on the net trying to absorp as much information as possible. There seems to be so much to learn and it's great being able to benefit from the knowledge of people who've been diagnosed for a while.

Good evening!

Whereabouts in Scotland are you?

There's lots of info to be had here and you're in good company!

Any questions, fire away! smile.gif

Link to comment
Share on other sites
cahill Collaborator

Welcome :)

Link to comment
Share on other sites
navigator Apprentice

Good evening!

Whereabouts in Scotland are you?

There's lots of info to be had here and you're in good company!

Any questions, fire away! smile.gif

I live in Lanark. Can I drink malt whisky?I'd assumed that I couldn't due to ingredients but today someone told me that due to distillation process I can - don't want to drink it unless I've go 100% that it's ok but missing a wee dram of Highland Park!!! I'm sure that over the next few weeks I'llk have many more questions. At Tesco tonight I discovered that, contrary to my expectations, that I couldn't have Hellman's mayonaise, mustard or Lea & Perrins. It's a steep learning curve. This forum is a godsend.

Link to comment
Share on other sites
kareng Grand Master

I live in Lanark. Can I drink malt whisky?I'd assumed that I couldn't due to ingredients but today someone told me that due to distillation process I can - don't want to drink it unless I've go 100% that it's ok but missing a wee dram of Highland Park!!! I'm sure that over the next few weeks I'llk have many more questions. At Tesco tonight I discovered that, contrary to my expectations, that I couldn't have Hellman's mayonaise, mustard or Lea & Perrins. It's a steep learning curve. This forum is a godsend.

Here's one thing you are really going to hate! Those things are mostly gluten-free in the States.

Link to comment
Share on other sites
navigator Apprentice

Thanks to everyone who's replied. I'm sure I'll have lots more questions over the coming months! My daughter was diagnosed with coeliac two years ago and I thought I was fairly well up on it. However,as she was diagnosed after her marriage I just haven't got the knowledge that I would've had if she been still living with me. It's obviously a constant learning thing. We spent an hour on the phone yesterday and between that and being on here, I'm feeling much calmer.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nikki-uk Enthusiast

Thanks to everyone who's replied. I'm sure I'll have lots more questions over the coming months! My daughter was diagnosed with coeliac two years ago and I thought I was fairly well up on it. However,as she was diagnosed after her marriage I just haven't got the knowledge that I would've had if she been still living with me. It's obviously a constant learning thing. We spent an hour on the phone yesterday and between that and being on here, I'm feeling much calmer.

Time for your daughter to teach you!!

The whisky thing - you're right in saying the distillation process doesn't allow gluten to pass through...BUT some coeliacs find that they can't tolerate it for what ever reason.

Trial and error smile.gif

As you're in the UK have you joined Coeliac UK (useful if only at first for the 'handbook of approved foods)

Open Original Shared Link

and you may also find this UK message board useful for any specific foody questions that can't be answered here

Open Original Shared Link

I don't know Lanark - but quite possibly have passed through on one of our trips to Scotland (mainly Edinburgh or Inverness)

I LOVE Scotland!! biggrin.gif

Oh, just thought. There is usually a gluten-free version of Worcestshire sauce available in the 'Free From' section in Tescos

Link to comment
Share on other sites
navigator Apprentice

Hi Nikki,

Thanks for your reply. I joined coeliac.uk within two years of being diagnosed on Friday. My daughter is being really helpful and I think she's enjoying being the one helping me! Lanark isn't too far from Edinburgh, about an hour in the car. Next time you're up I would recommend a visit to New Lanark Conservation Village and World Heritage site,if you have the time.

Our Tesco doesn't have a Lea & Perrins alternative in the free from section but now I know that there is one, I'll check whenever I'm near bigger stores.

I think for now I'll give the malt whisky a miss just to be on the safe side.

Isobel

Link to comment
Share on other sites
  • 3 weeks later...
NoodleUnit Apprentice

Thought I'd pop in and say hello from Fife ;) I'm just a wee bit north of Edinburgh but originally from the Highlands. In fact some of my family back in the Highlands are looking at the problems they've had through their lives through a new lens now because of my problems and things are starting to fall into place. Like you, just recently discovered I have Coeliac Disease and am struggling to get past all the early pitfalls.

Anyway, hi, I was also quite chuffed to discover I could have a wee nip of Glenmorangie of an evening... :)

Link to comment
Share on other sites
love2travel Mentor

Greetings from Canada! I know Lanark. Scotland is one of my favourite countries on the planet. My first trip overseas was to Scotland and I've been there many times. There just are no words to describe the pull it has on me. The castles are the best there are - I've been to over 125 in Europe. I can think of nothing as atmospheric as a brooding castle with sheep bleating in the background, misty skies and a lone piper playing. Each time I hear the pipes I get goosebumps.

Noodle, whereabouts in Fife are you? I've been to Fife several times and am smitten with the region.

Link to comment
Share on other sites
NoodleUnit Apprentice

Hi love2travel!

I'm based in Dalgety Bay right now. It's got a great school for my kid but if I'm honest nothing much else to speak of. It's known as Edinburgh's spawning ground for good reason ;) I used to live in North Queensferry, right by the water and in between the Forth Bridges though, that was when I fell in love with Fife really.

Link to comment
Share on other sites
navigator Apprentice

Hi NoodleUnit and love2Travel. NoodleUnit - where in the Highlands are you originally from? My husband, Alan, and I often go away for the weekends to the highlands. Lanark is quite a good base to get away from for a weekend. We also spent the fortnight of our honeymoon(married last September)touring and included the Hebrides and Orkney.

love2travel - Have you ever been to Lanark during the Lanimer celebrations? Which part of Canada are you from? I'm never been out of europe - tend to do our holidays in Scotland, South of France and Germany. I've also been to Austria, which was really beautiful and 30 years ago did a cruise in the med.

Link to comment
Share on other sites
love2travel Mentor

Hi love2travel!

I'm based in Dalgety Bay right now. It's got a great school for my kid but if I'm honest nothing much else to speak of. It's known as Edinburgh's spawning ground for good reason ;) I used to live in North Queensferry, right by the water and in between the Forth Bridges though, that was when I fell in love with Fife really.

Interesting description - have never been there. But at least you are near wonderful beauty! Where I live one must drive several hours to get anywhere/see anything of interest.

Link to comment
Share on other sites
love2travel Mentor

Hi NoodleUnit and love2Travel. NoodleUnit - where in the Highlands are you originally from? My husband, Alan, and I often go away for the weekends to the highlands. Lanark is quite a good base to get away from for a weekend. We also spent the fortnight of our honeymoon(married last September)touring and included the Hebrides and Orkney.

love2travel - Have you ever been to Lanark during the Lanimer celebrations? Which part of Canada are you from? I'm never been out of europe - tend to do our holidays in Scotland, South of France and Germany. I've also been to Austria, which was really beautiful and 30 years ago did a cruise in the med.

No, I have not been to Lanimer - will google it as I have not heard of it! I live in northern Alberta (oil country). My travels have taken me to Germany, Austria, France, Liechtenstein, England, Scotland, Wales, Croatia, Czech Republic, Bosnia and Herzegovena - several return visits. After the first time in Europe (Scotland) we fell so hard in love we knew we would live in Europe someday. In fact, our first choice was Scotland but when looking at the cost of living and housing we changed our minds. So, on our first trip to Croatia we fell in love again! The housing is still very expensive but not as outrageous as other countries. We bought a house in Istria three years ago and now go there twice a year. It is nice and central for visiting other countries, too. We look forward to visiting more Central and Eastern European countries. We just returned to Canada last week and already miss the way of life. The pace is MUCH slower.

However, Croatia does not have many gluten-free items in stores so I take along snacks. We do go out to restaurants where there are grills and spits and buy fresh stuff to cook at our house. We LOVE it and cannot wait to move there permanently.

Link to comment
Share on other sites
NoodleUnit Apprentice

Interesting description - have never been there. But at least you are near wonderful beauty! Where I live one must drive several hours to get anywhere/see anything of interest.

Heh - I don't think anything will ever match the view we had in North Queensferry. The Forth Rail Bridge in all its glory out of our living room window, and the waters of the Firth of Forth lapping against the garden wall. I miss it a lot, but the place we had was too small with a baby on the way so we had to move.

NoodleUnit - where in the Highlands are you originally from? My husband, Alan, and I often go away for the weekends to the highlands. Lanark is quite a good base to get away from for a weekend. We also spent the fortnight of our honeymoon(married last September)touring and included the Hebrides and Orkney.

I was born in Thurso on the north coast and grew up in a small fishing village called Hilton of Cadboll, near Tain which in turn is about 30 - 40 miles north of Inverness. Our house was literally right next to the beach, that was a spectacular place to be as a young boy I can tell you. There's a slim chance we might be moving north again soon, even the thought of it has me excited :)

I've got lots of relatives on Barra and the Uists; my dad spent his early years on Barra, didn't speak a word of English until he was five, only Gaelic up 'til then. I think I know maybe two words of Gaelic myself :)

I have to agree, btw, the world heritage village at New Lanark is spectacular. Been a couple of years since I've been but my goodness what a place! It manages to combine extreme historical significance with natural beauty in a way nowhere else can match imo. I remember one visit there, involved us looking through the mill, walking up a spectacular cliffside to some amazing waterfalls, past some nesting birds of prey, and then on the way back we spotted a family of otters. Well worth the trip.

Link to comment
Share on other sites
love2travel Mentor

Thurso? I've been there! Lovely area. What a dream it would be to move back there!! I hope you are able to.

Link to comment
Share on other sites
navigator Apprentice

Well, you've certainly picked your username well love2travel!! We love to travel but don't cover different countries the way that you do. Our favourite travelling is done within Scotland - such a beautiful country.

Noodleunit - we've been up Tain way a lot. A couple of weekends ago we were at Orkney. We stayed overnight at Inverness on the way up and then got ferry from Gills Bay to St Margaret's Hope. On the way home we stayed at Invergarry. Last year was my first time in the Hebrides but it certainly won't be the last. We got the ferry from Skye to Lochmaddy then drove down and stayed in Lochboisdale. We then drove up and got the Berneray ferry. Harris was beautiful - such beaches!. We then went up to Stornoway and after an overnight got ferry to Ullapool. Hope you manage to move back up.

We're really lucky to have New Lanark just 5 minutes away by car. We frequently go do the Falls of Clyde walk which you described. The Osprey chicks hatched about a month ago and it's great watching their progress. Not been so lucky as you regarding otters. I did see a kingfisher there and was blown away by the vividness of the colours.

Link to comment
Share on other sites
NoodleUnit Apprentice

I'd also highly recommend the Isle of Coll if you want amazing beaches all to yourself - spent a bit of time there in my younger days too. Stunning place that often gets overlooked.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,070
    • Most Online (within 30 mins)
      7,748

    TT24
    Newest Member
    TT24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Fluka66
      Thank you again for your reply and comments which I have read carefully as I appreciate any input at this stage. I'm tending to listen to what my body wants me to do, having been in agony for many years any respite has been welcome and avoiding all wheat and lactose has thankfully brought this.  When in pain before I was seen by a number of gynacologists as I had 22 fibroids and had an operation 13 years ago to shrink them . However the pain remained and intensified to the point over the years where I began passing out. I was in and out of a&e during covid when waiting rooms where empty. My present diet is the only thing that's given me any hope for the future. As I say I had never heard of celiac disease before starting so I guess had this not come up in a conversation I would just have carried on. It was the swollen lymph node that sent me to a boots pharmacist who immediately sent me to a&e where a Dr asked questions prescribed antibiotics and then back to my GP. I'm now waiting for my hospital appointment . Hope this answers your question. I found out more about the disease because I googled something I wouldn't normally do, it did shed light on the disease but I also read some things that this disease can do. On good days I actually hope I haven't got this but on further investigation my mother's side of the family all Celtic have had various problems 're stomach pain my poor grandmother cried in pain as did her sister whilst two of her brother's survived WW2 but died from ulcers put down to stress of fighting.  Wishing you well with your recovery.  Many thanks  
    • knitty kitty
      Welcome to the forum, @Nacina, What supplements is your son taking?
    • knitty kitty
      @BluegrassCeliac, I'm agreeing.  It's a good thing taking magnesium. And B vitamins. Magnesium and Thiamine work together.  If you supplement the B vitamins which include Thiamine, but don't have sufficient magnesium, Thiamine won't work well.  If you take Magnesium, but not Thiamine, magnesium won't work as well by itself. Hydrochlorothiazide HCTZ is a sulfonamide drug, a sulfa drug.  So are proton pump inhibitors PPIs, and SSRIs. High dose Thiamine is used to resolve cytokine storms.  High dose Thiamine was used in patients having cytokine storms in Covid infections.  Magnesium supplementation also improves cytokine storms, and was also used during Covid. How's your Vitamin D? References: Thiamine and magnesium deficiencies: keys to disease https://pubmed.ncbi.nlm.nih.gov/25542071/ Hiding in Plain Sight: Modern Thiamine Deficiency https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/ The Effect of a High-Dose Vitamin B Multivitamin Supplement on the Relationship between Brain Metabolism and Blood Biomarkers of Oxidative Stress: A Randomized Control Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6316433/ High‐dose Vitamin B6 supplementation reduces anxiety and strengthens visual surround suppression https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9787829/ Repurposing Treatment of Wernicke-Korsakoff Syndrome for Th-17 Cell Immune Storm Syndrome and Neurological Symptoms in COVID-19: Thiamine Efficacy and Safety, In-Vitro Evidence and Pharmacokinetic Profile https://pubmed.ncbi.nlm.nih.gov/33737877/ Higher Intake of Dietary Magnesium Is Inversely Associated With COVID-19 Severity and Symptoms in Hospitalized Patients: A Cross-Sectional Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9132593/ Magnesium and Vitamin D Deficiency as a Potential Cause of Immune Dysfunction, Cytokine Storm and Disseminated Intravascular Coagulation in covid-19 patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7861592/ Sulfonamide Hypersensitivity https://pubmed.ncbi.nlm.nih.gov/31495421/
    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
×
×
  • Create New...