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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Most Severe Reaction Yet...
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4 posts in this topic

Tonight I accidentally glutened myself with chili beans (which had modified food starch unbeknownst to me), and within 15 minutes of having my meal I had a severe headache and noticed my hands shaking. (This was 45 minutes ago now). No stomach cramping yet, but I'm sure that's coming. The pain is extending all the way down the back of my head and into my neck and my throat is hurting and seems swollen too... Is this an allergic reaction????

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Do you have any antihistamine you can take, just in case, such as benedryl or even a claritin would help if it is an allergic reaction.

If you feel your throat swelling up, and do not have antihistamine to take and are alone, please call somebody to stay with you until you are better or get some, if it gets any worse, or you start feeling itchy/faint, go to the ER or call 911.

(yes, before anybody points out that celiac is not an allergy, I know that. But she said "throat swelling."

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aww geez, sorry to hear you are feeling funky! please let us know you're ok when you are up to it. i got the shakes last time i had an allergic reaction.

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Tonight I accidentally glutened myself with chili beans (which had modified food starch unbeknownst to me), and within 15 minutes of having my meal I had a severe headache and noticed my hands shaking. (This was 45 minutes ago now). No stomach cramping yet, but I'm sure that's coming. The pain is extending all the way down the back of my head and into my neck and my throat is hurting and seems swollen too... Is this an allergic reaction????

benadryl asap and get to the ER. Allergic reactions are not something to mess with, i nearly lost my mom to one this past summer (benadryl saved her life according to doctors). She ended up with 3 days in ICU and one in a normal room.

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