Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Long Are You Sick For?
0

10 posts in this topic

Does anyone but me get sick for an entire month? I am super sick for about 8-10 days but have lots of pain for the entire month and of course Celiac brain.

1

Share this post


Link to post
Share on other sites


Ads by Google:

If I get glutened, which I still do cause I'm new to this, I seem to have bad symptoms for a day, maybe 2, and then slowly get better. I've had it take up to a week to get better before, which is beyond frustrating, especially starting out like I am.

I doubt you're alone, I think we each kind of "personalize" the symptoms, and it probably depends on how much gluten you get in your system as well.

1

Share this post


Link to post
Share on other sites

I agree with Josh. It depends on how much gluten I've taken in. Usually, the worst of my symptoms are the first several hours, but I do find that getting a good night of sleep does help. Then they will gradually go away over a week or week and a half, and I'm pretty close to 100% in two weeks.

1

Share this post


Link to post
Share on other sites

When I went gluten-free at first I did not realize how much I was cross contaminating myself. I went to a gluten-free deititain that helped a lot. I kept a food diary and slowly learned what bothered me. You have to understand your digestive system is shot. You won't digest normal, sugar gets digested late and causes issues too. Hang in there, it took me 6-7 months in to feel somewhat better. I'm almost a year and finally had a pain free day yesterday!!!! It's a learning thing, what works for you beyond being gluten-free. Look at your kitchen also, protect yourself there.

When I get CC or glutened? Depends on how much, it can last a day to up to 4! I would suggest looking at ways you might be getting cross contaminated. Look into all meds and products as well as food! Hang in there!!!

2

Share this post


Link to post
Share on other sites

Since you brought this up, I got glutened yesterday... By, of all things, dry roasted peanuts. It's been 24 hours and I'm still feeling symptoms, though they aren't as bad as normal because I didn't get much. At any rate, I'd be willing to bet that by Friday I might start clearing up, and Saturday or Sunday will return to near 100%.

0

Share this post


Link to post
Share on other sites




Were they peanuts out of a bin? Those can get CC. I did eat Planters nuts and trusted them. I was eating a lot of almonds etc this past summer. I was still having a lot of side cramping and tummy bloat. I was allergy tested and found out I'm allergic to peanuts, tomato, almonds, and some melons. My reactions to these food were all gut related. It took me a few months to learn my bodys reaction to certain things. Going whole foods really helped alot. I now know the true gluten feeling versus a food reaction. Keeping a food diary will help alot! Hang in there!

1

Share this post


Link to post
Share on other sites

They were Kroger dry roasted peanuts. I didn't think to check the label, cause I'm still new to this. Turns out Kroger uses MSG in the dry roasted nuts. 2 days later, I'm still sick, but not as bad. I get a lot of bloating, nausea and lower abdominal cramps. Good news is, since I caught it before I'd ate a lot of the nuts (a handful is all it took to do this to me) I'm not as bad as I've been known to get.

0

Share this post


Link to post
Share on other sites

They were Kroger dry roasted peanuts. I didn't think to check the label, cause I'm still new to this. Turns out Kroger uses MSG in the dry roasted nuts. 2 days later, I'm still sick, but not as bad. I get a lot of bloating, nausea and lower abdominal cramps. Good news is, since I caught it before I'd ate a lot of the nuts (a handful is all it took to do this to me) I'm not as bad as I've been known to get.

MSG doesn't have gluten in it but you can be sensitive to MSG as well as gluten. Sorry you had to find out the hard way, ALWAYS CHECK THE LABEL!

________________

To the original poster: I get sick for at least a week from cc, longer if I get a large amount. The last time I was severely glutened was when I ordered gluten free pasta at Olive garden and the server brought me regular pasta instead. I was so sick and after that I ended up with brochitus which turned into pnuemonia. I really don't think the pnuemonia was just a coincidence. I think my immune system was fighting the gluten so hard that it made me vulnerable to getting sick. That said do make sure that yoru have eliminated all sources of cc. Small amounts could be keeping you sick.

0

Share this post


Link to post
Share on other sites

MSG doesn't have gluten in it but you can be sensitive to MSG as well as gluten. Sorry you had to find out the hard way, ALWAYS CHECK THE LABEL!

________________

To the original poster: I get sick for at least a week from cc, longer if I get a large amount. The last time I was severely glutened was when I ordered gluten free pasta at Olive garden and the server brought me regular pasta instead. I was so sick and after that I ended up with brochitus which turned into pnuemonia. I really don't think the pnuemonia was just a coincidence. I think my immune system was fighting the gluten so hard that it made me vulnerable to getting sick. That said do make sure that yoru have eliminated all sources of cc. Small amounts could be keeping you sick.

Wow now thats real sick, I don't believe its a coincidence either. Too bad you can't sue the Olive Garden. Last time I got sick was from meds my Dr. gave me. I called the mfg but its hard to get info these days. I had taken 3 pills by then. I wish there was more info on a gluten-free dog. I spend a long time being sick, not touching things, not eating out etc.

0

Share this post


Link to post
Share on other sites

I've been gluten-free for nearly three months and know I was accidentally glutened twice when eating a product that had been marked gluten-free but the manufacturer contacted me and told me it was not. If they had not contacted me I would have had no clue that I was glutened because I don't get sick. On my three-month gluten challenge I did not get sick, even once, even when consuming tons of the stuff. I just spent three weeks in Croatia and Italy, being extremely careful but still don't know whether I was glutened. It would be so hard to have to suffer through glutenings! What is hard for me is that I just don't know (perhaps that will change in the future?!) so do not know what to avoid or change if there is something going on. Weird feeling.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,880
    • Total Posts
      919,460
  • Topics

  • Posts

    • Depression / anxiety issues
      i am wondering if those who get that initial "rush" of a day or twos relief of symptoms are "flying" on adrenaline?  wonder about adrenal fatigue?  not sure that is considered a real thing in western medicine... just a thought.  and you return of sym suggest a glutening.  Anything new in the diet?  even a new package of an already  checked product?  soap and shampoo need to be checked, or used very carefully.  is wife still eating gluten?  if so make sure sh is not bringing it to you.  kisses are nice, but make sure she brushes first, lol skipping products that are "made in shared buildings"  for at least a while. take the B12 on an empty stomache
    • Depression / anxiety issues
      Excellent. The chances are your body won't absorb some of this however so get as many good B sources in your diet as possible in addition. Get some sunshine as well, I know it does rain sometimes in Melbourne but believe me on that score you do a lot better than the poms.   Try and note these positive things, it's so easy when you're down to forget them. There will be more to come. Imagine yourself climbing a mountain. There are points at which you have to travel laterally or even down in order to follow the right path but your overall trajectory is upwards. You're actually lucky to have found it now at 28 with so much time ahead for healing and enjoying the fruits of it.  For me the gluten reaction is the initial cause of the depression but once that's removed it doesn't automatically lift like magic. Whilst the brain fog lifted soon on gluten-free diet, (there was a physical perceptible feeling in my head whilst I had that, a kind of thickness sort of like wearing a diving mask all the time that distances you from the world), the longer term depression isn't so easily shifted. I think this is because there are negative pathways that have been reinforced over many years. That's what living in a constant state of anxiety can do. It wrecks your self esteem which isn't magically repaired as your diet changes, sadly! As my physical symptoms lifted but I still felt depression, if on a different level, I realised I'd have to heal my mind as well as my gut. So I'm currently seeing a counsellor and it is helping. Not there yet though Yes I also get this and the mental side for me is also by far the worst side of it. I used to think I may die every time I got the chest pains but that wasn't as bad as feeling like shit 24/7 or having to fake a good time when feeling awful inside.  The single best thing about realising my gluten problem was that it explained that the underlying cause of that depression and anxiety was physical, not a defect of character, just some bad luck in the makeup of my gut and immune system. Hope that knowledge helps you also, when the anxiety strikes recognise it for what it is. A misdirected fight or flight response to an internal attack on your body.  Have a look at some cognitive behavioural therapy techniqes for challenging negative thoughts, that may be helpful? CBT has a very good success rate here in UK, better than anti depressants or talking therapy I think and it focuses on the practical,.  As you realise there's a load of bulls**t in society about how we view and discuss mental health. Don't buy into it. A lot of 'strong' people out there are simply bottling up their suffering through misguided pride. If people stigmatise you they're doing you the favour of letting you know they're not worth bothering with.  I got a lot of support on here when I was in your position and I'm sure you will too. I wish you the best of luck and I'm sure you'll be seeing more improvements in the weeks and months to come.      
    • Celiac - How many symptoms can there be?
      As you doubtless know now, there are so many ways celiac can present, here's as big a list as I could find online. It would probably be quicker to list what isn't a factor For me personally, nausua, check, left sided back hip pain (my laymans theory here is that celiac is affecting the sciatic nerve which runs from lower back down leg) , check, chest pain also - but for me this comes in short bursts more I guess like heartburn - I thought I was having heart attacks... Check to the rest too... And, for what its worth, other things like being prone to bronchial infection oh hell yes.  I'm currently in the glutened / affected by something group myself so I can only share the advice I've been given. Start a food diary and see if you can track down anything diet related that may be affecting you. Eat as clean as you can, ease up on alcohol, just try and give yourself the best chance of recovery. Have a google of 'heal my gut' diet tips too, you're in the recovery phase at the moment. All the best, at least there's comfort in knowing you're not alone!   Matt  
    • Depression / anxiety issues
      Thanks for the advice Matt, I will be sure to take it all onboard. It's really good to talk to others that have had similar experiences. I'm currently upping my b12 and also taking a additional (gluten free) multi and b complex, also omega 3s and Vitiam D3. I had been noticing small improvements that I forgot to mention in my previous post. I noticed that I fall asleep now much easier than before going gluten-free, I also have moments where my body feels more calm, then blood in my stool has stopped I haven't had any in 10 weeks. My mind was constantly fixated on negative thoughts for the past 2 years and they slowly began lifting from all day negative thoughts to maybe half a day of negative thoughts if that makes sense, but this pass week and a half they have come back, I'm also finding my self very nervous again around other people I'm hoping this will pass. The anxiety / depression is the worst symptom for me I would not wish it on my worst enemy, if that went away I would be the happiest man in the world. I found it very hard to talk to people about my mental health issues at work before I lost my job as I found some people stigmatise me and don't understand or really care, but I figure i don't need narrow minded people like that anyway, and as a man its hard to open up but my wife is very supportive and encouraging. Thanks again for the advice really apricate it
    • Depression / anxiety issues
      G'day Chris and welcome to the forum. You have found what I think is the single best resource on the web for advice, support and understanding for this condition. There is so much info here it's difficult to know where to start, but that's what this thread is for, please check it out. I think I got the recommendation for 'Real life with Celiac Disease' by Dennis and Leffler there, I'll second that, there's a lot of very useful info in there which helps to answer a lot of your questions. May be useful for your partner also. Chapters are short and informative so you can dip in and out.  There will doubtless be more advice to come from others with more experience but there's a few things which occur. Firstly, 10 weeks is very early days. Your body has been under an assault for many, many years. Your immune system has been working overtime and like so many others you've only reached diagnosis after reaching a crisis point. You are now healing but it won't be instant and it won't be without ups and downs, speedier and slower phases.  Second, being strict on gluten is essential, but it's only one part of the puzzle. You also need to eat really healthily and try to heal your gut. As you remove gluten you may find that your body starts telling you that other foods are also an issue. Don't panic, it doesn't mean that will always be the case. But you need to approach the next 6 months as a period where you're giving your body the easiest ride possible. That may mean taking probiotics, bone broths or it could also mean avoiding dairy or other foods, at least until your body has had a chance to heal. If you think you may still be getting gluteny effects keeping a food diary, noting what you eat, when and how you feel would help to track down any further issues.  I too battled through the anxiety, had an all too brief moment of bliss as the diet kicked in, then faced a bumpier recovery period in the weeks that followed. It gets easier but it's still difficult for me from time to time. I tried to articulate some of this recently here, it's a long read but maybe some of it will strike a chord. It will get better and you will become better equipped to deal with it. If you're like me you'll find other things getting better over time that you would never have thought to connect to gluten. Now, I've been exceedlingly nice here and not mentioned the England Rugby drubbing but I can feel my self control beginning to slip. So I'll leave it there   Matt
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,926
    • Most Online
      1,763

    Newest Member
    tr2v12
    Joined