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Reacting To Small Amounts - Article At Celiac.com
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http://celiacdisease.about.com/b/2011/04/18/is-it-a-real-reaction-to-tiny-amounts-of-gluten-or-is-it-all-in-your-head.htm

I don't remember seeing any discussion of this article here, but there's been so much celiac related press lately.

I was wondering if you'd read it and what you thought about it, particularly in light of the non-action by the FDA to define the phrase "gluten free."

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Even if you are not "super-sensitive" the gluten free gluten content can add up. Let's say I eat 4 cookies. Per serving they have 10 ppm. A serving is 2 cookies, but rarely do people eat only 2. Now I have just eaten 20 "parts" I also have 2 slices of gluten-free bread and a banana. The bread might have another 10 parts. It can add up.

I know that my addition isn't exactly correct but I hope it illustrates the point that it adds up. Even if we aren't supersentitive, it can still affect us.

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That writer seems to have a good understanding of super sensitivity in celiac disease/gluten intolerance.

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That writer seems to have a good understanding of super sensitivity in celiac disease/gluten intolerance.

I wrote to her to thank her for the article a while back, and she's a super-sensitive herself. Nice to have someone who understands so that others can get information other than 'it's all in your head,' you know? :-)

shauna

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I'm good to know i'm not alone, though I wouldn't wish being super sensative on anyone.

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    • I_would_widen_the_search_to_your_whole_environment.....Carefully_consider_what_else_was_different_when_you_felt_better.
    • Thanks a lot for your advice and the link. I will surely check upon GCED. But, doesn't a negative HTTG (can't do IgA ttg as IgA deficiency) result mean that I am not exposed to gluten ? 
    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
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