Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Anyone Ttc?
1 1

14 posts in this topic

I'm wondering if any of my fellow Celiacs out there are trying to conceive or recently became pregnant? We should follow along with each other's experiences.

My husband and I plan to TTC this fall. I can't help but wonder if my body is fully healed (been gluten-free since December 2004 diagnosis), even though I have been feeling really great for 6 months. Also, everytime I have a reaction from accidental gluten ingestion, I think about how bad it would be to be "glutened" like that while pregnant.

Share your story/experiences. :D

0

Share this post


Link to post
Share on other sites


Ads by Google:

Well, we've been thinking about it, but are not up to it yet. FWIW, I was not gluten-free during my pregnancy 4 yrs ago and was very celiac (can one be "very" celiac?). Oddly, I instinctively went off grains the first 3 months, ate erratically the middle 3, and felt better than I had in YEARS. Don't ask me about the last 3 months of preg, they were filled with chocolate cake :P

I would like to wait also til my body is more healed before ttc. But then, I've done it once before, and it all worked out, so.....who knows.

Good luck and have fun :D

Merika

0

Share this post


Link to post
Share on other sites

Anya,

We started ttc after I was gluten-free for 6 months. It took us another 7 months to get pg and now the baby is due in 3 weeks. Here is what I have learned so far.

Get used to eating gluten-free crackers and bread. I never ate any and then I had really bad morning sickness for the first 20 wks. I ate gluten-free bread and crackers but I think they made me sick just because I wasn't used to eating them at all. I couldn't tolerate fruit or veggies so that was a hard time.

Let your doctor know ahead of time. They will give you some vitamins and all of that. My GI doctor said that I was at more of a risk of having a baby with neuro tubal defects because of Celiac so taking folic acid and my vitimins were especially important. Start now on those.

I was also told not to eat any of the hospital food which I don't understand I figure if Mcdonalds can offer me something that surely a hospital could but that might just be our hospital. I was also told not to eat out so that I didn't eat any gluten by accident. I started out doing okay but lately I have been eating out more. I would guess during the first trimester that would be good advice and after the baby is bigger and stronger eating out would be okay. I still am careful on what I eat but anytime you eat out there is a risk.

My doctor also ordered an extra ultrasound at around 27 wks to make sure the baby was growing properly and her organs were forming okay.

My doctor didn't know too much about celiac so she sent me to a GI they told me that I really needed to see a nutriounist (sp?) but I haven't gone yet. I am guessing I should because I will be breastfeeding too. But she did seem to take extra caution with me. I think partly because of celiac and partly because I was so sick at first. That made me feel better so find a doctor that you really get along with. You will be seeing them a lot.

I hope that helps and good luck TTC!

0

Share this post


Link to post
Share on other sites

KayJay,

oooh, how exciting, you're about to have a baby, lalalala.... :D Bummer about the morning sickness

Recent studies have shown that there is no extra risk for babies of celiac moms. None, zero, nada, zip. There MAY be an increased risk of EARLY miscarriage among non gluten-free celiac moms. But once past that, the baby will be fine.

You're right about the hospital - it's notorious for feeding gluten-free moms gluten. Stupid hospitals, they should know better!

Merika

0

Share this post


Link to post
Share on other sites

Thanks for posting your experiences! It's helpful to hear how things have gone for other Celiac moms and moms-to-be. I hope we get a few more ladies in on this topic!

KayJay, thanks for the tipcs. Good luck and keep us posted when you have news of your baby's arrival.

I'll have been gluten-free for 10-11 mos. when we plan to start TTC. One reason (there are others) we're waiting until this fall is because I feel like I'm still getting a handle on the gluten-free way of life. Sometimes I feel neurotic with all of my label reading and question-asking at friends' houses, but I know it's a necessary part of maintaining my health. And when I'm not diligent about label-reading, I often pay a price the next day...I'm learning my lesson.

I've also heard that it's mostly non-gluten-free celiacs that have shown any fertility or pregnancy problems, so I shouldn't have much cause for my concern. But I can't help worrying, especially since I've read that it varies from person to person on how long it can take the body to repair itself after going gluten-free. Since there aren't exact, official figures, I'm guessing that a year on the gluten-free diet would give my body plenty of recovery time.

Anya

0

Share this post


Link to post
Share on other sites




After being gluten-free for exactly one year I got a positive pregnancy test. I am now 7 weeks. My RE really didn't know anything about it, but the ob does.

I do know that another group - Gluten Intolerance Group - has a hospital packet you can order before you go to deliver.

It was a very long road for us - I basically had gotten to the point where I didn't have a period anymore. With acupuncture & a gluten-free diet I'm happily expecting! (and injectable fertility drugs ;) )

0

Share this post


Link to post
Share on other sites

Roxyk- What is in that packet?

0

Share this post


Link to post
Share on other sites

KayJay - I don't actually know what is in the packet - I am just sending in my order now. I will post as soon as I get it to let you all know if it is worth it!

0

Share this post


Link to post
Share on other sites

Anya-

Good luck TTC! My husband and I are going to start trying next month as well. We have been working up the nerve to try for quite a while now, but after an inconclusive test last month we were both surprisingly disappointed to find out I wasn't pregnant. So we decided that now is the time! :D I've been gluten free for about a year and feel pretty well healed. I wanted to let you know...when you start TTC be sure to take your Folic Acid! Folic Acid reduces the chance of neural defects by 70% if present at the time of conception and in the first two weeks of pregnancy and since women with celiac disease don't absorb as well it is especially important to make sure you are getting enough. The body gets rid of excess Folic Acid in urine so it is recomended women with celiac disease take 200% of the daily recomended.

0

Share this post


Link to post
Share on other sites

cgilsing,

Good luck with your quest to TTC! I definitely hear you on the folic acid topic. I've been taking prenatal vitamins for a few weeks now, even though we aren't going to try until probably early November. I figured it couldn't hurt to prepare my body far in advance, plus these vitamins have some calcium (my regular multi didn't) and I know I probably don't get enough of that in general.

Keep us posted when you're pg! :)

0

Share this post


Link to post
Share on other sites

Hi everyone!

Thanks for all the great info! My husband and I were TTC, but after my recent diagnosis with celiac disease we have abandoned the mission for now. From all your info, I gather that I should wait until I am feeling significantly better.

As for folic acid and pre-natal vitamins, what kind do you take? I heard that certain medicines and vitamins can contain gluten. Who should I talk to about this? A nutritionist? My GI or GYN doctor?

:) Jen

0

Share this post


Link to post
Share on other sites
My husband and I were TTC, but after my recent diagnosis with celiac disease we have abandoned the mission for now.  From all your info, I gather that I should wait until I am feeling significantly better. 

<{POST_SNAPBACK}>

Oh, phooh, it's whatever you feel like are up to. If you feel geared up for preg, go for it. If you are tired and exhausted and can't imagine carrying an extra 30 pounds and having weird dietary cravings, then wait :)

Folic acid is recommended to all women ttc, because it's effect is greatest between 0-4 months of preg, and once you've realized you're preg, you've missed a big part of that window. Just make sure the one you get is gluten-free (read the label and call the company).

Good luck and have fun! :D

Merika

0

Share this post


Link to post
Share on other sites

Hi Ladies,

I'm glad I found your posts. I have been TTC for 5 years, with 1 very early m/c. I did not know I was celiac disease until last year, and have now been gluten-free since August 04 and have noticed a difference in my cycles. Unfortunately I can't say for sure if celiac disease played a role in my infertility or not, but my age is going to definately be a factor now (I'm 42).

Good luck to everyone.

LauraY

0

Share this post


Link to post
Share on other sites

Oh wow, I'm so glad this thread exists. I'm terrified of figuring out pregnancy and such as is without the Celiac complications and then with them added...

That's IF we can get pregnant. AND my GP advised avoiding soy because I'm small and it lengthens my cycles by about 20 days (but is otherwise great and delicious. Sigh.) and it's in EVERYTHING gluten-free.

This thread is from 2005 but is anybody else currently TTC?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
1 1

  • Forum Statistics

    • Total Topics
      104,695
    • Total Posts
      921,778
  • Topics

  • Posts

    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
    • Spicely Organics has both cassia and true (Ceylon) Cinnamon and are certifed gluten free along with the rest of their spices, as to tea Republic of Tea has most of their products tested and certified gluten-free also. You can visit their sites or try Amazon.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,700
    • Most Online
      3,093

    Newest Member
    JessZ08
    Joined