Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Am I A Wimp?


  • Please log in to reply

27 replies to this topic

#1 sunnydayzahead

 
sunnydayzahead

    New Community Member

  • Advanced Members
  • Pip
  • 17 posts
 

Posted 15 May 2011 - 08:16 AM

I just wondered if anyone out there has taken an extended period of time off work ( two or three months)in order to heal from celiac and multiple symptoms and if you did - did this help you a lot?

I am 46 and was finally diagnosed after twelve years of symptoms some requiring hospitilization and also have microsopic colitis.

I went gluten free last july after being diagnosed by positive endoscope and blood test, but have not been overly careful with CC and everything else. Since March I have been getting steadily sicker and have missed days of work here and there, but now I have been off for two weeks and am considering taking a couple of months off to allow myself time to heal. Some days I feel okay and other days I am flat out on the couch barely able to focus or function with multiple celiac related symptoms - although I still am on dairy and someone suggested I go off that also to help which I plan to do.

I feel like a wimp even considering this as I have always coped and kept going while in pain or run down. My husband, family and friends are all encouraging me to take the time but still I am reluctant. i don't want to give in.

Am I a wimp or are there others there like me?

Thanks!!!
  • 0
multiple symptoms for twelve years before first diagnosis at age 44 of microscopic colitis in august 2008
diagnosed positive for celiac july 2010 by positive blood test followed by positive biopsy
three children - still to be tested but two of three showing symptoms of celiac :(

Celiac.com Sponsor:

#2 Diane-in-FL

 
Diane-in-FL

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 158 posts
 

Posted 15 May 2011 - 09:27 AM

No, you are not a wimp. I just gave up my job too. It was only part time, but I just dreaded it some days. I think I may have been getting glutened there, even though I didn't eat there. It was a meals program for the elderly and the new cook bakes bread, biscuits, etc. So, there was probably CC from the flour in the air. I miss the people, but I think the kitchen was toxic for me. :( I'm getting better, but I don't really feel like I can handle the stress of a job right now. Do what you need to do to get yourself better.
  • 0
Gluten Free since 2010

#3 GlutenFreeManna

 
GlutenFreeManna

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 2,887 posts
 

Posted 15 May 2011 - 09:29 AM

I just wondered if anyone out there has taken an extended period of time off work ( two or three months)in order to heal from celiac and multiple symptoms and if you did - did this help you a lot?

I am 46 and was finally diagnosed after twelve years of symptoms some requiring hospitilization and also have microsopic colitis.

I went gluten free last july after being diagnosed by positive endoscope and blood test, but have not been overly careful with CC and everything else. Since March I have been getting steadily sicker and have missed days of work here and there, but now I have been off for two weeks and am considering taking a couple of months off to allow myself time to heal. Some days I feel okay and other days I am flat out on the couch barely able to focus or function with multiple celiac related symptoms - although I still am on dairy and someone suggested I go off that also to help which I plan to do.

I feel like a wimp even considering this as I have always coped and kept going while in pain or run down. My husband, family and friends are all encouraging me to take the time but still I am reluctant. i don't want to give in.

Am I a wimp or are there others there like me?

Thanks!!!


I haven't been able to work for 3 years now because of this illness. I've been gluten-free for 1 year 5 months and I am considering going back to work part time in the future but I prefer to stay home because I have other food allergies to worry about besides gluten. I do various at-home jobs to bring in a little extra money, but we completely live off of my husband's income. I don't have any children either to use it as an excuse to stay home. When I was at my worst in this illness I was bedridden, in pain and slept most of the day (along with many other symptoms). I didn't stop workign by choice, however. Before I was bedridden with pain I was having unexplained sezures/fainting spells. I had a seizure one day at work. Ater that my manager told me I could not come back until I had a doctor's ntoes saying I was healthy enough to work again. The dr told me I couldn't drive anymore. My health just went downhill from there on. So no, you are not a wimp to take a few months off. If celiac was tested for more frequently and the tests were more accurate then I might have been screened early due to my family history of thyroid conditions and diagnosed before I got so bad. IMO, It's better that you have the choice to take off from work instead of havign to get so sick you are forced to do it first. Youa re also so blessed to have an understanding husband and family encouragign you to take a break. My husband is great but much of my extended family thinks I just don't work because I'm lazy or something.
  • 0
A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#4 maximoo

 
maximoo

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 326 posts
 

Posted 15 May 2011 - 09:40 AM

I think a good q to ask yrself is can u afford to take off for that amount of time & will it put yr job in jeopardy? Only you can answer that. With the economy as bad as it is you really need to know if you will have a job when you go back. If it is secure & you are certain you will have a job then go ahead & take off. It really has nothing to do with being a wimp. It has to do with economics & if you think you can get better within that time frame. Best of Luck to you!
  • 0

#5 quincy

 
quincy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 236 posts
 

Posted 15 May 2011 - 09:42 AM

I just wondered if anyone out there has taken an extended period of time off work ( two or three months)in order to heal from celiac and multiple symptoms and if you did - did this help you a lot?

I am 46 and was finally diagnosed after twelve years of symptoms some requiring hospitilization and also have microsopic colitis.

I went gluten free last july after being diagnosed by positive endoscope and blood test, but have not been overly careful with CC and everything else. Since March I have been getting steadily sicker and have missed days of work here and there, but now I have been off for two weeks and am considering taking a couple of months off to allow myself time to heal. Some days I feel okay and other days I am flat out on the couch barely able to focus or function with multiple celiac related symptoms - although I still am on dairy and someone suggested I go off that also to help which I plan to do.

I feel like a wimp even considering this as I have always coped and kept going while in pain or run down. My husband, family and friends are all encouraging me to take the time but still I am reluctant. i don't want to give in.

Am I a wimp or are there others there like me?

Thanks!!!

Great post/question Sunnydayz,

I was diagnosed last year at age 48 and I only took off about a week after I found out. But I wound up taking more sick days and barely, I mean barely, got through till June when school let out. Luckily I work for school district and I had alot of sick days built up over the years that I never used.

Looking back, I was so out of it in every way I wanted to just hospitalize myself somewhere,anywhere. So no, you are NOT a wimp. It's actually a smart idea if you can swing it. Do you have short term disability at your job where you can do that? You need time to heal and the added stress of figuring out what foods to bring to work etc is just added stress.

I have suspected MC myself for awhile though I am not sure. can you address that in this thread or send me a PM to tell me how/when you found out about the MC, symptoms, scopes etc?

get well,,, and stay away for ALL dairy!!! look on all your labels make sure there is no milk or dairy or buttermilk in any of your gluten-free flour mixes for pancakes etc. find only dairy/casein free processed foods. it will save you alot of bathroom time .


  • 0

#6 sunnydayzahead

 
sunnydayzahead

    New Community Member

  • Advanced Members
  • Pip
  • 17 posts
 

Posted 15 May 2011 - 12:05 PM

No, you are not a wimp. I just gave up my job too. It was only part time, but I just dreaded it some days. I think I may have been getting glutened there, even though I didn't eat there. It was a meals program for the elderly and the new cook bakes bread, biscuits, etc. So, there was probably CC from the flour in the air. I miss the people, but I think the kitchen was toxic for me. :( I'm getting better, but I don't really feel like I can handle the stress of a job right now. Do what you need to do to get yourself better.


thanks for sharing your experience and advice Diane-in-Maine. I am sorry to hear that you have given up your job also - but it sounds like you will be better off in the long run. Maybe when you are feeling better you can find something that you can do that is similar - I know the social part of work is huge for me also. It is funny but when I hear of someone else taking time off work or quitting, I applaud that decision as it is just so important to look after your health. But for myself - hmmm don't knmow why it is such a dielemma.
thanks again and best of luck!
  • 0
multiple symptoms for twelve years before first diagnosis at age 44 of microscopic colitis in august 2008
diagnosed positive for celiac july 2010 by positive blood test followed by positive biopsy
three children - still to be tested but two of three showing symptoms of celiac :(

#7 sunnydayzahead

 
sunnydayzahead

    New Community Member

  • Advanced Members
  • Pip
  • 17 posts
 

Posted 15 May 2011 - 12:11 PM

Thanks GlutenFreeMamma:
Yes I am in the same position right now also - my manager wants a note from my doc saying I am well enough to work. I am verylucky to have such a great manager - she would rather I took all the time I needed to get well as she thinks this will help more in the long run. She has seen me struggling wtih my health issues for years now - from one problem to the next!
I know exactly what you mean abouto some family members pooh poohing celiac symptoms. I have one extended family member who is exactly like that but I just don't care - his reaction was - get over it and eat more rice.........well if only it were so simple!!
I am sorry to hear you have been off work and now unable to drive. I agree also if my illness was caught earlier I may not be quite as bad off - hopefully in time this will be better.
All the best to you and thanks fo much for sharing your advice to me - I really appreciate it so much~
Sunny :)
  • 0
multiple symptoms for twelve years before first diagnosis at age 44 of microscopic colitis in august 2008
diagnosed positive for celiac july 2010 by positive blood test followed by positive biopsy
three children - still to be tested but two of three showing symptoms of celiac :(

#8 sunnydayzahead

 
sunnydayzahead

    New Community Member

  • Advanced Members
  • Pip
  • 17 posts
 

Posted 15 May 2011 - 12:16 PM

I think a good q to ask yrself is can u afford to take off for that amount of time & will it put yr job in jeopardy? Only you can answer that. With the economy as bad as it is you really need to know if you will have a job when you go back. If it is secure & you are certain you will have a job then go ahead & take off. It really has nothing to do with being a wimp. It has to do with economics & if you think you can get better within that time frame. Best of Luck to you!


Hi Maximoo:
Yes your economic point is a very good one. I feel lucky to have very good benefits at work and would only lose a small portion of my income and my job would definitely still be there upon my return. However for me it is emotional - giving up vs fighting through......
thanks so much for your advice!!
  • 0
multiple symptoms for twelve years before first diagnosis at age 44 of microscopic colitis in august 2008
diagnosed positive for celiac july 2010 by positive blood test followed by positive biopsy
three children - still to be tested but two of three showing symptoms of celiac :(

#9 a1956chill

 
a1956chill

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,365 posts
 

Posted 15 May 2011 - 12:18 PM

Great post/question Sunnydayz,

I have suspected MC myself for awhile though I am not sure. can you address that in this thread or send me a PM to tell me how/when you found out about the MC, symptoms, scopes etc?

I have questions about MC my self, my doc just did a biopsy and am waiting for the results
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#10 a1956chill

 
a1956chill

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,365 posts
 

Posted 15 May 2011 - 12:21 PM

I just wondered if anyone out there has taken an extended period of time off work ( two or three months)in order to heal from celiac and multiple symptoms and if you did - did this help you a lot?

I am 46 and was finally diagnosed after twelve years of symptoms some requiring hospitilization and also have microsopic colitis.

I went gluten free last july after being diagnosed by positive endoscope and blood test, but have not been overly careful with CC and everything else. Since March I have been getting steadily sicker and have missed days of work here and there, but now I have been off for two weeks and am considering taking a couple of months off to allow myself time to heal. Some days I feel okay and other days I am flat out on the couch barely able to focus or function with multiple celiac related symptoms - although I still am on dairy and someone suggested I go off that also to help which I plan to do.

I feel like a wimp even considering this as I have always coped and kept going while in pain or run down. My husband, family and friends are all encouraging me to take the time but still I am reluctant. i don't want to give in.

Am I a wimp or are there others there like me?

Thanks!!!

You are not a wimp, not at all.
I wish I was in a position where I could take that amount of time off and still keep my job.I have missed so much work that I am lucky to still have a job.
I am considering going to part time starting in the fall, the down side would be I would lose my health insurance :(
  • 0

Gluten free Oct/09
Soy free Nov/10

numerous additional intolerances,, i.e. If it tries to kill me I do not eat it .
After 40+ years of misdiagnoses I was diagnosed with:
Dermatitis Herpetiformis : Positive DH biopsy...... Celiac :based on DH biopsy and diet response.

Osteoporosis before  age 50
Hashimoto's thyroiditis disease .

Diagnosed type 2 Diabetes 

Osteoarthritis

Gilbert's Syndrome , confirmed by gene testing


#11 sunnydayzahead

 
sunnydayzahead

    New Community Member

  • Advanced Members
  • Pip
  • 17 posts
 

Posted 15 May 2011 - 12:30 PM

Hi Quincy:
I know exactly what you mean when you say barely made it through the year. I decided to take time off when |I would look at people and not even recognize them any more my brain fog was so bad and memory loss so impacted. The stomach stuff I can manage as bad as it gets - but the neurological symptoms - they are what is doing me in.

yes I do have short term as well as long term disablity. (thank goodness)

as for the MC - this was diagnosed initially as ulcerative colitis as i was in hospital so sick with major weight loss, unable to eat very high white blood count and major blood in stool. The first set of test results from the colonoscopy came in as UC, however in a year when I still had symptoms and the medication was no longer working - my GI did an other scope and this time biopsy confirmed microscopic/collagenous colitis. He prescribed entocort for me and it works amazing. It put my MC into remission and now it only flares occasionally at which time I go back on it until it is under control again. the way I tell the difference between celiac or MC is more where my pain is - my colitis is more in the lower abdomen as it affects mainly the large intestine and my celiac causes more pain for me in my upper stomach. Also the D from MC for me is complete liquid and from gluten for me it is just very very loose. (Sorry to be descriptive and gross here) MC from what I understand usually does not have blood in the stool. Someone else sent me a link for microscopic colitis too which you should check out. My GI said it often goes hand in hand with celiac - so if you are suspicious at all you would definitely be at risk- ask your GI for a colonoscopy.

Sorry for the lengthy response, but hopefully this helps a little with the MC.

Thanks for the advice around time off work and around going dairy free - I will do this and- I am leaning closer and closer to admitting it may be time to deal with my health once adn for all and get the rest and recovery I need.
All the best~
Sunny :)
  • 0
multiple symptoms for twelve years before first diagnosis at age 44 of microscopic colitis in august 2008
diagnosed positive for celiac july 2010 by positive blood test followed by positive biopsy
three children - still to be tested but two of three showing symptoms of celiac :(

#12 sunnydayzahead

 
sunnydayzahead

    New Community Member

  • Advanced Members
  • Pip
  • 17 posts
 

Posted 15 May 2011 - 12:41 PM

I have questions about MC my self, my doc just did a biopsy and am waiting for the results


Here is the response from another post about MC. Hope this helps.

Not sure if the link will post, but if you google "microscopic colitis forum" it should be the first one that pops up, with the address containing "persky farms" something or other.

http://www.perskyfar...hpBB2/index.php




People on here are just amazing to provide such kind advice and support.
I have just found this site and already it has given me so much information.

Cheers to you amazing celiac support people!! :)
  • 1
multiple symptoms for twelve years before first diagnosis at age 44 of microscopic colitis in august 2008
diagnosed positive for celiac july 2010 by positive blood test followed by positive biopsy
three children - still to be tested but two of three showing symptoms of celiac :(

#13 quincy

 
quincy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 236 posts
 

Posted 15 May 2011 - 01:59 PM

Hi Quincy:
I know exactly what you mean when you say barely made it through the year. I decided to take time off when |I would look at people and not even recognize them any more my brain fog was so bad and memory loss so impacted. The stomach stuff I can manage as bad as it gets - but the neurological symptoms - they are what is doing me in.

yes I do have short term as well as long term disablity. (thank goodness)

as for the MC - this was diagnosed initially as ulcerative colitis as i was in hospital so sick with major weight loss, unable to eat very high white blood count and major blood in stool. The first set of test results from the colonoscopy came in as UC, however in a year when I still had symptoms and the medication was no longer working - my GI did an other scope and this time biopsy confirmed microscopic/collagenous colitis. He prescribed entocort for me and it works amazing. It put my MC into remission and now it only flares occasionally at which time I go back on it until it is under control again. the way I tell the difference between celiac or MC is more where my pain is - my colitis is more in the lower abdomen as it affects mainly the large intestine and my celiac causes more pain for me in my upper stomach. Also the D from MC for me is complete liquid and from gluten for me it is just very very loose. (Sorry to be descriptive and gross here) MC from what I understand usually does not have blood in the stool. Someone else sent me a link for microscopic colitis too which you should check out. My GI said it often goes hand in hand with celiac - so if you are suspicious at all you would definitely be at risk- ask your GI for a colonoscopy.

Sorry for the lengthy response, but hopefully this helps a little with the MC.

Thanks for the advice around time off work and around going dairy free - I will do this and- I am leaning closer and closer to admitting it may be time to deal with my health once adn for all and get the rest and recovery I need.
All the best~
Sunny :)

thanks for the info. I also can tell when I got gluten or colitis cause the pain is higher up in abdomen with celiac. I just joined the MC forum and they have been great over there.

I have never had a problem with severe weight loss and D or bloody D. so not sure if this would be CC or LC at all.


  • 0

#14 Karl Otto

 
Karl Otto

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 87 posts
 

Posted 15 May 2011 - 03:32 PM

For years and months I lay on the living room floor in from of the television, nausea and sick as a dog. The VA Hospital Medical Personnel were telling me it was all in my head and to think positive thoughts. It would go away with positive thinking they told me over and over again. Well, it did not go away. I was given narcotic medications for Anxiety and Epilepsy. Asthma medications and every thing in between. This was to get rid of the Celiac Disease symptoms back then in the late 1980's and 1990's. The VA Hospital did everything they could to discourage me going to the civilian doctors about this diseases of mine. Then, 5 years ago, they finally admitted that it was Hyperinsulinism Hypoglycemia and Celiac Disease after I had a civilian hospital run the tests on me. They could have saved me allot of damage and worry if they would have given me the tests early but, they were worried about the compensation that I would have to be paid. The US Govenment litterly were trying to kill me with medications.
I feel better these days after being treated for Hypoglycemia and Celiac Disease than I have felt in years. I am still under weight but, I feel so much better. I still have to test my glucose every 4 hours during the day and night but, I still feel better. I go into hypoglycemic state once a day every day though at present time. Glucose drops down to 55 mg/dl sometimes and at other times it only drops down to 60 - 70 mg/dl.
  • 0

#15 bonnie blue

 
bonnie blue

    Community Member

  • Advanced Members
  • PipPipPip
  • 61 posts
 

Posted 15 May 2011 - 05:39 PM

Sunny, you are not a wimp!!! I know exactly what you are going through, I was diagnosed last September and I still kept on working, with that whole I am "Superwoman" mentality, however my body had other plans, I did have a few sick days when first being diagnosed, then ended up in the hospital in December, when my husband came home and found me on the floor passed out. I was basically trying to do everything I did before without letting my body heal, so after another trip to the ER in January my doctor said that's it, your are done until we can get you better. And yes I am still off work, do I feel guilty at times, you bet I do, but after being sick for so long, I have come to the conclusion that my health and well being are what I need to concentrate on. For so many years I have been sick and to think in a short time I could feel 100% is unrealistic.
I am very lucky to work for an organization who is holding my job for me, and a fantastic family who supports everything I do. As my husband said, I am worth more then the paycheck I bring home. Wishing you the best of luck and alot of hugs as you move forward on your journey to good health. B)
  • 1
Just takin it one day at a time :)




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: