Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Mystery Solved!
0

10 posts in this topic

So, a few weeks ago I had a major reaction, and I posted hoping you guys could help me sort it out...

I figured it out.

I had been eating fruit snacks with my son, and I had read the box and everything seemed fine...

Until I went a bought a case of them at the case sale at the commissary!

Motts by Brachs fruit snacks: Processed on equipment that may have trace amounts of wheat .

You've got to be kidding me.

Now I have a case of 56... why would the little box not say that?!

0

Share this post


Link to post
Share on other sites


Ads by Google:

check and see if the individual ones are marked "not for retail sale"

if not complain to the company.

0

Share this post


Link to post
Share on other sites

Sometimes, the companies do not put it down out of fear of not making a sale. I live near a health food and organic store. They have sells personnel come into their store telling them a certain food is gluten free verbally but, it is not written on the label. The company is just trying to make sells and not above using deceptive sales practises to do their job. Rule of thumb here, if it does not say gluten free on the label, I will not even look at it anymore. Then, I read the labels and find out what is in it. When, you have Celiac Disease it is with you for life. Be very careful what you put into your bodies. I am laying here in my hospital bed today because, I found out about my Celiac Disease and Hypoglycemia much too late in life. Yes, the hospital bed is in my personal home but, it is still a hospital bed all the same.

0

Share this post


Link to post
Share on other sites

I don't know why companies do that either and I find it really annoying. I've read a label for Reese's peanut butter cups and it didn't have a warning but when I read a package for the mini reese's peanut butter cups there was a warning that it could contain wheat. So now I don't eat any Reese's.

Maybe they don't have enough space on smaller packages...

0

Share this post


Link to post
Share on other sites

I don't know why companies do that either and I find it really annoying. I've read a label for Reese's peanut butter cups and it didn't have a warning but when I read a package for the mini reese's peanut butter cups there was a warning that it could contain wheat. So now I don't eat any Reese's.

Maybe they don't have enough space on smaller packages...

I have seen info on here that different size Reeses are made on different machines, perhaps even different factories. So the warning might make sense for one size but not the other. Either way, it doesn't hurt you not to eat them. :)

0

Share this post


Link to post
Share on other sites




Sometimes, the companies do not put it down out of fear of not making a sale. I live near a health food and organic store. They have sells personnel come into their store telling them a certain food is gluten free verbally but, it is not written on the label. The company is just trying to make sells and not above using deceptive sales practises to do their job. Rule of thumb here, if it does not say gluten free on the label, I will not even look at it anymore. Then, I read the labels and find out what is in it. When, you have Celiac Disease it is with you for life. Be very careful what you put into your bodies. I am laying here in my hospital bed today because, I found out about my Celiac Disease and Hypoglycemia much too late in life. Yes, the hospital bed is in my personal home but, it is still a hospital bed all the same.

I don't understand the part about it having to say gluten free. I haven't found any rice, fresh fruit or veggies or meat, etc that say gluten free. The things that say gluten free are usually the packaged, processed stuff. If you are that sick you should think of eating some things that don't say gluten free like potatoes, rice, apples, etc. Whole natural type foods.

0

Share this post


Link to post
Share on other sites

I have seen info on here that different size Reeses are made on different machines, perhaps even different factories. So the warning might make sense for one size but not the other. Either way, it doesn't hurt you not to eat them. :)

Huh, I never knew that but I'm horribly addicted to chocolate so any excuse not to eat it is good, lol. If I feel like eating one I'll e-mail the company to be sure though. I don't want to get glutened...

0

Share this post


Link to post
Share on other sites

[/font

I personally am very sick with celiac Disease and Hyperinsulinism Hypoglycemia. But, my sons are still very young compared to me when, I was diagnosed. They can still eat things like that. For instance, Annie's cheese and macaroni comes in a packaged box. There is a package of cheese sause in the box. The box says clearly stamped on it gluten free. So, the food can still be packaged and, it can still be healthy to eat. It is made of rice flour and other safe ingredients. Some sausages you can buy at the supermarket are clearly marked gluten free on the package as well. Some yellow cake mixes sold at the grocery stores are also marked gluten free. There is too many articles out there that are gluten free and say so on the label. Why shouldn't people eat them?

0

Share this post


Link to post
Share on other sites

[/font

I personally am very sick with celiac Disease and Hyperinsulinism Hypoglycemia. But, my sons are still very young compared to me when, I was diagnosed. They can still eat things like that. For instance, Annie's cheese and macaroni comes in a packaged box. There is a package of cheese sause in the box. The box says clearly stamped on it gluten free. So, the food can still be packaged and, it can still be healthy to eat. It is made of rice flour and other safe ingredients. Some sausages you can buy at the supermarket are clearly marked gluten free on the package as well. Some yellow cake mixes sold at the grocery stores are also marked gluten free. There is too many articles out there that are gluten free and say so on the label. Why shouldn't people eat them?

You should NOT eat only packaged items labeled gluten free because there is no current regulation of the term "gluten free". Those items may not have any gluten added but they can still contain small amounts of gluten. Even if a law were made that gluten-free labeled items have to be tested for gluten, the most sensisitve test detects 5 PPM. There is no way of knowing if it has 4 PPM of gluten. Some people react to less than 5 PPM gluten. Many "gluten free" labeled products make celiacs very sick. For some people when they eat a processed gluten-free food the first time they have no reaction, but eating it several times along with other packaged gluten-free items that could have very low levels of gluten has a culmulative effect. Eventually they will feel very sick and not be able to figure out where it is coming from. Plus those items that you mention have almost no nutritional value. Foods that are naturally gluten-free like fruits and veggies, plain rice, sweet potatoes, quinoa, beans etc. are much better for helping your body heal and can speed your recovery. Things like cake and gluten-free macaroni and cheese should be a once in a while treat, NOT a staple of your diet.

Fianlly, I don't know your age or your other health problems that keep you in a hospital bed currently, but you very likely could a recover enough to get out of that hospital bed someday. I was bedridden with pain from the gluten, slept most of the day, unable to read because my memory was so bad, unable to drive under dr's orders, had seizures and many, many other symptoms typical of severe malnutrition like my hair falling out. It took about 6 months for me to get my energy back to the point where I was able to do basic things again like cooking a meal or folding laundry. But my energy and my health has come back like a miracle on the gluten-free diet. I'm 1 year and 5 months gltuen free now and enjoying life. I still get very ill if i get any small amoutn of gluten and I'm battling other food allergies now and possible thyroid issuse, but I feel better than I ever have ibn my whole life. It may take longer for you but it will happen faster (in my opinion) if you eat mostly healthy foods that are gluten-free in their natural state.

1

Share this post


Link to post
Share on other sites

First off, I have a rebutal for you. According to my imediate relatives, I have had this condition all my life, ever since, I was baby. Since, we came from a dirt poor family and could go to the doctors. We had to deal with our illnesses and disease the best way we could. Back then, we did things by comon sense and trial and error method. That is what poor white and Native American People did to survive.

I was born with Hyperinsulinism Hypoglycemia and Celiac Disease as well. My mother was diagnosed before she died at the tender age of 82 years. To late for her, though.

I inherited the disease from her, plus she had a blood condition that doctors could not diagnose back then correctly. Now, days they call it Hyperinsulinism Hypoglycemia. Look it up on the web next time.

I must test my blood at least 6 times a day to check on my glucose levels and, still I get very low blood sugar counts that run down as low as 55 mg/dl at lease once a day or every other day. I have to weigh how much natural and refined sugars in eat piece of food I put into my mouth. I have to weigh how much vitamins and what kind of vitamins are in each foods I eat.

Celiac people have to watch out for gluten hidden in their foods at all times and, I understand this. Most people even with Celiac Disease have other health problems attached to their Celiac Disease. Very rarely does Celiac Disease and Hypoglycemia come along by themselves. Most of us have other health problem besides the Celiac Disease. Diabetes, Hypoglycemia, Food Allergies, Preservitives allergies, etc..... What your neighbor is able to tolerate with his Celiac Disease may not work for you at all. Keep that in mind. There is no one shoe fits-all here people.

Since, my three conditons have not been dealt with properly over these long years, I have other complications to deal with now that, you people do not know about or ever heard of. Please try and keep that in mind as well.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,352
    • Total Posts
      920,502
  • Topics

  • Posts

    • This is EXACTLY what happens to me. It has twice now and both times was after both glutening episodes but once it was the day after and the other time it was a week and a half. So I'm still not sure if it's related or strange bug bites...

      Did they stop happening when she stopped being glutened? Did you decide they were definitely related? I'm really confused by this and would love to know whether to insecticide my house or....
    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,416
    • Most Online
      1,763

    Newest Member
    djs2117
    Joined