Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Help With Getting Info On Fructose Malabsoption/intolerance
0

7 posts in this topic

Hi All,

I was wondering if anyone would be willing to help me with finding sources of good information about fructose malabsorption. My natural practitioner thinks that I may have this and I would like to request that my midwife order the hydrogen breath test, but she thinks that all my symptoms are just related to depression and not actual physical symptoms. So, I was hoping to be able to print out some legitimate research that I could bring in to her when I have my appointment on Wednesday.

I have been diagnosed with Celiac for about 20 months now and have tried eliminating all of the most common foods that other celiac sufferers tend to have a hard time with. I also have been on the SCD diet for 9 months and I have had very little - if any - improvement. I know that it's not from CC, because my house is completely gluten free and I call on all my products including toiletries to make sure they are gluten free.

Thanks in advance for any help!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hi All,

I was wondering if anyone would be willing to help me with finding sources of good information about fructose malabsorption. My natural practitioner thinks that I may have this and I would like to request that my midwife order the hydrogen breath test, but she thinks that all my symptoms are just related to depression and not actual physical symptoms. So, I was hoping to be able to print out some legitimate research that I could bring in to her when I have my appointment on Wednesday.

I have been diagnosed with Celiac for about 20 months now and have tried eliminating all of the most common foods that other celiac sufferers tend to have a hard time with. I also have been on the SCD diet for 9 months and I have had very little - if any - improvement. I know that it's not from CC, because my house is completely gluten free and I call on all my products including toiletries to make sure they are gluten free.

Thanks in advance for any help!

Hi!

I have fructose intolerance and I had fructose intolerance breathing test. It was positive for me. The technician tested two gases, not just one. She tested me for methanol too. I had only methanol readings high. The technician gave me to drink 1 cup some special liquid and checked my breath every 20 minutes. I asked her how she will know if I have it. She told me that normal people will have spike in readings only ones at the beginning and fructose intolerant will have twice- Second time after 2-3 hours. Which is the truth. I tried to eat apple and I will have bloating twice, second time ( after 2-3 hours) stronger then ever. Maybe you can try to do the same. Or eat pear, or watermelon. You can find out by yourself, if you have it. With fructose malnutrition you can have bloating, gas, even diarrhea which is similar to celiac disease. When I went gluten free I started to react very strongly to fructose. It is possible that you have it too.

I dont have any material about fructose malnutrition or intolerance. I found all information on internet.

http://en.wikipedia.org/wiki/Fructose_malabsorption

and I found this: http://www.cigna.com/healthinfo/nord227.html, which is scary. This is just for heriditery fructose malabsorption.

0

Share this post


Link to post
Share on other sites

http://robnstephfamily.blogspot.com/2008/08/fructose-malabsorption-diet.html (Helpfull Blog)

http://www.infantrefluxdisease.com/forums/showthread.php?t=45308

http://sites.google.com/site/acousticeagle/fructosemalabsorption%3Amyexperience

http://www.southwestnutrition.com/page7.html

http://shepherdworks.com.au/disease-information/fructose-malabsorption

http://hubpages.com/hub/Fructose-Malabsorption#

http://avthompson.wordpress.com/2009/03/14/tendonitis-starting-to-abate/ (Girl with FM's Blog)

http://sites.google.com/site/fructmal/questions

http://www.diet.com/g/fructose-intolerance

http://chowhound.chow.com/topics/404044 ( some comments on High fructose corn syurp free candy)

http://www.healthhype.com/rare-genetic-disorders-hereditary-fructose-intolerance.html (Info on the rare hereditary version, if you by chance were curious)

http://www.tummytrubble.com/fructose-malabsorbtion/causes/ (really well laid out guide of good and bad foods for FM)

http://www.facebook.com/topic.php?uid=2234760843&topic=7699 (Facebook topic on FM lol)

http://sacfs.asn.au/download/SueShepherd_sarticle.pdf (Guide to FM and IBS and dealing with it)

http://www.ibsgroup.org/forums/index.php?/topic/90135-fructose-malabsorption/ (Support grp that had a section on FM)

http://www.ibsfree.net/ibsfree_at_last/dietary_fructose_intolerance/ (pretty detailed site of IBS relating to FM and diet)

ok I actually had more believe it or not,when I first started dealing with all of this I was just sensitive to EVERYthing so I assumed the worst lol

anywhoo I hope something here is what you need, and helps I know dealing with FM isn't easy, the diet sucks at first, sugar withdrawl is a BITCH xD

0

Share this post


Link to post
Share on other sites

Thanks you guys! I'll check out those links. :)

0

Share this post


Link to post
Share on other sites




Thanks you guys! I'll check out those links. :)

The single best thing is to join the 'fructose malabsoprtion australia' yahoo group. There you can get access to some recent research papers, including ones that involve scientific explanations of the process and research studies.

The best lists of fructose and fodmap content come from Monash University in Australia, as they are the ones actually testing food. Authors to look out for include Shepderd and Gibson. If there's conflicting info, always go with Monash and Shepherd first, as they are testing and publishing right now. Some of the other information on the net is old and incorrect.

Also, if you search fructose malabsorption here at celiac.com you will find posts from others looking in to the topic.

0

Share this post


Link to post
Share on other sites

Yes, look at shepherd works - I happen to live near sues practice in Melbourne Australia. I got dietary advice from her dietitians when I was diagnosed Coeliac and then later with fructose malabsorption and lactose intolerance. Sue was diagnosed with celiac disease when she was studying her masters degree in Dietics.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,645
    • Total Posts
      918,443
  • Topics

  • Posts

    • How effective is HD skin biopsy after being gluten free for a year
      Looks like you got some good info from previous posters.   I don't understand why you and your doctor think that dairy contains gluten?  Lactose is a sugar not a protein like gluten.  I think you have some other issues.  
    • Question on posting
      I made an informative video for Celiac Awareness Month that demonstrates how small 20ppm is. Am I allowed to post a vimeo link? Thanks!
    • Celiac Awareness on NBC Nightly News
      http://www.nbcnews.com/nightly-news/video/celiac-disease-affecting-millions-of-americans-often-goes-undiagnosed-692131907739   This was on last Tuesday. So happy that a popular national news program is spreading good information!
    • The US Preventative Services Task Force needs our help - tell them why Celiac screening is important!
      I am so angry. I am all about universal screening for Celiac Disease. It is a tricky disease to diagnose. Your only symptoms may be joint pain, depression, or weak nails, which people will try to cure with medication or a good manicure. With roughly 80% of the Celiac population remaining undiagnosed, universal screening could save thousands of lives. This article popped up in my twitter feed regarding US physicians who are unsure whether universal screening would provide “health benefits” for those who exhibit no symptoms (http://www.reuters.com/article/us-health-celiac-screening-idUSKCN0XU2G6?utm_content=buffer3ed50&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer) First of all, no symptom is a symptom! There is something called “Silent Celiac Disease”, and I personally know several people who have it. They experience no outward symptoms caused by gluten consumption, but their insides are being torn apart. If they eat gluten, they may not feel it, but they are highly at risk for long term complications such as cancer, miscarriages, and osteoporosis, just to name a few. Also, let’s consider the non-GI related symptoms of Celiac. Doctors, how many times does someone walk into your office and say, “Gee, Doc, could you test me for Celiac Disease? I have (insert one of the following)”: asthma bladder infections dental problems dandruff high blood pressure headaches blurred vision leg cramps back pain pale skin brittle nails acne bad bread mood swings ADD Anxiety Depression a short temper night terrors panic attacks irrational anger sinus pressure Those are just a few of the symptoms that people don’t think to associate with Celiac Disease, and I’m sure that you, Mr. Doctor, will not test someone with Celiac Disease if they have dandruff. This is why so many people are undiagnosed! People do not recognize the symptoms and doctors won’t think to give them a blood test. This is why I always say – You cannot know that you do not have Celiac Disease until you get tested. “One concern with widespread screening is that biopsies aren’t risk-free and may confirm cases of celiac disease that weren’t causing problems for patients and didn’t necessarily require treatment, Krist noted.” WHAT?????? First of all, most Celiac screening starts with a gene test or a blood test. That aside, ALL confirmed cases of Celiac Disease require treatment!! Untreated Celiac Disease can cause many problems in the future. “Guidelines for gastroenterologists recommend celiac screening for people with a close relative with celiac and for diabetics who are at increased risk for the disease, Murray said by email.” I was the first person in my family to be diagnosed. 80% of Celiacs don’t know they have it. I would have never been diagnosed if my gastroenterologist said, “Well you don’t have diabetes and no one in your family has it….” No one in my family had heard about Celiac Disease, let alone had been tested for it. And we have all of the tradition GI symptoms. This is not a rare disease. About 1% of the population has Celiac Disease. Take a look at your facebook friends list – have 500 friends? Odds are that you know four or five friends with Celiac. MAYBE one of them will be diagnosed. Maybe. The others will be suffering in silence. “The USPSTF, a government-backed independent organization that reviews medical evidence, issues recommendations that are closely watched by doctors and insurers. This is the first time the USPSTF has weighed in on screening for celiac disease, and the task force will accept public comments until May 30 before releasing final guidelines.” This brought me to the USPSTF website. In their draft, here is what is listed as “Potential Harms” of screening in asymptomatic populations. I’ve included my response: False positive – there are rarely false positives Unnecessary serologic tests and biopsies – umm…only do a biopsy if you have a positive blood test. And what’s so bad about a blood test? Anxiety of complications from testing – I had much more anxiety in my pre-Celiac days, not knowing if I would poop my pants at work. “Some patients with positive serology who do not undergo histologic confirmation may embark on efforts to avoid dietary gluten, which can increase costs and burdens and may result in decreased quality of life” “– I’m glad that you think my life is so terrible. “Limited evidence from long-term followup studies have shown that some persons with biopsy-confirmed celiac disease may never develop symptoms or complications” – I’m not going to risk getting cancer, are you??? The USPSTF is taking public responses to their draft, all of which must be submitted by May 30th. I highly urge you to write in and explain why universal screening is important. My Celiac diagnosis saved my life. If universal screening can do the same for a huge portion of the population – I am all for it. This could be the most important thing you do for Celiac Awareness Month. Read the draft and write to the USPSTF here. http://www.uspreventiveservicestaskforce.org/Page/Document/draft-recommendation-statement150/celiac-disease-screening
    • Celiac.com: Full month of educational opportunities planned at library
      He will also be offering free Tai Chi classes at WCPL every Tuesday, ... the varied symptoms of Celiac disease and the necessity to follow a gluten-free ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,738
    • Most Online
      1,763

    Newest Member
    Ladywolf
    Joined