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Help With Getting Info On Fructose Malabsoption/intolerance
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7 posts in this topic

Hi All,

I was wondering if anyone would be willing to help me with finding sources of good information about fructose malabsorption. My natural practitioner thinks that I may have this and I would like to request that my midwife order the hydrogen breath test, but she thinks that all my symptoms are just related to depression and not actual physical symptoms. So, I was hoping to be able to print out some legitimate research that I could bring in to her when I have my appointment on Wednesday.

I have been diagnosed with Celiac for about 20 months now and have tried eliminating all of the most common foods that other celiac sufferers tend to have a hard time with. I also have been on the SCD diet for 9 months and I have had very little - if any - improvement. I know that it's not from CC, because my house is completely gluten free and I call on all my products including toiletries to make sure they are gluten free.

Thanks in advance for any help!

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Hi All,

I was wondering if anyone would be willing to help me with finding sources of good information about fructose malabsorption. My natural practitioner thinks that I may have this and I would like to request that my midwife order the hydrogen breath test, but she thinks that all my symptoms are just related to depression and not actual physical symptoms. So, I was hoping to be able to print out some legitimate research that I could bring in to her when I have my appointment on Wednesday.

I have been diagnosed with Celiac for about 20 months now and have tried eliminating all of the most common foods that other celiac sufferers tend to have a hard time with. I also have been on the SCD diet for 9 months and I have had very little - if any - improvement. I know that it's not from CC, because my house is completely gluten free and I call on all my products including toiletries to make sure they are gluten free.

Thanks in advance for any help!

Hi!

I have fructose intolerance and I had fructose intolerance breathing test. It was positive for me. The technician tested two gases, not just one. She tested me for methanol too. I had only methanol readings high. The technician gave me to drink 1 cup some special liquid and checked my breath every 20 minutes. I asked her how she will know if I have it. She told me that normal people will have spike in readings only ones at the beginning and fructose intolerant will have twice- Second time after 2-3 hours. Which is the truth. I tried to eat apple and I will have bloating twice, second time ( after 2-3 hours) stronger then ever. Maybe you can try to do the same. Or eat pear, or watermelon. You can find out by yourself, if you have it. With fructose malnutrition you can have bloating, gas, even diarrhea which is similar to celiac disease. When I went gluten free I started to react very strongly to fructose. It is possible that you have it too.

I dont have any material about fructose malnutrition or intolerance. I found all information on internet.

http://en.wikipedia.org/wiki/Fructose_malabsorption

and I found this: http://www.cigna.com/healthinfo/nord227.html, which is scary. This is just for heriditery fructose malabsorption.

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http://robnstephfamily.blogspot.com/2008/08/fructose-malabsorption-diet.html (Helpfull Blog)

http://www.infantrefluxdisease.com/forums/showthread.php?t=45308

http://sites.google.com/site/acousticeagle/fructosemalabsorption%3Amyexperience

http://www.southwestnutrition.com/page7.html

http://shepherdworks.com.au/disease-information/fructose-malabsorption

http://hubpages.com/hub/Fructose-Malabsorption#

http://avthompson.wordpress.com/2009/03/14/tendonitis-starting-to-abate/ (Girl with FM's Blog)

http://sites.google.com/site/fructmal/questions

http://www.diet.com/g/fructose-intolerance

http://chowhound.chow.com/topics/404044 ( some comments on High fructose corn syurp free candy)

http://www.healthhype.com/rare-genetic-disorders-hereditary-fructose-intolerance.html (Info on the rare hereditary version, if you by chance were curious)

http://www.tummytrubble.com/fructose-malabsorbtion/causes/ (really well laid out guide of good and bad foods for FM)

http://www.facebook.com/topic.php?uid=2234760843&topic=7699 (Facebook topic on FM lol)

http://sacfs.asn.au/download/SueShepherd_sarticle.pdf (Guide to FM and IBS and dealing with it)

http://www.ibsgroup.org/forums/index.php?/topic/90135-fructose-malabsorption/ (Support grp that had a section on FM)

http://www.ibsfree.net/ibsfree_at_last/dietary_fructose_intolerance/ (pretty detailed site of IBS relating to FM and diet)

ok I actually had more believe it or not,when I first started dealing with all of this I was just sensitive to EVERYthing so I assumed the worst lol

anywhoo I hope something here is what you need, and helps I know dealing with FM isn't easy, the diet sucks at first, sugar withdrawl is a BITCH xD

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Thanks you guys! I'll check out those links. :)

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Thanks you guys! I'll check out those links. :)

The single best thing is to join the 'fructose malabsoprtion australia' yahoo group. There you can get access to some recent research papers, including ones that involve scientific explanations of the process and research studies.

The best lists of fructose and fodmap content come from Monash University in Australia, as they are the ones actually testing food. Authors to look out for include Shepderd and Gibson. If there's conflicting info, always go with Monash and Shepherd first, as they are testing and publishing right now. Some of the other information on the net is old and incorrect.

Also, if you search fructose malabsorption here at celiac.com you will find posts from others looking in to the topic.

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Yes, look at shepherd works - I happen to live near sues practice in Melbourne Australia. I got dietary advice from her dietitians when I was diagnosed Coeliac and then later with fructose malabsorption and lactose intolerance. Sue was diagnosed with celiac disease when she was studying her masters degree in Dietics.

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
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      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
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