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Cancer, Chemo, Gluten Ughhh


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#61 ravenwoodglass

ravenwoodglass

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Posted 30 June 2011 - 03:21 AM

Keeping my fingers crossed for you. You show a great deal of strength dealing with all this. Keeping you in my thoughts and prayers.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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#62 IrishHeart

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Posted 30 June 2011 - 04:56 AM

Fran,
It sounds like you view the "beast that you know" as easier to slay! Now, that's the wise warrior way of thinking, girlfriend! :)
Your relief tells me this possible alternative path for treatment is preferable to you for many reasons.
Try to relax, enjoy the weekend with your family, and I continue to hold you in my thoughts and prayers.
My Best, Irish
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#63 Bubba's Mom

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Posted 30 June 2011 - 06:10 AM

Fran..I'm new here and just read through this thread. You are AMAZING!
My best wishes to you in your treatment. Im finding that getting diagnosed quickly and correctly means a world of difference.
I go in today to have a CT scan redone. The one I had in March showed enlarged lymph nodes. The Dr. is checking to see if I have intestinal lymphoma. Originally she was going to redo the test in July, but after seeing her on Tuesday and reviewing the biopsy report she made it sooner.

I had a colon/rectal cancer in 2003 with a resection surgery. It was stage 1 so no chemo or radiation was given. The word "cancer" causes my anxiety level to go into overdrive.

I guess when going through this..you just take one step at a time? With each new answer you say.."ok..what do we do about it?"..and then do it!

Whatever my outcome today...I want you to know you are an inspiration to me. good luck kiddo! :)
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#64 fran641

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Posted 30 June 2011 - 07:54 AM

You picture looks so young to have already battled one cancer and facing the fear of another one. I pray it's not Lymphoma but it is certainly doable. Thanks for all your kind words. I have a grandson (we have 11 grands total) that we call Bubba. :rolleyes:
Have a great day.
Fran

Fran..I'm new here and just read through this thread. You are AMAZING!
My best wishes to you in your treatment. Im finding that getting diagnosed quickly and correctly means a world of difference.
I go in today to have a CT scan redone. The one I had in March showed enlarged lymph nodes. The Dr. is checking to see if I have intestinal lymphoma. Originally she was going to redo the test in July, but after seeing her on Tuesday and reviewing the biopsy report she made it sooner.

I had a colon/rectal cancer in 2003 with a resection surgery. It was stage 1 so no chemo or radiation was given. The word "cancer" causes my anxiety level to go into overdrive.

I guess when going through this..you just take one step at a time? With each new answer you say.."ok..what do we do about it?"..and then do it!

Whatever my outcome today...I want you to know you are an inspiration to me. good luck kiddo! :)


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Fran

Gluten free since Dec. 2008

New food sensitivities rear their ugly heads as time goes on.
Diagnosed with follicular Non Hodgkin Lymphoma Sept. 2010


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