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Ways Of Coping With Glutening....
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I have known of my Celiacs since November 2009...and I swear the glutenings feel worse every time it happens (luckily they are few and far between). When I get glutened I am up for trying anything! Today I got CC'ed and it was one of those bad, bad days :( So I was researching like crazy other ways to help this pain. I have tried ginger tea, but didn't really notice anything different and the taste to me is not good at all....?

So, I see there's an Enzyme? I know nothing about these, I don't know what it's called, or if there are different kinds? Advice anyone?

Then I found that marijuana can help? So I researched medical marijuana, and celiac disease is apparently covered along with many other digestive diseases and syndromes...but not in Minnesota. So that won't be an option for me for now, but has anyone tried this? Does this really work?

Any other ideas?? I can't believe I lived with this crap (literally haha) and pain for years, unknowingly poisoning my poor intestines....any advice is great! Thanks!!

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I think we all cope with it different, as the symptoms tend to vary from person to person. It kinda becomes a game of trying things that seem like they might work, and finding what works best for you.

When I get glutened, I feel like I have the flu for a good portion of a day, and then feel either achy all over my body, or lightheaded, or both. I lose my appetite, and be really irritable for a day as well. Digestive-wise, I'll have nausea, lower abdominal cramps, and get really bloated feeling.

There are a few things that seem to help me, being Junior Mints and Vernor's. Don't ask me why, but they just seem to work for me.

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I have recently discovered something called K2 incense, you find it at a head shop, where they sell bongs and other things like that. You smoke it like the other, it is just herbs not the real stuff. I almost forgot, it does have something called synthetic cannabis. It dosen't show up in a blood test, but it is illegal in some states. You need to check to see if it's allowed in yours because it does cause impairment. It gets rid of my fibro pain and my glutening pains but don't plan on going anywhere or doing anything. I like it because it dosen't cause the munchies and I can still walk a straight line, lol, it just makes me numb all over. Just a suggestion, it's up to you. Good luck

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Thanks for your suggestions!! I will have to try the Junior Mints thing as they are delicious!! I have never heard of K2, but I will look into that as well. Hopefully I can find something!! I have a very bloated tummy tonight :(

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I found rubbing rose oil into my stomach, massaging clockwise helped alot and sipping black sweetened tea stopped all nausea and doesnt taste as bad as ginger tea! I do not like ginger tea at all. And just relaxing! Just lie down on the sofa and chill out reading or watching something, staying warm as well! I find if im cold i feel so much worse, being anemic i do often feel cold! Hope this helps!

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I found rubbing rose oil into my stomach, massaging clockwise helped alot and sipping black sweetened tea stopped all nausea and doesnt taste as bad as ginger tea! I do not like ginger tea at all. And just relaxing! Just lie down on the sofa and chill out reading or watching something, staying warm as well! I find if im cold i feel so much worse, being anemic i do often feel cold! Hope this helps!

Thank you!! I will try the black sweetened tea.

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Depends on the symptoms... I get terrible migraines w/nausea and appetite loss and irritability/emotional craziness (go figure). If I lived in a med marijuana state, I would definitely go that route - but I don't, so a dark room and a cool compress are the best I can do. And I don't think MJ would help w/diarrhea, gas, bloating - might work on stomach pain, though.

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OMG don't mess with that K2 stuff! :o It has cannabis-like designer drugs in it. The drugs have never been tested, nobody knows if they are safe. As soon as the government makes one illegal they invent another. You are a guinea pig for completely untested drugs. If you find pot helpful for fibro, see about getting the natural stuff for medical use.

http://en.wikipedia.org/wiki/Synthetic_cannabis

I get mostly GI symptoms from gluten so I use Pepto Bismol and Immodium.

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i stop eating b/c i have no appetite. also soooo tired. hot tea with sugar and lactaid.... hopefully a nap then i will feel progressively better but my digestion will be messed up for 4-5 days no matter what i eat. also feels like i am hit by a truck. i like the junior mints idea :)

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It depends on the symptoms. MJ has helped me with the pain, nausea and general sick feeling. But I also have discovered that I now get dizzy with glutening. And I have taken dramamine to combat that, it helps and even with the nausea. I think many of us have had to try different things to see what works. You may have to try until something works for you. I hope you feel better. :)

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oh, yeah, and have been self mj'd for years even before my dx, so i believe there is truth to it's medicinal qualities. it does help, even if it's an attitude adjuster. i get really irritable when i have been zapped, so it keeps other people from killing me. eventually, when i feel better it helps with the appetite. i agree with skylark - don't mess with that synthetic sh*t. get the kind God makes. if you can't find it, ask a senior citizen ;)

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Thanks all for your replies!!! I won't try synthetic stuff....I am not much into ANY drugs, but was wondering about MJ....maybe someday they will legalize it ;) For now I will stick to my tea, pain relievers and immodium! And maybe some MJ someday....

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    • Oh, and as I mentioned in my own post on pain, xanax. I swear. I tried it just to deal with the occasional panic I had at weird scary symptoms and clueless doctors. I am not a fan of long term use. But I recently found that .25 mg seems to aid with the neuropathic pain. It does not go away, but it helps. 
    • It does sound like a Glutening and you are just a few months into the diet.  It might help if you read our Newbie 101 thread under the "Coping" section.   Here is some information about rice milk: https://www.verywell.com/is-rice-dream-gluten-free-562354 Many, many celiacs are often lactose intolerant temorarily or permanently if you are naturally genetically inclined.  When I am glutened, I lose the ability to digest lactose for a while.   Salad?  Great but it can be rough on a sore gut!  Think soups, stews, easy-to-digest foods that you prepare yourself until you feel better.  Did your folks give you salad after a bout of flu?  Or did you stick with jello and broth?  I am intolerant still after three years to garlic and onions (the lactose resolved, thankfully).  You have a leaky gut (Google zonulin and Dr. Fasano who is a leading celiac researcher to verify that this is true) and that means you can become intolerant to anything (hopefully, just temporarily).   If you are 100% sure that you have had no access to gluten....did you eat out lately?.....then see your doctor.  Remember, celiac disease symptoms can change.  And here is the biggie.....it can take weeks, months or years to heal from celiac disease.  Two months in is nothing, really.  Why?  It takes time to figure out the diet and time for antibodies to come down.  celiac disease is an autoimmune disorder triggerEd by gluten.  once triggered it can go on and on damaging your gut especially with repeated glutenings (accidental or through cross contamination). I hope you feel better soon!  
    • I concur! I literally feel your pain as well. Like, at the moment, lol. Did you have an endo to see inflammation or damage? I am close to begging my GI for carafate or something to coat and protect. How about testing your antibodies to see if they are still rising? I read somewhere here rice milk may not be a good option.  Folks here have also suggested to me to stick with whole foods. Limit processed. Especially stuff that is not certified gluten-free, like chex. I think small amounts of gluten are in processed foids and can add up. I too reacted to lettuce the other day like I was ingesting glass. My sibling  had a food sensitivity panel done and it came back positive for a few things he had been eating a lot of. He can now eat them, but had to cut them out of his diet. Lettuce is probably on mine.  I have been drinking carrot and pomegranate juice,  dandelion root tea with hiney, aloe water, lots of squash, fish. Mild, no garlic, no onions or hot sauce. No coffee. It sucks.  Inflammation can tick off other organs, you mention a "Pain below". Not exactly sure which side, but certainly call your doc Monday. Sooner if the pain increases.
    • You should see a GI specialist before you go gluten free.  They should do a upper endoscopy to check for celiac damage.  Colonoscopy won't show anything related to celiac.  Also no you should not feel worse on gluten free, you should feel better.
    • So ok, I get the pain/bloating thing, but it still feels so crazy. But my god, I look 6 months preggers after dinner and 4 months the rest of the time. How long will this last?! I have not gained any weight but have to hide me belly now. I can hardly breath! Omg, that does take me back to pregnancy.  I had "acute marked focal duodenditis" a few weeks ago and an elevated DGP. the pain sometimes makes me seriously think I must be bleeding somewhere. It is actually worse then 3 weeks ago. Although many of the other glutening symptoms are finally vanishing. Even my mid and lower back is tender to touch. Sometimes it burns, aches or like someone is stabbing me in my side. My ribs hurt and everything is tender.  I am on protonix and fish oil. I have a prn for xanax which helps the pain (off market use for muscle relaxant).    I am fair skinned and notice a red under-the-skin discolored rash that comes and goes on my upper stomach. Sometimes it travels down one side. Not itchy. Almost like I can actually see the inflammation under my skin.  1) when will I stop looking knocked up?  2) Any other fair-skinned folks notice a purpleish-red rash on your bellies? It mostly goes away and comes back, which I tske to be a good sign. 
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