Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Crohn's Disease And Gluten-Free Diets
0

16 posts in this topic

I'm currently training for my first triathlon in order to raise money for the Crohn's and Colitis Foundation of America. I picked this one because I know that some of their research does overlap other GI immune conditions. I'm not totally sure how though. I've found some research about shared genes. I want to make sure I'm telling people the right things, since many of them have experience with celiac only.

My main question now is how many people with Crohn's and/or colitis follow a gluten free diet? Is it the same or different from the celiac diet in any ways? I've met one person who said she couldn't eat many other gluten free replacement grains. Is that something that varies by person?

Also, how does a doctor distinguish between celiac disease and Crohn's when it affects the small intestine?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I cannot address a lot of your questions but I believe the differential dx between Crohns and Celiac disease would be that with Celiac disease there will be villi blunting.

0

Share this post


Link to post
Share on other sites

I believe Crohn's is usually diagnosed by barium swallow x-rays of the GI tract, both upper and lower, as it affects the whole intestine.

0

Share this post


Link to post
Share on other sites

Some people with Crohn's follow the GFCFSF diet also. Others don't. If it helps an individual seems to vary. Some people have both Crohn's and celiac too.

There isn't any clear cut answer to why Crohn's affects the whole intestine and celiac only the small intestine. They are both auto-immune diseases/conditions and are both serious. However with Crohn's a diet that helps everyone is not a known thing, like it is with celiac. Of course then you look a little further and find that many people with celiac have additional food intolerances beyond GFCFSF. People with Crohn's often have antibodies to baker's yeast also.

Crohn's patients generally use a combination of diet and immuno-suppressants to manage their symptoms. Some don't make any diet changes and use drugs to control their symptoms.

They are both auto-immmune diseases/conditions of the digestive tract and probably have more in common than different. But celiac is the only auto-immune disease that doctors understand the trigger for right now. Crohn's is still a mystery.

0

Share this post


Link to post
Share on other sites

There isn't any clear cut answer to why Crohn's affects the whole intestine and celiac only the small intestine. They are both auto-immune diseases/conditions and are both serious. However with Crohn's a diet that helps everyone is not a known thing, like it is with celiac. Of course then you look a little further and find that many people with celiac have additional food intolerances beyond GFCFSF. People with Crohn's often have antibodies to baker's yeast also.

Crohn's patients generally use a combination of diet and immuno-suppressants to manage their symptoms. Some don't make any diet changes and use drugs to control their symptoms.

They are both auto-immmune diseases/conditions of the digestive tract and probably have more in common than different. But celiac is the only auto-immune disease that doctors understand the trigger for right now. Crohn's is still a mystery.

Might be because docs don't tell them to change their diet. I know people with Crohn's, one had huge chunks of her large intestine removed, who were never told about diet. They just take pills. :o

0

Share this post


Link to post
Share on other sites




I know someone with Crohn's, too, and I asked her if she'd ever been tested for celiac. She hasn't but knows we share a lot of the same symptoms. She also knows both are autoimmune. She'd rather just take her pills, which she's been doing for many years. So I don't know if she was ever told about the gluten-free diet or if she'd just miss the spontaniety of eating out a lot. So I've dropped the subject.

0

Share this post


Link to post
Share on other sites

Before I was aware of celiac I knew someone with Crohn's who literally lived on pasta, and no, it was not Tinkyada :o And I did sonehow know at that time that was not the right thing to do because I said to my MIL "But she has Crohn's!!" It makes you wonder why doctors insist on NO SALT and NO FAT but they can't say the words NO GLUTEN!!

0

Share this post


Link to post
Share on other sites

Thanks for the responses. It's interesting. The one girl I talked to at the meetings said she went into remission on a Gluten-free Casein-free low sugar diet, and some doctors supported her while others didn't. It sounded very similar to my own experience with negative tests, a variety of responses from doctors, but major health improvements on a different diet.

0

Share this post


Link to post
Share on other sites

Crohn's disease affects several layers of the intestines, unlike celiac, which just affects the top layers, and there is often narrowing/scarring/ulcers. It shows up in biopsies in the affected area, and I believe the pattern of immune cells in the mucosa is different. Typically, the symptoms are slightly different as well but there can be a lot of overlap. (I really really did not want Crohn's disease to be diagnosed last year.)

A really common diet recommendation for Crohn's is no whole grains and no beans. Digesting fiber ahd phytic actid tends to be hard. That's probably why she said she can't eat some (whole) gluten-free grains.

Some research points to infection with MAP (Mycobacterium paratuberculosis) as the trigger for Crohn's but it's not well accepted.

1

Share this post


Link to post
Share on other sites

This thread is interesting to read. The only person I have ever known with crohns told me there was no way to help the symptoms with dietary changes and they would not even entertain the idea. So I never really looked into it or anything. This person was on very strong medicines and still in pain most of the time. I wish they would have at least looked into some dietary changes to see if it helped (although I understand it's not the same as celiac and diet may not help everyone, it's hard to watch someone so desperate for symptom relief yet refuse to at least try a change of food). This person also ate mostly pasta and breads however and I really do wonder now if they were addicted to the gluten and just making their pain worse by eating it so much.

0

Share this post


Link to post
Share on other sites

Hi everyone,

Interesting to read the responses from the Celiac community. I have Crohn's disease, am working on a documentary film about treating digestive conditions such as IBS, Celiac, Crohn's & ulcerative colitis using alternative treatments when drugs and surgery no longer work.

Several of you are correct that there is no specific, doctor recommended dietary plan for treating Crohn's disease. Unless you talk to a Naturopathic doctor, but even then, it's still a mixed bag of responses. No standards at all.

I use primarily diet and supplementation to control my D and pain. I haven't been on medication since 2007. Gastroenterologists absolutely do not believe food plays a role and tell patients that the best course of treatment is medication and sometimes surgery. This is why some of you have run into opposition when trying to talk to your friends about diet treatments for Crohn's. They are told it doesn't work and they believe their doctors.

It is my hope with my documentary that I will prove that it can work! There are many people who are discovering this everyday and defying their doctor's requests to take immunosupressive drugs, which can have horrible side effects. It ain't easy, especially because we can't tolerate any grains at all (those of us who use special diets) and instead we make our breads with nut flours like almond and pecan. The most popular diet for us is called the Specific Carbohydrate Diet (SCD). If anyone with Celiac still has trouble on gluten free, I recommend SCD.

1

Share this post


Link to post
Share on other sites

Hi everyone,

Interesting to read the responses from the Celiac community. I have Crohn's disease, am working on a documentary film about treating digestive conditions such as IBS, Celiac, Crohn's & ulcerative colitis using alternative treatments when drugs and surgery no longer work.

Several of you are correct that there is no specific, doctor recommended dietary plan for treating Crohn's disease. Unless you talk to a Naturopathic doctor, but even then, it's still a mixed bag of responses. No standards at all.

I use primarily diet and supplementation to control my D and pain. I haven't been on medication since 2007. Gastroenterologists absolutely do not believe food plays a role and tell patients that the best course of treatment is medication and sometimes surgery. This is why some of you have run into opposition when trying to talk to your friends about diet treatments for Crohn's. They are told it doesn't work and they believe their doctors.

It is my hope with my documentary that I will prove that it can work! There are many people who are discovering this everyday and defying their doctor's requests to take immunosupressive drugs, which can have horrible side effects. It ain't easy, especially because we can't tolerate any grains at all (those of us who use special diets) and instead we make our breads with nut flours like almond and pecan. The most popular diet for us is called the Specific Carbohydrate Diet (SCD). If anyone with Celiac still has trouble on gluten free, I recommend SCD.

Thank you so much for this post. I just finished messaging another advanced member about my daughter's recent symptoms. She is 7 yrs old and was diagnosed a year and a half ago w/Celiac. She was doing great on the gluten-free diet for almost exactly a year to the date and then she started getting horrible stomach pains and bad headaches. Her GI suggested taking her off of lactose to see if it would help. It didn't. I started reading about the SCD diet and Dr. Haas' research and decided to take her off of ALL grains and also dairy which almost immediately seemed to work. Her symptoms went away. I tried to reintroduce rice and rice pasta a few weeks later and after 4 days of one serving a day, her symptoms returned. I also tried separately to reintroduce casein and the stomachaches returned as well. I am baffled that she could be doing so well and now she is so restricted on what she can eat. She also cannot tolerate corn so she is basically now following the Paleo diet: protein, vegetables, fruit, no grains...also, no starches, no corn, no dairy....VERY hard for a 7 yr old.

Over the past couple weeks a stomach bug has been going around our house where we feel pretty good until we eat something and then we get abdominal gurgling, loose stools, mild stomach pain, and loss of appetite. Most of us are recovered and pretty much back to normal, except for our daugher who is still having a lot of stomach pain and just doesn't feel good in general. I'm scared that her symptoms are now returning again since it is taking her so long to get over it. Have you found that following the SCD diet can possibly be temporary and then you are able to return to a "normal" gluten-free diet or is this a permanent solution? Dr. Haas talked about doing it for a number of years and then being able to return to normal foods. Thanks for any advice you can give!

0

Share this post


Link to post
Share on other sites

I would love to see your documentary. Did you complete it?

My daughter was suffering with many symptoms for several months. She had a colonoscopy and the results came back "consistent with Crohns". Her gastroenterologist stated that current medical thinking is that diet is not the answer. He said that there were very effective drugs available now and put her on Asacol. She wound up in the emergency room twice in one day with palpitations. Even though the doctor claimed that there was no connection he pulled her off the medication. Wonder of wonder, no more palpitations. I have taken her to 2 different gastroenterologists, a holistic doctor, a nutritionist and the list is growing...meanwhile she has gone gluten free and is doing very well. I wonder if she had Crohn's at all.

0

Share this post


Link to post
Share on other sites

I was diagnosed with Crohns disease last year after colonoscopy with biopsies. I only have a mild case and the medication does help, but I still have alot of other symptoms and I am convinced that changing my diet is the answer.

I can't handle whole grains, corn, popcorn, too much milk, caffeine and a variety of other foods. I still get daily nausea and stomach pain. I know alot of other people who suffer from Crohns disease have very restricted diets but it is mostly trial and error to avoid things that set them off, not just a simple Dr recommended diet.

Incidently, I have just had an endoscopy to test for concurrent coeliacs but I haven't got the biopsy results back yet.

I also plan to visit a dietitian who specialises in IBD/coeliac type diseases so hopefully I will get some results.

0

Share this post


Link to post
Share on other sites

My main question now is how many people with Crohn's and/or colitis follow a gluten free diet? Is it the same or different from the celiac diet in any ways? I've met one person who said she couldn't eat many other gluten free replacement grains. Is that something that varies by person?

Also, how does a doctor distinguish between celiac disease and Crohn's when it affects the small intestine?

My mother had Crohn's disease, so I can't say I was totally surprised in 2008 when I was diagnosed with it as well after a colonoscopy. We never heard of celiac, or gluten back then. I lived on pasta, cereal and sandwiches. I was given medication to treat the disease.

In 2010, after a stint of antibiotic-associated colitis, I had developed the greatest food fear of my life because I had gotten so sick from everything I consumed. I went to a nutritionist.

She said I was gluten and dairy intolerant. I thought she was nuts, but in my desperation, I followed a gluten-free DF diet for one month before returning to her. In that time I was convinced - I had lost five pounds and symptoms overall were decreasing.

I have been gluten-free and DF ever since. In 2011, when I had my follow up colonoscopy, my doctor said the evidence of early stages Crohn's was gone. He would not credit the diet, but admitted that there was no way the medication could have reversed the effects.

I don't know if I have celiac and I was misdiagnosed. What's worse, is that I will never know if this diet could have helped my mother in all her years of suffering (she passed away in 2006).

0

Share this post


Link to post
Share on other sites

My mother had Crohn's disease, so I can't say I was totally surprised in 2008 when I was diagnosed with it as well after a colonoscopy. We never heard of celiac, or gluten back then. I lived on pasta, cereal and sandwiches. I was given medication to treat the disease.

In 2010, after a stint of antibiotic-associated colitis, I had developed the greatest food fear of my life because I had gotten so sick from everything I consumed. I went to a nutritionist.

She said I was gluten and dairy intolerant. I thought she was nuts, but in my desperation, I followed a gluten-free DF diet for one month before returning to her. In that time I was convinced - I had lost five pounds and symptoms overall were decreasing.

I have been gluten-free and DF ever since. In 2011, when I had my follow up colonoscopy, my doctor said the evidence of early stages Crohn's was gone. He would not credit the diet, but admitted that there was no way the medication could have reversed the effects.

I don't know if I have celiac and I was misdiagnosed. What's worse, is that I will never know if this diet could have helped my mother in all her years of suffering (she passed away in 2006).

It's good to hear the gluten-free diet is helping you Riverand. You might want to look at going soy-free also. Soy is one of the top 8 food allergens and is a problem for some celiacs. Isn't it great they put it in baby formula?

http://www.sciencedaily.com/releases/2004/12/041219153340.htm

Research Studies Effects Of Soy Baby Formula On Intestinal Development

Dec. 27, 2004 — URBANA, Ill. -- Two studies by University of Illinois food science and human nutrition professor Sharon Donovan show that the soy isoflavone genistein, in amounts present in commercial soy infant formulas, may inhibit intestinal cell growth in babies. So what are we to think about soy in a baby's diet?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,366
    • Total Posts
      917,513
  • Topics

  • Posts

    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
    • Mashed potato soup during healing
      I was on pretty much a liquid diet for 8 months waiting for my nausea to go away completely. I mostly had mashed potato soup, 1/2 fat ice cream (mostly whey, not milk), chocolate drink (no added milk) and gummy vitamins. The soup tasted yummy and I'm still alive so I figured I'd share it for people not feeling well in the beginning. I've been noticing people with alot of trouble keeping food down in recent posts. I couldn't have milk or eggs, but the cheese in the recipe didn't bother me at all. Notice the lack of spices. Makes it easy on the stomach.   Mashed potato soup: Boiled yukon gold potatoes (5lb bag) 1 package cauliflower, steamed 4-6 slices of Land O'Lakes white American cheese 4 tablespoons butter salt 16 cups homemade chicken broth, salted   Chop steamed cauliflower into teensy bits (pureed is better). Put in mixer with butter, cheese and a potato or two. Blend while slowly adding potatoes. Keep whipping for a few minutes to insure the cauliflower and potatoes are not lumpy at all. Salt to taste.   Combine 1/2 cup mashed potatoes to 1 cup salted chicken broth. Mix with spoon until mashed potatoes have completely dissolved. Enjoy. Individual servings can be frozen.   Homemade chicken broth: makes 8 - 10 cups of broth   1 organic chicken (regular chickens are too big) 1 stalk celery 1 carrot 1 large bay leaf 1/2 package fresh thyme from the  herb section of the vegetables area   Put all ingredients in pressure cooker along with 1.5 liters water. Bring to pressure. Cook for 35 minutes. Separate broth from solids. Separate broth from fat. Add ridiculous quantities of salt until it tastes like soup. Sorry I use a salt grinder so I don't have precise salt quantities.    
    • I have kidney stones...spent last night at the ER
      Hey ArtG, I saw the urologist today...unfortunately for me they can still see my stones on an xray.  Sigh.  The largest is 3x6 in my right kidney.  He does not believe I can pass this one on my own.   All of my bloodwork came back fine.  Nothing alarming in the urinalysis either. His recommendations...keep drinking tons of water.  I had 4.2 liters of urine output when I tested.  Add in a fish oil supplement.  Decrease sodium intake.  Limit meat to 10 ounces per day.  Increase dietary calcium.   Work at lowering oxalate consumption...my urinary oxalate was 45.  They want it between 20 and 40.  But he gets people that are over 100 so mine is not all that high. 3 options...1. watch and wait.  Recheck in a few months to see if there is stone growth.  2. Shock wave lithotripsy.  3. Let it come out when it decides to and see what happens. I just don't know.  I hate the idea of being put under as they would do for the shock wave thing.  I've had too many surgeries already.  It scares me to be honest.  I also don't want to deal with another episode.   I don't know what I'll do.  We've got a vacation planned at the end of the month and I just want to go and enjoy that.  Not worry about kidney stones. I'm sorry to hear about your upcoming surgery...it really is always something!
    • celiac disease is psychosomatic
      I know what food products are. Probiotics was a recent example I saw on the news about things labeled gluten free that were not gluten free. So, supplement labels in addition to food labels.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined