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Hello From South East Missouri
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15 posts in this topic

Hello everyone!!

I am new to these boards but was wondering if there was anyone on here from the South East Missouri area? I have not yet formally been diagnosed but I am hoping to hear from my Dr any day now with my Celiac Panel test results!

I'd love to hear from anyone in my area or close to my area!!

Take care and have a GREAT night!!!

B)

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Hi! I'm actually from the Kansas side in KC, so really, nowhere close. And after that baseball game today, I think my dog in my picture may have had the right idea. He refused to wear the Royals hat. :lol:

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I'm originally from a small town just south of Cape Girardeau, but have lived in Springfield, MO since college.

GO CARDINALS!!!!

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Hi! I'm actually from the Kansas side in KC, so really, nowhere close. And after that baseball game today, I think my dog in my picture may have had the right idea. He refused to wear the Royals hat. :lol:

Hi there Kareng!!

That game today was PITIFUL!!! :( We gave up a comfortable lead and then barely won it in extra innings!! But at least we won I guess!! :)

Thanks for your response!!

:D

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I'm originally from a small town just south of Cape Girardeau, but have lived in Springfield, MO since college.

GO CARDINALS!!!!

Hi bbuster!!

What is the name of your town? I live in Fisk, it's between Poplar Bluff and Dexter. It is a very small town of about 350 people!

Well thanks so much for your response!!

& I totally agree "GO CARDS"!!!!!!

:lol:

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We're almost on the border of MO in AR... between Gainesville, MO and Mountain Home, AR.

Watching tornado warnings... ugh!!

Go Phillies!! (sorry... we moved here from PA and still love our Phillies!)

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We're almost on the border of MO in AR... between Gainesville, MO and Mountain Home, AR.

Watching tornado warnings... ugh!!

Go Phillies!! (sorry... we moved here from PA and still love our Phillies!)

Hey!!

I TOTALLY understand about your Phillies! In football I am a 49er fan but I have never lived in CA! ;)

Keep an eye on the sky!!!!

:D

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Hi bbuster!!

What is the name of your town? I live in Fisk, it's between Poplar Bluff and Dexter. It is a very small town of about 350 people!

Well thanks so much for your response!!

& I totally agree "GO CARDS"!!!!!!

:lol:

Scott City - north of Sikeston 20 miles or so.

I still have a sister and my mother living in SEMO, so I have made the drive on HWY 60 from Springfield through Dexter many, many times. I've seen the sign for Fisk.

We are lucky that Springfield is big enough to have some health food stores to buy gluten-free supplies. We even have a local support group, but it's mostly older people, and my son is the only family member with Celiac.

good luck with your diagnosis,

Bev

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We're almost on the border of MO in AR... between Gainesville, MO and Mountain Home, AR.

Watching tornado warnings... ugh!!

Hope all is well there. We saw pictures of Joplin and it is terrible! The news said the hospital there took a direct hit.

Springfield got the thunderstorm, but the tornado activity went south of us. After it passed there was a huge double rainbow!

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Scott City - north of Sikeston 20 miles or so.

I still have a sister and my mother living in SEMO, so I have made the drive on HWY 60 from Springfield through Dexter many, many times. I've seen the sign for Fisk.

We are lucky that Springfield is big enough to have some health food stores to buy gluten-free supplies. We even have a local support group, but it's mostly older people, and my son is the only family member with Celiac.

good luck with your diagnosis,

Bev

Wow!! Scott City huh? I go through there everytime I go to Cape!! Small world!

I am very worried about getting the diagnosis simply for the reason Poplar Bluff only has 1 health food store and I am merely assuming that they carry gluten free foods. I have been paying attention when I grocery shop (at wal-mart) to the amounts of gluten free foods available.

But I guess I will do the best I can with what I have to work with!!

:D

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Wow!! Scott City huh? I go through there everytime I go to Cape!! Small world!

I am very worried about getting the diagnosis simply for the reason Poplar Bluff only has 1 health food store and I am merely assuming that they carry gluten free foods. I have been paying attention when I grocery shop (at wal-mart) to the amounts of gluten free foods available.

But I guess I will do the best I can with what I have to work with!!

:D

Most health food stores carry gluten-free items, and most will special-order items for you if they don't already carry it. But with the internet you can always buy mail-order items yourself. The hard part is deciding what to buy, but eventually you figure out what things you like and don't like. And don't overlook local grocery stores or Wal-Mart - you can always ask them to carry specific items.

I don't buy a lot of pre-made gluten-free stuff - just occasionally pretzels and cookies. Mostly I buy gluten-free flours and bake everything myself - pizza crusts, bread, rolls, cookies, cakes, waffles, etc. My son never cared for pasta, gravy or casseroles, so that simplifies things. We do a lot of Mexican foods using corn tortillas and taco shells.

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We had one health food store in Mountain Home... 25 miles away... now there are two!! Woo hoo!! At the one store, the owner offered to order anything I wanted/needed, but I had to tell him that while I certainly appreciated his effort to help me and how I'd like to patronize local businesses... gluten-free food is expensive and I can order from the online site w/ the name of the long river in So. America (I don't think we're allowed to say the name) and (when I plan to order my Pamela's bread mix and Tinkyada pasta and do it at the same time) shipping if FREE, not to mention the per-item cost is less. He understood completely.

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I'm from Rolla, right in the middle of Springfield and St. Louis.

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I'm from Rolla, right in the middle of Springfield and St. Louis.

I went to college in Rolla, back when it was UMR.

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    • I think the idea of grinding your own at home stems from the thought that flavored coffees might be ground on the same machines.  The grinders in the grocery are not cleaned between uses.  However, I have not found a flavored coffee bean that had gluten, so it's probably not a real concern.  For coffee that comes from a factory ground, I wouldn't worry at all.   Machines would be cleaned between flavors and nothing but coffee could be made on the machines or even in the same building ( everything made would taste/ smell like coffee). if you still have doubts - I went to the International Celiac Disease Symposium a few years back.  This is held every few years in different countries for medical professionals that study and treat Celiac.  They present research, etc.  All food served was gluten-free.  We drank a lot of plain, already ground, coffee!  A lot!   Coffee is not on any lists as a gluten containing food.  Talking legitimate organizations - not some blogger or pseudo- science website.   After all this, if you still doubt that coffee is gluten free...... Then don't drink it!  It leaves more for me!    
    • To answer some of your questions.... Non celiac gluten sensitivity does not cause any damage to the small intestine so that is not the source of the "little holes or bumps".  You need to get her records including the report of the endoscopy to see exactly what it says as well as the pathology report of the biopsies. You should always get medical records anyway & keep a copy for yourself. How many biopsies did he take? There should be a minimum of 4, ideally 6. The small intestine is very vast even in a small child. An adults is the size of a tennis court! That's a whole lot of territory so biopsies can miss damage especially when enough of them are not taken! She has 2 positives on the serum panel. This crap about "weak" positives should be thrown out of the nomenclature! A positive is a positive, weak or not! Her DgP IGG is way over the range and extremely telling. As far as my knowledge goes, there is nothing else that causes a positive DgP IGG other than celiac disease. False positives are really rare and to have 2 false positives would be astronomically rare! You are right & smart that she really does need an official diagnosis! IMHO, keep her on gluten for right now. Get a second opinion pronto & I believe you'll be able to get her a dx based on the 4 out of 5 rule if nothing else. I wouldn't think it's going to take more than a month to get to see another doc for a second opinion. Then you can take her off gluten. Kids heal up really fast, way faster than us old geezers! I'm sure as others  wake up & get on their computers they will be along to voice their knowledge. I am in the eastern time zone & rise before the birds so I was on here early. Hang in there mom! You're doing the right thing!
    • Now that my initial rage has calmed a tad.... your daughter has to fulfill 4 out of 5 of the diagnostic criteria. Second opinion can do a gene test. If positive, then she will have4 out of 5 of the dx criteria to dx without a positive biopsy. See: http://www.gastro.org/news_items/a-biopsy-should-not-be-required-to-make-the-diagnosis which says in part: The presence of signs and symptoms compatible with celiac disease. Positive serology screening (high serum levels of anti-TTG and/or EMA). Presence of the predisposing genes HLA-DQ2 and/or –DQ8. Histological evidence of auto-insult of jejunal mucosa typical of celiac disease. Resolution of the symptoms and normalization of serology test following the implementation of a gluten-free diet.   Also see: http://www.tenderfoodie.com/blog/2014/5/1/dr-fasano-on-new-gut-autoimmune-research-autism-clearing-up.html She can get a dx after her symptoms resolve on a gluten-free diet!
    • OMG!!!! The doc wants her to get sicker & sicker & do further damage so he can diagnose her? Don't do me any favors doc!!! I'm so spitting med right now I can't even speak! Find a new doc, take the records & get a second opinion. Maybe the next doc will have a freaking brain & dx your daughter. She should be dx'd! This is absurd in the extreme. The very least that should happen is the doc give her a dx now & then in a year or 2 have her do a gluten challenge & do a biopsy all over again but seriously, that would be just as cruel as what he's doing now. He's an ASS!
    • Celiac disease may lead to a host of other inflammatory, gluten-related ... Fortunately, Diet Doc offers gluten-free diet plans which are customized to ... View the full article
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