This, plus a gluten-free diet for 6 months--- and I am seeing a lessening of symptoms. It's slow, but better. My fingers are crossed.
I've been on a gluten free diet for at least a year but seem to get glutened anyhow. I'm so very careful. Would any of you share with me your IgA and IgG numbers? Apparently the Mayo Clinic is now doing just a <10 or ,<20 etc. instead of what I am used to, such as 2.3 or 3.8
Just wondering where I stand compared to others.
Thanks to all who are on these forums and provide such support. It really gets discouraging and kind words and information help!
Anytime I get "glutenized" (as we call it in our house
) I can almost always point the finger at what has caused it.
(1) I eat at my sister's house (which we call gluten- landmine- hell.
) They are all BIG gluten eaters and it's a sea of bread, cookies and baked goods. She's a sweetheart and no matter how hard she tries to keep my food safe for me(preparing everything separately)-- I still get sick after. I just bring my own food now (and wash my hands frequently ) and she's cool with that.
(2) I try a "gluten-free" product on a "safe list"--snickers bar, Rice dream rice milk, for example. Low levels or cross contamination perhaps?
(3) I try something from a "gluten-free" menu in a restaurant.
Why does this happen? well, I think I am just super-sensitive and even the small doses of cross-contamination get me.
As for my "numbers"--I am afraid I cannot help you there. I am one of many who test negative on a blood test. Yet, I am a celiac nonetheless. On a separate IgG panel, my soybean IgG number was through the roof. "Severe" it was labeled--very high antibodies.
Are you sure these are gluten reactions you are having and not just a reaction to other food proteins? Casein? Soybean? I feel like I have been glutenized --when in fact, it is a reaction to soy and dairy. Have you read about how we can so easily develop other food intolerances?
Also, as much as I hate the idea myself, some people may take up to two years to heal the damage in the gut.
Do you live with gluten-eaters?
Do you work around foods with gluten?
I do not know your circumstances so I do not know what else may be contributing to your glutenings, despite your being so careful. Just offering some thoughts to you!
Your question about IgG numbers may be something you wish to post as a topic so that people can help you with their thoughts on that!
"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir
"It isn't for the moment you are struck that you need courage, but for the long uphill climb back to sanity, faith and security." Anne Morrow Lindbergh
"Kindness in words creates confidence. Kindness in thinking creates profoundness. Kindness in giving creates love."
"The strongest of all warriors are these two - time and patience." Leo Tolstoy
Misdiagnosed for 25+ years; finally DXed on 11/01/10. I figured it out myself. Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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