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How Often Do You Cheat?


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60 replies to this topic

#31 Gemini

 
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Posted 27 May 2011 - 06:52 AM

She is crazy. I would NEVER cheat. I live in fear of crumbs. Crumbs give me anxiety attacks. My son has celiac, but husband and DD do not. Whole house went gluten free because crumbs were ruining my life. Residue ruins my life. I recently licked envelopes that must have been made of wheat starch as they sometimes are and I ended up with such bad diarrhea I couldn't attend my sister's graduation from college that afternoon.



The envelope issue is another Celiac myth....envelopes do not contain wheat. There was a recent article detailing safe foods and some non-food items like this which should never worry Celiacs and I will find it and post a link. The envelope issue was one of the top Celiac myths in this article. It's not something we need to worry about at all.
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#32 Gemini

 
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Posted 27 May 2011 - 07:15 AM

The envelope issue is another Celiac myth....envelopes do not contain wheat. There was a recent article detailing safe foods and some non-food items like this which should never worry Celiacs and I will find it and post a link. The envelope issue was one of the top Celiac myths in this article. It's not something we need to worry about at all.



Celiac Myths
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#33 alex11602

 
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Posted 27 May 2011 - 07:21 AM

As for the question of would I cheat, the answer is not ever and I would never allow my two girls to cheat either. I will say though that I have had symptoms since I was at least an early teen, maybe longer but I can't remember because I got so used to not feeling well. I do remember not feeling well through high school, but just going on feeling sick because it was normal. Then I had my first daughter at 18 and things got worse and then they became the new normal, the same thing happened when I had my second daughter at 21. My daughter was sick since the day she was born and we still went along eating gluten because we didn't know and even her runny diapers 9 times a day became normal for us. It wasn't til I lost my job that things really progressed and my children barely had a mother because I was feeling so sick. At that time being normal became me laying on the couch trying hard not to get sick, I also got very depressed and anxious because of how I was feeling, when my husband would suggest trying to stop eating so much pasta I almost bit his head off. Looking back it was almost like an addiction and a comfort to me to have that pasta every night. Finally through my own research and then talking to the doctor my girls and I were diagnosed with Celiac disease and are finally living almost a normal life, for example I can actually take my girls outside to play now. And as far as if you were to have children and your children ended up having Celiac, like I said we dealt with around 9 runny diapers a day, a daughter who screamed all the time (She was in alot of pain.), she didn't grow like she should have (She didn't grow from 2 months to 9 months at all and very little from 9 months to 15 months.), and she wasn't able to say any words. We got lucky with my older daughter and her main symptom was eczema. But fast forward about two months and my older daughter is happier, no new scars from scratching so much, and my youngest is having normal diapers, she is a happy toddler and she is beginning to talk.

What I am trying to say is that it is possible that she is not feeling well but it has become normal for her and either way the gluten is addicting and can be very comforting. But whatever the reason, her health can dramatically change overnight if she keeps going the way she is. I wish both of you the best of luck.
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#34 weluvgators

 
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Posted 27 May 2011 - 07:22 AM

I know of an asymptomatic celiac that was picked up through family screening due to sibling diagnosis of celiac. He doesn't always follow a gluten free diet, and it doesn't really phase him. There are low level symptoms that are probably a result of gluten, but they are his "normal" way of being. I kind of understand where he is with his diagnosis. . . I mean, he would be eating "normally", if not for his brother's problems. And if one is asymptomatic, why would they be seeking out help and tales of people with debilitating symptoms of gluten exposure? I can understand wanting to bury your head in the sand.

I was asymptomatic when I went gluten free, and it can be hard when there are no definitive "reasons" (especially immediate, painful, chronic "reasons") to be more gluten free. One of my issues with consuming gluten is that I enjoy more bold headed, assertive and risky actions. It seems very much like alcoholism in many ways. I eventually had to be super duper gluten free for my nursing child, and only after an extended time of being diligently gluten free (for someone else, mind you, which made it somehow easier for me) was I able to begin to understand the ramifications of gluten exposure in myself. Of course, after a lengthy, diligent gluten free diet was implemented, I was no longer "asymptomatic". As long as I continued "cheating" on a gluten free diet, I continued to be "relatively asymptomatic".

Good luck working through these issues with her. They are very complex, and I applaud you for the steps that you have taken!
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My super silly red siren is my guiding light. She has been a tremendous lesson for me in how gluten affects different people in very different ways. She is a super duper silly girl that was simply born that way. I have no idea why I am so blessed to have her guidance.

#35 Lima Bean

 
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Posted 27 May 2011 - 07:32 AM

I never eat poison on purpose! Only people with real bad mental issues would. Even most mentally ill people wouldn't.
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#36 IrishHeart

 
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Posted 27 May 2011 - 07:43 AM

seriously....I have begun to wonder how many supposedly "mentally ill" people are not just ill from years of celiac--silent or otherwise :unsure:
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

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"If you want to lift yourself up, lift up someone else" Booker T. Washington

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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#37 Poppi

 
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Posted 27 May 2011 - 08:16 AM

Cheat? Never.

Even if we eat out I research the restaurant before, call ahead and talk to manager and/or chef and double check whether they really understand before I order and eat my food. I also only eat out once every other month or so and do it when I don't have anything really important for at least a few days after in case I get sick from cc. Gluten is no joke. I have to take it seriously.

As far as cheating on purpose? I can't imagine a situation where I would do that. Honestly. I've even debated with myself what I would do in a survival situation where the only available food is gluten-containing. Eating it would make me so sick that I'd probably die faster than I would starve to death.
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Sara

Busy mom to 3 great kids (4, 8 and 18)

Gluten free since April 6, 2011 ~ Also sensitive to coconut, coffee and food dyes

Joint pain, mouth sores, back and neck pain, migraines, stomach pain, chronic fatigue, ADD and depression are all gone.
Wishing I had been diagnosed before celiac robbed me of the cartilage in my toes and the 3 babies we lost to miscarriages.


#38 angel9165

 
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Posted 27 May 2011 - 08:37 AM

Never! I feel soooo much better now (diagnosed last year) that I would never cheat for fear I'd feel terrible again (I was initially diagnosed w/ IBS 20 years ago). Hopefully, she'll mature and decide to do what's best for her health (and life). You are a good person to care so much but unfortunately, that's not going to help until she starts to care that much too.
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Diagnosed w/ Celiac disease on Sept 1st, 2010

#39 angel9165

 
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Posted 27 May 2011 - 08:38 AM

The envelope issue is another Celiac myth....envelopes do not contain wheat. There was a recent article detailing safe foods and some non-food items like this which should never worry Celiacs and I will find it and post a link. The envelope issue was one of the top Celiac myths in this article. It's not something we need to worry about at all.


I've always trusted Dr. Oz and my friend watched one of his shows where he said envelopes should not be licked by Celiac patients. Will read the article. Guess nobody can be right all of the time.
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Diagnosed w/ Celiac disease on Sept 1st, 2010

#40 luvs2eat

 
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Posted 27 May 2011 - 08:47 AM

I've always trusted Dr. Oz and my friend watched one of his shows where he said envelopes should not be licked by Celiac patients. Will read the article. Guess nobody can be right all of the time.


I don't lick envelopes because I read a medical journal article (with photos!) years ago where someone got a teeny paper cut when he licked an envelope... and there were some sort of microscopic eggs on the envelope where some insect had landed on it and the guy had gross larva or bugs in his tongue that grew and his tongue was all infected! BLECH!!

But back to the subject at hand. Do I cheat? Nope... never... not EVER!!
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luvs2eat
Living in the beautiful Ozark mountains in Arkansas
positive blood tests and later, positive biopsy
diagnosed 8/5/02, gluten-free (after lots of mistakes!) since that day
Dairy free since July 2010 and NOT happy about it!!

#41 Gemini

 
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Posted 27 May 2011 - 09:08 AM

I've always trusted Dr. Oz and my friend watched one of his shows where he said envelopes should not be licked by Celiac patients. Will read the article. Guess nobody can be right all of the time.



Dr. Oz is not any kind of authority on Celiac Disease. The show he had on the subject had errors in it and the fact that he used Elizabeth Hasselbeck as an authority on Celiac proved he's no different than most of the clueless physicians out there. The information on envelopes and the other foods listed have been Celiac myths for a long time but it's probably fear which keeps people thinking envelopes are dangerous. People can believe what they want but why make this lifestyle difficult when it doesn't have to be?

As for cheating......absolutely never, ever. Why would I want to induce diarrhea and severe intestinal cramping for some crappy gluten filled food when I can easily make the equivalent in it's gluten free form? I am almost 52 and when you get past 50, there's no fooling the body. You cheat, you pay hard. I hate being sick.
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#42 Salax

 
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Posted 27 May 2011 - 09:29 AM

In all honesty, it is her body and if she wants to cheat and continue to consume gluten she can.

BUT if she wants to live a health, longer life, she needs to stop eating it.

I would ask her this, "IF your doc said you were a diabetic, would you continue to eat sugary foods?" She how she responds. The logical person would say no. The emotional person who I think is attached to food would say maybe. The person in denial would say yes.
Perhaps, she is punishing herself?

Perhaps she is in denial, perhaps she is attached to food, or perhaps she doesn't understand the ramifications of her decision. A lot of people have suggested she is immature, this is possible too.

Any which you swing it, she shouldn't be cheating. EVER.

But the above might help understand why she is hurting herself. I know that when I was diagnosed my doc told me to go on a lite gluten free diet. Had I been completely ignorant of what Celiac Disease was and taken his word. I'd be gluten free lite right now.

Maybe you need to dig a little deeper and really your awesome for coming here and taking the time to care. But you also can not allow yourself to be dragged down by her decisions. So there may be a point when you say, "I love you, but I can't watch you kill yourself."

Best of luck!
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Salax
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Celiac Disease - Gluten Free since Feb 2009,
Cow Milk &  Corn free - June 2012,
Gall Bladder Failure - Removed July 2009,
Colitis, Hashimotos Disease, & Diverticulitis

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
( )_( )
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(")_(") Eat your vegetables!


#43 Korwyn

 
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Posted 27 May 2011 - 09:54 AM

seriously....I have begun to wonder how many supposedly "mentally ill" people are not just ill from years of celiac--silent or otherwise :unsure:


My Dad lived with Untreatable Chemical Depression for decades. The would change his meds periodically as they would stop working. At time of diagnosis he was on three different meds. Two years gluten-free/CF/SF and he is down to 1/2 dose of anti-anxiety med as needed.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#44 Skylark

 
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Posted 27 May 2011 - 10:01 AM

I don't cheat because gluten makes me sick.

I feel sorry for celiacs who cheat, just like I feel sorry for smokers. They are probably responding to the narcotic-like effect gluten and casein has on some people much as smokers are addicted to nicotine.
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#45 IrishHeart

 
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Posted 27 May 2011 - 10:11 AM

My Dad lived with Untreatable Chemical Depression for decades. The would change his meds periodically as they would stop working. At time of diagnosis he was on three different meds. Two years gluten-free/CF/SF and he is down to 1/2 dose of anti-anxiety med as needed.


see...this is what I mean... and good for your Dad, K! ;) Poor guy was just malnourished. Gosh, he must feel like a new man now!

The longer the malabsorption, the bigger the issues.

This is why when we go to the doctor with all these real symptoms, they reach for the pad to write an antidepressant script :huh: :blink: ...geesh! That won't solve the CAUSE!!

you know what I say?...Blame it on the gluten!
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif





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