Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

How To Start A Support Group For Kids ?


maximoo

Recommended Posts

maximoo Enthusiast

Hello All: I was wondering how does one start a support group for kids? I've never been to a support group of any kind and am unsure how to set one up, what topics/themes to include, how long & how often meetings should be. Where should meetings be? Is a newsletter a good idea? I don't make a lot of money so I couldn't put much out. Should a fee be charged to cover materials? Would I need a grant? I do know I'd like to have activities for the kids--perhaps a simple cooking lessons, & different topics like how to handle the pressure @ birthday parties etc, easy biology lessons about celiac & its effects, word games (learning ingredient words that mean gluten), role playing. etc. Maybe I could get a guest speaker from time to time like a nurse or dr Should there be a fun field trip too?

I have no idea if this is even feasible. I do know that necessity is the mother of invention & since I haven't seen a support group for kids I'd like to know what it would take to make it possible & successful. Any & all ideas would be appreciated.

Link to comment
Share on other sites
  • 1 month later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Cara in Boston Enthusiast

We joined the group organized by Children's Hospital in Boston. We've only been gluten-free for about 3 months so we haven't really become active but here are some examples of what ours does (maybe someone with more experience can expand on them):

Each kid gets a "care package" in the mail welcoming them into the group. Ours was filled with all kinds of treats (donated from vendors I imagine?) and sample foods, along with lots of baking mixes and general information.

They have regular meetings (I think).

They have three annual special events (summer BBQ, Holiday party, etc.) where you can meet everyone and all the food is safe - we are REALLY looking forward to that!

There is a handy newsleter - maybe it comes every other month?

We paid a fee to join. Can't remember what it was, but not a lot. Worth every penny.

I think they also have an email list, but I'm not sure . . .

Good luck -

Cara

Link to comment
Share on other sites
  • 3 months later...
Boatswife Newbie

I am also looking into starting a support group since there's none around (not even within a 4 hour drive!). I love the ideas mentioned above.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,198
    • Most Online (within 30 mins)
      7,748

    Stlhockeyfan
    Newest Member
    Stlhockeyfan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
    • knitty kitty
      Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
    • Soleihey
      Has anyone experimenced enlarged lymph nodes with celiac? Both in the neck and groin area. Imaging of both areas have said that lymph nodes are reactive in nature. However, they have been present for months and just wondering how long this may take to go down. Been gluten-free for about two months. Blood counts are normal.
    • Kmd2024
      Hmm interesting I just assumed that any “IGA” tests including the DPG iga would be negative in a person who is IGA deficient but maybe that is not the case for the DPG test.
    • Scott Adams
      If you were just diagnosed I can say that if you go 100% gluten-free should should see dramatic improvement of your symptoms over the next few months, but the hard part is to stay gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...