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27 replies to this topic

#16 Jestgar

 
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Posted 30 May 2011 - 05:17 PM

"I think it is very likely he is still eating gluten or perhaps drinking gluten. :blink: "




Yikes.....That's what I thought...sigh...

I also wondered if maybe he was self-medicating with beer. It would explain the variability of his posts.
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#17 GlutenFreeManna

 
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Posted 30 May 2011 - 05:30 PM

I didn't get the impression that he or his sons were currently eating gluten. From his posts he has been diagnosed for about 7 yrs and I think just recently his sons. It is possible despite his very nutritional lacking diet (from what he stated he ate it was gluten free) he may have been getting cc from both of his sons. Could still explain a lot of his "lack of recovery."


That's true Roda he may not be eating or drinking it on purpose, but could still be getting enough accidental gluten for an extended enough period of time that it has made him completely irrational in thinking and communication. I truely feel bad we were not able to help him, but as PP's said the person has to want to be helped first. we can only speculate as to why he responded the way he did. Gluten is one of many possible explanations. :ph34r:
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#18 IrishHeart

 
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Posted 30 May 2011 - 05:38 PM

Whatever the case...it's sad... :unsure:

ah well. Every one of you sure tried. That's the loving spirit on this site!
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

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Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
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#19 GlutenFreeManna

 
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Posted 30 May 2011 - 05:44 PM

I also wondered if maybe he was self-medicating with beer. It would explain the variability of his posts.


I was thinking the same thing. I would hate to accuse someone I do not know of that but many Vietnam vets came back with that problem. It's sad to think this post comes today--on Memorial day in the US. A day when America is supposed to be remembering the fallen military members that have fought to keep us safe and free. I wish there were some way to better help the ones that came back with alcoholism as a problem. There is homeless veteran that lives in a tent behind a church near me. My husband and I met him one day on the street and gave him some food. When we learned of his situation a little more, we gave him a sleeping bag and a new tent that doesn't leak (the one he had at the time had a hole in it). There is a program that would let him live in a shelter and help him find work, but he must stay sober to be in the program. There is also an AA group that meets within walking distance of his tent. He doesn't want to do it (get help with his alcoholism), so he stays in the tent year round, panhandles to buy booze and takes whatever food people will give him. The church lets him sleep inside on days when it is below freezing. They have tried to help him but there is a point when he must take steps to do it himself. Karl reminds me very much of this homeless man that we have tried to help on more than one occaision. He has the resources at his fingertips. He must take the first steps however to ask for AND accept help.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#20 kareng

 
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Posted 30 May 2011 - 06:23 PM

I feel bad for his 14 year old mentally disabled boy ( if there really is one). This guy couldn't have been taking proper care of him. :(

Just a warning to all you who don't know yet, I do get a bit rabid about people hurting kids.
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#21 GlutenFreeManna

 
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Posted 30 May 2011 - 06:32 PM

I feel bad for his 14 year old mentally disabled boy ( if there really is one). This guy couldn't have been taking proper care of him. :(

Just a warning to all you who don't know yet, I do get a bit rabid about people hurting kids.


If I could find out this guy's address I would be tempted to call CPS, but like you said there's just no way to know how much what he said was true or in his imagination. People lie online all the time. :(
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#22 ravenwoodglass

 
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Posted 31 May 2011 - 03:28 AM

I also am a bit concerned about his teenage son. In the condition he is in he most likely really isn't able to care for him properly. I do hope Karl gets some help with his anger and his health issues.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#23 Korwyn

 
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Posted 31 May 2011 - 08:34 AM

Ok, I feel compelled to say this. We've gone from constructive discussion about how we might have been able to reach him to questioning his parenting, drinking, and whether he even has a son. Really people? Based off a handful of angry, argumentative, blame-shifting posts? Heck, there have been times in my life where I probably would have sounded just like him.

If we're going to discuss this, maybe we should shift back to a more beneficial approach like is there any realistic way we could have gotten through to him? Honestly, given what he presented, sadly I don't think so. I think there were enough varied responses presenting both personal life experience and pointing to medical info that had he desired to listen (not just hear) he could have. I don't see any overall failing or lack of compassion in the people on the board.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#24 Skylark

 
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Posted 31 May 2011 - 09:06 AM

I agree with Korwyn that bashing the guy is not constructive or helpful (and even worse will keep him from ever coming back).

There was a lot of advice given to Karl that he did not ask for and clearly did not want. He asked only one question, whether the modern tests would document his "disability". The rest of his posts were pretty much personal stories, as he was mostly looking for companionship the same as the rest of us. He even made an avatar and profile picture of his own paintings, which was pretty brave.

I DO see a lack of compassion on the board. Karl very clearly had an axe to grind, but I am a little surprised people didn't have the maturity to ignore it. Do you really think you're going to take away decades of anger at being drafted and sent to Vietnam on an Internet message board? Give me a break.

Karl posted about his diet without any questions, and it got picked apart with a lecture on vegetables. He posted about a grown son in tears and everyone focused on the radical bit at the end about having kids, not what he was trying to convey, which was the pain of watching your grown son in tears. I think we could have done far, far better.
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#25 Jestgar

 
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Posted 31 May 2011 - 09:33 AM

I did try to specifically address his questions and he ignored my posts entirely in favor of other posts that he could argue with. I don't know what he was looking for from this forum, but I don't think it was anything we could provide.
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"But then, in all honesty, if scientists don't play god, who will?"
- James Watson

My sources are unreliable, but their information is fascinating.
- Ashleigh Brilliant

Leap, and the net will appear.

#26 shadowicewolf

 
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Posted 31 May 2011 - 10:59 AM

Perhaps Karl needs to learn that the world is not going to agree with him on everything and if he feels the need to rant to others to support his opinions it should be stated in a matter that is not offensive to the other posters. If he feels the need to leave, so be it.
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#27 catsmeow

 
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Posted 31 May 2011 - 11:31 AM

I feel bad for his 14 year old mentally disabled boy ( if there really is one). This guy couldn't have been taking proper care of him. :(

Just a warning to all you who don't know yet, I do get a bit rabid about people hurting kids.


I couldn't agree more.
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You've cat to be kitten me right meow

Wheat Allergy-April 2010
Gluten Intolerant-April 2010
Dairy/casien intolerant-Aug 2012
Lactose intolerant- Aug 2012
Soy Intolerant-November 2012
October 2012- I learned that I am 1/2 Irish with a strong family history of Gluten Intolerance/Celiacs. I will never know If I am Celiac because I will never eat gluten again in order to test postive, it's poison and I do not ever want to feel the way I felt before implementing the gluten free diet EVER again!!!

#28 psawyer

 
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Posted 31 May 2011 - 12:43 PM

Do you really think you're going to take away decades of anger at being drafted and sent to Vietnam on an Internet message board?grown son in tears. I think we could have done far, far better.

As far as I can tell, and I may know more than just what he posted here, Karl enlisted in the army voluntarily in 1972 while the Vietnam war was in progress, but never actually served there. He did serve overseas, but not in Vietnam.

Having said that, I think this discussion has run its course.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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