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Another B12 Question


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7 replies to this topic

#1 anna34

 
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Posted 30 May 2011 - 01:53 PM

My husband is B12 deficient and has been getting injections of B12 for about 5 years. His B12 numbers are still quite low. He was tested for celiac (blood test) and the result was negative.

If the B12 is being injected, then it's not going through the intestine - right? Or does it? Could this still be possibly celiac? What else could cause low B12? (He refuses to stop eating gluten until he gets a positive celiac test.)
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blood test "borderline" (February 2011)
no further testing
gluten-free (March 2011)
positive response

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#2 Chiana

 
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Posted 30 May 2011 - 02:32 PM

How often does he get the injections? The current guideline is once a month, but for a lot of people (including me,) it sometimes takes twice a month. Also, did he get the first several in very close succession when he started getting the injections?
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#3 anna34

 
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Posted 30 May 2011 - 02:58 PM

How often does he get the injections? The current guideline is once a month, but for a lot of people (including me,) it sometimes takes twice a month. Also, did he get the first several in very close succession when he started getting the injections?


He gets them once a month and when he first started, they were closer together. He was very sick/weak/tingly all over by the time we found out about the low B12.
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blood test "borderline" (February 2011)
no further testing
gluten-free (March 2011)
positive response

#4 Chiana

 
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Posted 30 May 2011 - 04:22 PM

He should get his injections really close together until his numbers get back to where they need to be, then get them twice a month or so. If you are getting the shots, you are completely bypassing the digestive system, which means that his low levels are from too few injections. Have they ever tested to see if it is truly pernicious anemia?
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#5 anna34

 
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Posted 31 May 2011 - 05:27 AM

We've never been given any explanation for why his B12 is low. His plan is to stop getting the shots altogether to "see what happens". I don't like this plan. He's going to get sick again! I am going to read about pernicious anemia.
  • 0
blood test "borderline" (February 2011)
no further testing
gluten-free (March 2011)
positive response

#6 Korwyn

 
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Posted 31 May 2011 - 07:46 AM

Does he drink any alcohol in any form? If you are having a B12 deficiency issue, alcohol is one of the worst things you can drink. Even a small amount of alcohol can cause your body to consume your B12 reserves overnight as it is used during the metabolism/conversion of the alcohol.
  • 0
Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#7 Chiana

 
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Posted 31 May 2011 - 10:48 AM

Does he drink any alcohol in any form? If you are having a B12 deficiency issue, alcohol is one of the worst things you can drink. Even a small amount of alcohol can cause your body to consume your B12 reserves overnight as it is used during the metabolism/conversion of the alcohol.


Certain antibiotics and medications do crazy things to your b12 stores as well. Does he take any medications daily?

I would let your husband know that unless he is a vegan or an alcoholic, he has a health problem that is causing the deficiency and should continue to get the shots. Nerve damage, vertigo and peeing yourself is no fun. If he wants to know what is causing the problem, go to a doctor who is willing to test for pernicious anemia and/or celiac disease.
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#8 Korwyn

 
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Posted 31 May 2011 - 11:09 AM

Certain antibiotics and medications do crazy things to your b12 stores as well. Does he take any medications daily?


Really good point +1 :) Statin's (cholesterol meds) are some of the worst too! And anti-biotics kill off good and bad bacterials which means the good ones that produce/extract vitamins from carbs.
  • 0
Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(




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