Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Another B12 Question
0

8 posts in this topic

My husband is B12 deficient and has been getting injections of B12 for about 5 years. His B12 numbers are still quite low. He was tested for celiac (blood test) and the result was negative.

If the B12 is being injected, then it's not going through the intestine - right? Or does it? Could this still be possibly celiac? What else could cause low B12? (He refuses to stop eating gluten until he gets a positive celiac test.)

0

Share this post


Link to post
Share on other sites


Ads by Google:

How often does he get the injections? The current guideline is once a month, but for a lot of people (including me,) it sometimes takes twice a month. Also, did he get the first several in very close succession when he started getting the injections?

0

Share this post


Link to post
Share on other sites

How often does he get the injections? The current guideline is once a month, but for a lot of people (including me,) it sometimes takes twice a month. Also, did he get the first several in very close succession when he started getting the injections?

He gets them once a month and when he first started, they were closer together. He was very sick/weak/tingly all over by the time we found out about the low B12.

0

Share this post


Link to post
Share on other sites

He should get his injections really close together until his numbers get back to where they need to be, then get them twice a month or so. If you are getting the shots, you are completely bypassing the digestive system, which means that his low levels are from too few injections. Have they ever tested to see if it is truly pernicious anemia?

0

Share this post


Link to post
Share on other sites

We've never been given any explanation for why his B12 is low. His plan is to stop getting the shots altogether to "see what happens". I don't like this plan. He's going to get sick again! I am going to read about pernicious anemia.

0

Share this post


Link to post
Share on other sites




Does he drink any alcohol in any form? If you are having a B12 deficiency issue, alcohol is one of the worst things you can drink. Even a small amount of alcohol can cause your body to consume your B12 reserves overnight as it is used during the metabolism/conversion of the alcohol.

0

Share this post


Link to post
Share on other sites

Does he drink any alcohol in any form? If you are having a B12 deficiency issue, alcohol is one of the worst things you can drink. Even a small amount of alcohol can cause your body to consume your B12 reserves overnight as it is used during the metabolism/conversion of the alcohol.

Certain antibiotics and medications do crazy things to your b12 stores as well. Does he take any medications daily?

I would let your husband know that unless he is a vegan or an alcoholic, he has a health problem that is causing the deficiency and should continue to get the shots. Nerve damage, vertigo and peeing yourself is no fun. If he wants to know what is causing the problem, go to a doctor who is willing to test for pernicious anemia and/or celiac disease.

1

Share this post


Link to post
Share on other sites

Certain antibiotics and medications do crazy things to your b12 stores as well. Does he take any medications daily?

Really good point +1 :) Statin's (cholesterol meds) are some of the worst too! And anti-biotics kill off good and bad bacterials which means the good ones that produce/extract vitamins from carbs.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,393
    • Total Posts
      917,597
  • Topics

  • Posts

    • Can treatment for Giardia reverse active Celiac
      SugarCube, I saw your other posting today.  I can not believe that I missed your original posting!  Maybe I was doing something super fun that week (oh, my parents were visiting!).   Your celiac blood panel was positive and you had intestinal damage that was caused by both celiac disease and Giardia?  After treating the Giardia, your CD resolved or went into remission?  Are you consuming a diet containing gluten still?  Have you had a follow-up biopsy?   I read your link to the study, but that feature just one patient (a child).  Have you found any other larger studies?  Inquiring minds want to know!       
    • Week late aftershock!?
      Remember, celiac disease is an autoimmune disorder like lupus, MS or R.  Arthritis except the trigger for a flare-up is known -- gluten.  Unfortunately, no one knows what causes lupus or MS to flare-up (lots of theories, but no definitive answers).  For some celiacs, a flare-up is just a day or so.  For others a week or months!  I can vouch for months!  My antibodies were sky high after a glutening last summer six weeks after the occurrence.  I also became lactose intolerant for three months!  I was so bummed!   Plus, my symtoms were so different from when I was diagnosed.   I am sorry that you were glutened.  I hope you feel better soon.   Oh, I tend to alter my gluten-free diet to include soft easy-to-digest foods after a glutening.  Maybe this will help you.   
    • Emergen-c All Flavors gluten-free
      I hope this information is still accurate because according to their website they do not actually test the end product. http://www.emergenc.com/misc/faq Are your products free of Gluten? We do not use Gluten during the manufacturing process. However, we are unable to confirm its presence or absence as the end product is not tested for gluten
    • Week late aftershock!?
      I got glutened a little over a week ago.  It took me a couple days to feel the effects but they came in the form or diarrhea, headaches, fatigue, and anxiety.  During this time I also developed a sinus infection.  It took a few days then I started feeling better.  Now a little over a week after I got glutened I'm having another set of diarrhea, nausea and fatigue.   This has happened to me before and I always assumed I was glutened again but I have been eating at home and very careful.  I don't think it is another glutening but maybe when I feel better I start eating more that might aggravate my gut? or do you think it might have to do with my sinus infection?  I didn't take anything but mucinex.  Does this "aftershock" happen to anyone else? 
    • Celiac.com: Celiac Disease Screening An Uncertainty
      Thanks for the links Gee eff! I was able to leave comments. Yay!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,527
    • Most Online
      1,763

    Newest Member
    MBrooks985
    Joined