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Diagnosed 4 Months Ago. Still Lost.


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15 replies to this topic

#1 Niebr

 
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Posted 31 May 2011 - 02:08 PM

Alright. So I was diagnosed with Celiacs back in January maybe February. Since then my diet has been potatoes, eggs, cereal that I have found to be gluten free (so glad fruity pebbles was one of them!), White rice, meats, poultry. I even found a local pizza shop that serves fully gluten free pizza prepared with utensils and in a shop that is strictly gluten free.

This is all great so far but here's my main problem. I am still totally lost as to meals and (as much as it embarrasses me to say this) being able to afford such.

I found that there's a Market District which has a small aisle dedicated to gluten free. Which is great, but then again it all seems to be coming down to affordability. I just got my job back, yet my isn't for another 2 weeks. And my job is physically demanding and I am worried about improper nutrition leading to another trip to the hospital.

Basically what can i do that would be low cost yet still nutritional? Stick with what I am currently doing and hope?

(Family is unable to help, Also I know this is a lot, but I am honestly at a loss)
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The only dumb question, is the one that remains unasked.


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#2 maximoo

 
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Posted 31 May 2011 - 03:05 PM

there are tons of threads here of easy recipes & things to eat. One man made chili mac with vegetarian beans & Annies mac & cheese. (which is about $4 a box) also just google gluten-free recipes.

Unfortunately gluten-free foods are 2/3/4x the price of regular food. You will have to cook more often. I have to cook more often too something I hate & am not good at. But we gotta do it. Good Luck!
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#3 Niebr

 
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Posted 31 May 2011 - 03:09 PM

Yea, im not bothered bout cooking more often, just with the prices of things, its staggering. guess ill just have to get use to it. i just cant believe it though, a box of gluten-free chicken alfredo (chicken not included lol) cost $5.50 while a non gluten-free chicken alfredo cost like $3
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The only dumb question, is the one that remains unasked.


#4 srall

 
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Posted 31 May 2011 - 03:13 PM

I was going to say the same thing. In order to make this affordable, you need to cook for yourself. My family pretty much had to give up going out to dinner because the food was never safe (or I was too freaked to trust it) and the food I'm buying my family is very expensive.
You didn't say how you were feeling on the processed food. I'm assuming you're feeling okay. I felt better for awhile but in order to really feel top notch, I had to move to a whole foods diet. It's a time commitment. If I were to give you advice I would say start with basic meats with veggies. I don't eat grains anymore, so I freely drink fruit juice and all the fruit I want to get enough carbs. But most meals are a piece of fish, chicken or beef with a steamed veggie on the side. Not super snazzy I know but it's a jumping off point. In the fall I like to make soups. I make my daughter gluten free muffins and sometimes I make bread with coconut flour that we can both eat.
The thing about meats is that even just salt and pepper are sometimes enough for seasoning. I know meat's expensive...potatoes and rice are a great supplement too. I had better luck with white rice than brown rice as far as digestion. If you have some favorite recipes you can research how you can modify it yourself. The rare times I am in a restaurant and eating something that's actually made with some love, as opposed to a dry piece of fish and over steamed vegetable, I try and figure out how I can make it at home.
I think you'll get some more suggestions. It does get easier but I promise you, you have got to learn how to cook. Unless you can afford to hire a chef. I just don't see how else you can get through this.
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#5 Niebr

 
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Posted 31 May 2011 - 03:31 PM

Cooking isnt a problem (chilling with mom in the kitchen for so long wen i was lil) its just ya no buying for meals really, i found some places that I can trust, but new places i am really freaked out bout going to, and family still try to help, but again i dont trust much when it comes to preparing my meals,
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The only dumb question, is the one that remains unasked.


#6 sb2178

 
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Posted 31 May 2011 - 03:34 PM

Sweet potatoes and winter squash (pumpkin, butternut squash) are also great carb sources and reasonably affordable and a little more nutritious than white potatoes if you're really counting your pennies and nutrients. As are frozen peas and corn. Cabbage a great wicked cheap vegetable (don't overcook it!!), and whole carrots tend to be reasonable too.

Do you have a place to garden? This time of year, almost all you have to dig is drop some seeds and water occasionally.

Imagine your plate. Half should be lower calorie veg, 1/4 should be protein (meat/beans/nuts), and 1/4 should be complex carbs from grains/starchy veg like potatoes. Fruit and dairy extras, or you can replace protein and carbs with them. It sounds like you're probably pretty close to that.

Corn tortillas are usually cheap in latino groceries, but not so much in the mainstream ones. Migas, enchiladas, quesadillas, etc. I use beans as the carb portion too. Lentils cook faster than most other dried beans and are pretty affordable. A basic lentil salad is a good way to start, then add whatever fresh veg and extra protein you want. Boxed cereal tends to be relatively expensive per serving, so you might be better off buying the hot cereals if you can find any and then adding a few nuts for the fat. Cream of rice, cream of buckwheat, gluten-free oats, etc.
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2/2010 Malabsorption becomes dramatically noticable
3/2010 Negative IgA EMA; negative IgA TTG
4/2010 Negative biopsy
5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)
5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

#7 Korwyn

 
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Posted 31 May 2011 - 03:37 PM

You might have to start making your own sauces and such. Unless you are pretty well off, eating only boxed and canned gluten-free foods (especially pasta/breads/cakes/etc) is not financially feasible over the long term.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#8 Niebr

 
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Posted 31 May 2011 - 03:49 PM

hmm see i never hung roun dwen mom did gardening lol, I was hopign that once i got a stocked pantry of regular foods, this would get easier, but from what you all are saying, hmm...well i do have vegetables n stuff down, just buying those from the grocers, then also milk n such, but yea like i said, its mostly been nothing but vegetables since this started. salads as well,
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#9 Poppi

 
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Posted 31 May 2011 - 04:10 PM

I posted a month's worth of dinner plans on my blog recently. I feed a family of 7 and while some of these dinners aren't super cheap there is enough variety that you should be able to get a few ideas.

Lentil soup, salad and gluten-free cornbread
Hamburgers, steamed cauliflower and baked potato wedges
BBQ salmon, brown rice, steamed broccoli
Grilled skewers from M&M meats (they have several gluten-free varieties), grilled asparagus and rice
Roast turkey, mashed potatoes and gravy, corn
Turkey tostadas with homemade corn tortillas
Bacon & eggs, hashbrowns and fruit salad
Asian peanut butter pork, rice and broccoli
Green Thai curry with chicken, zucchini, carrots and baby corn, rice
Beef stir fry with lots of vegetables and rice or rice noodles
Salad and turkey soup made with the bones from last week's turkey
Tacos with corn taco shells, ground beef and homemade taco seasoning along with all the usual taco toppings
Breakfast skillet with potatoes, eggs, sausages and toast
Sole fillets fried with panko crumbs, cauliflower and rice
Chicken nuggets, fries and tabouleh
Maple salmon, brown rice and corn on the cob
Grilled steak salad and baked potatoes
Butter chicken, curried cauliflower and rice
Prawns sauteed in garlic butter with rice and grilled zucchini
BBQ chicken, Macaroni and cheese (I'll post a recipe for feeding a mixed family of gluten and gluten-free eaters) and salad
Homemade pizza
Fritatta with potatoes, peppers and mushrooms, fruit and bacon
Beef stir fry with lots of vegetables and rice or rice noodles
Asian peanut butter pork, rice and broccoli
Hamburgers, salad and fries
Maple salmon, brown rice and steamed carrots
Chili and cornbread
Korean Ribs, rice and steamed broccoli

I don't generally plan a full 31 meals because there are always at least 3 evenings a month where we eat leftovers or eat out or just feel like oatmeal and tea.

t's pretty much the same food we ate before I had to stop eating gluten. I just cook with some slight modifications. Where ever there is a bread product I either purchase a gluten free alternative for myself and a regular version for everyone else or I bake a gluten free version for everyone.
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Sara

Busy mom to 3 great kids (4, 8 and 18)

Gluten free since April 6, 2011 ~ Also sensitive to coconut, coffee and food dyes

Joint pain, mouth sores, back and neck pain, migraines, stomach pain, chronic fatigue, ADD and depression are all gone.
Wishing I had been diagnosed before celiac robbed me of the cartilage in my toes and the 3 babies we lost to miscarriages.


#10 CarolinaKip

 
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Posted 31 May 2011 - 04:25 PM

Fresh fruit and produce! Now is the time for farmer markets to start. I have an ALDI near me and their produce is cheaper than regular grocery stores. Lean meat! 100% ground turkey with Manwich..freeze leftovers. Corn tortillas with chicken, fish etc.... A crockpot! Many recipes here for that. If you have room, you can cook and freeze a lot! Try jasmine rice for a change up...walmart has it cheaper than the rest.Cook it in chicken broth, add veggies, cheese(if you can eat it)and or meat. There is so much you can eat without the cost...what are some of your likes??

Check the recipe forum!

I like to make different breads with gluten-free bisquick. They last for a few days and will make plently for just one person.

There are also the fruity pebbles ceral bars on the market now!

The ideas are endless : ) Google gluten free recipes, there are several great blogsout there!
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How far you go in life depends on your being tender with the young, compassionate with the aged, sympathetic with the striving and tolerant of the weak and strong. Because someday in your life you will have been all of these.
George Washington Carver


Blood work positive 4/10
Endo biopsy positive 5/10
Gluten free 5/10

#11 GlutenFreeManna

 
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Posted 31 May 2011 - 04:39 PM

Do you have a crockpot? Many inexpensive meals can be made in one and they are easy to do too if you are just learning to cook. It does take planning in advance, but many people here do large batches of crockpot food on the weekends and freeze in invidual portions for the week. Checkout this blog for ideas: http://crockpot365.blogspot.com/ Everything she makes is gluten-free and she has even made a post about how to save money by using the slow cooker: http://crockpot365.b...-recession.html
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#12 Marilyn R

 
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Posted 31 May 2011 - 05:45 PM

You can eat very well at home for so much less that it costs to eat out, and your risks are significantly less.

We had grilled marinated lamb shoulder chops tonight with rosemary (I grow it, super easy) olive oil, lemon juice, grainy mustard with salad from lettuce we grew and potato leek soup. I had enough left over soup to take to a neighbor (and I tend to be stingy about my gluten-free food). Check out Food Network. There are so many good recipes out there.
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Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#13 rosetapper23

 
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Posted 31 May 2011 - 05:59 PM

I'm also hampered by a very tight budget, so I know where you're coming from. For most of the month, I eat soups made of vegetables, beans, chicken, etc., or stir-fries using cheap, gluten-free rice noodles from Thai Kitchen (I add veggies and gluten-free soy sauce). However, during the last week of each month, I usually end up eating eggs, potatoes, apples, and cereal....because that's all that I can afford. During the summer, I grow vegetables...and that helps a lot, though last year I ended up eating tomatoes almost nonstop and got sick of them! If you don't know how to garden, you should take walks around the neighborhood, chat up the neighbors who like to grow vegetables to get their advice, and they might even bring by their extra produce during the summer to share with you.
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#14 Niebr

 
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Posted 31 May 2011 - 06:27 PM

ok lets try and reply to everyone here.
Poppi: That is great! thats what i need! ive watched my mom n gram always make dinner but i cant think of jack wen it comes to the store, this helps!

CarilonaKip: yes i know bout farmers market my pap goes down all the time for fruit, looks like ima b going down there more often myself as well. im sure gram has a crockpot some where around here, and dadly a walmart is far from us, but im sure i can find that some where around. i tried google and it was very over whelming and i just got very upset at all the things i need sometimes. And i will be checking about those cereal bars.

GFManna: Again I still have to ask about if we have a crock pot, but i saved your links and ima check those out next time i get a computer client pay off (trying to stock up on food little by little) TY!

Marilyn R: I actually just had some grilled hot dogs 2 days ago, it was so good, but again the meats and such is kind of a rarity due to household income. and i didn't think mainstream places liek that would be too keen on gluten-free, now that i have celiacs i realize how little i know and how restraining it is.

rosetapper23: Yea, we have a neighbor at the end of the street that devotes like his whole yard to gardening, i was thinking of asking him, or maybe even making him my personal farmers market lol. now for things like stir-fry would i be able to use like Flavorite white rice? i don't think i react to it, i checked like every ingredient on the box and everything was safe by what i found.

I really cant thank any of you enough for your posts and help, i just came back from giant eagle and found gluten free pancake mix (half the box double the price -.-) but i was so overwhelmingly happy that i found something that extended what i could eat. then i come back and see all these posts ive honestly been on the verge of tears writing all these replies cause it is such a relief and . . . . just awesome feeling that there are people willing to help and collaborate like this. Thank you everyone.
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The only dumb question, is the one that remains unasked.


#15 mushroom

 
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Posted 01 June 2011 - 08:02 PM

Well, you don't really need to buy a whole bunch of stuff from the gluten free section. You do need a gluten-free flour - like Pamela's Baking Mix - you can use this for pancakes, cookies, anything really you want to bake, and for making gravies to go with meats and stews (in the crockpot maybe). You do probably need to buy some gluten free pasta like Tinkyada, and you would probably enjoy some gluten-free bread like Udi's or Kinnickinick. And Rice and Corn Chex is gluten free as long as it says so on the box. And then you just need your meats, fruits, veg, and just a plain old bag of rice - you don't need to buy any of those mixes from a box, just plain old rice, 1/2 cup rice to one cup of boiling water, cook on low for 20 mins with a bit of salt and seasoning, but make double quantity and then you have some left over to microwave for another meal. It is really quite simple and cheap to eat gluten free if you don't try to get too fancy. :D
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Neroli


"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose

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