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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Prilosec And Other Acid Inhibotors
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5 posts in this topic

I have celiac desease plus acid reflux. Recently I started experiencing symptoms of viatimin deficieny because I was taking a prescription of 40 mg prilosec prescribed by my dr. Has anyone experience this and if so what did you do. Also I would like to know the best brand of vitamins to take that are gluten free. If this has already been discussed just pooint me to the post as this is the first time I have posted anything on this site. Thanks

Prisjo

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Sorry to hear about the vitamin issues, in the same boat myself. Finding the root cause of the acid reflux and not just covering up the symptoms with medication is the most important thing you can do. Unfortunately the majority of conventional doctors will send you away with PPI's no matter what symptoms you're having so you need to be assertive and attempt to find out WHAT is causing the acid reflux so you can determine the right approach. As you've experienced yourself these drugs taken over the long haul will only add to your problems (unless you have an ulcer, which they can then help the healing process by stopping the acid.) There are many changes you can make like eating smaller meals, avoiding acidic foods like tomatoes, coffee, etc, and you could try taking a tablespoon of Braggs Apple Cider Vinegar diluted in water with every meal. This helps increase production of acid in the stomach which is what you want so that food is properly digested. The action of PPI's kills the stomach acid therefore leading to a low production, and the problems eventually snowball :(

As far as a good gluten free multi, I'd recommend Country Life Liquid Multi-vitamin. It's the one I was recommended when I first came on here 9 months ago and it was a huge help in regaining my energy and helping the healing process. It's very complete and if purchased online it's about 15-20 dollars which is good considering you'll get a month or so out of it.

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I have been on 2 Prilosec a day for over a year & half. Knowing how bad they can be for you over the long haul I have tried to wean off but every time the acid has become so much worse, feels like pure acid pouring down my throat. Three weeks ago I started to take pure liquid Aloe, 2 oz two x's a day and have weaned down to just one Prilosec a day. So far.... feeling good and no acid! Almost afraid to cheer too loudly but it may be working and I would rather be doing something natural. Figured i would give it a month before starting to wean off of the 1 Prilosec a day. Maybe Aloe would help you. The health food store suggested it to me.

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I have celiac desease plus acid reflux. Recently I started experiencing symptoms of viatimin deficieny because I was taking a prescription of 40 mg prilosec prescribed by my dr. Has anyone experience this and if so what did you do. Also I would like to know the best brand of vitamins to take that are gluten free. If this has already been discussed just pooint me to the post as this is the first time I have posted anything on this site. Thanks

Prisjo

Thanks Syl

I get alot of info about Celiac, but generally there are no specifics as to what really works. My doctor took a blood sample to see if I have B-12 deficientcy, but also schudled me an appointment with a neuro guy. I would have rather found out about the B-12 before going to another Dr who may or may not know about Celiac. Ah such is life.

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I have been on 2 Prilosec a day for over a year & half. Knowing how bad they can be for you over the long haul I have tried to wean off but every time the acid has become so much worse, feels like pure acid pouring down my throat. Three weeks ago I started to take pure liquid Aloe, 2 oz two x's a day and have weaned down to just one Prilosec a day. So far.... feeling good and no acid! Almost afraid to cheer too loudly but it may be working and I would rather be doing something natural. Figured i would give it a month before starting to wean off of the 1 Prilosec a day. Maybe Aloe would help you. The health food store suggested it to me.

Well Cap6 I have just invested in a supplement drink that is supposed to be loaded with good things for Celiacs, but it looks and tastes like sludge and is a funky green color. lol So I guess aloe is probably not something I would add right now but thanks for the input. P

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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