Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Your Top Two Pieces Of Advice
0

58 posts in this topic

Hmm...what I was hoping to do was go through and summarize one entry per line all the top two. Then I wanted to edit my first post to keep the list there and I'd update it periodically. That way the list would be easily findable without a newbie having to wade through tons of replies. But since I can't edit the top post anymore, I'm not sure how to proceed. I don't really want to keep starting a new thread. I'd like to keep it in the forum where it is searchable and indexable. Any ideas anybody?

I apologize. Adding to your thread was meant to be positive...sorry it wasn't what you wanted.

0

Share this post


Link to post
Share on other sites


1. If you pretend the center aisles don't exist, shopping can actually be extremely easy. Meat, Produce, rice aisle, dairy section, spice section and household items aisle. That's instead of being a detective and getting frustrated with everything you put your hands on.

"What? I can't eat one pot KD? You mean I ACTUALLY have to COOK a meal? With separate pots, seasonings and get creative? WHAT?? What a shame! How TERRIBLE! Whatever will I do! Having to eat things like steak and baked potatoes or honey chicken and rice ? Oh, what a world!" :P:D - That's what I say to people who say it must be sooo hard and boring for me.

2. If you are still experiencing trouble, chances are you need to look at other culprits like soy (EVIL EVIL EVIL SOY), dairy, eggs etc.

I like the idea of using a stick and beating people like pinatas.

3

Share this post


Link to post
Share on other sites

Hmm...what I was hoping to do was go through and summarize one entry per line all the top two. Then I wanted to edit my first post to keep the list there and I'd update it periodically. That way the list would be easily findable without a newbie having to wade through tons of replies. But since I can't edit the top post anymore, I'm not sure how to proceed. I don't really want to keep starting a new thread. I'd like to keep it in the forum where it is searchable and indexable. Any ideas anybody?

Hi Korwyn,

I have wondered about stickies for the forum also.

Seems like a good thing to do. I think I read once that the thinking was it would discorage new people from asking questions and getting involved. I don't know if that is true or not.

I have a couple ideas though.

We could edit our profiles signatures and add thread links to them. So perhaps a tips thread like this could be in our sigs. Or threads on cooking tips, casein intolerance or other topics. I haven't tried that so I don't know if it works.

ANother thing I had thought about was setting up tags for threads. We could tag threads with a code for certain topics when we think the are especially helpful threads. Then people could search for that tag to find related threads. It could BE something simple like ***+=casein, or ***+=testing, or ***+=getting started.

People could search on those tags to find threads on the topic. The forum search tols works, but sometiems it gives so many results, most of ehich are unimortant thjreads or even old threads that new peope might find it hard to wade through all that to find the good info. So tags could help I think.

1

Share this post


Link to post
Share on other sites

I sent a note to the "Boss" that you all are asking about this. I don't know if its doable or desired.

The real boss is Scott (admin), but I am looking into this. Some things happen instantly--this is not one of them. B)

2

Share this post


Link to post
Share on other sites

Gee, and here I've been beating them with a stick like a pinata until the gluten all falls out!!

We didn't I think of that!!? My family didn't listen to me either. a niece did start on the gluten free diet because she was in so much pain nd miserable.

:lol: :lol: Now you have gluten floating EVERYWHERE! :)

0

Share this post


Link to post
Share on other sites

I apologize. Adding to your thread was meant to be positive...sorry it wasn't what you wanted.

No you didn't misunderstand! It was positive and was what I was hoping for! I just didn't realize that this particular forum software wouldn't allow me to edit my top post after 30 minutes.

I wanted to keep the discussion going, but have the very first entry (my original one) be a 'summary' of all the top two (or three) pieces of advices that everybody had given. I would then update that periodically so that it wouldn't get stale so that new visitors could review the thread, but they wouldn't have to read through all the chit-chat to glean the tidbits unless they really wanted to.

0

Share this post


Link to post
Share on other sites

No you didn't misunderstand! It was positive and was what I was hoping for! I just didn't realize that this particular forum software wouldn't allow me to edit my top post after 30 minutes.

I wanted to keep the discussion going, but have the very first entry (my original one) be a 'summary' of all the top two (or three) pieces of advices that everybody had given. I would then update that periodically so that it wouldn't get stale so that new visitors could review the thread, but they wouldn't have to read through all the chit-chat to glean the tidbits unless they really wanted to.

Maybe instead of editing the top post you could just make a new post with all the answers given and ask the mods to make it a sticky? Or if they can't do a sticky, you can just post a reply everyday to keep it bumped up to the top. I've seen many forums where they do that by just posting "bump" as a reply. I know that's a lot of work for you to keep track of it but maybe if you do it long enough and enough peopel like it, they would make it a sticky for you. ;)

0

Share this post


Link to post
Share on other sites

Well (as a former board op) the bump thing gets annoying for people after a while because they don't know if it is just a 'bump' or if it's new useful content. Plus it starts to tick off moderators after a while. And if you have one thread that does it, pretty soon some people start doing it to all their threads because they are sure their thread is worthy of being at the top. =) Some threads just need to die though! :blink:

Also the bottom post summary is workable to a degree, except that if people go to the 'newest post' and the newest post isn't the most current summary (and it is two or three pages back), they spend more time looking for the content than I was hoping for.

I know when I started on this journey, I was afraid, frustrated, relieved, overwhelmed, and inundated with more information than I could handle processing. I was mentally not in a good place from the gluten and soy and in some ways I just wanted reassurance and sage advice. I could google and find things out, but what I needed/wanted to know was exactly what I'm trying to put together here. I wanted to be able to ask, "You've been here, what is the most important thing I need to know?"

I was so very blessed that a friend with which I went to high school, who's husband and son have celiac disease gave me gluten-free Living for Dummies, and got me to our local GiG meeting and I was able to ask those questions face to face. But many people aren't that fortunate. And for a lot of us, it seems that by the time we get here we need reassurance and simple things to hang onto to get us through those first overwhelming days and then the ups and downs.

That was why I was looking for the top post idea. Simple and easy to look at.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,702
    • Total Posts
      914,493
  • Topics

  • Posts

    • cadbury eggs?
      According to last year's Coeliac UK Food and Drink Directory they both are safe foods for us - I haven't got this year's though.   I do react  if I am glutened but have never had any problem with Creme Eggs - and  I bought some just after Christmas.  If you are anywhere else in the world maybe they change the ingredients but I would say you are fine in the UK..     
    • Glucose Tablets
      According to RelioOn, they do offer Gluten free glucose tablets website info   Lar
    • Do this, scientists! (experiment to confirm/deny the existence of "leaky gut")
      Good idea! Add also the lactulose - mannitol test, to confirm they are/are not experiencing leakyness in the gut, then correlate the results with the symptoms (obviously digestive symptoms would have to be excluded, because diarrhea and bloating will probably be present anyway, due to having damaged intestines). You see, ironically it would be "gluten-free challenge", because possibly systemic symptoms ("leaky gut syndrome")  and GI symptoms start after going IV fluids -> gluten-free (instead of "gluten challenge", which would be gluten-free -> gluten).
             
    • "Pre-Celiac" & scared
      PPIs should not affect your digestion of gluten one way or another. Many folks with celiac disease may have villous damage without obvious symptoms. Others eventually get symptoms after the disease is "activated," but exactly how or why this happens is not yet clearly understood. Biopsies are generally done after someone has symptoms, and likely already has villous damage, so I would imagine your doctor must be necessarily a bit vague about whether you might have "inactive" or "active" celiac disease. The gold standard is to get a biopsy while still eating gluten, and then another after being on a gluten-free diet for some time, to assess whether you heal without gluten in your system. Positive genes and blood work, AND villous atrophy would seem like fairly strong evidence, but that's up to your doctor to determine. If you feel comfortable sharing your test results on the forum, some folks here can give you their two cents. But listen to your doctor! Glutenease might help your digestion, but if you have an autoimmune reaction to gluten, it won't prevent the possible damage that comes with gluten mistakes. Research on l-glutamine is somewhat supportive for healing, but it's not a panacea.  You will read about various levels of sensitivity and prudence here and elsewhere. Eventually you'll come up with a plan that you consider is "safe," but hopefully will still let you get out in the world. Read up on gluten-free groceries and how to deal with restaurants safely, and you ought to be able to find a happy "middle-path" between prudence and paranoia. I'm one of the fairly sensitive/paranoid types at this point in my life. I personally don't worry too much about possibly breathing in gluten, but on the other hand I wouldn't eat anything that's been out where flour is in the air. Nor would I use a shared toaster or fryer. Again, it's important that you form a lifestyle approach that is informed about the risks but still a good life! Most importantly, work with your medical team to determine if you in fact have celiac disease.
    • Second Panel has come back...advice?
      We are utilizing the "our kitchen is completely gluten free" and DEFINITELY checking every label every time methods. SO glad to hear my DGP should drop!!!! 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      59,739
    • Most Online
      1,763

    Newest Member
    larnotlars
    Joined