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I Can Fall Asleep, But Can't Stay Asleep


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#1 anna34

 
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Posted 04 June 2011 - 04:55 AM

I've always had difficulty falling and staying asleep. I'm falling asleep a bit easier since starting the diet (finally able to exercise during the day which is probably making me more tired), but I wake up throughout the night.

Does this happen to anybody else? Any suggestions for what I can do?
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blood test "borderline" (February 2011)
no further testing
gluten-free (March 2011)
positive response

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#2 love2travel

 
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Posted 04 June 2011 - 06:43 AM

That is a difficult problem. I have had chronic insomnia for years and years so totally empathize with you. Many nights I get less than 3 hours' sleep; sometimes I literally do not fall asleep at all so feel quite useless the next day. However, mine is often pain related - it is nearly impossible to get into a good position as I cannot lie on my stomach or back. I often must get up and walk around at night because it also hurts to lie on both sides (see my signature). So, I have found NO sleep aids to help except for Zopiclone that I take when desperate. I have been on it for about 12 years. I am also on muscle relaxants which do nothing for the pain but help my body to relax so my muscles get rest. They also help me to stay asleep a little.

As this has been happening for awhile perhaps it may be worth asking your doctor for a prescription sleep aid. I didn't like doing that but it is necessary for me to cope during the day. I'm sure you've heard the usual rules of sleeping like having a dark cool room, not exerecising after 6 PM and so on so I won't mention any more here.
  • 0
<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#3 IrishHeart

 
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Posted 04 June 2011 - 07:13 AM

Ditto here. Chronic pain and gluten made me a raging insomniac since the 90's :blink: ...even had a sleep study done. No good REM sleep...geesh, I could have told them that! :lol:

I had a 3- year run(2008-2010)of maybe 2-4 hours tops every night...I was a wired-for-sound nutcase from lack of sleep and gluten head.Some nights, I just walked round and round my hours in frustrated tears. My body throbbing in pain...Meanwhile, dear hubby snoring away..AACK!

Gluten free? big improvement! :)
Some nights, maybe 5 or 6 now. ( The chronic pain is another issue. I am working on that in PT.)

What is keeping you awake? Do you have to get up to pee? Is your brain racing?

I found soothing tapes helped. I tried every drug available--once or twice--then gave up. They just made the GI situation worse or gave me horrible nightmares.

Give it some time--many people on here told me their sleep improved over time--as the gluten effect lessened.

Try a hot bath before bed? Chamomile tea?

Good luck, hon--I know how frustrating--and exhausting!-- it can be.
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"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#4 Judy3

 
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Posted 04 June 2011 - 08:54 AM

I used to have that problem but I take 3 mg of melatonin (in a gluten free tablet) now and I fall asleep faster and stay asleep all night. Over the counter in the vitamin aisle. If you decide to try it,just make sure it's gluten free (will say on the bottle). Just one an hour before bedtime should do the trick.


A special center in the brain called the supra-chiasmatic nucleus (SCN) initiates signals to other parts of the brain that control hormones, body temperature and other functions that play a role in making us feel sleepy or wide awake.
Melatonin is a natural hormone made by your body's pineal (pih-knee-uhl) gland. This is a pea-sized gland located just above the middle of the brain. During the day the pineal is inactive. When the sun goes down and darkness occurs, the pineal is "turned on" by the SCN and begins to actively produce melatonin, which is released into the blood. Usually, this occurs around 9 pm. As a result, melatonin levels in the blood rise sharply and you begin to feel less alert. Sleep becomes more inviting. Melatonin levels in the blood stay elevated for about 12 hours - all through the night - before the light of a new day when they fall back to low daytime levels by about 9 am. Daytime levels of melatonin are barely detectable.

As we age and living in the lighted society that we live in, naturally occurring melatonin levels are dropping in people. So supplementation may be necessary to overcome this.

I tried it several years ago and was very skeptical but I take it every night still.
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*Judy

Food allergies to fish, seafood, tree nuts, aspartame(Equal),flax seed, and many drugs
Stomach issues since childhood
Hypoglycemia (low blood sugar) age 6-44
Diabetes age 44 to present now going back to Hypoglycemia since gluten free.
Diagnosed with Fibromyalgia in 2005 and it's gone now that I'm aspartame and gluten free. Hmmm
Celiac disease- negative test in 2009, positive tests in Nov. 2010
Gluten free started 11/08/2010
Genetic tests positive- DQ2, positive -DQ6 (?) negative- DQ8 11/15/2010

#5 love2travel

 
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Posted 04 June 2011 - 09:03 AM

I used to have that problem but I take 3 mg of melatonin (in a gluten free tablet) now and I fall asleep faster and stay asleep all night. Over the counter in the vitamin aisle. If you decide to try it,just make sure it's gluten free (will say on the bottle). Just one an hour before bedtime should do the trick.


A special center in the brain called the supra-chiasmatic nucleus (SCN) initiates signals to other parts of the brain that control hormones, body temperature and other functions that play a role in making us feel sleepy or wide awake.
Melatonin is a natural hormone made by your body's pineal (pih-knee-uhl) gland. This is a pea-sized gland located just above the middle of the brain. During the day the pineal is inactive. When the sun goes down and darkness occurs, the pineal is "turned on" by the SCN and begins to actively produce melatonin, which is released into the blood. Usually, this occurs around 9 pm. As a result, melatonin levels in the blood rise sharply and you begin to feel less alert. Sleep becomes more inviting. Melatonin levels in the blood stay elevated for about 12 hours - all through the night - before the light of a new day when they fall back to low daytime levels by about 9 am. Daytime levels of melatonin are barely detectable.

As we age and living in the lighted society that we live in, naturally occurring melatonin levels are dropping in people. So supplementation may be necessary to overcome this.

I tried it several years ago and was very skeptical but I take it every night still.



I've heard that melatonin works in many; not me, though. Not one bit of difference. But as our bodies are all so very different it makes sense that what works for one may not work for another. The only thing that works for me is prescriptions meds but am hopeful that will change in the future!

But of course it is far preferable that someone who has not yet tried melatonin should try it before other things. Hopefully it continues to work so well for you! :)
  • 0
<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#6 IrishHeart

 
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Posted 04 June 2011 - 11:34 AM

I've heard that melatonin works in many; not me, though. Not one bit of difference. But as our bodies are all so very different it makes sense that what works for one may not work for another. The only thing that works for me is prescriptions meds but am hopeful that will change in the future!

But of course it is far preferable that someone who has not yet tried melatonin should try it before other things. Hopefully it continues to work so well for you! :)




me too! Melatonin, valerian, passionflower...none of that worked for me. Lunesta, ambien, sonata...xanax, flexeril, valium....zip. :blink: Then, I would be AWAKE and trembling from the medication...

I agree with love2travel--a body that's ill may be unable to absorb and use something that another person can.

A doctor told me to be careful of using melatonin for too long as you may not be able to adjust to your own natural sleep rhythm. Just passing that along. :)

I have found that every BODY is different and unfortunately, for me, the things that have helped others have often proven to be more harmful in my messed up system..bummer!

I wish I could get a good night's sleep just by taking something. I forget what a good night's restful sleep is......sigh.... and yet, I remain hopeful it will turn around in time! :)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#7 prisjo

 
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Posted 04 June 2011 - 11:43 AM

I've always had difficulty falling and staying asleep. I'm falling asleep a bit easier since starting the diet (finally able to exercise during the day which is probably making me more tired), but I wake up throughout the night.

Does this happen to anybody else? Any suggestions for what I can do?


This is what I do on most nights. I eat a couple cups of popcorn. I think ( and this is just me) that Celiacs blood sugar goes down in the night and while we are not hungry this limits our sleep. I don't do the popcorn every night, but often enough that I am rested and have pretty good energy the next day. Maybe this will work for you. P
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#8 Marilyn R

 
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Posted 06 June 2011 - 06:06 PM

Have you considered other food intolerances? Sometimes they mimic the same problems you had before going gluten free.

Dairy, soy, corn and nightshades are the frequent offenders.

Wishing you a good night's sleep,
M
  • 0
Positive improvement from elimination diet. Mother dx'd by Mayo Clinic in late 1980s. Negative blood tests and Upper & Lower GI biopsy. Parathyroidectomy 12/09. Recurring high calcium level 4/10. Gluten-free 4/10. Soy & Dairy Free 6/10. Corn free 7/10. Grain free except rice 8/10. Legume free 6/11. Fighting the battle of the battle within myself, and I'm going to win!

As of 2/12, tolerating dairy, corn, legumes and some soy, but I limit soy to tamari sauce or modest soy additives. Won't ever try quinoa again!

Discoid Lupus from skin biopsy 2011, discovered 2/12 when picking up medical records. Systemic Lupus Dx 6/12. Shingles 10/12.

#9 domesticactivist

 
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Posted 06 June 2011 - 07:33 PM

This might seem weird, but how dark is the room you sleep in? I'm really sensitive to light. Since my partner made us black out curtains I sleep MUCH better.
  • 0
Our family is transitioning off the GAPS Intro Diet and into the Full GAPS Diet.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.

#10 sb2178

 
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Posted 06 June 2011 - 07:56 PM

Magnesium is also involved in regulating sleep, and celiacs often have low or deficient levels. It's difficult to test for sufficiency via blood tests too.

Honestly, my PCP recommended trying it for a few weeks as I was a little on the low side and some muscle issues. My thrice weekly insomnia basically disappeared. Start on a low dose and increase gradually, as it can have a GI impact as well. Maybe 250, then 400. If you tolerate the 400, try 600. Give it two or three weeks before you give up on it.

Until I get lazy and forget to take it for a few days. And... I'm awake.
  • 0

2/2010 Malabsorption becomes dramatically noticable
3/2010 Negative IgA EMA; negative IgA TTG
4/2010 Negative biopsy
5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)
5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?

#11 Korwyn

 
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Posted 06 June 2011 - 11:08 PM

My insomnia is also affected by soy and dairy as well as gluten. Soy probably actually makes that worse for me then gluten does.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#12 love2travel

 
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Posted 07 June 2011 - 10:20 AM

Magnesium is also involved in regulating sleep, and celiacs often have low or deficient levels. It's difficult to test for sufficiency via blood tests too.

Honestly, my PCP recommended trying it for a few weeks as I was a little on the low side and some muscle issues. My thrice weekly insomnia basically disappeared. Start on a low dose and increase gradually, as it can have a GI impact as well. Maybe 250, then 400. If you tolerate the 400, try 600. Give it two or three weeks before you give up on it.

Until I get lazy and forget to take it for a few days. And... I'm awake.


My chronic pain management doctor told me I must take at least 900 mg of Magnesium Glycinate (he said it is the only form that abosrbs 85% - others are around 30-40%) and work my way up to 1800 mg per day! But he said that is mostly for my severe chronic pain. I am currently on 600 mg per day and am gradually working up. Have been on it a couple of months and notice no difference in insomnia or pain. But I am hoping to very soon!! :)
  • 0
<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#13 love2travel

 
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Posted 07 June 2011 - 10:24 AM

This might seem weird, but how dark is the room you sleep in? I'm really sensitive to light. Since my partner made us black out curtains I sleep MUCH better.



As I am sensitive to light we also have darkening shades. Alas - no help. When you think about it, much of my insomnia results from chronic pain and having to get up to walk around at night because it is so difficult to lie down (or sit). Hopefully the supplements I am now taking will soon help. Perhaps it is time to consider cutting out other things such as soy??!! My chiro told me I must cut out aspartame and MSG. Have done the aspartame but not the MSG yet. Very rarely have it, anyway, but that is the next step.
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<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#14 txplowgirl

 
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Posted 07 June 2011 - 04:09 PM

Melatonin was a godsend for me until I developed an intolerance to it. Imagine waking up flat of your back and feeling like you're falling out of bed. :P Dizzy was not the word for it. It got so bad i couldn't even sit up without nearly falling out of my chair. As soon as I stopped the Melatonin that stopped, but, whoo, that was a scary couple of days til I figured it out.
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Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free


#15 sb2178

 
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Posted 07 June 2011 - 06:35 PM

Hmm, this might be too far off your radar, but I've had some good results with accupuncture for other pain/inflammation problems. Some interesting studies show that it can help as significantly as mild opiods for pain.

In the thought that pain is the baseline issue, but lack of sleep surely doesn't help, so must fix pain to fix sleep, and fix sleep to fix pain...
  • 0

2/2010 Malabsorption becomes dramatically noticable
3/2010 Negative IgA EMA; negative IgA TTG
4/2010 Negative biopsy
5/2010 Elimination diet; symptoms begin to resolve on gluten-free diet round two (10 days)
5/2010 Diagnosed gluten sensitive based on weakly positive repeat IgA & IgG TTGs and dietary response; decline capsule endoscopy.

Now, what to do about my cookbook in progress? Make it gluten-free?




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