Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Are These Symptoms Of Gluten Withdrawal?


  • Please log in to reply

17 replies to this topic

#1 ericsnow

 
ericsnow

    Community Member

  • Advanced Members
  • PipPipPip
  • 29 posts
 

Posted 07 June 2011 - 10:45 AM

It's been 4 days and I've been experiencing...
- Relentless hunger, literally eating 2 or 3 times as much as normal.
- Bloating
- Fatigued
- Anxiety
- Minor depression
- Irritability
- Brain fog

I'm going to an allergy doctor soon, are the tests they give 100% accurate?
  • 0

Celiac.com Sponsor:

#2 ericsnow

 
ericsnow

    Community Member

  • Advanced Members
  • PipPipPip
  • 29 posts
 

Posted 07 June 2011 - 01:59 PM

Anyone?
  • 0

#3 kareng

 
kareng

    Gobble! Gobble!

  • Moderators
  • PipPipPipPipPipPip
  • 14,241 posts
 

Posted 07 June 2011 - 02:06 PM

Have you tried using the Google search feature in the top right corner? I put in "gluten withdrawl" and got a lot of discussions about it that we have had before. Just keep an eye on the dates if they are recommending a product as the info on gluten-free status can change over the years.
  • 0

Thanksgiving dinners take 18 hours to prepare.  They are consumed in 12 minutes.  Half-times take 12 minutes.  This is not a coincidence.  - Emma Bombeck
 
dancing-turkey.gif
 
 
 
 

 


#4 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,769 posts
 

Posted 07 June 2011 - 04:51 PM

Yes it does sound like you are likely going through withdrawl. It should lift soon. Eat as much whole unprocessed food as you can for bit and be careful of cross contamination.
Do let the allergist know that you are celiac. Celiac isn't an allergy but some of us do have both celiac and wheat allergies.
The diet can take some getting used to and once the withdrawl lifts, which it should soon, you'll feel a lot better.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#5 love2travel

 
love2travel

    Čeznem da se u Hrvatskoj!

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,847 posts
 

Posted 07 June 2011 - 04:54 PM

It's been 4 days and I've been experiencing...
- Relentless hunger, literally eating 2 or 3 times as much as normal.
- Bloating
- Fatigued
- Anxiety
- Minor depression
- Irritability
- Brain fog

I'm going to an allergy doctor soon, are the tests they give 100% accurate?


That pretty much sums up the gluten withdrawal symptoms that I had. It lasted about two weeks then disappeared. Oh, I also had frequent headaches. Just hang in there - it doesn't last too long! :) You can do this.
  • 0
<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#6 ericsnow

 
ericsnow

    Community Member

  • Advanced Members
  • PipPipPip
  • 29 posts
 

Posted 08 June 2011 - 04:00 AM

That pretty much sums up the gluten withdrawal symptoms that I had. It lasted about two weeks then disappeared. Oh, I also had frequent headaches. Just hang in there - it doesn't last too long! :) You can do this.


Thanks!

How long do you think it will last? A few weeks?
  • 0

#7 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,769 posts
 

Posted 08 June 2011 - 04:12 AM

How long do you think it will last? A few weeks?


I think most are trough withdrawl within 2 to 4 weeks. Just be very careful with your diet as getting some accidental gluten may prolong the withdrawl.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 ericsnow

 
ericsnow

    Community Member

  • Advanced Members
  • PipPipPip
  • 29 posts
 

Posted 08 June 2011 - 04:51 AM

I think most are trough withdrawl within 2 to 4 weeks. Just be very careful with your diet as getting some accidental gluten may prolong the withdrawl.


I'm being really careful, if I'm not sure about a food I'll call the company up and ask.

I'm also going casein free, is casein withdrawal similar to gluten withdrawal?

One more question... When I wake up in the morning my energy levels are close to normal but within about 30 minutes of eating breakfast I get very tired. It seems as though after eating something I always get more tired than I was before eating it. Is this normal?
  • 0

#9 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,769 posts
 

Posted 08 June 2011 - 05:16 AM

I'm being really careful, if I'm not sure about a food I'll call the company up and ask.

I'm also going casein free, is casein withdrawal similar to gluten withdrawal?


For some it might be. If you are also going casien free I personally would do it now and hopefully the withdrawl from the casien, if you have any, will be over in the same time frame. I just woke up one morning and the withdrawl was over and the world looked like a much brighter place.
The hardest thing for me was finding a butter replacement that didn't have casien in it. Then I found I also have to avoid soy so that made it even tougher. At first I used Ghee, which is clarified butter but then was clued in that butter is pretty much lactose and casien free and I have no issues with it. Coconut oil is also a really good replacement for cooking and baking. Do be aware that it has a low flash point so don't overheat it when using it to fry foods. Coconut shortening is great for using in gluten-free baked goods.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#10 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,769 posts
 

Posted 08 June 2011 - 05:17 AM

One more question... When I wake up in the morning my energy levels are close to normal but within about 30 minutes of eating breakfast I get very tired. It seems as though after eating something I always get more tired than I was before eating it. Is this normal?


What are you having for breakfast?
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#11 ericsnow

 
ericsnow

    Community Member

  • Advanced Members
  • PipPipPip
  • 29 posts
 

Posted 08 June 2011 - 05:34 AM

What are you having for breakfast?


Today for example I had scrambled eggs and organic gluten free turkey hot dogs (sliced) fried up in organic extra virgin coconut oil and I got the tired feeling after eating it. But like I said I get the tired feeling after eating anything.
  • 0

#12 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,769 posts
 

Posted 08 June 2011 - 05:52 AM

Today for example I had scrambled eggs and organic gluten free turkey hot dogs (sliced) fried up in organic extra virgin coconut oil and I got the tired feeling after eating it. But like I said I get the tired feeling after eating anything.


It may just be that since you are so new to the diet that you are still healing and it may take a while before that effect goes away. That breakfast was almost all protein. Have you tried something like fruit with maybe a hardboiled egg and a slice of toast, made in your new dedicated toaster? That might be a little lighter to digest and help with the tired feeling. You can also try adding in a sublingual B12 tablet in the morning to see if that helps a bit with energy levels.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#13 ericsnow

 
ericsnow

    Community Member

  • Advanced Members
  • PipPipPip
  • 29 posts
 

Posted 08 June 2011 - 06:27 AM

It may just be that since you are so new to the diet that you are still healing and it may take a while before that effect goes away. That breakfast was almost all protein. Have you tried something like fruit with maybe a hardboiled egg and a slice of toast, made in your new dedicated toaster? That might be a little lighter to digest and help with the tired feeling. You can also try adding in a sublingual B12 tablet in the morning to see if that helps a bit with energy levels.


I am eating some fruit (not usually with breakfast) and I'm taking a multi vitamin (which contains a lot of B12) and a fish oil supplement, both of these supplements are gluten free. I have some high quality aloe vera juice, is it true aloe vera can help heal the intestines?
  • 0

#14 ravenwoodglass

 
ravenwoodglass

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 13,769 posts
 

Posted 08 June 2011 - 08:37 AM

I am eating some fruit (not usually with breakfast) and I'm taking a multi vitamin (which contains a lot of B12) and a fish oil supplement, both of these supplements are gluten free. I have some high quality aloe vera juice, is it true aloe vera can help heal the intestines?


You might want to do a new thread to ask about the aloe. I don't know much about that. While your multi may have a lot of B12 while your digestive system is still healing you won't be able to absorb it from a swallowed pill. The sublingual goes right into the bloodstream from the mucous membranes in your mouth. Do read all ingredients on multis because some can have wheat and barley grass and still say gluten free on the label. You want to avoid those.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#15 dreacakes

 
dreacakes

    Community Member

  • Advanced Members
  • PipPipPip
  • 54 posts
 

Posted 08 June 2011 - 02:37 PM

I had major withdrawal symptoms for about 2 months, and more mild ones for a year after.
I just mentioned this on another post, but I didn't really get better until I went on a Paleo diet and took a gut-healing supplement for awhile. I'd highly suggest giving the diet a shot! And the supplement I've had great success with is called RepairVite.

Aloe is great for your stomach. Eggs can irritate it. (I had no idea I was sensitive to eggs until I stopped eating them for a few weeks then eat one again... I got really nauseous from it)

Other great things to eat are coconuts, ginger, tumeric, and garlic. Stay away from sugar, caffeine, and alcohol for at least a few months.

And hang in there! I know the withdrawal period sucks... I had no idea it was going to happen to me and it hit like a ton of bricks! But I can tell you for a fact it WILL get better. :)
  • 0
Debilitating tendonitis in both arms in 2003, at age 23, declared "permanent and stationary" by workman's comp doctors.
Fibromyalgia diagnosis in 2010.
Mild hyperthyroidism diagnosis 2011.
Disc Degeneration diagnosis 2012.
Life long battle with hypoglycemia.
Gluten Free since 2010. On Paleo-type diet since May 2011.
Suffered years of brain fog, back spasms, nausea, and recurring connective tissue pain and injuries. After years of misdiagnosis, I did my own elimination diet and discovered a severe reaction to wheat gluten and casein. After going on a grain free, nightshade free, Paleo-ish diet, my symptoms are nearly gone, and I FINALLY KICKED THE BRAIN FOG!
Cheers to health! <3




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: