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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Are These Symptoms Of Gluten Withdrawal?
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18 posts in this topic

It's been 4 days and I've been experiencing...

- Relentless hunger, literally eating 2 or 3 times as much as normal.

- Bloating

- Fatigued

- Anxiety

- Minor depression

- Irritability

- Brain fog

I'm going to an allergy doctor soon, are the tests they give 100% accurate?

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Ads by Google:

Have you tried using the Google search feature in the top right corner? I put in "gluten withdrawl" and got a lot of discussions about it that we have had before. Just keep an eye on the dates if they are recommending a product as the info on gluten-free status can change over the years.

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Yes it does sound like you are likely going through withdrawl. It should lift soon. Eat as much whole unprocessed food as you can for bit and be careful of cross contamination.

Do let the allergist know that you are celiac. Celiac isn't an allergy but some of us do have both celiac and wheat allergies.

The diet can take some getting used to and once the withdrawl lifts, which it should soon, you'll feel a lot better.

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It's been 4 days and I've been experiencing...

- Relentless hunger, literally eating 2 or 3 times as much as normal.

- Bloating

- Fatigued

- Anxiety

- Minor depression

- Irritability

- Brain fog

I'm going to an allergy doctor soon, are the tests they give 100% accurate?

That pretty much sums up the gluten withdrawal symptoms that I had. It lasted about two weeks then disappeared. Oh, I also had frequent headaches. Just hang in there - it doesn't last too long! :) You can do this.

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That pretty much sums up the gluten withdrawal symptoms that I had. It lasted about two weeks then disappeared. Oh, I also had frequent headaches. Just hang in there - it doesn't last too long! :) You can do this.

Thanks!

How long do you think it will last? A few weeks?

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How long do you think it will last? A few weeks?

I think most are trough withdrawl within 2 to 4 weeks. Just be very careful with your diet as getting some accidental gluten may prolong the withdrawl.

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I think most are trough withdrawl within 2 to 4 weeks. Just be very careful with your diet as getting some accidental gluten may prolong the withdrawl.

I'm being really careful, if I'm not sure about a food I'll call the company up and ask.

I'm also going casein free, is casein withdrawal similar to gluten withdrawal?

One more question... When I wake up in the morning my energy levels are close to normal but within about 30 minutes of eating breakfast I get very tired. It seems as though after eating something I always get more tired than I was before eating it. Is this normal?

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I'm being really careful, if I'm not sure about a food I'll call the company up and ask.

I'm also going casein free, is casein withdrawal similar to gluten withdrawal?

For some it might be. If you are also going casien free I personally would do it now and hopefully the withdrawl from the casien, if you have any, will be over in the same time frame. I just woke up one morning and the withdrawl was over and the world looked like a much brighter place.

The hardest thing for me was finding a butter replacement that didn't have casien in it. Then I found I also have to avoid soy so that made it even tougher. At first I used Ghee, which is clarified butter but then was clued in that butter is pretty much lactose and casien free and I have no issues with it. Coconut oil is also a really good replacement for cooking and baking. Do be aware that it has a low flash point so don't overheat it when using it to fry foods. Coconut shortening is great for using in gluten-free baked goods.

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One more question... When I wake up in the morning my energy levels are close to normal but within about 30 minutes of eating breakfast I get very tired. It seems as though after eating something I always get more tired than I was before eating it. Is this normal?

What are you having for breakfast?

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What are you having for breakfast?

Today for example I had scrambled eggs and organic gluten free turkey hot dogs (sliced) fried up in organic extra virgin coconut oil and I got the tired feeling after eating it. But like I said I get the tired feeling after eating anything.

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Today for example I had scrambled eggs and organic gluten free turkey hot dogs (sliced) fried up in organic extra virgin coconut oil and I got the tired feeling after eating it. But like I said I get the tired feeling after eating anything.

It may just be that since you are so new to the diet that you are still healing and it may take a while before that effect goes away. That breakfast was almost all protein. Have you tried something like fruit with maybe a hardboiled egg and a slice of toast, made in your new dedicated toaster? That might be a little lighter to digest and help with the tired feeling. You can also try adding in a sublingual B12 tablet in the morning to see if that helps a bit with energy levels.

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It may just be that since you are so new to the diet that you are still healing and it may take a while before that effect goes away. That breakfast was almost all protein. Have you tried something like fruit with maybe a hardboiled egg and a slice of toast, made in your new dedicated toaster? That might be a little lighter to digest and help with the tired feeling. You can also try adding in a sublingual B12 tablet in the morning to see if that helps a bit with energy levels.

I am eating some fruit (not usually with breakfast) and I'm taking a multi vitamin (which contains a lot of B12) and a fish oil supplement, both of these supplements are gluten free. I have some high quality aloe vera juice, is it true aloe vera can help heal the intestines?

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I am eating some fruit (not usually with breakfast) and I'm taking a multi vitamin (which contains a lot of B12) and a fish oil supplement, both of these supplements are gluten free. I have some high quality aloe vera juice, is it true aloe vera can help heal the intestines?

You might want to do a new thread to ask about the aloe. I don't know much about that. While your multi may have a lot of B12 while your digestive system is still healing you won't be able to absorb it from a swallowed pill. The sublingual goes right into the bloodstream from the mucous membranes in your mouth. Do read all ingredients on multis because some can have wheat and barley grass and still say gluten free on the label. You want to avoid those.

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I had major withdrawal symptoms for about 2 months, and more mild ones for a year after.

I just mentioned this on another post, but I didn't really get better until I went on a Paleo diet and took a gut-healing supplement for awhile. I'd highly suggest giving the diet a shot! And the supplement I've had great success with is called RepairVite.

Aloe is great for your stomach. Eggs can irritate it. (I had no idea I was sensitive to eggs until I stopped eating them for a few weeks then eat one again... I got really nauseous from it)

Other great things to eat are coconuts, ginger, tumeric, and garlic. Stay away from sugar, caffeine, and alcohol for at least a few months.

And hang in there! I know the withdrawal period sucks... I had no idea it was going to happen to me and it hit like a ton of bricks! But I can tell you for a fact it WILL get better. :)

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Did I have a gluten reaction to strawberry jelly yesterday evening? I ate a bowl of gluten free cereal with gluten free peanut butter and this 100% fruit strawberry jam mixed together. Within about 30-60 minutes of eating it I got 2 itchy bumps (hives?) on my right leg and I became super bloated. I also felt a little "out of it". And strangely enough the constant relentless hunger I've been experiencing the last week or so disappeared (temporarily I'm sure) after I ate that.

The jelly is this brand - http://www.fruitoftheland.com/beitnosugar.html

The only ingredients are strawberries, pineapple juice, lemon juice, and fruit pectin.

I;m also pretty sure I have candida albicans. Yesterday I ate a lot of fruit and honey so I'm thinking I maybe overloaded my system with sugar and that's what caused this reaction?

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Eric, you started one day before I did. I'm glad you started this thread because although I knew from what I had read here that I'd be feeling hungry, I didn't know about the headaches. I've had one since yesterday and the only ibuprifen I have is the store brand, which probably has gluten in it. Later today I will try to send someone to the store for me so I can get name brand Advil, which I gather is gluten free. I need to because this headache is making me GRUMPY! :angry::blink::lol:

Back when I was eating LOTS of gluten, I used to always get sleepy after I ate. The last three days I have not. Go figure. I guess that's why they say it's different for everyone.

I would like to congratulate BOTH of us for finding this place! Out of all the celiac sites I've seen, this is the best one by far.

And to all of you who are putting so much time, thought, and effort into helping all of us newbies, I say a resounding THANK YOU!!!

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I find that in the first week after I've been glutened (this would go for the withdrawl period as well) I have to be very gentle with my stomach. Lots of fruit, salmon, steamed veggies, tea and toast with honey. I have to avoid high fat, greasy, fried or heavy meals. I get very tired right after because my body is struggling to heal from the glutening and digesting a big meal is hard work.

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