Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

14 Year Old Son Newly Diagnosed
0

11 posts in this topic

Hi all, I'm glad I found this board. My 14 year old son was diagnosed via bioposy (blood tests neg) with celiac. He has been gluten free since then and has not had ANY GI or fatigue symptoms! He has had depression, anxiety, ADHD and short stature (3rd percentile in height) for years. Don't see any improvement yet in behavior. So my questions are - how many of you have seen catch up growth in your children? And what about psychological symptoms reduction? Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

My 13 year old daughter was diagnosed via blood work (and confirmed via biopsy) in August. We started a gluten-free diet right away.

She rarely had any stomach problems, but was tested because of short stature - under 1st percentile. She had grown less than a centimeter by October (2 months) but had grown 4 cm and 2 lbs by her March checkup (7 months on the gluten-free diet). The doctors are very happy with her progress. I was very small as a child but am now average height, so her height wasn't a red flag until her growth curve suddenly flattened.

You didn't say how long your son has been on a gluten-free diet, but I'm sure it takes some time for the intestines to heal and be able to properly absorb nutrients. I can't speak to improvement of psychological symptoms, because she didn't have any before switching, although it has occasionally been hard for her on her new diet.

0

Share this post


Link to post
Share on other sites

My 13 year old daughter was diagnosed via blood work (and confirmed via biopsy) in August. We started a gluten-free diet right away.

She rarely had any stomach problems, but was tested because of short stature - under 1st percentile. She had grown less than a centimeter by October (2 months) but had grown 4 cm and 2 lbs by her March checkup (7 months on the gluten-free diet). The doctors are very happy with her progress. I was very small as a child but am now average height, so her height wasn't a red flag until her growth curve suddenly flattened.

You didn't say how long your son has been on a gluten-free diet, but I'm sure it takes some time for the intestines to heal and be able to properly absorb nutrients. I can't speak to improvement of psychological symptoms, because she didn't have any before switching, although it has occasionally been hard for her on her new diet.

Wow, that's pretty substantial growth for your daughter. My son has been glueten-free diet for two weeks now. I am really looking forward to him growing. He starts high school in the fall and he looks like a baby compared to the kids there!

0

Share this post


Link to post
Share on other sites

Hi all, I'm glad I found this board. My 14 year old son was diagnosed via bioposy (blood tests neg) with celiac. He has been gluten free since then and has not had ANY GI or fatigue symptoms! He has had depression, anxiety, ADHD and short stature (3rd percentile in height) for years. Don't see any improvement yet in behavior. So my questions are - how many of you have seen catch up growth in your children? And what about psychological symptoms reduction? Thanks!

Ian's mom, welcome to the board.

My son was 14 when I was diagnosed and it took about six months for the light-bulb to go off for me (duh!) and have him tested. He was 5'2" and always seemed less "hardy" than the rest of the family. Sick a lot, tummy problems, low energy. (When he was 13 I asked the doctor to test for anything/everything -cancer, diabetes, thyroid etc., but it was all negative. No celiac test.)

The real kicker was that at 15 he was at pre-puberty and had a level of zero testosterone, which means not in puberty. (Shhh...he hates that I tell this story.) As a freshman, he was playing soccer against kids who looked like men and he hated being small. His bone age was 12.5 and he was also about 3rd percentile for height and 25th percentile for weight after being 75th for all of childhood.

The docs did the blood work and it was negative and my DH vetoed the endoscopy, stating that DS should just go gluten-free. DS didn't want to go gluten-free without proof so we had his genes tested and DS agreed that if he was positive he would go gluten-free. He was positive and went gluten-free and dairy free in 2008.

He is now 18, 6'2" or so and still growing, size 11.5 feet. So ~11 inches in three years. He follows the gluten-free diet pretty well and doesn't cheat but he's not as careful as I am. (For example, he'll eat Taco del Mar or Chipotle burrito bowls, which can have CC.)

He is happier and didn't have diagnosed depression before but may have been borderline.

Did you have him tested for Vit D, B, Calcium, Iron deficiencies? Definitely do that. What about bone age? Did they test that? Most likely, since you caught it before late teenage his bone plates are still immature, which means growth is still possible.

Is your son dairy-free too? You might want to try that too, at least in the beginning. The docs say that adult take about 2 years to heal their intestines, but kids take 6-9 months.

Also, I read lots of medical literature about delayed growth and several studies showed that supplementing with Vit D was essential to growth and that it was as good as growth hormone. So we had DS on Cod Liver Oil (Capsuls from Carlson's) and a multivitamin and fortified OJ. Some folks even have to have prescription Vit D supplements, with celiac damage.

Good luck to you. I hope your son has good results and gets really healthy. Ask if you have more questions.

Height is not everything, but DS got revenge on his pediatrician...DS is about 7 inches taller than the doc, who said he was just destined to be short.

0

Share this post


Link to post
Share on other sites

Ian's mom, welcome to the board.

My son was 14 when I was diagnosed and it took about six months for the light-bulb to go off for me (duh!) and have him tested. He was 5'2" and always seemed less "hardy" than the rest of the family. Sick a lot, tummy problems, low energy. (When he was 13 I asked the doctor to test for anything/everything -cancer, diabetes, thyroid etc., but it was all negative. No celiac test.)

The real kicker was that at 15 he was at pre-puberty and had a level of zero testosterone, which means not in puberty. (Shhh...he hates that I tell this story.) As a freshman, he was playing soccer against kids who looked like men and he hated being small. His bone age was 12.5 and he was also about 3rd percentile for height and 25th percentile for weight after being 75th for all of childhood.

The docs did the blood work and it was negative and my DH vetoed the endoscopy, stating that DS should just go gluten-free. DS didn't want to go gluten-free without proof so we had his genes tested and DS agreed that if he was positive he would go gluten-free. He was positive and went gluten-free and dairy free in 2008.

He is now 18, 6'2" or so and still growing, size 11.5 feet. So ~11 inches in three years. He follows the gluten-free diet pretty well and doesn't cheat but he's not as careful as I am. (For example, he'll eat Taco del Mar or Chipotle burrito bowls, which can have CC.)

He is happier and didn't have diagnosed depression before but may have been borderline.

Did you have him tested for Vit D, B, Calcium, Iron deficiencies? Definitely do that. What about bone age? Did they test that? Most likely, since you caught it before late teenage his bone plates are still immature, which means growth is still possible.

Is your son dairy-free too? You might want to try that too, at least in the beginning. The docs say that adult take about 2 years to heal their intestines, but kids take 6-9 months.

Also, I read lots of medical literature about delayed growth and several studies showed that supplementing with Vit D was essential to growth and that it was as good as growth hormone. So we had DS on Cod Liver Oil (Capsuls from Carlson's) and a multivitamin and fortified OJ. Some folks even have to have prescription Vit D supplements, with celiac damage.

Good luck to you. I hope your son has good results and gets really healthy. Ask if you have more questions.

Height is not everything, but DS got revenge on his pediatrician...DS is about 7 inches taller than the doc, who said he was just destined to be short.

Thanks so much for sharing your story. I love your son's story. Being so new to this it's really helpful to hear from others who are further down the road. Yes, bone age was tested and he was 12.6 bone age/14.4 chronological age.

The most amazing thing to me is the almost immediate lifting of fatigue since he's gone gluten-free (2 weeks now). He used to go through bouts of sitting on the couch, pale, unable to move. He has not had one of those episodes since. But I know the damage has been done and I'm beating up on myself for not pushing harder/sooner for a diagnosis.

0

Share this post


Link to post
Share on other sites




Thanks so much for sharing your story. I love your son's story. Being so new to this it's really helpful to hear from others who are further down the road. Yes, bone age was tested and he was 12.6 bone age/14.4 chronological age.

The most amazing thing to me is the almost immediate lifting of fatigue since he's gone gluten-free (2 weeks now). He used to go through bouts of sitting on the couch, pale, unable to move. He has not had one of those episodes since. But I know the damage has been done and I'm beating up on myself for not pushing harder/sooner for a diagnosis.

Don't beat yourself up - you're doing great.

Our sons sound like twins - they were the same age/bone age/3rd percentile height. My son weighed 92 pounds when he was 12 and 96 when he was 15. When I told the docs he wasn't growing they said - "he gained four pounds"! Like that was ok. Most teenagers are through with puberty by 16 and he hadn't even started at 15.5 so that was crummy. And then the docs telling me that he didn't need to be gluten-free because his blood test was negative. Grrr...still makes me mad.

The thing that was the worst was that after he went gluten-free, I asked him if he felt different (I didn't want to ask leading questions) and he said no but... "I didn't know that eating wasn't supposed to hurt." That still makes me cry, even three years later. No wonder he was a crabby child.

Anyway, this forum is great for asking questions so be sure to ask if you have more.

0

Share this post


Link to post
Share on other sites

It could easily take a few months to really get all of the gluten out of his system. The gluten-free diet is overwhelming in the beginning - so much to learn. There will be little slip-ups here and there as you learn, and don't beat yourself up - it happens to everyone. Just try to stay positive and look forward, not backward. Every slip-up is just a learning experience, so you will be that much better going forward.

There is so much information everywhere, and some of it is conflicting, but just sort through it the best you can and you will figure it out. And yes, this board is a great source of everything!

Kids, especially in the teen years, desperately want to fit in and be like everyone else. It is hard to be different. But as you go through the process, you will figure out ways to make gluten-free as normal as possible, and it will help both of you cope.

Best of luck to you, just take it a day at a time and you will manage just fine. Remember you are not alone - you are among friends here.

0

Share this post


Link to post
Share on other sites

I can only speak to the psychological symptoms for my daughter, who was diagnosed at age 11. She suffered from depression as well, and it disappeared on the diet, although I think it took a few weeks, maybe even 2 months. She not only got rid of the depression, she became so much less anxious and more outgoing and her emotions...hmmm, I guess I'd say it was like suddenly all the rough edges of her emotions smoothed out significantly. She's still a pretty emotional kid, but compared to what she used to be like? It's a HUGE difference.

There was one important thing with my daughter, though, that might apply. The depression went away, big-time, like I said, but now if she gets accidental gluten contamination? Her depression hits her hard and fast and MUCH worse.

Usually within 12-24 hours after she gets gluten contamination now, she has a massive anxiety attack where she breaks down into irrational hysterics for a few hours in a row. She can't think, she can't process anything, and she spirals into this dark depression where everything is horrible, useless, and hopeless in a matter of minutes.

We're looking at getting a psychologist who can give her some coping mechanisms possibly for when this happens, but I don't know if anything CAN help, since it's so physiological rather than simply mental, you know?

And it's really clear how physical it is because it only lasts a few hours, then she gets some equilibrium back. We usually have 1-2 more attacks over the next 24-36 hours, less intensity and shorter period of time, and then it's just gone. She goes back to normal, no anxiety and depression attacks.

But schooling, sport participation, heck, even going out on errands is pretty much impossible when she gets hit with gluten like this.

I honestly don't know how common this is for those of us who have gluten-induced depression, but I mention it just as something to keep an eye out for. It may also be something you'll need to discuss with the school, potentially, you know?

Shauna

0

Share this post


Link to post
Share on other sites

... she has a massive anxiety attack where she breaks down into irrational hysterics for a few hours in a row. She can't think, she can't process anything, and she spirals into this dark depression where everything is horrible, useless, and hopeless in a matter of minutes...

Shauna

This was me throughout my 20s. I thought it was just immaturity/lifestyle. Interesting.

0

Share this post


Link to post
Share on other sites

My 9yr old daughter has recently been diagnosed as Celiac. Bowel probs run in my family so I will be getting tested too. I'm constantly tired and was diagnosed with thryroid probs last year. My daughter doesn't have the shortness. She is tall and very skinny. I checked her BMI for kids and seems normal although she looks underweight. She's always irritable, moody and very emotional. She's had urine infections for 5 yrs and since Dec last year, constipation with soiling. No amount of laxatives worked, and enema didn't do much. She's due a biopsy but her tTG test came back as pos (128).

Welcome to the board (I'm new too x)

0

Share this post


Link to post
Share on other sites

Thanks for the welcome! I'll be checking on these forums frequently and hopefully get to know you all.

Lisa

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,901
    • Total Posts
      919,562
  • Topics

  • Posts

    • Gluten does WHAT to the brain?
      I'm ok, just a little tired right now.  Lots of stress getting elderly parents and in-laws taken care of. My thyroid took a dip low (no surprise there) so I had to increase dose by a quarter grain. Overall, I am not dragging all day but waking up and getting going in the morning is slowwwwwwwww.  I'm sure you understand that! Yeah........Barty.  I thought of her for DAYS on end and it just saddens me to no end that such good people are the ones being taken.  Sometimes life is just so unfair. We all know that but there are times when it really hits you in the gut. There are times I think they are the lucky ones with the way the world is going these days. This terrorism plague is unnerving and I am really getting mad about it. Dear God, please stop this shyte!  I also miss nvsmom and others who have not been heard from. I hope she is feeling better and is just busy with life.  I got glutened on vacation about 6 years ago on the first day in Liverpool.  Jeez, was I sick!  I know how you feel but take heart........that was the last time I was bagged on vacation.  The longer you are gluten free and heal, the faster you recover from hits. You also get very good at not being glutened. It has been almost 2 years since it happened to me last so after 11 years gluten-free, I think I am doing well with that. I still have a little work to do with the vitamin D levels but I work so seeing much sun isn't happening.  My levels have doubled but they are still under 50. This whole Celiac thing is a part time job!
    • Test Results
      Hang in there SLLRUNNER...it is hard and frustrating.  Good job getting that appointment moved up.  I've done too...I've called daily looking for cancellations.  I can also remember counting down the days until my appointment.  ((((Hugs)))) and please let us know how it goes.
    • So I've been glutened....
      Miso soup has gluten in it, doesn't it? =/ I know that I've been avoiding it, which is a big shame because I adore miso!
    • Kissing and gluten
      Hi guys. I know this is a topic that has come up before, but I'd appreciate a little bit of advice. I've been 'courting' a guy for the past few months; nothing has happened yet but we have a proper date in a few weeks which is likely to lead to kissing. He didn't even know what a ceoliac was until a few days ago; I don't think he'd caught the hints that I'd been dropping beforehand. English isn't his first language - he's east Asian. Anyway, I've heard about being potentially glutened via a kiss. How do I broach this? I don't want to scare him off or make him think that I'm a lot of hard work; I know, I know, he's going to have to accept me as I am, etc. but for someone new to the entire thing, it is likely overwhelming. It would be for me if I'd never heard of it! Do I laughingly bring it up beforehand? We aren't going for food so if he isn't eating, just having a cup of tea, will I still need to be careful? If this seems safe, do I just let him kiss me and then bring up afterwards that any future kisses after food will have different precautions?  It all feels so clinical! He's a lovely guy so I do think he'll be understanding, but if anyone has any advice of first hand experience on how to approach the topic without it being a weird moment, that would be great.  
    • gluten-free...how long til I feel better?
      Hi there.  I had been sick for over a year and decided to try and go off gluten within 4 weeks i started to feel better than i had for so long! But my problem is now i test negative for celiac because i have no gluten in my body. I have been told to go back on gluten so it can be determined if i have it or not but im not willing to go back to feeling that sick again!
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,947
    • Most Online
      1,763

    Newest Member
    MrB
    Joined