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Kicking In My Sleep
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It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?

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It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?

I don't know if you need to be worried, it's more annoying than harmful I think. Don't know what causes it. I've had that same thing for my whole life and then was put on strong medication for it but now I'm off of that and doing fine thanks to a new chiropractor in my life. :) I can't contribute mine to gluten but who knows. The gluten seems to have affected everything else!!

Good Luck

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I don't know what causes this. My hub has it occcasionally so he has read about it a little. Seems it could be a vitamin deficiency (potassium?) or a lack of exercise or s sypmtom of mental illness. For him, exercise seems to help.

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My partner had this problem. She also improved gluten-free then it came back. We're pretty sure it's due to mg deficiency. It resolves when she remembers to take her concentrace mineral drops.

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Potassium and calcium deficiencies can also relate to muscle spasms

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It sounds like restless leg which can be caused by a low iron. I was having really bad restless leg and my iron was extremely low but once my iron started coming up it got better. My doctor is the one who said it can but not always can be because of a low iron.

Hope this helps!

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Hmmm I think it is the Iron. At least it would make a lot of sense.

Thanks everyone.

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Pls read my post under darn forgot!

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It used to happen fairly frequently before I went gluten-free but honestly I can't remember it happening since the 1st few weeks gluten-free. I am now 7 months gluten-free and the past 2 nights I've woke myself up kicking my right leg uncontrollably. I'm guessing it's Restless Leg Syndrome. Any ideas? Should I be worried?

Both soy and gluten will trigger my RLS. By the way, I know the author of your signature quote: my mother! :blink: :blink:

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It's worth being evaluated to see if it's actually restless leg, if you try other things and they don't help. I have RLS (though it's 90% ok right now). If it's a nutritional deficiency, it most often is low iron (but you do not want to supplement without checking your levels first - high iron is a problem too), but magnesium, calcium, and potassium often play a role. Potassium deficient leg cramping is different from RLS (feels different), but I'm not sure how I'd describe the senstaions if you haven't experienced them.

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This is going to sound crazy but please try it! Put a bar of soap under the bottom sheet near your legs. Your restless legs will rest! I heard about this on a show called "The People's Pharmacy" on National Public Radio. As a matter of fact, they have mentioned this topic several times and all of the folks who call in to the show, and even the hosts of the show, swear it works.

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    • You are right, the tests could be invalid.   All the celiac tests require you to be on a gluten-containing diet.  It is up to you to decide if you want to go gluten free.  You can do it.  Believe me, I know.  Hubby is not officially diagnosed.  He went gluten-free 15 years ago, based on the rather poor advice from my allergist and his GP.  It worked though.  But he would be the first to tell you that I have had way more support in terms of family and medical.    We think he has it.  Both of our families are riddled with autoimmine disorders.  I am the first to be diagnosed.   My Aunt went gluten free per the advice of her Chiropractor.  Her other doctors never suspected celiac disease.  The diet obviously worked for her.  Her daughter (my cousin) is a nurse.  She had an endoscopy but they did not check for celiac disease.  She chose to go gluten-free too since it worked for her mom.  Both will not do a gluten challenge.  However, my diagnosis has helped them get proper medical treatment.  My Aunt is very active in a celiac support group.    Now everyone in my family knows about celiac disease.  My own niece was just diagnosed with Crohn's, but her GI did test and will continue to test her for celiac disease.  You can develop additional autoimmune disorders at any time.   So far, a few other members have been tested.  No one else had had a celiac disease diagnosis yet.  Time will tell.  If I can save someone from the misery of struggling to get a diagnosis, then I can feel good.   Now, an official diagnosis will help you adhere to the diet .  You can get follow-up care.  Get checked for other things like SIBO, H. Pylori and cancer.  But ultimately, it is up to you.   Whatever you decided to do, please consider a family health history chart.  You might someday help a grandchild.   The stool tests?  In all my research, leading celiac experts do not recommend them.  http://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-available-through-companies-like-enterolab-or-cyrex/  
    • The procedure is a breeze. You will go in, be sedated and go to sleep for a short nap and then it's over. Some people will have a bit of a sore throat but not everyone does. For me the hardest part of the endo was not being able to drink coffee when I got up. You seem to have been back on gluten for long enough to have the test but as CLady said there is a good chance your blood work may be negative. In your case you may want to continue eating gluten after the biopsy at least until you get your blood results. If they are negative consider going a bit longer and getting them redone.
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    • Why would your doctor order an endoscopy and check for celiac disease, but not order a celiac panel?  Had you been gluten free already?  
    • Thanks cyclinglady ... just wondering, do most of the people on this forum believe the Enterolab stool / gene testing to be non-trustworthy? Or are you just recommending a diagnosis from my MD so that she is also treating me with full belief/knowledge of my condition? I've been gluten free now for 2 weeks - by the time I get in to my doctor, she orders the bloodwork and I get to a lab it could be another 2 weeks before the bloodwork is done. From what I understand, just a month of gluten free eating could skew the results of the blood test. Supposedly, the stool tests are much more accurate. I hate to go backwards and start eating gluten again just so I can have a blood test done that may or may not substantiate the results of the stool / gene testing. I'm so confused ...
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