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To Eat Or Not To Eat..
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Hello everyone.... I'm 23 and just recently realized I am allergic to gluten. Better late than never I guess but I have had to take ao many different medications and vitamins all for reasons caused by gluten as all of you have experienced I'm sure. The pain, nausea and fatigue alone are going to kill me. My Dr.s are confused so I decided to take matters into my own hands. This is the only thing that makes sense. All of the symptoms I HAVE and all of the other things like fertility and migraines I HAVE problems with too. This has to work life can't be like this it should be enjoyable and I am going to enjoy it once I get this gluten out of my system! Any help or tips would be amazing for a newbie like me! Thank you look forward to talking to most on the forums!

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Hello everyone.... I'm 23 and just recently realized I am allergic to gluten. Better late than never I guess but I have had to take ao many different medications and vitamins all for reasons caused by gluten as all of you have experienced I'm sure. The pain, nausea and fatigue alone are going to kill me. My Dr.s are confused so I decided to take matters into my own hands. This is the only thing that makes sense. All of the symptoms I HAVE and all of the other things like fertility and migraines I HAVE problems with too. This has to work life can't be like this it should be enjoyable and I am going to enjoy it once I get this gluten out of my system! Any help or tips would be amazing for a newbie like me! Thank you look forward to talking to most on the forums!

Welcome to the board!

First suggestion I can think of is have you gluten proofed the kitchen? You don't want to use wood or plastic that has been used for gluten filled foods. You'll also want to avoid any scratched non-stick pans as they hold gluten in the scratch! In my kitchen we have separate areas for the gluten eater (my dad) to put his food. One crumb can make you sick so it's a good idea to have some things separate if you're sharing a kitchen like for example two toasters. You will want one that has never had wheat bread in it.

Some folks suggest using gluten free beauty products, especially lip stick. I use Zuzu makeup and Zoya nail polish. Zoya occasionally has fantastic sales. Kiss My Face is a nice healthy soap.

Shop the perimeter in the grocery store. Fresh fruits and Veggies are naturally gluten free. If you buy frozen or canned veggies check the ingredients sometimes they add wheat. Soy sauce unless it says otherwise has gluten in it! In my main stream grocery store just about all the veggies with sauce have gluten in them. :( If a food lists natural flavors, natural coloring, those can come from gluten plants so you'll have research it.

Check your vitamins and any meds for gluten! You need to check anything you ingest.

Wheat free does not necessarily mean Gluten Free! Always remember that! Wheat, Rye, Barley, Spelt, Malt are all sources of gluten.

Hope this helps some. I'm still a newbie so hopefully some of the wiser more experienced folks will chime in soon.

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Hi and welcome to the board! We're about the same age, and I was just diagnosed with Celiac about three months ago. We're actually pretty lucky for being diagnosed relatively early in life. Many people go their entire lives without realizing they have an intolerance, and a lot of times that results in other medical complications (my great grandmother had stomach cancer when she died, and I're pretty sure she had Celiac). So it's definitely a blessing to have a diagnosis and coping plan now!

This board was an incredible resource for me and I'm very grateful to have had the support, especially right after my diagnosis. Do you have an allergy, intolerance, or Celiac? Feel free to search around and ask questions. There are tons here who can give advice on pretty much anything. And if you wanna drop me a message, I'm always happy to chat about my experiences, too :)

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Hi and welcome to the board! We're about the same age, and I was just diagnosed with Celiac about three months ago. We're actually pretty lucky for being diagnosed relatively early in life. Many people go their entire lives without realizing they have an intolerance, and a lot of times that results in other medical complications (my great grandmother had stomach cancer when she died, and I're pretty sure she had Celiac). So it's definitely a blessing to have a diagnosis and coping plan now!

This board was an incredible resource for me and I'm very grateful to have had the support, especially right after my diagnosis. Do you have an allergy, intolerance, or Celiac? Feel free to search around and ask questions. There are tons here who can give advice on pretty much anything. And if you wanna drop me a message, I'm always happy to chat about my experiences, too :)

Thank you so much that is so very true... being diagnosed early is a blessing in disguise. None of the Dr.s I have been to said I have celiac or and intolerance they said I am "sensitive" well it didn't helo when they took my gallbladder out in 2006. I think I am going to live a gluten-free life and not worry about what the docs say and just do what I feel makes me feel better! I appreciate your reply!

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Welcome to the board!

First suggestion I can think of is have you gluten proofed the kitchen? You don't want to use wood or plastic that has been used for gluten filled foods. You'll also want to avoid any scratched non-stick pans as they hold gluten in the scratch! In my kitchen we have separate areas for the gluten eater (my dad) to put his food. One crumb can make you sick so it's a good idea to have some things separate if you're sharing a kitchen like for example two toasters. You will want one that has never had wheat bread in it.

Some folks suggest using gluten free beauty products, especially lip stick. I use Zuzu makeup and Zoya nail polish. Zoya occasionally has fantastic sales. Kiss My Face is a nice healthy soap.

Shop the perimeter in the grocery store. Fresh fruits and Veggies are naturally gluten free. If you buy frozen or canned veggies check the ingredients sometimes they add wheat. Soy sauce unless it says otherwise has gluten in it! In my main stream grocery store just about all the veggies with sauce have gluten in them. :( If a food lists natural flavors, natural coloring, those can come from gluten plants so you'll have research it.

Check your vitamins and any meds for gluten! You need to check anything you ingest.

Wheat free does not necessarily mean Gluten Free! Always remember that! Wheat, Rye, Barley, Spelt, Malt are all sources of gluten.

Hope this helps some. I'm still a newbie so hopefully some of the wiser more experienced folks will chime in soon.

That is an awesome idea!! I will get to cleaning and re-organizing the kitchen and start there. I never thought about the food touching others and contaminating it with gluten. I never even thought about the beauty products either! I have alot to learn haha! You have been most helpful most appreciated!!

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Welcome! I have a post on my blog with step by step instructions for getting your house de-contaminated!

I hope it helps:

Going 100% Gluten Free

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Welcome! I have a post on my blog with step by step instructions for getting your house de-contaminated!

I hope it helps:

Going 100% Gluten Free

Thank you so very much!!

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Thank you so much that is so very true... being diagnosed early is a blessing in disguise. None of the Dr.s I have been to said I have celiac or and intolerance they said I am "sensitive" well it didn't helo when they took my gallbladder out in 2006. I think I am going to live a gluten-free life and not worry about what the docs say and just do what I feel makes me feel better! I appreciate your reply!

It's great that you're taking it on yourself to try the diet. I wish my sister would do the same. She tested negative for Celiac, but I'm positive she has a gluten intolerance and possibly casein, too. She just doesn't want to try the diet even though she feels horrible and I told her it could help. :(

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It's great that you're taking it on yourself to try the diet. I wish my sister would do the same. She tested negative for Celiac, but I'm positive she has a gluten intolerance and possibly casein, too. She just doesn't want to try the diet even though she feels horrible and I told her it could help. :(

My brother refuses to even get tested. He developed type 1 diabetes as an adult and has numerous symptoms in addition to family with the disease. He is one of those "I'd rather die" people. :(

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It's great that you're taking it on yourself to try the diet. I wish my sister would do the same. She tested negative for Celiac, but I'm positive she has a gluten intolerance and possibly casein, too. She just doesn't want to try the diet even though she feels horrible and I told her it could help. :(

That is too bad for your sister bc most illneses can be taken care of by diet and it could NEVER hurt to try something new. If you find some neat easy to prepare meals would you mind emailing me the recipe?? Iam going to start my own gluten-free cookbook :)

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My brother refuses to even get tested. He developed type 1 diabetes as an adult and has numerous symptoms in addition to family with the disease. He is one of those "I'd rather die" people. :(

Diabetes is serious I have type 1 and 2 on both my sides of the family! I m sorry your brother is so stubborn its time to look on the bright side! :-)

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My brother refuses to even get tested. He developed type 1 diabetes as an adult and has numerous symptoms in addition to family with the disease. He is one of those "I'd rather die" people. :(

I'm sorry to hear that about your brother.

My sister is in a really hard position because she's a pastry chef and is around flour all the time. She actually told me one day, "I think I do have a gluten intolerance - but I like cake too much." :( She's living with my father right now, and I've told him that she needs to get retested in two years because she's genetically predisposed to it. But even if it is an intolerance and not Celiac, the intolerance won't show up on the Celiac panel. :unsure:

I wish she could just come live with me for a few months and I'd show her how easy and delicious a gluten free diet can be.

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That is too bad for your sister bc most illneses can be taken care of by diet and it could NEVER hurt to try something new. If you find some neat easy to prepare meals would you mind emailing me the recipe?? Iam going to start my own gluten-free cookbook :)

I cook tons of really easy gluten-free meals. Most of the things I made before my diagnosis were actually naturally gluten-free, and the baking has been a pretty smooth switch. What kind of recipes are you looking for?

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    • I_would_widen_the_search_to_your_whole_environment.....Carefully_consider_what_else_was_different_when_you_felt_better.
    • Thanks a lot for your advice and the link. I will surely check upon GCED. But, doesn't a negative HTTG (can't do IgA ttg as IgA deficiency) result mean that I am not exposed to gluten ? 
    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
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