Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Oh For The Love Of Mike
0

17 posts in this topic

Massive rookie error just now. Fancied an easy meal tonight, so I picked some Uncle Ben's Sweet and Sour. Felt the symptoms come on before I'd finished the plate :( It had no mention of anything gluten wise at all, but on their website it's rather confusingly indicated as not gluten free. The only thing I can imagine that contains gluten in the ingredients is the vinegar.

I'd been doing okay today too. Now I have a night of neurological hell ahead of me, not to mention the next few days. I've been having trouble with other things like dairy and nightshades, but this is the first time in weeks I've been glutened. Have I just reset the healing process to square one?

0

Share this post


Link to post
Share on other sites


Ads by Google:

Just a minor setback. No biggie. We all make mistakes. Back in the saddle! ;)

For me, I notice that if I do get glutened on accident, the worst thing that I can do is stress about it. It makes things worse.

Feel better!

1

Share this post


Link to post
Share on other sites

I have not heard of Uncle Ben's Sweet & Sour. In the US vinegar is apple based unless it says malt. Are you in another country? If it lists soy sauce, that could have wheat in it...Just looked at the UK website and the Sweet & sour sauce clearly lists wheat twice.

0

Share this post


Link to post
Share on other sites

Can you point me to the link kareng? The ingredients on the bottle make no mention of wheat all, in any form.

0

Share this post


Link to post
Share on other sites




Can you point me to the link kareng? The ingredients on the bottle make no mention of wheat all, in any form.

Your right that was the spicy. My old eyes didn't see that tiny print. The regular doesn't list wheat. Odd. You would think they were the same except for some extra peppers.

0

Share this post


Link to post
Share on other sites

Probably made in the same vat as the spicy. Cross contamination.

1

Share this post


Link to post
Share on other sites

Probably made in the same vat as the spicy. Cross contamination.

Makes sense to me. Would explain why they don't check that gluten free box, for sure.

Thanks for the replies folks :)

0

Share this post


Link to post
Share on other sites

:(

I got done again today. Was assured by the waitress that the chef had said a sausage on my breakfast plate was gluten-free ( the rest of it couldn't have had gluten ), within 20 minutes I was starting to feel glutened, hours later I'm in a fairly bad way with GI symptoms, can't feel two fingers on my right hand ( it's almost as if my pinky and the next finger are taped together ), feel nauseous, extremely agitated ( like I've had waaay too much coffee - anyone else get that? ) and simply can't think straight.

Worse, my partner, probably rightly, thinks I was stupid to have the sausage in the first place, so now I'm in the dog house. I just can't seem to get my head round the idea that I really do have this condition.

0

Share this post


Link to post
Share on other sites

Newbie here too!

My mistakes have been (in chronological order) Rice Krispies (malt!), Fried Green Tomatoes (breading--DUH!), Modified Food Starch (tricky).

The learning curve is steep--but I'm getting there. Reading a little bit every night to educate myself. Conclusion? Gluten is in about 95% of processed foods. :blink:

0

Share this post


Link to post
Share on other sites

:(

I got done again today. Was assured by the waitress that the chef had said a sausage on my breakfast plate was gluten-free ( the rest of it couldn't have had gluten ), within 20 minutes I was starting to feel glutened, hours later I'm in a fairly bad way with GI symptoms, can't feel two fingers on my right hand ( it's almost as if my pinky and the next finger are taped together ), feel nauseous, extremely agitated ( like I've had waaay too much coffee - anyone else get that? ) and simply can't think straight.

Worse, my partner, probably rightly, thinks I was stupid to have the sausage in the first place, so now I'm in the dog house. I just can't seem to get my head round the idea that I really do have this condition.

Most sausages are gluten free. Perhaps there are some with gluten but I don't know of any offhand. The problem was more likely, IMHO cross contamination from the grill. Many places cook eggs, pancakes, french toast, bacon and sausage all on the same grill. Even though the grill is usually scraped that would not be enough to prevent CC. It is best if we ask that our food be cooked in a seperate clean pan. There are also some places that add a bit of pancake batter to their scrambled eggs to make them fluffier so if you should order scrambled eggs someplace make sure they don't do that.

0

Share this post


Link to post
Share on other sites

Most sausages are gluten free. Perhaps there are some with gluten but I don't know of any offhand. The problem was more likely, IMHO cross contamination from the grill. Many places cook eggs, pancakes, french toast, bacon and sausage all on the same grill. Even though the grill is usually scraped that would not be enough to prevent CC. It is best if we ask that our food be cooked in a seperate clean pan. There are also some places that add a bit of pancake batter to their scrambled eggs to make them fluffier so if you should order scrambled eggs someplace make sure they don't do that.

Actually, I have heard from people in the UK that many sausages are not gluten-free. In the States they almost always are gluten-free.

0

Share this post


Link to post
Share on other sites

Yeah, unfortunately in the UK you have to be very careful, most sausages are padded out with wheat in some way. There are specific Free From varieties, but otherwise best to avoid it. Which is why I'm annoyed that the chef obviously wasn't switched on. I've been there before and they've always done me right, but this time it was a new chef.

0

Share this post


Link to post
Share on other sites

You'd be surprised what they stick gluten in in the UK including the humble banger! Fortunately I rarely consume sausages whether I am eating gluten free or not as I prefer my meat to look as meat should...like err..meat...

0

Share this post


Link to post
Share on other sites

gluten free or not as I prefer my meat to look as meat should...like err..meat...

:lol:

Fillers in sausage or hot dogs Is considered cheap and poor quality here in the US.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,655
    • Total Posts
      921,622
  • Topics

  • Posts

    • Below is copied & pasted from this thread:   My celiac doctor is Dr. Syed Jafri, in Webster, TX (just south of Houston -- basically the Clear Lake City area), saved my LIFE.  I would recommend him to the whole, entire world.  I was desperately ill, and am still struggling, and he's a wonderful, sweet man who listens and is very proactive in helping you solve whatever problems you're having.  I wish all doctors were like him.  I have to fight and struggle with too many doctors to just listen to me and what I live with, day in and day out.  He's not like that.  Good luck to you.     There are recommendations on this thread too:  
    • I never worried about cross contamination because i was originally told i was just intolerant. after going gluten free i felt so much better up until this last march. dairy and fructose have been giving me problems but both lactose and fructose test came back negative.  this is what my gi doctor emailed me today 
    • Any place you know of to find more info? Seems like I am still in so much pain/bloat, I am not even sure if I would pick the right 5 foods!
    • Don't freak out worrying about other maladies yet. You would be absolutely amazed at the things that can/will resolve on the gluten free diet. Some take longer than others -- neurological seem to take the longest for most people but really, I guarantee, there will be things you had no idea or expectation of resolving will. There were tons for me and then there were things I sort of "woke up one day" & said, "hey, that's gone and that & that & that". Other, larger things had taken my attention so I hadn't paid attention to the smaller things until...... On the other hand, not everything is related to celiac but I bet you wouldn't find a handful of celiacs who didn't say something very similar to what I said above. Yes, thyroid problems are common with celiac but I'll also tell you there are/have been people on here who were hypothyroid before dx but after being gluten-free for a while they actually went back to normal thyroid numbers. My husband is one (yes, we both are celiac - it happens). He was on synthroid for 20 years or more. Guess what? He's not on it anymore. We've had his thyroid panel done several times since about a year gluten-free & he is no longer hypothyroid. 
    • Yes please, that'd be awesome Having a fun time trying to reply on my phone due to broken screen but will be back on tomorrow after results of doctor appointment to get to the bottom of why they've given me seemingly wrong advice re: next steps. Yup I'll admit to pity, anger, frustration and outright fear, been through the mill of emotions in this first week that's for sure. One thing before I go for that; back when I was self-diagnosing I wanted a full thyroid panel (T3, T4 etc.) and also ESR & CRP checks for vasculitis and similar maladies. Now it seems from my reading they can often follow celiac so my worry level of those has gone up a notch, more blood tests ahoy it seems? Main reason for worrying about those is the nearly constant tight / tender head I have at the moment. Top and sides of scalp. Could be the stress tensing the shoulders and occipital muscles at back of head but after the celiac diagnosis being missed I'm fearful of anything else being missed. Did anyone else have this tight head feeling at the start? Feels like the skin is being pulled inwards, sometimes goes down for a few minutes here and there and gets worse when sitting I think. I see the term "brain fog" a lot but luckily don't seem to have too much of that at present, this is more a physical sensation.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,657
    • Most Online
      3,093

    Newest Member
    pablito
    Joined