Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Low Dose Naltroxene
0

9 posts in this topic

Low Dose Naltroxene ???? would like to know experienced input from members on here with Celiac, and maybe also Thyroid Disease.

Hi, i am REALLY struggling right now- i have way too many debhilitating symptoms that often keep me secluded in my home :( i have Celiac and BOTH: Hashimoto's & Grave's. while the Armour is helping with many of my hypo symptoms- some of my hyper symptoms are worse.. it's a ROLLERCOASTER. anyways- i would like to know what your experience is if you are taking Low Dose Naltroxene. members on the "Stop the Thyroid Madness" forum are urging me to look into LDN and that its really helped them. im hesitant to add another drug to my body... plus i was worried because LDN is supposed to give a little boost to the immune system- BUT I THOUGHT that our immune systems were hyperactive and needed soothing, not boosting.

so, that's why im asking you here- because the autoimmune thyroid members are telling me that the LDN has helped them, but im wondering what it does when you have Celiac- would it cause our celiac antibodies to go into overdrive? or would it be helpful?

thanku

0

Share this post


Link to post
Share on other sites


Ads by Google:

Hey there!

I was prescribed it by a doctor at the Whitaker Wellness Center. I started taking it but then stopped as my hubby and I started talking about getting pregnant. I did a lot of research into it and it really seems to help people with autoimmune problems - all types. My doctor said it helped her reverse Lupus. I would defintely do your research, find a good doctor to work with. The only side effects I had was some vivid dreams. Dr. Mercola's site was the first I learned about it, so start there. He recommends it.

1

Share this post


Link to post
Share on other sites

Hi, Cass

If you try this, please let me know how it turns out because we're in the same boat. I've read about LDN in fibro and MS, but not in thyroid disease. MS is autoimmune and there are even two peer-reviewed studies that it helps people feel better.

My current thing is trying to go low-fluoride. I figured out I moved to an area with fluoridated water shortly before my thyroid started getting worse and worse. There is sixty years of research on how fluoride can make you hypothyroid if you're getting enough of a dose. Grrrr... Get that crap outta my water!!!!

I'm drinking distilled water, brushing teeth with Tom's toothpaste which is fluoride-free, and trying to squeeze a little more organic food into the budget to get away from pesticide residues.

You tell me if LDN works and I'll let you know about fluoride! I'm on day four. B)

0

Share this post


Link to post
Share on other sites

Low Dose Naltroxene ???? would like to know experienced input from members on here with Celiac, and maybe also Thyroid Disease.

i would like to know what your experience is if you are taking Low Dose Naltroxene. i was worried because LDN is supposed to give a little boost to the immune system- BUT I THOUGHT that our immune systems were hyperactive and needed soothing, not boosting.

so, that's why im asking you here- because the autoimmune thyroid members are telling me that the LDN has helped them, but im wondering what it does when you have Celiac- would it cause our celiac antibodies to go into overdrive? or would it be helpful?

I've been taking low dose naltrexone (LDN) daily since last November (11/29/10). Before I started taking LDN, my white blood cells were low and I had continual respiratory infections (colds, sinus infections).

During the first few weeks of LDN I had more vivid dreams, but nothing really disturbing. However, LDN intensified the effect of my thyroid hormones. The LDN website warns thyroid patients to begin LDN at the lowest effective dose to prevent hyperthyroid symptoms. However, I was taking 50 mcg T4 and 10 mcg T3 daily when I began the LDN. Soon after starting LDN I experienced hyperthyroid symptoms. So I decreased my LDN to 1.5 mg. However, my colds continued. So I decided to just take tne T3, since I don't easily convert T4 to T3, and increase the LDN back to 3 mg. After 3 months of LDN my white blood cells increased to the normal range, but my T4 level was really low. So I slowly increased my T4 while maintaining my LDN (3mg) level). I had no more hyperthyroid symptoms and no colds for the past 2 months!

LDN did NOT exacerbate my celiac sensitivity, but I absolutely abstain from gluten as well as my 6 other allergens, because I've always had obvious (painful gut) reactions to my allergens. LDN decreased my Hashimoto's antibodies even lower than 6 years of gluten abstinence had decreased them. I've also noticed decreased hypothyroid symptoms (and no more hyper reactions). So I opted to take another 3 months of LDN (after my first 3 months). Beyond my initial hyperthyroid reactions and vivid dreams, my body adjusted to LDN and I've had no more adverse reactions. If you decide to take LDN, start at the lowest effective dose (no lower than 1.5 mg daily) and work up to whatever dose works with your thyroid supps (no higher than 4.0). I do well on 3.0mg, because I'm between 100-105#. LDN dosage is recommended by weight. PM me for the LDN website, which will answer more of your questions.

0

Share this post


Link to post
Share on other sites

I've been taking low dose naltrexone (LDN) daily since last November (11/29/10). Before I started taking LDN, my white blood cells were low and I had continual respiratory infections (colds, sinus infections).

During the first few weeks of LDN I had more vivid dreams, but nothing really disturbing. However, LDN intensified the effect of my thyroid hormones. The LDN website warns thyroid patients to begin LDN at the lowest effective dose to prevent hyperthyroid symptoms. However, I was taking 50 mcg T4 and 10 mcg T3 daily when I began the LDN. Soon after starting LDN I experienced hyperthyroid symptoms. So I decreased my LDN to 1.5 mg. However, my colds continued. So I decided to just take tne T3, since I don't easily convert T4 to T3, and increase the LDN back to 3 mg. After 3 months of LDN my white blood cells increased to the normal range, but my T4 level was really low. So I slowly increased my T4 while maintaining my LDN (3mg) level). I had no more hyperthyroid symptoms and no colds for the past 2 months!

LDN did NOT exacerbate my celiac sensitivity, but I absolutely abstain from gluten as well as my 6 other allergens, because I've always had obvious (painful gut) reactions to my allergens. LDN decreased my Hashimoto's antibodies even lower than 6 years of gluten abstinence had decreased them. I've also noticed decreased hypothyroid symptoms (and no more hyper reactions). So I opted to take another 3 months of LDN (after my first 3 months). Beyond my initial hyperthyroid reactions and vivid dreams, my body adjusted to LDN and I've had no more adverse reactions. If you decide to take LDN, start at the lowest effective dose (no lower than 1.5 mg daily) and work up to whatever dose works with your thyroid supps (no higher than 4.0). I do well on 3.0mg, because I'm between 100-105#. LDN dosage is recommended by weight. PM me for the LDN website, which will answer more of your questions.

It's great to hear of your success!

0

Share this post


Link to post
Share on other sites




Hi, Cass

If you try this, please let me know how it turns out because we're in the same boat. I've read about LDN in fibro and MS, but not in thyroid disease. MS is autoimmune and there are even two peer-reviewed studies that it helps people feel better.

My current thing is trying to go low-fluoride. I figured out I moved to an area with fluoridated water shortly before my thyroid started getting worse and worse. There is sixty years of research on how fluoride can make you hypothyroid if you're getting enough of a dose. Grrrr... Get that crap outta my water!!!!

I'm drinking distilled water, brushing teeth with Tom's toothpaste which is fluoride-free, and trying to squeeze a little more organic food into the budget to get away from pesticide residues.

You tell me if LDN works and I'll let you know about fluoride! I'm on day four. B)

I totally agree with you. I also use Tom's, drinked reverse-osmosis water, and I even put a filter on my shower...don't know if it removes fluoride or not, but every little step helps. Fluoride isn't even FDA approved, yet we're all consuming so much of it. Scary!

0

Share this post


Link to post
Share on other sites

thanku everyone for your replies!

Sue: i was concerned about the Celiac because it seems my digestive tract is RIDICULOUSLY SENSITIVE. i got glutened over 3 weeks ago ( im suspecting PF CHANGS)- and i am STILL recovering... :(

also Sue- when u talk about changing your doses, and then doing T3 only for a short period of time- how did your doctor feel about this??? ive been getting labs every 6 weeks- and altho my doc is super great and prescribed Armour, and also has been testing my RT3... she seems to be very resistant to T3 only, 24hour adrenal test, etc.... plus she doesnt seem to fully understand how i am experiencing hypo & hyper symptoms simultaneously... :/

i think my WBCs are okay.. i rarely get sick- but my hypo & hyper symptoms, vit D & iron deficiency, and my additional food intolerances are sometimes UNBEARABLE... that's why im considering also looking into this LDN.

thanku again!!

0

Share this post


Link to post
Share on other sites

Sue: i was concerned about the Celiac because it seems my digestive tract is RIDICULOUSLY SENSITIVE. i got glutened over 3 weeks ago ( im suspecting PF CHANGS)- and i am STILL recovering... :(

also Sue- when u talk about changing your doses, and then doing T3 only for a short period of time- how did your doctor feel about this??? ive been getting labs every 6 weeks- and altho my doc is super great and prescribed Armour, and also has been testing my RT3... she seems to be very resistant to T3 only, 24hour adrenal test, etc.... plus she doesnt seem to fully understand how i am experiencing hypo & hyper symptoms simultaneously... :/

i think my WBCs are okay.. i rarely get sick- but my hypo & hyper symptoms, vit D & iron deficiency, and my additional food intolerances are sometimes UNBEARABLE... that's why im considering also looking into this LDN.

Taking L-glutamine helps my intestines recover after accidental contamination. I also took that to heal my stomach while treating H. Pylori. I don't know whether LDN is used for gluten sensitivity. See http://www.lowdosenaltrexone.org for uses and precautions for LDN. I can't remember reading about using LDN for gluten sensitivity. However, it's used for many other autoimmune diseases, which are highly correlated with (if not caused by) gluten intolerance. My doc prescribed LDN to raise my immunity. I was pleasantly surprised when LDN reduced my Hashimoto's antibodies.

My doc respects my decisions so I stayed on T3 only for 2 months while I adjusted to LDN. However, my next blood test showed my T4 was very low. Then she and I both agreed that I should resume taking T4, but start at a lower dose. I'm now back to my original 50mcg dose (with 10mcg of T3) daily. I plan to retest after another month to see where my thyroid hormones and white blood cells are.

1

Share this post


Link to post
Share on other sites

Be careful when using Tom's toothpaste. Read the label closely because they make both fluoride and non-fluoride versions.

I use one without silica and without foaming agents. Weleda makes some good ones.

beachbirdie

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,662
    • Total Posts
      918,516
  • Topics

  • Posts

    • Celiac - Not yet diagnosed but feel like I'm dying.
      Hi Dylan I just wanted to join SLLRunner in welcoming you to the forum and yes, do ask to be tested for Celiac and Chrons. My nutritionalist told me that celiac disease is a great mimicker of many illnesses which I think must make a doctor's job all the harder when it comes to diagnosis.  For many of us it took us  a long time to get a diagnosis - for about eight years before my own diagnosis I had ulcers,  odd migraines and hallucinations on waking, anxiety, elevated blood protein but no obvious cause for it, anemia, numb hands and arms in the mornings, and eventually the abdominal pain and severe diarrhea. It was all scary stuff but  it was only when I got the last two symptoms, for six weeks, that I was tested for celiac disease (for the protocol here in the UK is that if you have a new gastric symptom for more than six weeks you should have further investigations).  I still wonder if I hadn't had that gastric pain and diarrhea whether my doctors would have even thought it was celiac related? After all you have been through it is not surprising that you are feeling depressed.  A lot of people feel very depressed and anxious before their diagnosis.  You are doing the right thing seeing a new doctor, and hopefully you are just around the corner from getting some long awaited answers.   Keep us posted.  You will find  some great advice here and support during your journey.  All the very best.
    • Costco
      This forum post came up when I Google searched Kirkland Dish Soap. I called them today and they said there is no gluten in the dish soap. Janis 
    • Food tolerance issues post-diagnosis
      In light of the studies that found some probiotics that are labeled gluten-free yet tested over 20ppm I wouldn't touch them. Now those would be the powder or pill forms. Yogurt is not affected by that. Since you don't have a problem with dairy then I would say eat some yogurt every day. I like Chobani Greek because it has more kinds of cultures. Remember now that powder or pill forms of probiotics do not come under the gluten-free labeling law. The same for OTC & prescription meds. You need to check every single one of those. There are a few online sites where you can check things like that or ask here but as far as prescription meds -- call the manufacturer EVERY TIME. I also wanted to tell you in case you didn't already know that since celiac is genetic and can present at ANY age then all your first degree relatives need to be tested every 2 years in the absence of symptoms and immediately if symptoms present between the 2 year periods. As far as the digestive enzymes go, I tried Digest Gold for a short time & it really didn't seem to do anything for me however I will say I had a lot of issues going on at the time so I might not know if they helped or not. I decided to quit them in order to take that out of the equation so I could try to pin down what was causing me distress. The fewer things in the mix you know. I have heard people report the same as your consultant said. Some say they helped & some say they didn't. Remember Jammy, you're just in the beginning stages. I KNOW you want to heal & heal FAST. Been there, done that! It's like this: you didn't get sick overnight & you're not going to heal overnight. Patience is the watchword here. It's hard I know! You just want to get on with your life. We can all relate.  Again, I'm going to say to eat foods easy on your gut. WELL cooked foods. No raw carrots, coconut, nuts & stuff like that. Easier on your gut would be nut butters.... peanut butter, cashew butter, almond butter etc.... It's sort of like being a baby ---  soft, easy to digest foods. Bone broth is a great healer for you gut & extremely nutritious as well as being easy on the digestion. Here's just one recipe: http://wellnessmama.com/5888/how-to-make-bone-broth/
    • Food tolerance issues post-diagnosis
      Thanks for the tip! Will try that out in the next few days. By the way, has anyone had any joy with probiotics or digestive enzymes in terms of symptom relief/speeding up the healing process? I asked my consultant about this when I saw him last week and he said that some people find them beneficial while others don't, but obviously I'm keen to try anything that may help, with uncomfortable fullness/bloating/gas still being my main issue  - is it worth giving them a go?
    • Are The Following Gluten-free?
      I realize that this is an old thread but I would just like to say something about label reading. Just because a product says gluten free on the label doesn't mean that you don't have to read any further and can have complete trust in the product.  There are a lot of products that state that they are gluten free on the package and then you find out that they are processed in plants that also produce wheat products. If you are super sensitive, you need to know that information. I am afraid that there is no escaping reading labels in supermarkets unless you know that the company makes it's products in a truly gluten free environment (even then you should read labels because ingredients can and do change, even in products made in gluten free facilities), It's a pain to stand there and read labels but if you are super sensitive, you might just have to do that. For example, I am gluten and lactose intolerant but also sensitive to nuts and sesame. While it may be fine for other gluten intolerant people to eat something that's labeled gluten free which is produced in a gluten free facility that also processes nuts, for me it is not.. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,751
    • Most Online
      1,763

    Newest Member
    The sweet cheeks
    Joined