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Husband Suspects Celiac
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14 posts in this topic

Hi Everyone!

My husband suspects he has celiac disease and has opted to just try the gluten-free diet and see how it goes.

I have fibromyalgia and I have just recently discovered that I am sensitive to

wheat... so we are both going to give the gluten-free diet a whirl.

My question is about medications. Are things like Tylenol or other pain relievers

a concern for Celiacs?

Also one more (I just just ONE question but the truth is I have MANY LOL)

What about shampoos, body products?

Thanks so much for your time.

Blessings,

AlwaysHope

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If you plan to get an official diagnosis then going gluten free may result in a false negative test result. However, some people decide to go on the diet without an official diagnosis. I use garnier fructis shampoo... Dove products will clearly indicate gluten

This website says that tylenol is gluten free. Check under "Availability And Storage" and look at the ingredients for each tablet or liquid.

http://www.rxmed.com/b.main/b2.pharmaceuti...T)/TYLENOL.html

Edited by Carriefaith
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Sorry, you may not have caught that edit, all the tylenols appear to be gluten free!

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If you plan to get an official diagnosis then going gluten free may result in a false negative test result. However, some people decide to go on the diet without an official diagnosis. I use garnier fructis shampoo... Dove products will clearly indicate gluten

This website says that tylenol is gluten free. Check under "Availability And Storage" and look at the ingredients for each tablet or liquid.

http://www.rxmed.com/b.main/b2.pharmaceuti...T)/TYLENOL.html

<{POST_SNAPBACK}>

Thanks so much for the info Carriefaith. My husband is not going to bother to be tested because he's well.. lol .. he's a man and he doesn't do doctors.. lol

As someone who has FM as well as Multiple Chemical Sensitivity I can't use regular shampoos. We are using something now that I don't think is gluten-free but I think that I will probably email the manufacturer and ask them directly.

I was just wondering if he had to be careful of these products too. Sounds like there is Gluten in EVERYTHING..

Thanks again,

blessings,

AlwaysHope

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Sorry, you may not have caught that edit, all the tylenols appear to be gluten free!

<{POST_SNAPBACK}>

Hmmm.. I am confused. They seem to show they have gluten in them? From what I a see.. what am I missing?

This is very confusing! LOL

AlwaysHope

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Gluten can be in pretty much everything but there are brands of things we can have. Lipsticks/cosmetics/soaps/shampoos/lotions, etc. The smallest bit can cause us reactions so it is important to knock out every possibility. You can still have alot of "normal" food.

This site will be a tremendous help to you. Many people on here know the great brands we can have.

There are a # of brands that will clearly indicate the presence of gluten on their label in the form of wheat,rye,barley, oats. With those brands, their products are safe unless that is stated.

For the brands that will not do that you pretty much have to have a phone in hand because gluten can be hidden under many ingredients.

If you check out the safe and forbidden lists on here that will also help you out.

Have you been tested for celiac? Fibro. is connected with celiac too.

Medications can be a concern when it comes to gluten but there are many lists you can get of gluten free meds.

The Delphi Product list will probably be a help to you. celiac3270 will send it to you if you like...there is a thread about it in the product section. It is 79 pages long and has foods, drinks, meds, products that are gluten free. Given, it will not cover everything but it is a tremendous help :D

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They seem to show they have gluten in them?
I know, I was confused at first as well. They all appear to have "Gluten-, lactose- and tartrazine-free." near the end of the description. So tylenol is fine :)
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Gluten can be in pretty much everything but there are brands of things we can have. Lipsticks/cosmetics/soaps/shampoos/lotions, etc. The smallest bit can cause us reactions so it is important to knock out every possibility. You can still have alot of "normal" food.

This site will be a tremendous help to you. Many people on here know the great brands we can have.

There are a # of brands that will clearly indicate the presence of gluten on their label in the form of wheat,rye,barley, oats. With those brands, their products are safe unless that is stated.

For the brands that will not do that you pretty much have to have a phone in hand because gluten can be hidden under many ingredients.

If you check out the safe and forbidden lists on here that will also help you out.

Have you been tested for celiac? Fibro. is connected with celiac too.

Medications can be a concern when it comes to gluten but there are many lists you can get of gluten free meds.

The Delphi Product list will probably be a help to you. celiac3270 will send it to you if you like...there is a thread about it in the product section. It is 79 pages long and has foods, drinks, meds, products that are gluten free. Given, it will not cover everything but it is a tremendous help :D

<{POST_SNAPBACK}>

Thank up as well Kaiti. I have been doing a lot of reading. I was on another forum for FM and it was there I learned about Celiac from other members.

My husband is about 40 lbs under weight and he eats like a horse! From some of the other symptoms we suspect that he may have this.

I am about that much OVERWEIGHT and have had FM now for about 15 years.

I am starting to suspect this for me too. Can people be skinny AND overweight and have this illness? (sorry, I am really clueless about this)

I have given up wheat (as well as dairy, caffeine, sugar) already but only a couple months now, not nearly long enough to see a difference.

The next step was to eliminate gluten from both our diets to test this.

I realize that if we do this that if he (or I) take the test it would be a false

negative but we would sooner give this up and test it that way.

I am well on my way to it already as I have had to give up so many things already.

Anyway, thanks again

AlwaysHope

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There are over 200 symptoms with celiac and everyone has different ones. You can have weight gain or loss with it. You don't have to have symptoms at all to have this or you can have completely different ones then the next person.

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There are over 200 symptoms with celiac and everyone has different ones. You can have weight gain or loss with it. You don't have to have symptoms at all to have this or you can have completely different ones then the next person.

<{POST_SNAPBACK}>

If some people have no symptoms, what drives them to investigate this disease?

AlwaysHope

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Some people have no external symptoms, but internal damage. They are discovered when a relative gets diagnosed with celiac, as all immediate family should also be tested then. Also, sometimes other medical procedures are done, and damage in the intestine is noted.

Merika

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Some people have no external symptoms, but internal damage. They are discovered when a relative gets diagnosed with celiac, as all immediate family should also be tested then. Also, sometimes other medical procedures are done, and damage in the intestine is noted.

Merika

<{POST_SNAPBACK}>

Thanks, that makes sense Merika.

I see that it runs in familes. In our case it doesn't seem that either of my husband's or I's parents or siblings have it.. beyond that I can't say..

AlwaysHope

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If your FM requires more than OTC meds, there are generic Ultram tablets out there and they work wonderfully, especially when taken with a Tylenol product. For some reason the two work better together than either separately. Ultram is also not heavily habit forming like some of the other pain meds. I can take one a day or ten a day according to my needs.

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Advil is gluten-free. There are many prescription meds that are gluten-free. Most of the time your PCP will not know if they are but ask your Pharm and he/she will probably know. If not use the fone and call the pharmaceutical. Jim

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    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
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