Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Husband Suspects Celiac
0

14 posts in this topic

Hi Everyone!

My husband suspects he has celiac disease and has opted to just try the gluten-free diet and see how it goes.

I have fibromyalgia and I have just recently discovered that I am sensitive to

wheat... so we are both going to give the gluten-free diet a whirl.

My question is about medications. Are things like Tylenol or other pain relievers

a concern for Celiacs?

Also one more (I just just ONE question but the truth is I have MANY LOL)

What about shampoos, body products?

Thanks so much for your time.

Blessings,

AlwaysHope

0

Share this post


Link to post
Share on other sites


If you plan to get an official diagnosis then going gluten free may result in a false negative test result. However, some people decide to go on the diet without an official diagnosis. I use garnier fructis shampoo... Dove products will clearly indicate gluten

This website says that tylenol is gluten free. Check under "Availability And Storage" and look at the ingredients for each tablet or liquid.

http://www.rxmed.com/b.main/b2.pharmaceuti...T)/TYLENOL.html

Edited by Carriefaith
0

Share this post


Link to post
Share on other sites

Sorry, you may not have caught that edit, all the tylenols appear to be gluten free!

0

Share this post


Link to post
Share on other sites
If you plan to get an official diagnosis then going gluten free may result in a false negative test result. However, some people decide to go on the diet without an official diagnosis. I use garnier fructis shampoo... Dove products will clearly indicate gluten

This website says that tylenol is gluten free. Check under "Availability And Storage" and look at the ingredients for each tablet or liquid.

http://www.rxmed.com/b.main/b2.pharmaceuti...T)/TYLENOL.html

<{POST_SNAPBACK}>

Thanks so much for the info Carriefaith. My husband is not going to bother to be tested because he's well.. lol .. he's a man and he doesn't do doctors.. lol

As someone who has FM as well as Multiple Chemical Sensitivity I can't use regular shampoos. We are using something now that I don't think is gluten-free but I think that I will probably email the manufacturer and ask them directly.

I was just wondering if he had to be careful of these products too. Sounds like there is Gluten in EVERYTHING..

Thanks again,

blessings,

AlwaysHope

0

Share this post


Link to post
Share on other sites
Sorry, you may not have caught that edit, all the tylenols appear to be gluten free!

<{POST_SNAPBACK}>

Hmmm.. I am confused. They seem to show they have gluten in them? From what I a see.. what am I missing?

This is very confusing! LOL

AlwaysHope

0

Share this post


Link to post
Share on other sites

Gluten can be in pretty much everything but there are brands of things we can have. Lipsticks/cosmetics/soaps/shampoos/lotions, etc. The smallest bit can cause us reactions so it is important to knock out every possibility. You can still have alot of "normal" food.

This site will be a tremendous help to you. Many people on here know the great brands we can have.

There are a # of brands that will clearly indicate the presence of gluten on their label in the form of wheat,rye,barley, oats. With those brands, their products are safe unless that is stated.

For the brands that will not do that you pretty much have to have a phone in hand because gluten can be hidden under many ingredients.

If you check out the safe and forbidden lists on here that will also help you out.

Have you been tested for celiac? Fibro. is connected with celiac too.

Medications can be a concern when it comes to gluten but there are many lists you can get of gluten free meds.

The Delphi Product list will probably be a help to you. celiac3270 will send it to you if you like...there is a thread about it in the product section. It is 79 pages long and has foods, drinks, meds, products that are gluten free. Given, it will not cover everything but it is a tremendous help :D

0

Share this post


Link to post
Share on other sites
They seem to show they have gluten in them?
I know, I was confused at first as well. They all appear to have "Gluten-, lactose- and tartrazine-free." near the end of the description. So tylenol is fine :)
0

Share this post


Link to post
Share on other sites
Gluten can be in pretty much everything but there are brands of things we can have. Lipsticks/cosmetics/soaps/shampoos/lotions, etc. The smallest bit can cause us reactions so it is important to knock out every possibility. You can still have alot of "normal" food.

This site will be a tremendous help to you. Many people on here know the great brands we can have.

There are a # of brands that will clearly indicate the presence of gluten on their label in the form of wheat,rye,barley, oats. With those brands, their products are safe unless that is stated.

For the brands that will not do that you pretty much have to have a phone in hand because gluten can be hidden under many ingredients.

If you check out the safe and forbidden lists on here that will also help you out.

Have you been tested for celiac? Fibro. is connected with celiac too.

Medications can be a concern when it comes to gluten but there are many lists you can get of gluten free meds.

The Delphi Product list will probably be a help to you. celiac3270 will send it to you if you like...there is a thread about it in the product section. It is 79 pages long and has foods, drinks, meds, products that are gluten free. Given, it will not cover everything but it is a tremendous help :D

<{POST_SNAPBACK}>

Thank up as well Kaiti. I have been doing a lot of reading. I was on another forum for FM and it was there I learned about Celiac from other members.

My husband is about 40 lbs under weight and he eats like a horse! From some of the other symptoms we suspect that he may have this.

I am about that much OVERWEIGHT and have had FM now for about 15 years.

I am starting to suspect this for me too. Can people be skinny AND overweight and have this illness? (sorry, I am really clueless about this)

I have given up wheat (as well as dairy, caffeine, sugar) already but only a couple months now, not nearly long enough to see a difference.

The next step was to eliminate gluten from both our diets to test this.

I realize that if we do this that if he (or I) take the test it would be a false

negative but we would sooner give this up and test it that way.

I am well on my way to it already as I have had to give up so many things already.

Anyway, thanks again

AlwaysHope

0

Share this post


Link to post
Share on other sites

There are over 200 symptoms with celiac and everyone has different ones. You can have weight gain or loss with it. You don't have to have symptoms at all to have this or you can have completely different ones then the next person.

0

Share this post


Link to post
Share on other sites
There are over 200 symptoms with celiac and everyone has different ones. You can have weight gain or loss with it. You don't have to have symptoms at all to have this or you can have completely different ones then the next person.

<{POST_SNAPBACK}>

If some people have no symptoms, what drives them to investigate this disease?

AlwaysHope

0

Share this post


Link to post
Share on other sites

Some people have no external symptoms, but internal damage. They are discovered when a relative gets diagnosed with celiac, as all immediate family should also be tested then. Also, sometimes other medical procedures are done, and damage in the intestine is noted.

Merika

0

Share this post


Link to post
Share on other sites
Some people have no external symptoms, but internal damage. They are discovered when a relative gets diagnosed with celiac, as all immediate family should also be tested then. Also, sometimes other medical procedures are done, and damage in the intestine is noted.

Merika

<{POST_SNAPBACK}>

Thanks, that makes sense Merika.

I see that it runs in familes. In our case it doesn't seem that either of my husband's or I's parents or siblings have it.. beyond that I can't say..

AlwaysHope

0

Share this post


Link to post
Share on other sites

If your FM requires more than OTC meds, there are generic Ultram tablets out there and they work wonderfully, especially when taken with a Tylenol product. For some reason the two work better together than either separately. Ultram is also not heavily habit forming like some of the other pain meds. I can take one a day or ten a day according to my needs.

0

Share this post


Link to post
Share on other sites

Advil is gluten-free. There are many prescription meds that are gluten-free. Most of the time your PCP will not know if they are but ask your Pharm and he/she will probably know. If not use the fone and call the pharmaceutical. Jim

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      102,680
    • Total Posts
      914,400
  • Topics

  • Posts

    • Blood sugar, hunger, celiac
      Thanks for your reply. I'm not sure how much fat I'm having, I will check. That could be contributing. Yup I do know about the link between Type 1 and celiac. But when it was first discovered my blood sugar was high, my insulin was tested and it was high...actually it was double the normal amount. C-peptide was tested too and I don't remember exactly but I think it was slightly high? If I had Type 1 or LADA, wouldn't my insulin be lower? It is strange though how I have none of the risk factors for insulin resistance and/or type 2... And in fact I had been on a super healthy whole food, "anti-candida" diet for several years before my blood sugar suddenly went really wacko!
    • CALL TO ACTION: YOUR INPUT IS REQUESTED BY THE FDA ON GLUTEN-FREE ISSUES
      FDA proposed rule on gluten-free labeling of fermented or hydrolyzed foods: If you haven’t already, please take the time to comment on the rule. The comment period closes February 16. But this is truly a CALL TO ACTION.  Your input is needed. You have a voice, you are an advocate for the gluten-free community. Now is the time to stand up and be heard.  Your voice, your words, can help all of us stay safe when purchasing food labeled gluten-free.  Johnna’s Kitchen posted a sample letter you may find helpful http://injohnnaskitchen.com/2016/01/call-to-action-your-input-is-requested-by-the-fda-on-gluten-free-issues/ It takes almost no time at all to copy & paste Johnna's letter into the FDA comment site & it will help us all.
    • Chipolte New Marinade
      I don't think any of their food was " certified" gluten-free?  
    • "Pre-Celiac" & scared
      Is there anyone else "pre-celiac" and asymptomatic like me who has had long-term success without losing their mind and still enjoying eating out without feeling like you have to stay in a plastic bubble?  This site has been helpful to me these past months.   I don't have it "Yet" and I am scared.  Sorry this is long but I wanted to be thorough: Two years ago I started experiencing GERD (heart burn, pain under my left rib cage, and regurgitation).  After trying probiotics, kambucha, kefir, apple cider vinegar, aloe juice, eliminating chocolate, citrus, tomatoes, spices, cinnamon, mint, alcohol, not eating 3 hours before bed, I was no better. I got an endoscopy/colonoscopy.  The dr found gastritis and esophagitis.  No hernia, infection or ulcer.  He started me on PPI.  I got 99% relief.  After 6 months I decided to go off PPI.  After suffering for 3 months, I went back to dr and back on PPIs for a year.  Because I am young, 39, and the PPIs have side effects, he discussed surgery with me. I went to a specialist. All the tests showed my esophagus was normal but my lower esophageal sphincter was not closing properly.  I was a good candidate and decided on the MUSE, (Endoscopically stapling the esophagus to prevent reflux) When the specialist did his endoscopy (1 year after previous one and before I was on PPIs regularly)  he saw villi damage that looked like textbook Celiac.  HUH?  I don't have ANY symptoms.  No cramps, vomiting, diarrhea, bloating, gas, discomfort, NOTHING.  He took biopsies and the results were "non-specific" perhaps "clinically latent celiac sprue" or a number of other things. So I took blood tests.  The celiac gene test was "susceptible" and I had "high" antibodies, but not positive.  Dr said go gluten-free to prevent  celiac. Did the PPIs cause the villi damage because I couldn't absorb the wheat properly and triggered celiac in me?  It sounds reasonable.   I wonder if now that I have had the MUSE and may be able to stop PPIs, will I be able to digest gluten better? Very interesting.  I plan to call a celiac specialist where I live to discuss this with him. I have not eaten gluten intentionally for 2.5 months now.  It did not help my GERD before the surgery.  Dr said they were unrelated anyway.  I am concerned about CC, breathing in, and accidental ingestion, but since I have no symptoms, I can never tell.  So I take glutenease when I eat out and glutamine powder to try to repair the damage.  How careful should I be since I don't have it "yet"? Amy's gluten-free frozen foods are great, and I read every label at Trader Joe's, eat off the gluten-free menu, corn tortillas @ Mexican, no soy sauce or imitation crab @ sushi, steamed veggies @ Chinese, & gluten-free pasta @ Italian. Member Lisa wrote, "Even though you eat as gluten free as possible, you probably consume close to that amount of gluten due to cross contamination in processed gluten free food and other exposures. ...Eating 100% gluten free is a total improbability. "
      Most people with Celiac can handle 20ppm.  So is that equivalent to breathing in flour?  Having a half a teaspoon of soy sauce by accident in Asian food?  I can live without bread and cookies, but gluten is IN  so many things. Some on this site with Celiac have separate toasters, don't eat out, and don't walk into bakeries while there are others that eat out and eat fries made in shared oil at BK.  Even I haven't done that.  Isn't it dangerous? Thank you for you help!!
    • Pins And Needles
      You sure did nail it! I was too worried it was MS or Lupus or Celiac to be able to really give that option a chance. If anything my guess was low b12. The only obvious things in my diet are Vitamin water and protein bars. If you look at food it's in practically everything in pretty high doses. Going gluten-free uncovered this or made it start. MTHFR gene maybe? Magnesium too low? I haven't taken my multi & am looking up everything I'm eating. Still having the twitches but not near as much in my calves and feet. My arch pain is gone & energy is up a bit. Still twitching though and had some arm and shoulder pain overnight. I read it can be 6 months or longer for nerves to heal.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      59,706
    • Most Online
      1,763

    Newest Member
    between_spaces
    Joined