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Odd Benefits Of Going Gluten Free


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#31 IrishHeart

 
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Posted 19 June 2011 - 11:43 AM

Thanks! I am dealing/coping/managing (with) it far better mentally than I was. I no longer avoid things because of fear. I go ahead and do things and if I have to stand, I stand.

It is so cool that your pain has improved going gluten-free! Hopefully that will be an unexpected benefit for me, too.



It is minimal improvement, but improvement nonetheless and I'll TAKE it! :) -- on a scale of 1-10, with 10 being "I'd rather be dead than live like this", I'm about a 7. I work with a PT, an MT,a chiro and a sports med. doctor. :blink: I hope you will see some improvement as well. I know we both tried the same therapeutic measures for 3 years...but everyone agrees with me (NOW--it took me a while to convince them SOMETHING was creating the problem) that the inflammation from the gluten was the major factor getting in the way and affecting the muscles/joints/bones...time will tell!! You just keep doing what you're doing, brave girl!! ;) We'll get there. Fingers crossed.

One more odd benefit of gluten-free---

I no longer have seasonal allergies!!! B)
They developed in me suddenly about 8 years ago--and now, they are GONE! Allergist is stumped. Not me-I know it was the bad boy gluten. :lol:

Very cool!!
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


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#32 IrishHeart

 
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Posted 19 June 2011 - 11:48 AM

I find I have to take the co-enzyme b complex (from country life) to be much more absorpable and effective for all kinds of things. Might be worth a try for you too?


I looked at those, Bea, but they have soy lecithin in them...bummer...why do they have to put that stuff in everything?? :angry: the only ones I found w/out it is NOW.
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#33 Harpgirl

 
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Posted 19 June 2011 - 11:48 AM

Hey, for those who are still getting bitten by mosquitos, try carrying an unused dryer sheet in your pocket. I find that helps a bit and it smells nice :D
  • 0
Gluten free 6/10/11
Negative blood test for celiac 7/7/11
History, genetics, and response to diet point to celiac anyway.

Syan rest wear
feasceaft funden, he s frofre gebad,
weox under wolcnum, weormyndum ah,
ot him ghwylc ara ymbsittendra
ofer hronrade hyran scolde,
gomban gyldan. t ws god cyning! -Excerpt from the prologue of Beowulf. :)

#34 love2travel

 
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Posted 19 June 2011 - 11:49 AM

It is minimal improvement, but improvement nonetheless and I'll TAKE it! :) -- on a scale of 1-10, with 10 being "I'd rather be dead than live like this", I'm about a 7. I work with a PT, an MT,a chiro and a sports med. doctor. :blink: I hope you will see some improvement as well. I know we both tried the same therapeutic measures for 3 years...but everyone agrees with me (NOW--it took me a while to convince them SOMETHING was creating the problem) that the inflammation from the gluten was the major factor getting in the way and affecting the muscles/joints/bones...time will tell!! You just keep doing what you're doing, brave girl!! ;) We'll get there. Fingers crossed.

One more odd benefit of gluten-free---

I no longer have seasonal allergies!!! B)
They developed in me suddenly about 8 years ago--and now, they are GONE! Allergist is stumped. Not me-I know it was the bad boy gluten. :lol:

Very cool!!


Thanks for the encouragement as always, Irish! I simply cannot wait to have some of this inflammation disappear. I will run and leap and jump and climb (well, out of public view).

I love that your seasonal allergies have disappeared. Isn't it insane what stupid dumb gluten can do to a body? Wow. It does not cease to amaze me. My seasonal allergies were pretty bad this spring but it was unusually dry, too. As soon as we got to Croatia - poof! Allergies gone. Then when we returned to Canada, they got back literally the next day. Perhaps by fall I will notice a difference...there is always hope! :D
  • 0
<p>Confirmed celiac disease February 2011 from biopsies. Strictly gluten free March 18 2011.Diagnosed with fibromyalgia April 13 2011.3 herniated discs, myofascial pain syndrome, IT band syndrome, 2 rotator cuff injuries - from an accident Dec. 07 - resulting in chronic pain ever since. Degenerative disc disease.Osteoarthritis in back and hips.Chronic insomnia mostly due to chronic pain.Aspartame free May 2011.

When our lives are squeezed by pressure and pain, what comes out is what is inside.

#35 IrishHeart

 
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Posted 19 June 2011 - 12:05 PM

Thanks for the encouragement as always, Irish! I simply cannot wait to have some of this inflammation disappear. I will run and leap and jump and climb (well, out of public view).

I love that your seasonal allergies have disappeared. Isn't it insane what stupid dumb gluten can do to a body? Wow. It does not cease to amaze me. My seasonal allergies were pretty bad this spring but it was unusually dry, too. As soon as we got to Croatia - poof! Allergies gone. Then when we returned to Canada, they got back literally the next day. Perhaps by fall I will notice a difference...there is always hope! :D


Of course there is hope, hon!! :) Without hope, I would have jumped off a bridge by now. :rolleyes:

I danced for a full five minutes the other day to LOUD music before my legs tired . :) (I was a dancer and could barely walk the length of my driveway 3 years ago without crying) I did 10 minutes of gentle yoga yesterday (there was no way I could bend my arms and legs just 8 months ago). I had to stop swimming and going to the gym when I was so crippled with pain. But now, these are little victories. The therapy is the same, the absence of GLUTEN and the muscles strengthening are BENEFITS of going gluten-free!! Healing takes place in all the body systems. Look at Sara (POPPI) and her triumph! It will happen for you, too!!

If I had not experienced the dozens and dozens of symptoms and complete body breakdown for myself, I would have a hard time believing what it can do. Once I read how almost of them are caused by vitamin/mineral deficiencies, it made sense. (good book--Recognizing Celiac Disease by Cleo Libonati, RN) Every affected body system, various conditions, and associated disorders and complications-- explained in detail. Utterly fascinating. From burning tongue to ridges in your nails to miscarriages to bone pain--all explained. I highly recommend this book. (no, I do not know her or work for the publishing house, honest! :lol:


Hey guys! just a silly thing I have done--for motivation , I guess...

I made a list of all my symptoms--even the ODD or seemingly minor ones --and put it on the fridge and I check them off as they subside/disappear. Very encouraging. :) :) :)
  • 1

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#36 yolo

 
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Posted 19 June 2011 - 09:50 PM

Congrats Irish Heart on being able to check things off on your list--I have an idea of how much you have struggled. Dancing now even if just a little when you could hardly walk before, that is something to celebrate!

I just thought of another thing I am thankful for; my space outs are far less than they were in the past. I described them to my boyfriend who says, oh that was ADD. Sheesh! I didn't know.

But I do know now its great to not forget things all the time and have to constantly retrace my steps like I used to. I don't do spoonerisms anymore either and overall I can remember the right word now (though not always). Overall my brain just feels so much smoother, sans these forgetful spots as well as sans migraines etc.
  • 0
Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#37 yolo

 
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Posted 19 June 2011 - 09:59 PM

I looked at those, Bea, but they have soy lecithin in them...bummer...why do they have to put that stuff in everything?? :angry: the only ones I found w/out it is NOW.



Sorry the country life ones don't work for you Irish. I shouldn't have soy either, however I don't think its as bad a problem for me, but then you never know... I'll have to look at the Now ones--actually didn't know they had any co-enzyme b's so am glad to hear of it. Or is that the case?? I do hate it that most other co-enzyme b's have sorbitol in them--which is far worse for me than soy.
  • 0
Diagnosed celiac sprue as infant: failure to thrive & pneumonia-back on grains age 4. Began herbs 1971 combating chronic kidney disease/general ill health 1973. Avoid wheat family and "allergens" by 1980. Late 80's doc. diagnosed candida: cave-man diet. Diagnosed degraded myelin sheath 2006; need co-enzyme B vitamins. Discovered celiac fall 2007; finally told diagnosis as infant. Recently found I am salicylic acid intolerant. Ironically can't tolerate most herbs now. Can now eat brown rice & other gluten-free grains (except corn) & even maple syrup & now homeopathic medicine works! Am still exploring the shape of this elephant but I've made progress!

#38 Lori2

 
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Posted 20 June 2011 - 08:14 AM

But I do know now its great to not forget things all the time and have to constantly retrace my steps like I used to. I don't do spoonerisms anymore either and overall I can remember the right word now (though not always). Overall my brain just feels so much smoother, sans these forgetful spots as well as sans migraines etc.

I can remember saying to myself, "I feel like I've just had a vocabulary infusion".
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#39 IrishHeart

 
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Posted 20 June 2011 - 08:31 AM

I'll have to look at the Now ones--actually didn't know they had any co-enzyme b's so am glad to hear of it. Or is that the case?? I do hate it that most other co-enzyme b's have sorbitol in them--which is far worse for me than soy.


I just checked..no soy or sorbitol on the label. :)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#40 heatherjane

 
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Posted 20 June 2011 - 08:52 AM

Two weird but nice effects of 2+ years of gluten free for me:
1) no more gingivitis
2) I have more "junk in the trunk"...no more saggy jeans :lol:
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#41 Korwyn

 
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Posted 20 June 2011 - 08:55 AM

I noticed the same thing, but after some experimentation for me it turned out to be more a removal of all starches and sugars that was the real cause. If I go on a carb binge for even a day I become a mosquito all you can eat buffet.

I have also noticed thought that when I do get bitten by spiders, fleas, or mosquitos, I don't have anywhere near the reaction I used to. I used to be unable to control the itching to the point where I have little scars all over my body from bug bites. Now (unless I'm under the influence of glucose) I barely notice them!
  • 0
Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

#42 IrishHeart

 
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Posted 20 June 2011 - 09:01 AM

Two weird but nice effects of 2+ years of gluten free for me:
1) no more gingivitis
2) I have more "junk in the trunk"...no more saggy jeans :lol:



awesome!!--as my once ample butt wasted away when I got sick...and I miss it! and I have dental issues I never had before either... :angry:

These are really encouraging posts, you guys! Keep 'em coming!! :)
  • 0

"Life is not the way it's supposed to be. It's the way it is. The way we cope with it makes the difference." Virginia Satir

"The strongest of all warriors are these two - time and patience." Leo Tolstoy

"If you want to lift yourself up, lift up someone else" Booker T. Washington

“If idiots could fly, the sky would be like an airport.”― Laura Davenport 

"Do or do not. There is no try. "-  Yoda.

"LTES"  Gem 2014

 

Misdiagnosed for 25+ years; Finally Diagnosed with Celiac  11/01/10.  Double DQ2 genes. This thing tried to kill me. I view Celiac as a fire breathing dragon --and I have run my sword right through his throat.
I. Win. bliss-smiley-emoticon.gif


#43 color_me_confused

 
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Posted 20 June 2011 - 10:07 AM

Funny, I'm getting bit more from mosquitoes! Normally they just, nibble, and fly away. I've got 2 bites so far this spring, which is 2 more than normal...

Another plus: I swear my prematurely gray hair is picking up some color @ the temples. Might be a while before I can decide if it's a real trend or not.
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#44 notme!

 
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Posted 20 June 2011 - 10:47 AM

I dodged a lunch outing I didn't want to go to. :D


hahahaha!!! :D
  • 1

arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator


#45 notme!

 
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Posted 20 June 2011 - 11:02 AM

Hey, for those who are still getting bitten by mosquitos, try carrying an unused dryer sheet in your pocket. I find that helps a bit and it smells nice :D


we do that when we go camping: chuck a couple of dryer sheets into the tent. seems to work well. except now i get sleepy in the laundry soap aisle LOL ;)

we went camping over memorial day weekend and EVERYBODY found a tick on them at one point or another except me! and i didn't get one single bug bite of any kind!! woohooo! thanx for bringing this up. nice to look at the 'good' side (b/c everybody glutened the krap out of me all weekend - lesson LEARNED!!! byogff and keep it under lock and key!!!)
  • 0

arlene

misdiagnosed for 25 years!
just as i was getting my affairs in order to die of malnutrition...
gluten free 7/2010
blood test negative
celiac confirmed by endoscopy 9/2010

 

only YOU can prevent forest fires - smokey t. bear

 

have a nice day :)

Celiac.com - Celiac Disease Board Moderator





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