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Hashimotos, Celiac And Now Muscle Pain!
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Hope I am posting this in the right area...I apologize in advance if I have not done so...

Ok so first I got the dx of celiac and hashimotos at the same time....now I am in such pain with both digestive bloat, rumbling ever time I eat and now major back muscle and joint pain!!!

Look I have a pretty good pain threshold...I delivered 2 big babys oh natural ..so I can tolerate a lot of pain!! Lol ..but this constant muscle and digestive upset is so frustrating, my body aches unless I am moving constantly the minute I sit for a few minutes I get stiff, saw my GP the other day he wants me to take a probiotic and pill for gas relief (he said my stomach and abdomin where full of gas )and let him know if I do not feel better in 2 weeks.... I came across. Book yesterday after watching a PBS special :rolleyes:

Called eat to live by dr Joel fuhrman I have been reading since and it sounds pretty hopeful can anyone help me here on their thoughts or if they are familiar with his book and plan..he claims he can heal autominun issues, and leaky gut etc via diet, dha and high probiotics....I was thinking of seeing him for an apt he is not far from me....I am worrying that now another auto immune issues isnmoving in via the muscle pain...this needs to stop I have been gluten-free for 6 months now I have more joint and muscle pain now than before,.....sorry for the rant I send you all big hugs.....

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i have been gluten free for a year and i have had more muscle pain than before I went gluten-free, so I can relate to what you are going through.

i have not heard of dr joel fuhrman's book but it sounds like he does some of the same things as dr datis kharrazian (one of his books is - why do i still have thyroid symptoms) he talks a lot about the role of gluten in hashimoto's disease. he focuses on glutathione, emulsified vitamin d, diet changes. i think he also talks some about dha and probiotics.

it would be worthwhile to make an appointment and find out what the cost and treatment would be like.

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.he claims he can heal autominun issues, and leaky gut etc via diet, dha and high probiotics....I was thinking of seeing him for an apt he is not far from me....I am worrying that now another auto immune issues isnmoving in via the muscle pain...this needs to stop I have been gluten-free for 6 months now I have more joint and muscle pain now than before,.....sorry for the rant I send you all big hugs.....

BIG ((HUG)) to you too :)

Is he saying he can CURE autoimmune diseases or is he saying that he can heal the damage from the autoimmune diseases??

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Hi Glutenfreegirl, I haven't read the book but I have Fibromyalgia, Rhuematoid arthritis and i'm gluten free. The muscle and joint pain that I had did not ease up until I got rid of all gluten, dairy, soy and the nightshade vegetables. Nightshades cause swelling and pain in the muscles and joints also. Nightshades are tomatoes, potatoes, all bell peppers and eggplant including tobasco sauce. Maybe if you get rid of all those that might help.

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Thank you alll...

Txplowgirl, I will give that a try, I have been making a Lot of potatoes lately.....

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BIG ((HUG)) to you too :)

Is he saying he can CURE autoimmune diseases or is he saying that he can heal the damage from the autoimmune diseases??

That is a good question I will reread and let you know.....

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I definitely vote for eliminating the nightshades. This made a really big difference for me. Potatoes, formerly one of most favotrite foods, is the biggest culprit. I really do not miss them. Feeling better is so much better than something that tastes good. I too am eliminating soy and go very, very easy on the corn. Best of luck to you.

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Hi,

When I used to get gassed up like the Goodyear blimp I would take Altoids peppermints. The peppermint helps to relax the stomach and get the gas out. Helps you burp basically. I don't think it is good to take them all the time though. It is better to eliminate the foods from your diet that are causing the upset in the first place. You can check my signature for the list of foods I eliminated to get better. You also might get some relief by taking a Bentaine HCL before eating a couple times a week. and also taking pro-biotics and reducing or eliminating sugar from your diet.

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i have been gluten free for a year and i have had more muscle pain than before I went gluten-free, so I can relate to what you are going through.

i have not heard of dr joel fuhrman's book but it sounds like he does some of the same things as dr datis kharrazian (one of his books is - why do i still have thyroid symptoms) he talks a lot about the role of gluten in hashimoto's disease. he focuses on glutathione, emulsified vitamin d, diet changes. i think he also talks some about dha and probiotics.

it would be worthwhile to make an appointment and find out what the cost and treatment would be like.

I am responding to your comment about Dr. Datis Kharrazian book. I read it and found it helpful. On my own I started a non-soy based vitamin D3 (Premier Research Labs D3 Serum) I take 5000 ius daily. It is in an olive oil base. I increased my vitamin C, tremendously, started taking LIPH to raise glutathione and SOD levels, I also take the Oxicell gluatathione and adrenal creams, and omega 3s. All of that turned my health around. I still have hair loss I don't know what to think or say about that.

I also switched from synthroid (not gluten-free) to Tirosint as my T4 replacement. For anemia my new hematologist wrote me a prescription for EZFe (pronounced easy fee). I am no longer on IV iron therapy. For the first time in my life (47 years) I am not anemic.

I also drink fresh coconut water and take extra virgin coconut oil before each meal.

I hope this helps someone. I am living well with celiac disease, lupus, and hashimotos.

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I get muscle cramps from gluten.

That said, vitamin deficiencies do it to most people, too.

I'd also try a good digestive enzyme like enzymedica digest gold, along with a good probiotic like pb8. I have mostly neurological and DH symptoms from gluten, but know my digestive system suffers. They both help tremendously.

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About a month ago I started the Eat to Live plan that Dr Fuhrman suggests. (eating a predominantly vegan diet rich in the highest nutrient per calorie foods) which means aiming for up to a pound of cooked and a pound of uncooked veggies. At least one serving of beans and nuts and seeds/day and at least 3 fruits. I haven't been super strict with it but the more Ido the more I want to do. It has helped me feel better than ever. I went gluten-free almost 2 years ago. Eliminating gluten helped but I still had a lot of random stomach issues. I eventually removed artificial sweeteners and as many chemicals as possible. Again this helped but I still had some joint swelling (although not serious yet). So far I feel absolutely the best on this diet. Dr fuhrman does not say he can "cure" autoimmune issues but has had some patients with autoimmune issues like lupus and rhuematoid arthritis find a lot of relief and sometimes disappearance of their diseases. If you are interested I suggest his "eat for health" book. I have finally been able to stop taking probiotics and heartburn meds while eating this way. If you do decide to follow his advice be sure to read his book as I think not having his detailed descriptions can lead to a person eating less than optimally and feeling more sick. (I wasn't eating enough beans nuts and seeds when I first started and it just wasn't right). This also has the added benefit of helping to maintain a healthy weight or reach it. So far my joints are less swollen my stomach is a nonissue (finally) and I feel energetic and not hungry. Let me know if you try it and how it goes!

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I too was diagnosed with Hashimoto's and celiac disease at almost the same time, and I am having lots of joint problems and hypo symptoms too. I think my problem is with the synthroid I'm on, my body seems to not agree with it so I'm hoping to switch to something more natural and get to a proper dose soon.

I've heard that people get many symptoms while their body adjusts to the meds, could that be happening to you? I also had huge flare-ups of symptoms after starting meds to the point where I strongly suspect that I also have Lupus or some other soft connective tissue disorder... But then again, it could be hypo symptoms (arthritic like pain, massive hair loss and deep fatigue, rashes, etc).

Have you been checked for fibro or other AI diseases yet? With Hashi's, you'll probably have a positive ANA test, but there are other tests that can let you know if something else is up.

I'm also pretty sure that synthroid does NOT have gluten as my pharmacy checked with them. They said they can't guarantee that they are gluten-free but they don't add it to their product... they're trying to cover their backsides.

I hope you feel better soon. (hug) You're not alone with continuing problems, so I know how frustrating it can be. Best wishes.

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Hi, and first of all big hugs, that muscle/joint pain sucks, really.

I have Hashimoto's and Grave's disease, diagnosed a year ago (hypo-ish for several months, then hyper till last month). Although I tested negative for celiac blood tests, I went on a gluten-free diet because I noticed that wheat etc worsened my symptoms, and made my legs swell and made it hard to even walk. Now when I accidentally "soy" myself, the same happens. You surely know about this, but are you staying away from soy?

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Sounds like a lot of us have very similar stories! I was diagnosed with celiac and then hashimoto's a few months later. Once I started synthroid I started getting AWFUL joint pain. My doctor was suspecting rhumatoid arithritis, lupus, fibromyalgia, ect. He switched me to Armour and took a lot of blood tests. Once my armour dose was correct the pain pretty much went away and all my blood work came back negative for the other autoimmune disorders (my RA factor was borderline though so hopefully it stays low). Unfortunatly there are so many other things that could be causing the joint pain (meds, other food allergies, other autoimmune problems) and it seems like we all have to sort out what's causing it. Out of curiosity how is your hashimotos being treated? Good luck getting it all figured out!

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    • Hi Calla, I think the safe answer is 12 weeks on gluten for a blood test.  I am pretty sure they say 2 weeks on gluten for the gut endoscopy.  But usually people/doctors don't want to  do an endoscopy before a positive blood test, so catch 22 there. There's a chance you still have active antibodies in your blood after 3 weeks off gluten.  But nobody can tell you for sure.  If you can get you doctor to test you now and in 9 more weeks if you are negative now, that might work.  If the doctor is willing to do 2 tests, that would be great. The best thing would have been to do all celiac disease testing before going gluten-free.  But sometimes it doesn't work out that way. The University of Chicago celiac center has an FAQ that answers some of your questions. http://www.cureceliacdisease.org/faq/i-dont-have-the-money-to-get-tested-for-celiac-disease-but-a-gluten-free-diet-makes-me-feel-better-is-it-okay-to-start-the-diet-without-being-diagnosed/ Welcome to the forum!  
    • Couldn't have said it better!  
    • If you are going for an endoscopy, then please ask for a celiac antibodies COMPLETE panel.  This will help you determine if you have been diet compliant (zapped by hidden sources of gluten or accidental cross contamination) and if your doctor misses the (possible) damaged areas during the procedure.    That way you can rule out celiac disease and THEN worry about the possibility of other AI issues.   I did this last summer.  I got really sick.  My GI thought SIBO right off the bat.  But I asked just to be tested for celiac disease.  Sure enough, I had elevated antibodies.  No need to test for SIBO or anything else at that point.  I just waited a few months for symptoms to subside.   Good Luck to you!  
    • That's good Megan, that you were tested.  Many people have the genes, but only some develop the disease.  Your doctor is right about celiac often appearing after some kind of physical stress or illness. The tricky thing about eliminating one food is that you body may be reacting to multiple foods.  So not getting better could mean you just eliminated one problem instead of 3. It's not unusual to have digestion issues for quite a while after going gluten-free.  Our guts are damaged and that damage has to heal.  But it can't heal until the immune system stops it's attack.  The immune system attack/reaction can keep going for weeks to months.  So it can be a slow recovery.  Often people report getting better and then getting worse and going back and forth on symptoms. What doesn't help is that our bacteria in our guts can get really screwed up by the disease process.  We can't properly digest things so there is more undigested food for bacteria to thrive on.  Avoiding sugars and carbs can help with that issue. Here are some starting the gluten-free diet tips for the first 6 months.  Some of these you have already taken care of: Get tested before starting the gluten-free diet.
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      Don't eat in restaurants
      Eat only whole foods not processed foods.
      Eat only food you cook yourself, think simple foods, not gourmet meals.
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      Take digestive enzymes.
      Avoid dairy if it causes symptoms.
      Avoid sugars and starchy foods. They can cause bloating.
      Avoid alcohol.
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      http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/ Newbie Info 101
      http://www.celiac.com/gluten-free/topic/91878-newbie-info-101/
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