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2 Miscarriages..any Hope?
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Hi there, Im new here, but not to Celiac disease. I've had it for years and stupidly ignored it. Im now on a gluten-free diet. I've had 2 normal pregnancies (last one was 8 years ago), but now have had 2 miscarriages in the last 6 months. Im realizing now that they were probably due to untreated celiac disease. My question is- has anyone had a miscarriage, got gluten free, then be able to carry a normal pregnancy down the road? Im worried that I have done too much damage to heal enough to ever be able to carry normally again. Any thoughts are appreciated. Thanks

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I had two miscarriages prior to having my daughter. I tried the gluten-free diet right before I got pregnant with her because I had read about the link between miscarriages and gluten intolerance. I stayed on the diet through the first trimester then my OB/GYN talked me out of it, saying that it was all in my head and the gluten-free diet wasn't good for the baby :angry: I ended up going off the gluten-free diet through the second and third trimester, became extremely ill, developed toxemia and delivered her via emergency c-section over a month premature. I believe whole heartedly that if I had stayed gluten-free I wouldn't have had those complications and would have carried her to term. It took another 3 years before I was officially dx with Celiac, and my daughter too...

Anyway, if you stay gluten-free your risks of miscarriage aren't any higher than the rest of the populations. I believe you stand a better chance of having a normal pregnancy if you stay gluten-free.

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I think once you are gluten free for a while and heal that damage you will have a chance like the normal population. Just stick with the diet because not only do miscarriages happen but you can get many serious and potentially life threatening things from ignoring it.

I'm sorry for your losses.

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    • First, do you have celiac disease?  Have you recently had a celiac antibodies follow-up blood test panel to see if gluten has been actually getting into your diet by accident or through cross contamination?  If you haven't had the test, you should ask your doctor for one.  You could also also ask for a follow-up endoscopy to see if you intestines have truly healed.  This will rule out if gluten is really the problem.    If you don't have celiac, I assume you have Non-celiac gluten Intolerance because no one would stick to the gluten-free diet for six years unless you have had reductions in symptoms.  There is no test for NCGI unfortunately.  So, it is hard to say if gluten has been sneaking into your diet.  You really are going to have to try to figure out if you are getting gluten into your diet.  If gluten is not the problem, then your doctor needs to check you for other issues, like SIBO. There is a test to check for SIBO.  Has this been done?   Once a celiac, always a celiac.  There is no cure for celiac disease except to remain on a gluten free diet for life.  I am not sure about NCGI.  Not much research has been done.  Maybe others can chime in?    
    • I am so confused right now.... 6 years ago I went on gluten free diet... after being on it for the first yr I was 100%better up until 5 months ago in got the "flu" the doctors told me to cut out dairy sonic did and my diarrhea  became better but not completely gone would not have it every day tho. I went to the gi doctor and they said to cut out fructose and dairy and keep gluten out... yesterday I went to the dietitian to see what I can eat and she gave me the list for fructose... she said it should have been on a antibiotic for sibo.... eventually I will be able to add dairy back and maybe gluten.... I said how can I add gluten back when this was my first problem... she goes well through fructose goes hand in hand with it... I said with gluten I vomit and am sick for weeks.... fructose isn't that bad I vomit sometimes but I'm not sick for weeks.... I'm just confused on really what is going on and was wondering if you or someone you know had sibo from gluten and or fructose and how Is this all related?
    • I see no one has responded to your query.  Unfortunately I have yet to try making a pie crust.  It was something I never mastered before going gluten free.  Have you looked on Pinterest?  You might find something there.
    • I honestly feel like both doctors think it's all in my head even though there is proof.  Yeah there was a point when I felt crazy.  That was when I was being shuffled from dr to dr being given individual diagnoses of my problems.  None of those diagnoses ever made me get better.  Seriously I was diagnosed with heart palpitations, neurocardiogenic syncope, I was given a butt load of steroids because a dr felt like I was producing too much adrenaline, freaking had a few tell me I was depressed, and the good ol IBS.  It seemed most wanted to push pills.  It's all just ridiculous!
    • I can't believe your doctors!!! You have a daughter who is dx'd already! Yet the ped doesn't want to test your other kids unless you have a dx????!!! Are you kidding me???!!! That's absurd!!! They have a first degree relative who has been dx'd with celiac already. There is no need to wait to see what you turn out to be!! And then, and then, and then....don't even get me started on your doctor!!! Does he have brain damage? Oh this is insane & ridiculous!  I have never heard of a disease that doctors are so unwilling to consider or test for OR to diagnose as this one! Usually they are hot to trot to make a dx but say the word celiac & they shake in their boots. Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!!!!!!!!!!!!!!!
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