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      READ FIRST: Super Sensitive Celiacs Disclaimer   09/23/2015

      This section of the forum is devoted to those who have responses to gluten beyond the experience of the majority of celiacs. It should not be construed as representative of the symptoms you are likely to encounter or precautions you need to take. Only those with extreme reactions need go to the lengths discussed here. Many people with newly diagnosed celiac disease have a condition known as leaky gut syndrome, which can lead to the development of sensitivity to other foods until the gut is healed - which may take as long as one to three years. At that time they are often able to reincorporate into their diet foods to which they have formerly been sensitive. Leaky gut syndrome leads many people to believe they are being exposed to gluten when they are in fact reacting to other foods.
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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Funny Story...just For Your Entertainment
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4 posts in this topic

Ok. Our house is entirely gluten free now, because I'm so sensitive. So my hubby went to Whole Foods last night for me to grocery shop, and I didn't realize that he bought the Applegate Chicken Nuggets for the kids that contain gluten. What was he thinking right? So, I pulled them out and made them for the kids for lunch today... before I realized that they were glutenous nuggets. It slipped by me, because I'm used to everything being gluten free now. Okay, so the kids were already eating them. Ugh, and I handled the nuggets...not knowing if I touched my face or anything else. My plan was to wash them up well, and hope for the best. I had my 5 yr old use a fork, and wash his hands and face immediately. Then I switched plates to give them more gluten-free food. I washed up my other son who just turned 2. I was really hoping that I dodged a bullet, but knowing that only time will tell. I pick up the baby and started to go upstairs to put him down for a nap. As I'm distracted with my other son, the baby decides to spit ALL OVER my unsuspecting face! You know... babies like to blow raspberries, and usually can't do it well...so they just end up blowing spit everywhere...yeah all over my face. After my brief moment of shock and regret, I looked at him...and he had this huge mischievious grin! He did it on purpose, and thought it was funny! Right in the middle of my reprimand...he did it again...all over my face! Oh my gosh!!!!!!!!!!!!! Now I'm just waiting for the storm...praying that it will spare me this time:( Of course, my baby would have to pick the ONE TIME that he accidentally had gluten to spit in my face. He also never tries to spit like that. What impeccable timing! Hope that made you laugh:) I was sure to let my husband know that he might be taking care of everyone tonight!

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I hope you don't get sick.

If hubby ends up taking care of all the kids I bet he doesn't make THAT mistake again. :lol:

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I hope you dodge this bullet! Babies + Gluten = Trouble! lol! My nephew has tried to shove waffles in my mouth while I was distracted with another task, threw a cookie in the middle of a gluten-free salad I bought specifically so I'd have safe food at a family dinner, and backwashed gluteny crumbs into my unsuspecting drinks. Ewww!

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I hope you dodge this bullet! Babies + Gluten = Trouble! lol! My nephew has tried to shove waffles in my mouth while I was distracted with another task, threw a cookie in the middle of a gluten-free salad I bought specifically so I'd have safe food at a family dinner, and backwashed gluteny crumbs into my unsuspecting drinks. Ewww!

Ewwww! Yes, I would have had a heart attack! I did not end up being the "train wreck" that I thought I'd be last night! Whew...I did dodge a bullet! God had mercy on me, and believe me I said a prayer:)

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    • Weird Reaction
      Hi Richie I've put the above in quotes as you have described in the first and second sentence how I felt six months prior to my DX.   In my own case, in the end I concluded it was anxiety after consulting Dr Google!  It was such an alien feeling to me, I couldn't even think what it was, particularly as life was pretty good at the time.  Anxiety is a problem for a lot of celiacs prior to diagnosis, and often after glutening after going gluten-free. You mention breathlessness, this of course can be for reasons such as anaemia (again a common celiac problem, I had this prior to DX) but of course also can arise if you are anxious.   Re 'gluten free' - Flowerqueen is right, from what I have read on this forum some people really do seem to react with less than 20ppm.    But perhaps some other things to consider...  could there be something wrong with the batch you have consumed?  Might it be worth contacting the manufacturers?   That said, you could , as Flowerqueen suggests, have a problem with another ingredient, in the product or something else you consumed. In the past I have had a terrible reaction - fever, trembling, diarrhea, stomach cramps that lasted up to three hours the last three times I ate..... broccoli, of all things.    Who would have thought that possible?  I have often thought I should try it again, just to be sure it was the broccoli, as it is a 'super food' that I ought to have in my diet, that I like very much, but the thought of having such a reaction again has put me off. I do hope you will find some answers soon.  
    • Weird Reaction
      Hi Richie,  I've not heard of this drink before, as I live in the UK, but any drink made from barley is something you should avoid.  There's a brand in the UK that makes lemon and barley water and orange and barley water and Coeliac UK say it is not safe for people with Coeliac disease.  (Our labelling laws in the UK changed a couple of years ago).  You say the drink you had was under 20 ppm, which is acceptable (usually) for coeliacs, but a lot of people are super-sensitive to gluten even in very small amounts.  I recently had a similar problem with something which was supposed to be okay for coeliacs, but when I checked the website of the product, for all it said there were no gluten containing ingredients, it was produced in an area where gluten was present, which was enough to put me off and must admit, the symptoms you describe sound very much like I experienced at the time.  (Personally I'd be avoiding that particular drink like the plague from now on). One other thing though,  have you checked the ingredients to see if there could be anything else in it which you may be intolerant to? 
    • Confused
      I have not. I'll talk to my doctor about it
    • High Positive Test Results - Your thoughts please...
      With blood results like these, your husband most definitely has Celiac Disease.  The biopsy is just to check to see how much damage.  Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these!  Thank goodness he was able to have a definitive diagnosis and reason for his symptoms!  Good luck!
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