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Pelvic Pain
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I was diagnosed with celiac disease in this past March, and my symptoms have slowly been getting better. However, for the past week to 2 weeks, I've been having some pelvic pain, mainly on the left side, but sometimes on the right side too. I wouldn't say it's all that painful, it's more of just a dull ache, and in no way debilitating. It would come and go, except today, it's been there pretty much all day.

I was just wondering if anyone else experienced any pelvic pain after going gluten free. Could it possibly be gluten related?

I know that pelvic pain could be caused by a bunch of different things, so if it doesn't go away in a week or so, I'll go to the doctor and have it checked out.

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I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

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I have pelvic pain and it was diagnosed as Interstitial cystitis - inflammation in the bladder. It is related to several autoimmune diseases including celiac disease. I was diagnosed by an Urologist but my gynecologist first did an ultrasound of the pelvic region to rule out other issues. Hope you can get to the bottom of it. I know it can be so uncomfortable! I like using a heating pad when it is most uncomfortable.

Take care

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I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

Thanks. This is really frustrating. I'm a hypochondriac, so I always assume the worst whenever I get weird symptoms. I'm trying to convince myself that I don't have ovarian cancer or something serious like that. It's just frustrating that the symptoms are almost exactly the same as those of celiac. I know deep down that most likely, I don't have cancer or anything serious, but I can't help it lol.

I'm going to go strictly whole foods only for a while and hopefully it goes away. Maybe I'm just eating something that has gluten in it. If it doesn't soon though, then I'll go to the doctor.

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I went whole foods and it helped me a lot! It really helped me figure out foods that I cannot eat. Corn is one of my biggest problem foods. I ate very basic with only adding or taking away one food at a time. The longer you're gluten-free, you'll understand your body more. Well, that was so for me. I can now tell if I get CC or a food that I cannot digest well. I happen to have an overian cyst now and something wrong with my uterus(DX by ultrasound)

A year ago I probably could not have told you if it was gluten or what. Now I understand my body's reactions so much better. Hang in there!

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Thanks. This is really frustrating. I'm a hypochondriac, so I always assume the worst whenever I get weird symptoms. I'm trying to convince myself that I don't have ovarian cancer or something serious like that. It's just frustrating that the symptoms are almost exactly the same as those of celiac. I know deep down that most likely, I don't have cancer or anything serious, but I can't help it lol.

I'm going to go strictly whole foods only for a while and hopefully it goes away. Maybe I'm just eating something that has gluten in it. If it doesn't soon though, then I'll go to the doctor.

I completely understand...I always assume the worse too. My theory as to what was going on is that the coconut was causing inflammation in my colon. I have no idea if that at all possible, but this in my crazy self-diagnosis. :rolleyes:

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I went through that a while ago, and the episode lasted nearly two months. I thought I had an ovarian cyst, but an ultrasound came up clean. Oddly enough, I figured out it was coconut causing it. I stopped eating and it went away. When I started eating it again, it came back. I'm not sure what exactly was going on (sorry, I can't be more helpful), but I hope you resolve your issue soon. It was pretty annoying and I began to wonder if something more serious was wrong.

This is interesting... I too have been experiencing pelvis pain and what feels like colon spasms on my lower left side for the last 2 weeks. My appetite has also dropped off dramatically. Coconut never even crossed my mind! I introduced coconut oil into my diet around the same time the pain started up <_< . Guess I will cut the oil out and see if my pain disappears.

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Every month at ovulation time, I have really bad pains. Everything in there tightens/spasms, and it hurts a lot. It makes me constipated until it goes away (lasts maybe around 5 days or so), and then I get very loose stools. I'm thinking of making a dr appt just to check it out. I am always thinking the worst too. I wonder if there's a huge tumor in there and at ovulation time, just gets bigger.

I was diagnosed with celiac disease in this past March, and my symptoms have slowly been getting better. However, for the past week to 2 weeks, I've been having some pelvic pain, mainly on the left side, but sometimes on the right side too. I wouldn't say it's all that painful, it's more of just a dull ache, and in no way debilitating. It would come and go, except today, it's been there pretty much all day.

I was just wondering if anyone else experienced any pelvic pain after going gluten free. Could it possibly be gluten related?

I know that pelvic pain could be caused by a bunch of different things, so if it doesn't go away in a week or so, I'll go to the doctor and have it checked out.

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I've determined that it's probably just constipation due to not enough fibre. I started taking Metamucil and after a few, when the Metamucil started working, the pelvic pain went. I stopped taking the Metamucil for a few weeks and the pain and constipation came back. So I started taking Metamucil again, and once again, after a few days, it all went away. I guess I'm just going to have to take Metamucil everyday from now on. Oh well, at least I'm pretty sure I've figured it out.

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I've been gluten free now for four weeks and am experiencing the most horrendous ovulation pain. I usually only get it for a few hours on the right hand side, but this time i have had it on the left hand side and it has lasted for nearly two days with no sign of abating. In addition I feel quite constipated, like the swelling there is stopping everything from moving! Luckily I have a doctor's appoint at the end of the week to see if he will allow me to take the Genova diagnostics Celiac panel as the IgA TTG showed up negative.

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My uterine problems started at the same time as the celiac. Who knows why. I'm 5 weeks out of a hysterectomy. For me it was good. Hystersisters is a very good forum if you need help with pelvic issues, not just hysterectomys.

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I get the same thing and that's usually a sure sign I've veen glutened. However I get ovarian cysts from time to tine too and those cause a similar pain. Whichever the cause a heating pad works wonders!

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And don't feel bad about being "a bit of a hypochondriac" I think all of us that battled celiac for a long time before diagnosis were almost forced into that. For me it was a desperate search for what the heck was making me sick all the time. Celiac is the great mimicker and there are literally hundreds of symptoms it can have.

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    • It only takes a minute to make a difference. Celiac disease has been overshadowed by the gluten-free diet fad. Getting diagnosed and staying healthy is no piece of cake – those of us who have celiac disease struggle to stay healthy. We need better. We need to be understood. We need a cure. View the full article
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    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
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