How Do Your Kids Talk To Adults About Gluten?
Posted 27 June 2011 - 08:15 AM
The problem comes about when well-meaning people (and some claiming a diagnosis of celiac disease) try to push foods on her. They'll hand her half a cookie with a wink and tell her that they won't tell me or my husband. Or, they'll tell her that small amounts won't hurt her; that they have allergies too but they can still eat (dairy, eggs, wheat, whatever) on special occasions. One lady even told her that her kids had celiac disease but she always let them eat pizza on Friday nights. On those occasions, she's very polite about telling them that even small amounts of wheat make her stomach hurt really bad and makes her throw up and refuses it. (It's rare that she throws up, but people seem to become alarmed at the thought of a child throwing up. They don't get overly bothered by stomach aches.) There seems to be a feeling that she WANTS gluten but can't have it so they try to help her cheat. (If that makes sense?). We can usually work through those situations without too much trouble.
However, sometimes people try to 'help' by fixing her a plate because of her celiac disease or pick her up something on their plate. They'll stack boiled shrimp on top of a piece of bread (for example) and then deposit the shrimp on her plate. She won't touch them if she sees it has been next to (or on top of!) gluten items. But when she tells them that her food can't even touch gluten, we do get some eye-rolling. Is there any polite way for her to say this that sounds non-dramatic? I know the easiest thing is for her to simply fix her own plate, but sometimes they just bring her things or if she's getting up to get more potato chips (or whatever) they say they will bring it back for her. She's a bit uncomfortable insisting over adults. If myself or my husband is around, we say it for her, but she's doing more activities where she may be on her own during meal times.
Posted 27 June 2011 - 09:32 AM
You can practice some of them with her. You will be the bad guy or you can alternate with Dad (we do).
Adult -"I'll grab you some more shrimp"
KId- "My mom says I have to always get my own food!"
Adult-" I'm sure its fine. Your mom knows me. I'm your Aunt for goodness sake!"
Kid - Jumping up & hurrying to the table "Can't. Mom said I can't go to parties by myself if I don't follow these rules. She always finds out, somehow."
Kid friends - "We'll be fine if you put 6 of us in the back of the truck to go McDonalds"
Kid - "My mom has people who tell her how I am driving. Someone will see me & tell her. My dad will sell my truck. Mom will make me stay home on the weekends & clean the bathrooms. Joe, you've met her, you know my mom."
It helps to have a brother or sister or someone else to back it up. "My friend, Silver, is fanatical about her daughter's food. Let Kid do what she's been told." Eye rolling is OK.
You have to be prepared to back her up when your sister says the next day that she wouldn't let her get food or eat the shrimp off aunt's plate. They say this stuff to the friends a few times & the friends start believing it. You have to be prepared to admit to being an overprotective or mean parent.
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Posted 27 June 2011 - 09:54 AM
This is a great defense. I live in a small town and a friend of mine always yells "I know your mother!!!" when she sees some kids behaving inappropriately. And really, everyone here knows what everyone else is doing.
"Can't. Mom said I can't go to parties by myself if I don't follow these rules. She always finds out, somehow."
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Posted 27 June 2011 - 10:41 AM
We NEVER eat food prepared outside of our own kitchen (or one of a handful of trusted, gluten-free & GAPS kitchens). We send food with our kids wherever they go, and we have made other adults aware that we are fanatical about this. If going to a potluck, we take out servings for ourselves before sharing.
We never tell people it's an allergy, because it's not. We do not want to spread misinformation, even if it is easier. Also, with an allergy people often have a threshold they can tolerate. If someone sees your kid come into contact with a bit of something processed with wheat and they don't have an anaphylactic response, they may never take it seriously if they think it's an allergy. We tell people the truth. It is autoimmune, which means even microscopic amounts make the body attack itself and cause serious internal damage.
I agree that the "my parents" are a great scapegoat for kids to use, if they are willing to use it. My son doesn't like that one when dealing with bullies because it makes him seem weak to them. But with adults, it makes sense to use it.
Gluten-Free since November 2010
GAPS Diet since January/February 2011
me - not tested for celiac - currently doing a gluten challenge since 11/26/2011
partner - not tested for celiac
ds - age 11, hospitalized 9/2010, celiac dx by gluten reaction & genetics. No biopsy or blood as we were already gluten-free by the time it was an option.
dd - age 12.5, not celiac, has Tourette's syndome
both kids have now-resolved attention issues.
Posted 27 June 2011 - 12:20 PM
Another rant from a tell it like it is kind of guy...
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