Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Does Anyone Carry Allergy Or Gluten Cards?
0

9 posts in this topic

I took my kid to play at Monkey Joe's bounce place. I packed gluten-free food for all of us, because they cannot touch it around me or I will get nailed too. I asked them if I could bring in my own food due to allergies. They looked at me like I was the biggest liar! I had to ask 3 different people and a manager several times, but they kept ignoring me. I was persistent about it, so the girl finally admitted that they think that a lot of people lie about allergies in order to bring in their own food. Seriously! So she showed me that they had one option of gluten-free snacks. They were a small pack of these little dried fruit sugary things. I said that's great that you offer that, but there are still problems for me. My youngest can choke on these, and this will not satisfy an appetite for either of my boys...not even close. So, they let me bring in food. I asked her how I can come back and not have the same response from everyone, and she informed me to just tell someone again. Really...so I have to go through the same humiliation again with the dirty stares and smirks! My husband brought up the allergy cards again, and maybe it's a good idea. Where do I get them for gluten and for others. I know that I've heard of gluten cards that you hand to a waiter and chef, so that they may read the rules to keep you safe?

0

Share this post


Link to post
Share on other sites


Ads by Google:

I have recently gotten a medical alert bracelet. Mine says: My Name, Multiple severe food alleries, carries epipen and has a contact phone number for emergencies. I made up a little business card with my alleriges listed (I have too many to fit on the bracelet) and wrapped it arround the epipen I keep in my purse. In my case, I felt it was neccessary not to convince people of the seriousness of my allergies but in case I were ever in a car accident or otherwise hurt and unable to tell the hospital staff my food allergies. My husband travels frequently for work so I am often alone and I worry about something happening. I have found a few aquaintaneces that used to try to get me to eat their food raised their eyebrows at it (I think they don't believe life-threatening food allergies are real) but they stopped offering me food finally. I have not called attention to it at a restaurant yet though as I'm afraid they will refuse to serve me. I just make my requests very clear on what I can have and cannot have.

I got mine from Lauren's Hope: http://www.laurenshope.com/

1

Share this post


Link to post
Share on other sites

We have a letter from our Pediatric GI doc that states her name with her diagnosis of Celiac and her dietary restrictions. That way, if we run into problems, I do have that letter to show. But mostly, I just email the companies prior to attending the event or activity, tell them the situation, and ask if they can accomidate the gluten free menu, and if not, if I am allowed to bring my own food. I try and email them at least a couple of days to a week in advance so I have time to get a response back. Most places are very accomadating. Sorry you ran into so many problems. Hopefully that won't always be the case. Good luck!

1

Share this post


Link to post
Share on other sites

These are fairly specific to the gluten allergy, but you might check out http://www.celiactravel.com/cards/ for free restaurant cards, or you can order a gluten-free packet which includes a variety of languages (Spanish, Italian, etc)http://www.glutenfreecritique.com/?page_id=151 (bottom of the page).

Hope that helps. Good luck.

1

Share this post


Link to post
Share on other sites

I have a note from my doctor. I call places ahead & find out if they need any proof. One place sent me an email to show the security guards at the stadium door. Someplace like the indoor play place, I would just play for my 2 -3 hours & then go somewhere else to eat (a park, home, even the car).

1

Share this post


Link to post
Share on other sites




I use the cards from Triumph Dining and they are wonderful. They have them made up specifically for 10 different types of cuisines and are in both English and the language of country whose cuisine you're eating. Very helpful for ethnic restaurants! They are also laminated and fit into your wallet or purse. Definitely check into getting them...they save you from the hassle of having to go into an hour-long discussion w/ waitstaff.

1

Share this post


Link to post
Share on other sites

Unless Triumph has changed their wording, they may be unnecessarily restrictive. At one time those cards said no vinegar (as in salads) and had a couple of other errors (I don't remember what). Check any cards you get to be sure they accurately reflect your restrictions.

1

Share this post


Link to post
Share on other sites

Unless Triumph has changed their wording, they may be unnecessarily restrictive. At one time those cards said no vinegar (as in salads) and had a couple of other errors (I don't remember what). Check any cards you get to be sure they accurately reflect your restrictions.

I'm looking at the ones in my wallet right now and there's no mention to avoid vinegar other than malt vinegar. I guess you could say they are more conservative (one says to avoid modified food starch), but I don't see anything blatantly incorrect. Honestly, since it's often a gamble with restaurants and what they really put in their food, I'm ok if those cards err on the side of caution. They have been a lifesaver for me and are the best ones I've seen so far. :)

1

Share this post


Link to post
Share on other sites

It could also be a against company policy and or a liability if they allow you to bring your own food. If an establishment that serves food allows you to bring in food and you get sick they are liable.

I am new to eating completely gluten-free so please don't get offended by my question. Why didn't the op just plan to go to the bounce place around meal times? Like eat breakfast and go then leave when they were hungry for lunch? Yes, it is an inconvenience not to be able to eat there but it seems minor in comparison to the struggle the OP went through to bring in food. And if it's the disappointment of the kids not being able to have snacks there, why not make a special treat for them to have when you get home?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,347
    • Total Posts
      917,419
  • Topics

  • Posts

    • Weird Reaction
      Cristiana and Flowerqueen, I haven't been officially diagnosed as Celiac but I had a DNA test in March 2015 which revealed I had the Celiac gene on both sides so it was advised that I have a test to see if I did have it. I didn't but I went off gluten immediately and haven't "knowingly" eaten it since. Before the DNA test I didn't have the nausea and trembling type feelings that I do now but I occasionally got the shortness of breath which I used to put down to being a smoker. (I quit almost 16 years ago) Anyway, this morning I woke with the nausea feeling, the trembling, loss of appetite, feeling of doom again but it happens so intermittently. I do have some unavoidable stress in my life all of a sudden so maybe it's all connected some how. But on the plus side my bowel movements have returned to normal and I go often especially after waking and having coffee. (Oh, and Cristiana don't worry about tmi with me. You would have to try pretty hard to offend me and nobody has done it yet. haha) I always think the worse to. The internet and Google are great but information overload becomes a real possibility creating some frightening scenarios. It's just interesting that the coffee with the MCT Oil (Brain Octane is the actual name) and butter makes me start feeling better and the nausea, trembling, anxiety seem to be extinguished by it but coffee with low fat milk doesn't although I do get more energy from it. I did read somewhere that MCT Oil was good for gut health though and if I had to describe it it would be like it just smooths over all the bad stuff with a nice soft lining.  It was recommended in my DNA test that I have more fats in my diet and low processed foods but I occasionally have gluten-free biscuits, gluten-free ice-cream (my true weakness) and gluten-free weet-bix. I've checked most of these items ingredients and they are pretty good. There is a lot of gluten free rubbish out there though which I completely avoid. Thanks GFinDC for your reply. I was going to speak to my Naturopath when I see her about Immune Health. My plan usually involves the Liver Tonic I mentioned above and heavy on the L-Glutamine which, apparently, is supposed to be excellent for gastrointestinal health but I'm not going to supplement with anything just yet until I get my blood work done and see if it reveals any deficiencies. I'm suspecting Iron though. Because I've had recent tests all coming back good I'm thinking a possible scenario would be a die-off effect I've heard of where all the bad bacteria have been killed off but your body can't rid itself of them quick enough so you actually feel or get worse before you get better. That's where the detox strategy comes in and I'm assuming replacing them with Good Bacteria via Probiotics. Again, this is what I have read in the past but it does seem to make sense in some cases. I do feel better in having found these forums though.  
    • Daughter with celiac- need test result help
      You are doing well.  We didn't have a "normal" tTG for 6 years and were also very strict.  Kiddo was dx with hypothyroid as well and tTG fell a lot after getting on meds for that but still didn't normalize.  Finally cam down within the last 6 months (this after a trip to THE Celiac Dr. several years ago).  I wish we had done a DGP much earlier and I had pushed for that sooner.  I would start there and see what happens.     Sounds like you're doing everything right though. Sometimes it just takes time. 
    • Will my doctor test me? So many symptoms...
      Remember that you have to be eating a normal gluten diet for the testing so don't cut back & don't stop eating it. Make sure they do the full, current celiac panel: Anti-Gliadin (AGA) IgA
      Anti-Gliadin (AGA) IgG
      Anti-Endomysial (EMA) IgA
      Anti-Tissue Transglutaminase (tTG) IgA
      Deamidated Gliadin Peptide (DGP) IgA and IgG
      Total Serum IgA   
      Also can be termed this way: Endomysial Antibody IgA
      Tissue Transglutaminase IgA 
      GLIADIN IgG
      GLIADIN IgA
      Total Serum IgA 
      Deamidated Gliadin Peptide (DGP) IgA and IgG
    • Celiac.com: Portable Device Can Test If Your Food Is Gluten-Free
      For people with gluten allergies or celiac disease, the idea of eating out in restaurants can be terrifying. It typically involves scrutinizing menus and ... View the full article
    • Will my doctor test me? So many symptoms...
      Yep, get tested for celiac.  You have plenty of digestive symptoms to indicate it.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,483
    • Most Online
      1,763

    Newest Member
    Amanda912
    Joined