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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Coping With Uninformed People
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45 posts in this topic

I don't know if anyone else has come across this, but I am sure you all have at one point: People who have no idea what it means when you ask them "Do you know if there is Gluten in this?" or understand what it means when you say you are "Gluten Free". I am a recent new addition to the gluten-free community and just yesterday went to a company picnic where it was catered by a local business and we picnicers could bring dishes if we would like. I brought a gluten-free smore's pie and put a little sign "Gluten Free" in front of it, and luckily I'd called ahead to the place catering and asked if they had anything gluten free, and the lady was quite well informed and said that everything had the risk of being contaminated and that even their corn tortillas had a little flour added into the mix and that their fajita meat was marinated in a sauce containing soy sauce. So, I planned ahead and packed myself a little gluten-free lunch (gluten-free BLT, chips and some cookies) and brought it with me. The lunch starts and I sit down at a table and pull out my little lunch and someone asked where I found the BLT and I told her that I'd brought it from home because I had a gluten intollerance and had to be careful what I ate and she said "Oh you can't eat sugar?" and I replied "No gluten is in wheat, barly, rye and stuff, so I have to be careful about what I eat." and she looked at my food and said "Oh but you can have bread and cookies?", perhaps she came off ruder sounding than intended (or it was my imagination), but I told her that I buy specially made products that contain no gluten and she just kind of said "oh" and walked off.

A little later into the picnic I was finished eating while everyone else was still munching and I got several comments about how I should still be eating, and few of them even suggesting I need to eat more because I am "soooo thin". (I had significant weight loss, but once everything heals I hope to gain weight!) I tried to say okay as best as possible and joined my family at our table (families were invited). Then another person who was eating my gluten-free pie SPIT IT OUT because the graham crackers tasted "funny" and she proceeded to tell me that I used stale crackers in my pie. I tried to tell her that they are gluten free so the taste might be a little different than most people are use to (however I have no problem with the taste, whatsoever.) and she replied "Oh, didn't realise you were one of those organic health nuts." and litterally stormed away.

I was quickly feeling like the odd one out (doesn't help I've only been gluten-free for 2-3 weeks...) but what was worst was that I overheard a few of my co-workers talking about how they didn't like my new "arrogant" diet, as if I needed to lose weight. People really shouldn't talk so loudly... anyway, I asked if I could leave early and that I wasn't feeling well and I took today off. I know I shouldn't have but I am so embarassed and I don't know what to do. Print out Celiac and Gluten Intollerant fliers and say "THIS IS REAL!"? (haha)

Someone help, the change in diet isn't all rainbows and butterflies and the attitude of some people is just astonishing! I guess I just really needed a place to express myself, this transition is tough.

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That's why I usually tell new people "You will find out who your friends are" or if some people just aren't friend worthy.

Running into this kind of ignorance really had me concerned about my kids. I did keep my daughter out of 3 year-old pre-school because I knew she had to have enough confidence to tell adults NO. I made sure she could explain why she could not eat it it and if there were any further problems to call me.

Reminds me of the time this one lady scarfed down 3 gluten free muffins and spit out the 4th when she found out it was gluten free. ???

As if it isn't hard enough making so many changes, we have to take the blinders off and see how ignorance and self centered personalities all around us.

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Your post made me laugh a little, even though I can totally understand and sympathize with your frustration. Most people here in Minneapolis are getting the gluten free thing, but I constantly overhear people talking about the "new fad" in a scoffing manner. Oh well....I can't worry about that. I've got too many other things to worry about like preparing every dang meal from scratch for my family to make sure we're safe.

I have found that what works best for me is to downplay everything and just try and not draw attention to what or how I'm eating so I avoid the sort of stupid comments you had to endure, but last Christmas my husband and I were at a party where I'd eaten before-hand, and I was attacked by a couple of women for not eating the food and that I needed to put some meat on my bones....and did I have an eating disorder. I was surprised (in a good way) that one of my best friends who was standing next to me, just smiled and kept her mouth shut. I guess she (rightly) decided that my health concerns were private and graciously did not out me.

Hang in there...don't worry about having to defend yourself. We all understand.

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I don't know if anyone else has come across this, but I am sure you all have at one point: People who have no idea what it means when you ask them "Do you know if there is Gluten in this?" or understand what it means when you say you are "Gluten Free". I am a recent new addition to the gluten-free community and just yesterday went to a company picnic where it was catered by a local business and we picnicers could bring dishes if we would like. I brought a gluten-free smore's pie and put a little sign "Gluten Free" in front of it, and luckily I'd called ahead to the place catering and asked if they had anything gluten free, and the lady was quite well informed and said that everything had the risk of being contaminated and that even their corn tortillas had a little flour added into the mix and that their fajita meat was marinated in a sauce containing soy sauce. So, I planned ahead and packed myself a little gluten-free lunch (gluten-free BLT, chips and some cookies) and brought it with me. The lunch starts and I sit down at a table and pull out my little lunch and someone asked where I found the BLT and I told her that I'd brought it from home because I had a gluten intollerance and had to be careful what I ate and she said "Oh you can't eat sugar?" and I replied "No gluten is in wheat, barly, rye and stuff, so I have to be careful about what I eat." and she looked at my food and said "Oh but you can have bread and cookies?", perhaps she came off ruder sounding than intended (or it was my imagination), but I told her that I buy specially made products that contain no gluten and she just kind of said "oh" and walked off.

I have seen this confusion before. She was thinking of glucose, not gluten. She was a little rude but perhaps she had just never heard of gluten before and didn't want to ask more questions and sound MORE ignorant than she already was.

A little later into the picnic I was finished eating while everyone else was still munching and I got several comments about how I should still be eating, and few of them even suggesting I need to eat more because I am "soooo thin". (I had significant weight loss, but once everything heals I hope to gain weight!) I tried to say okay as best as possible and joined my family at our table (families were invited). Then another person who was eating my gluten-free pie SPIT IT OUT because the graham crackers tasted "funny" and she proceeded to tell me that I used stale crackers in my pie. I tried to tell her that they are gluten free so the taste might be a little different than most people are use to (however I have no problem with the taste, whatsoever.) and she replied "Oh, didn't realise you were one of those organic health nuts." and litterally stormed away.

These people are just RUDE! Making comments about your weight and your pie would be off the charts rude even if you didn't have celiac disease.

I was quickly feeling like the odd one out (doesn't help I've only been gluten-free for 2-3 weeks...) but what was worst was that I overheard a few of my co-workers talking about how they didn't like my new "arrogant" diet, as if I needed to lose weight. People really shouldn't talk so loudly... anyway, I asked if I could leave early and that I wasn't feeling well and I took today off. I know I shouldn't have but I am so embarassed and I don't know what to do. Print out Celiac and Gluten Intollerant fliers and say "THIS IS REAL!"? (haha)

Someone help, the change in diet isn't all rainbows and butterflies and the attitude of some people is just astonishing! I guess I just really needed a place to express myself, this transition is tough.

It doesn't sound like these people are your friends at all. I would not tell them anything unless they ask more questions and seem genuinely interested in learnign about it. They are not going to becoem informed about celiac disease unless they are interested in knowing. Perhaps next time they offer you food however you could phrase your response in such a way to make it clear this is not a FAD diet but is medically required. Perhaps say, "No thanks, my dr is worried anbout my high antibodies and has ordered me to follow a strict gluten-free diet." Perhap a little dramatic sounding but it's the truth and maybe they would get that you are not choosing to do this diet for the fun of it.

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This is where it helps to be somewhat either self assured or arrogant yourself, depending on what sort of people you are dealing with.

Also, I assume in casual atmospheres that NOBODY will understand what I am saying. This means I must be succinct, short, clear, and precise. I don't say "I can't eat gluten." 99% of people have no idea what it is, and do not understand the word. I say I have a food allergy and packed my own (lunch, dinner) so I won't get sick. This is technically true, I do have other allergies, and it gets the point across without having to cite a lot of data at them.

My husband does some public speaking and is very observant, so when we've eaten out at restaurants offering a gluten free menu, he and I are also working together to see how and what works best and what different words to use. He's also still eating regular food at lunch, so he's a good guinea pig to test out recipes on if I'm taking something somewhere. Many of the next, younger generation did not grow up cooking, did not suffer thru home ec classes, nor did they learn as adults, nor have any restaurant experience, so they have no idea what is really in food, and they just expect food to be cooked by somebody else and served to them, and they don't care what is in it. Many of them are not trying to deliberately aggravate you. They just don't know. You may be able to explain it to them. It's the older adults who are the ones who missed the basic etiquette response of don't harangue people with food allergies or intolerances, who are quietly eating their own food.

The purists here might shudder. If I am getting queried by somebody who actually has hearing skills above that of a 3rd grader, I might say I'm avoiding wheat proteins because it triggers an auto immune response and I don't want to get sick. Then their eyes glaze over, and I can change the subject.

I'm not thin, and my physical responses are neurological and arthritic flares, not the other issues, so the only peeps that get it are the ones who may be really sharp, or have another friend or relative or family member with a food problem, and they are cool. I've also run into some people who immediately "got" this. Cherish those moments !

I don't care otherwise what they think about what I may or not be eating. Chances are some of them are on some sort of whacked out cabbage soup or grapefruit weight- loss diet, and haven't eaten a vegetable today and have no intention of doing so, and they go thru the drive- thru window for dinner, often. Whatever.

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It's really amazing the lack of understanding. It's my 13-year-old daughter who has celiac. We gave a letter written by the GI clinic to each one of her teachers. Yet, on the last day of school, when they were all having cookies and doughnuts, the teacher insisted that the doughnuts were gluten free and that my daughter could/should have one. Luckily, my daughter is better informed than the teacher.

I like the idea of just downplaying it all, rather than explaining. You can explain, explain and explain and still people will not get it.

We are in the Minneapolis area, too. People are generally nice and we have experienced lack of understanding but not the outright rudeness of someone spitting out food!

Janice - just to give you a little laugh: Even my husband can't get it right. He invented the word "gluctose" which I think means "gluten" but he keeps mixing it up with "glucose". And he's better informed than most!

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I can understand your frustration. It sucks that people either don't know what it is or refuse to accept how serious things like crumbs or using the same fork can be.

I normally get people who mean well but don't understand, so I'm really polite with them. Like a woman trying to offer me a pie-type dessert who said, "You could just eat around the crust."

Then again there is one jerk who always who keeps offering me things like fried chicken and mini bagels. He asked me the other day, "Are you eating glucose yet?" :angry: So annoying.

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While I don't have a biopsy diagnosis, I simply say "I can't eat gluten, it will make me quite ill." If they go any farther, I add "It's an autoimmune disease that damages my intestines so I can't absorb nutrients." They usually shut up, even if they think I"m still being a PITA. :P

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Some people know what Celiac is but for those that don't I say that wheat makes a hole in my intestines.

I have found that the teenagers are better accepting or have more understanding of the basics. They have all had kids in school allergic to foods so they just take it in stride. When someone asks how I can eat my bread, I just say that its made with rice flour.

My oldest is not gluten-free. For his 18th birthday, he wanted the gluten-free chocolate cupcakes I make. His friends eat them up. My 15 year old said that teenagers don't care if its made with rice flour or dirt, as long as it tastes good.

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JaniceS,

First of all don't get discouraged by other people. You will forever have to deal with ignorant people. Just be firm, straightforward and clearly state your thoughts. I determine who to speak with in a normal manner and I tend to go a little over board and intimidate ignorant people. This comes from managing large groups of employees both individually and as a group and trying to get others to do things my way.

My only advice to you is to learn the best way to get your point across about your dietary needs and learn how to modify the ignorant behavior and the stupid responses you will always get from others.

I said it before here on this forum, don't let any walk on you (verbally) or control your feeling by stupid stuff they say. You are the king/queen of your emotional hill and you alone control who you let knock you off your emotional hill.

Now go out there and kick some gluten in the a$...

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I always tell the truth. "I can't eat that....because I have Celiacs Disease. When I eat gluten my body starts to attack itself."

And to answer "Can't you just have a little or can't you eat around the crust/scrape it off?" I answer that any gluten I eat is doing damage and 10 years from now if I get cancer from this I'll wonder "Was it because I had that doughnut or because I didn't take it serious enough? I'd rather try my best to be as healthy as possible and not have to worry about complications as I get older."

I find if you present a strong front although they may not understand and poke fun behind your back, they won't challenge you to your face.

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Someone hubby works with has said, after hearing of diagnosis, 'oh, I thought it was something serious'.

I have to just remember that not everyone understands, that it is serious. Untreated coeliac can lead to serious health problems. There needs to be more awareness of this out there to educate people :(

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JaniceS,

First of all don't get discouraged by other people. You will forever have to deal with ignorant people. Just be firm, straightforward and clearly state your thoughts. I determine who to speak with in a normal manner and I tend to go a little over board and intimidate ignorant people. This comes from managing large groups of employees both individually and as a group and trying to get others to do things my way.

My only advice to you is to learn the best way to get your point across about your dietary needs and learn how to modify the ignorant behavior and the stupid responses you will always get from others.

I said it before here on this forum, don't let any walk on you (verbally) or control your feeling by stupid stuff they say. You are the king/queen of your emotional hill and you alone control who you let knock you off your emotional hill.

Now go out there and kick some gluten in the a$...

lol! go rich! you and i are of the same mind - i will explain all day long to people who actually are interested. but to have to answer the same ignorant questions over and over makes me kind of get in their face a little: NOOOOOO. (direct stare) I'M. NOT. EATING. THAT. to the lesser importants: eeeew!! gross!!! get that stuff away from me!! i keep thinking that *maybee* someday these dorks will stop asking me questions, but everywhere you go, there they are...... :/

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lol! go rich! you and i are of the same mind - i will explain all day long to people who actually are interested. but to have to answer the same ignorant questions over and over makes me kind of get in their face a little: NOOOOOO. (direct stare) I'M. NOT. EATING. THAT. to the lesser importants: eeeew!! gross!!! get that stuff away from me!! i keep thinking that *maybee* someday these dorks will stop asking me questions, but everywhere you go, there they are...... :/

Notme! I'm glad someone gets my warped sense of humor. I am tough person to deal with when I choose to be and I also enjoy meeting people from all walks of life.

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Sorry for the long wait guys, I decided after reading my post again that, "what the heck, why let THEM decide when I spend my leave/sick leave?" and I pulled myself together and strolled into work, head held high with my gluten-free chocolate muffin (that I have fallen in love with) and my lunch in hand, and just acted like nothing had happened. A few people asked if I was feeling better and one lady even took the left over pie because guess what? HER GRANDAUGHTERS HAVE CELIAC and they loved it. She thought it was so considerate of me to cook something special for people and she even said that the pie tasted just like a s'more (granted she was probably over doing it a bit, though I think it was yummy) and asked me for the recipe. Talk about coincidental. I did get some odd looks (perhaps my immagination) and one lady ask me how my "diet" was going. Ahh if only I read this forum earlier, I would love to use the drama-filled "my doctor is worried" line. I just said that it was hard getting use to such a big life change, but that I discovered some of the best gluten free snacks and treats. Implying that this change is both recent, and a lifetime change AND that I am still eating.

It is so lovely to have a forum where people in the same boat can talk and actually understand what you're going through. Hopefully all this "diet" talk in the office will blow over with the next 'office scandel', which reminds me - make a mental note to stay out of the office gossip. I am really glad I sucked it up and went into work today because I think maybe it would have just caused more gossip "Ohh, Jan didn't come in to work today... wonder why?". Being an adult can stink sometimes! My personal friends are still adjusting to the Gluten-Free me, and sometimes forget that, no, I don't want to go in for a pitcher of beer on girl's night out.

I just want to say that you are all wonderful and thank you for the support, such good advice given. This is going to be a tough adjustment, though being able to vent like this and get advice and support is going to make it a lot easier! Thanks guys!

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I'm sorry but I can't feel very sorry for you if you really did everything you say. It is not appropriate to look for support for your celiac diagnosis or diet among coworkers. Save that for close friends and family.

You also can't assume people know what "gluten", "intolerance", "celiac" or any of the words we take for granted around here mean. You'll just make people mad using big words they don't know. Many people don't even realize flour is made from wheat any more. They seem to think there are flour trees and people pick 5-lb bags of flour off them. :lol: If you're going to attempt to educate casual acquaintances be prepared for a lot of eye rolls and general insensitivity. Most people don't want to learn, especially about something that doesn't pertain to them. If you are asked why you brought your own food say "I have allergies and I'd get sooooo sick eating the buffet! Look at that great dress Karen is wearing. Where do you think she got it?" It's very helpful to develop the skill of making fast subject changes away from your diet. (Which isn't their damn business in the first place.)

Bringing a gluten-free version of a normal food to a party to share is generally not a good idea. Bring fruit salad, potato salad, veggie sticks, or something else that is naturally gluten-free. Don't challenge people's expectations with a pie that frankly isn't likely to taste anywhere near as good as its wheaten equivalent. We are used to the flavor and texture of gluten-free food but most average folks are just plain disappointed by them.

And yeah, this is a "tough love" sort of post. Please don't be offended. It's just my thoughts after many years gluten-free and a lot of experience with both parties and ignorant people.

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My personal friends are still adjusting to the Gluten-Free me, and sometimes forget that, no, I don't want to go in for a pitcher of beer on girl's night out.

Tell them you'll be the designated driver on some nights. They'll probably love you for it! You can also get gluten-free beer and other gluten-free mixed drinks some places. Don't let this keep you from socializing. Yeah it stinks you can't chip in now but if they are your real friends they will adjust.

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????????!!!!!!!!!!!!!

Don't challenge people's expectations with a pie that frankly isn't likely to taste anywhere near as good as its wheaten equivalent. We are used to the flavor and texture of gluten-free food but most average folks are just plain disappointed by them.

I'm sorry, but this seems not only harsh, but inaccurate.

Most commercial baked goods picked up in the supermarket aisle taste like cardboard chemicaled dreck. They use massive amounts of sugar, salt, and high fructose corn syrup to disguise the lack of quality.

It just takes a bit of practice to create better alternatives.

The average consumer can't even tell the difference between shortening with artificial flavor, and butter.

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"Oh, didn't realise you were one of those organic health nuts." and litterally stormed away.

:lol: :lol: :lol:

How DARE you feed her something that isn't pre-designed to fill her with crap chemicals and shorten her life a bit! As a party goer you have an OBLIGATION to provide nasty, saturated fat laden, salty and/or sweet delights that can be sampled in small portions so no one will notice that you have 14 of them ('cause they were small, after all...)

You totally blew this one. :P

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LOL Jestgar, how could I be so insensative? I think next time I'll bring a tub of lard and draw a big smiley face in it! :lol:

And Takala I agree with you, homemade gluten-free products - to me - taste far better than a lot of the stuff I use to buy from the store. Sometimes the crusts/etc. were so burnt or overcooked that you just couldn't cut it, let alone eat it! And I've only started eating Gluten Free so I am FAAAR from accustomed to the taste of gluten-free foods (though I have to say, it really isn't that big a change - expect for the smaller serving suggestions). Too be honest I think I like gluten-free pretzels more than I ever did wheat ones!

Skylark I think you miss-read my post, I wasn't looking for support from my coworkers, and I certainly didn't seek it or attempt to draw attention to myself. I was approached by them, and only when asked did I say anything about gluten. The flier thing was only a joke, hence the (haha). I'm not going to shove awareness down their throats. As for the pie, plenty of people bring "peanut free" or "dairy free" (etc) desserts to these functions and all are labeled, so really bringing gluten free wasn't really a stretch in my eyes, but I do see your point. However, gluten does sound like it could be some scarey, super processed, artificial substance to those who don't know (or perhaps people would just assume it is sugar free haha) so maybe I came off as a health nut, but hey, as Takala pointed out I should have realized I was suppose to bring unhealthy food! (Haha) The only 'support' I was looking for was from people on this site who have to deal with uninformed people as well. The gluten free I am pretty sure I can deal with, it is the other people that can make it difficult. But thanks for your tips, I will certainly use the distraction method in the future.

Oooh! Gluten Free beer, I wonder if it is good? I'm perfectly fine with a glass of wine though or being a DD. Good suggestion, thanks.

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Janice, I'm glad you understood what I was trying to say. I'm suffering obnoxious insomnia from an antidepressant and I fear I'm getting grumpy from lack of sleep. :(

I just find that most of the time, as with any health issue, it's best to provide the minimum information and move on. Sometimes I get peppered with questions and it always turns out that it's someone who suspects their own gluten intolerance. Then I get to help someone out.

If other folks are bringing allergy-friendly foods, perhaps "wheat, barley, and rye free" would be easier for people to understand. Plus it's clear for kids with wheat allergies. Other celiacs will definitely understand the sign, and even why you used that phrase. B)

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I'm going to toss in the comment that SOME gluten free baked goods are equally good or better than wheat-based versions. Others are not. I'm probably never going to make garlic bread to take for non- gluten-free events. Cornbread? Totally.

Example of good:

flourless chocolate cake

coconut flour muffins (actually more cupcakes)

brownies (black bean or otherwise)

the occasional cookie (peanut butter tend to work well)

cornbread

pumpkin waffles

buckwheat cake (a la 101 cookbooks)

buckwheat crepes

Not so good:

bread, especially crusty French bread

that delicious dense rye bread won't ever be replicated

pumpernickel

most cookies

pie crusts

anything with Bob's Red Mill general all-purpose flour

Also, anything in mini-muffin shape tends to attract!

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I tell people why I pack my child's lunch if we are out somewhere but I still have people make comments like "Oh the poor child has to miss out on a normal childhood because she's not allowed to have fast foods" like it takes Maccas to have a normal childhood! I tell them she'll miss out on a normal childhood if she's in hospital for a time after each trip to such places.

I've had the whole "fad" thing too. We are vegan and I've been vegan or vegetarian (I ate eggs during pregnancy) for 31 years and my child has been vegan her whole 7 years of life but they still think it's a fad for us and they think the whole "gluten free" diet is a new fad for us too. I stay away from people like that. I had a friend tell me "well I'd make my kid eat the cheap bread" as if I had a picky eater rather than a coeliac child. We don't talk much these days.

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Oh I have to say I make short bread with the following:

Nutellex (half a tub)

Icing sugar (1 1/3 cups)

A capful of vanilla essence

4 cups of Orgran plain flour

Tastes exactly the same as shortbread made using wheat flour and dairy butter :)

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Depending on the situation but I will say that I am celiac and must be gluten free which is like having a very severe food allergy. Once someone hears the "severe food allergy" part they seems to get it and back off.

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      Yes, both these tests can be ordered.  The DGP test is typically better for dietary compliance. Insist on both! Tissue Transglutaminase (tTG) IgG -Deamidated Gliadin Peptide  (DGP) IgG
    • celiac disease is psychosomatic
      I was diagnosed a couple years ago and started gluten-free diet then. Test also showed damage to my small intestine. I explained to this doctor how I was barely able to get out of bed when I ate gluten in the pastand my intestines are still recovering from the damage. I only discussed this briefly. I consulted with this doctor concerning my dizziness explaining that I get dizzy/migraines when I eat gluten due to my celiac disease. I further explained that my dizziness has been cut in half since I went on a gluten-free diet so I am better able to get out of bed. The consult was about taking tests to figure out if something in my brain was causing my dizziness or this doctor specialized in testing the brain for impairments. In her summary, she stated that my memory impairments were probably due to being precoccupied with thinking about my psychosomatic symptoms. However, I only though about the test when I took it. And I only think about whatever task I am trying to remember when I try to remember it! I feel my symptoms rather than think about them all day long.
    • celiac disease is psychosomatic
      If you don't get the diagnosis you are happy with go to another doc.  Try to find a Celiac Friendly doc.  OR you can do what i did and give up and just go gluten free.  I didn't need a doctor to confirm that if my gas, bloating, migraines, depression, joint pain, rash, dry skin and brittle nails went away when i went gluten free that i must have celiac.  AND 6 months after i went gluten free on my own i had some blood tests repeated that i had done when they were trying to figure out what was causing my severe rash, all the things that were "wrong" with me or abnormal in the the first blood tests, went to normal on the second test.  INCLUDING MY THYROID LEVELS! Oh, i didn't mention that during this time they diagnosed me with early hashimotos.. 6 months later i was miraculously cured from this progressive thyroid disorder according to the blood test results.  I didn't have hashimotos to put it bluntly.   I am almost 10 years gluten free with no positive Celiac diagnosis.  But let me tell you this,  My daughter's neurologist did a DNA test on her 1 year after she too went gluten free and it came back positive for Celiac.  so.  js.     That's my story..  in short.
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    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
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    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
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    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
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