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Just Wanted To Say That I Love You Guys!
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3 posts in this topic

I wanted to quickly take an opportunity to thank all of you, and tell you that I luv ya! You are almost like extended family. You are always here when I need you, and when I go away and come back...you are always willing to help. Thank you for that:) I had an "unofficial" celiac disease diagnoses... with zero proof on paper. The little piddly handout that I got at the GI office about celiac disease didn't really help at all at getting me to be a functioning and happy person. You all helped me way more than any doctor or brochure...by far. Well, after the not so diagnosed diagnosis...that was it for help from any doc. Thanks to you all. I became able to function and care for my children, and now get glimpses of feeling like a normal person now and then:) I am still receiving help from you all, so I will look forward to the day of actually feeling normal again on a daily basis. Thank you again from the bottom of my heart. T.H. if you read this...need to talk with you specifically.

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When my daughter was diagnosed the dietician called and cancelled the appointment told us to by Danna Korn's book and come to this site.

Can you look up T.H. and private message them?

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When my daughter was diagnosed the dietician called and cancelled the appointment told us to by Danna Korn's book and come to this site.

Can you look up T.H. and private message them?

If not, I can give you a link to her blog.

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    • What about Xanthan gum?  It really bothers me, so I avoid most commercially processed gluten-free breads, etc.  Never bothers my hubby though.  
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    • I had quite a few of the medical problems that you have before I figured out that gluten was the problem. I can’t do basic math or writing when I eat gluten also I get depressed, irritable, low energy, etc. The best route to go is to do an elimination diet and monitor how certain foods affect you. I eliminated MSG (Monosodium Glutamate), Nitrite, and oat based on the reactions that I get once I consume them. You must be disciplined on a gluten free diet, there is not such a thing as –It is just one cookie! If you can manage to go 100% gluten-free for three weeks and you see those problems going away, you will have a good idea if that is the cause of your problems. The blood test I did after being gluten-free for two years came back negative so the doctor just make me feel that I was crazy and making things up. I have a stool test done which came back with elevated igA also a gene test indicating I have two genes that code for gluten sensitivity. My lactose intolerance went away too, eating a lot of cheese now. Rash in arms? gone, Brown spots in teeth? Gone, Intestinal noises? Gone, Lack of bladder control? Gone, Constipation? Gone, and a lot others.   
    • Oh you're most welcome!  Another thing --- no steroids, oral or injected for 2 months prior to a dh biopsy. Lay off any topical steroid creams for 2 weeks prior. Really, stand your ground with them. It would also be great if you can get a friend or family member to go with you in case they take the biopsy from somewhere that you can't see such as the back of your neck. Your friend/family member can watch to make sure they don't take it directly ON a lesion. Do you have a primary care doc? You can also go to that doc & ask for a full celiac panel PLUS an eTG or TG3. 60% of people with dh test negative on the celiac blood panel but maybe you're one of the 40% who will test positive. It's worth a shot.
    • Thank you so much for responding, it's so hard to go on this journey of questions and Drs. I really appreciate the time you took to respond. God bless you 💖
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