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Sooo, A Month On Gluten And This Is What The Specialist Said


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7 replies to this topic

#1 Hawthorn

 
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Posted 01 July 2011 - 02:30 AM

He asked me about symptoms. Thanks to brain fog I'd written them all down. He looked at the skin problems, looked over the list, looked at my stomach and asked my why oh why was I still eating gluten. I told him my gp told me to so I could be tested and his answer was to stop eating it immediately. He talked about cross contamination, it being hidden in certain foods that you wouldn't expect and to eat whole foods - no processed gluten free crap.

He said the blood tests the doctor did a couple of months back were negative but he didn't want me to continue eating gluten to go for endoscopy. Just quit eating it, right now, today. I was gluten-free for a year (excluding CC and the odd 'I don't care and I'm eating that spring roll' moment, and back on the gluten for just two weeks prior to blood test.

Formally diagnosed as non Coeliacs gluten intolerance - treatment is the same either way. And that was that.

I *really* could have kissed this guy. I went there expecting to be told that I must continue with the gluten for a few more weeks, go for endoscopy and I cannot tell you how rough I feel after a month eating it already.
He obviously decided enough was enough and thank god for that :D
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#2 adab8ca

 
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Posted 01 July 2011 - 03:19 AM

He asked me about symptoms. Thanks to brain fog I'd written them all down. He looked at the skin problems, looked over the list, looked at my stomach and asked my why oh why was I still eating gluten. I told him my gp told me to so I could be tested and his answer was to stop eating it immediately. He talked about cross contamination, it being hidden in certain foods that you wouldn't expect and to eat whole foods - no processed gluten free crap.

He said the blood tests the doctor did a couple of months back were negative but he didn't want me to continue eating gluten to go for endoscopy. Just quit eating it, right now, today. I was gluten-free for a year (excluding CC and the odd 'I don't care and I'm eating that spring roll' moment, and back on the gluten for just two weeks prior to blood test.

Formally diagnosed as non Coeliacs gluten intolerance - treatment is the same either way. And that was that.

I *really* could have kissed this guy. I went there expecting to be told that I must continue with the gluten for a few more weeks, go for endoscopy and I cannot tell you how rough I feel after a month eating it already.
He obviously decided enough was enough and thank god for that :D


He sounds AWESOME!!!
Good for you!
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TTG >200 (normal <10)
IgA gliadin 24 (normal <11)
IgG gliadin 38 (normal <11)
Endoscopy showed damage that looked like "classic celiac", biopsy showed total villous atrophy
Started gluten-free diet Aug 31, 2010
Only real symptoms are huge weight loss and neuropathy

#3 Diane-in-FL

 
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Posted 01 July 2011 - 04:34 AM

He is a rare one, it seems. Let's clone him! :)
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Gluten Free since 2010

#4 kwylee

 
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Posted 01 July 2011 - 07:30 AM

I love reading stories like this!!!! We're still in the dark ages with this, but maybe we can see sparks of light at the end of the tunnel.
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K Wylee

Gluten Intolerant, Positive test, June 2010
Casein sensitivity, Positive test, June 2010
Reactive to soy, most processed foods & preservatives, June 2010

#5 Darn210

 
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Posted 01 July 2011 - 09:26 AM

He sounds like a keeper to me!!
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Janet

Experience is what you get when you didn't get what you wanted.


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#6 Takala

 
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Posted 01 July 2011 - 12:20 PM

Welcome back to Sanity World. :)
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#7 kareng

 
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Posted 01 July 2011 - 12:23 PM

Would you like to tell us his name & where to find him? If not, that's OK.
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#8 Hawthorn

 
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Posted 01 July 2011 - 04:09 PM

Would you like to tell us his name & where to find him? If not, that's OK.


hahaha he was called Dr Tai and it was in east yorkshire, UK :P
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