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Severely Glutened...
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I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. :( (I was on a gluten challenge til the middle of April and then went back to gluten free but got glutened at a restaurant by salad dressing.)

I'd almost forgotten how bad I can feel. THIS SUCKS!!! I only discovered I'm gluten intolerant about 6 months ago (although I've had the symptoms all my life.) We've discovered my 2 year old son is gluten intolerant as well, so at least we caught it early for him.

I guess I can be thankful that my throat hasn't swelled up like it does sometimes, but at least that goes away with benadryl. I haven't had body aches and the whole list of symptoms since April when I was constantly eating gluten for the challenge.

Just needed to vent a little. I get so frustrated I want to cry. I'm still getting used to the fact that there are so many things I can't eat anymore without checking labels, and it's hard to realize that I can't trust anybody when they say something is gluten free. My in-laws were visiting and contaminated the jelly jar right in front of me and I didn't notice until my husband caught me before I put it on my gluten-free bread. I mean it was a lesson for them how sensitive I am and they were nice and understanding about it, but it's still hard to constantly be educating other people.

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I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. :( (I was on a gluten challenge til the middle of April and then went back to gluten free but got glutened at a restaurant by salad dressing.)

I'd almost forgotten how bad I can feel. THIS SUCKS!!! I only discovered I'm gluten intolerant about 6 months ago (although I've had the symptoms all my life.) We've discovered my 2 year old son is gluten intolerant as well, so at least we caught it early for him.

I guess I can be thankful that my throat hasn't swelled up like it does sometimes, but at least that goes away with benadryl. I haven't had body aches and the whole list of symptoms since April when I was constantly eating gluten for the challenge.

Just needed to vent a little. I get so frustrated I want to cry. I'm still getting used to the fact that there are so many things I can't eat anymore without checking labels, and it's hard to realize that I can't trust anybody when they say something is gluten free. My in-laws were visiting and contaminated the jelly jar right in front of me and I didn't notice until my husband caught me before I put it on my gluten-free bread. I mean it was a lesson for them how sensitive I am and they were nice and understanding about it, but it's still hard to constantly be educating other people.

Have 2 jellies, butter tubs, PB, etc. Put some bright colored tape on the gluten-free one & put your name on it. Anyone who misses hot pick tape with Jen on it is just inconsiderate or mean. Probably shouldn't be in your house. :blink:

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I am so sorry. I have felt the same frustration (cried some of the same tears) as I've tried to prevent cross contamination issues from making my gluten-free husband so ill. He's been gluten-free for two years and last year I finally convinced him that the entire house needs to be gluten-free as well. We do great at home, but even when we bring our own food to eat dinner with family he inevitably comes home sick. We're planning a trip to visit family next weekend and I'm already anxious about it. We've never made it through a trip w/o him gettin glutened at least once. So discouraging.

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Weird thing is, just after writing the above post I started chilling and running fever. Ran fever (little over 100) for about 16 hours, couldn't eat, and then fever was gone. Woke up yesterday morning feeling better except for a headache and my stomach's still very very sensitive, and I had a round of extremely loose stool yesterday too. Stomach is still sensitive today. I am starting to think the fever may have been gluten related???

Can super sensitive gluten intolerant patients run fever with being glutened?

As of right now I've only been diagnosed Gluten Intolerant. My initial round of Celiac testing came back negative (including biopsies, but only 2 were done). I was not happy with the first doc at all and went to a new GI doc. My new doctor says I wasn't on a proper gluten challenge and the right blood tests weren't done to be completely conclusive. He wants to redo all of the testing (including biopsies- getting 7 this time) and go ahead with the genetic test. I'm not starting that all until this fall.

By the way.... I hadn't been out of the house to be exposed to anyone in the previous 72 hours, and I had not been around anyone who was sick at all in the past 2 weeks that I know of.

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I am so sorry. I have felt the same frustration (cried some of the same tears) as I've tried to prevent cross contamination issues from making my gluten-free husband so ill. He's been gluten-free for two years and last year I finally convinced him that the entire house needs to be gluten-free as well. We do great at home, but even when we bring our own food to eat dinner with family he inevitably comes home sick. We're planning a trip to visit family next weekend and I'm already anxious about it. We've never made it through a trip w/o him gettin glutened at least once. So discouraging.

You wonderful woman. Your husband is so lucky. All our worrying and persuading has to come from the other direction. It isn't taken very well either.

I agree that with super sensitives the whole house needs to be gluten-free. We tried very hard to do it shared and just couldn't.

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Can super sensitive gluten intolerant patients run fever with being glutened?

I get a low grade fever when I get glutened, either a few hours after, or the next day sometime, along with chills and the big D. Low grade fever can continue even when D has stopped, it's quite weird. Before I went gluten free, I kept on getting the chills/fever feeling, and wondering what the hell was wrong with me!

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Weird thing is, just after writing the above post I started chilling and running fever. Ran fever (little over 100) for about 16 hours, couldn't eat, and then fever was gone. Woke up yesterday morning feeling better except for a headache and my stomach's still very very sensitive, and I had a round of extremely loose stool yesterday too. Stomach is still sensitive today. I am starting to think the fever may have been gluten related???

Can super sensitive gluten intolerant patients run fever with being glutened?

My son runs a fever when he has been contaminated. Sometimes they are even pretty high. Scares me to death!

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My son runs a fever when he has been contaminated. Sometimes they are even pretty high. Scares me to death!

[/quote

I run a fever for a few days after getting glutened too. Usually 100.8 to 101F.

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Luv, you might just have a bout of stomach flu. Remember that not everything is gluten.

Feel better!!!

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I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. :( (I was on a gluten challenge til the middle of April and then went back to gluten free but got glutened at a restaurant by salad dressing.)

I'd almost forgotten how bad I can feel. THIS SUCKS!!! I only discovered I'm gluten intolerant about 6 months ago (although I've had the symptoms all my life.) We've discovered my 2 year old son is gluten intolerant as well, so at least we caught it early for him.

I guess I can be thankful that my throat hasn't swelled up like it does sometimes, but at least that goes away with benadryl. I haven't had body aches and the whole list of symptoms since April when I was constantly eating gluten for the challenge.

Just needed to vent a little. I get so frustrated I want to cry. I'm still getting used to the fact that there are so many things I can't eat anymore without checking labels, and it's hard to realize that I can't trust anybody when they say something is gluten free. My in-laws were visiting and contaminated the jelly jar right in front of me and I didn't notice until my husband caught me before I put it on my gluten-free bread. I mean it was a lesson for them how sensitive I am and they were nice and understanding about it, but it's still hard to constantly be educating other people.

I am very new to this, was just diagnosed two months ago and I am having the hardest time. I am beginning to feel like there is gluten everywhere. it seems worse now that I know. I have chronic hay fever and want to cry all the time, but I am too exhausted. Please tell me its gets better.

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It gets better. I felt like giving up on life pretty often at the beginning because it is so hard and I kept getting glutened. Plus, I think my brain was messed up from all that gluten. If I hadn't had children depending on me I might have done something about it.

Now life is beautiful and I feel like I have the energy and enthusiasm of a child.

Hang in there. It will get better!

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    • I_would_widen_the_search_to_your_whole_environment.....Carefully_consider_what_else_was_different_when_you_felt_better.
    • Thanks a lot for your advice and the link. I will surely check upon GCED. But, doesn't a negative HTTG (can't do IgA ttg as IgA deficiency) result mean that I am not exposed to gluten ? 
    • Thank you for going through my long post and responding. I have been both dairy and gluten-free free for 10 months now. Yes, even I was worried about other food allergies. I mentioned it to my GI doc and asked if I need food allergy test to eliminate other allergens. He said, food allergy tests give a lot of false positives and are not accurate. He said: not everything is because of food allergy and it's refractory celiac which is causing issues as the jejunum biopsy, done recently, is showing villous flattening.

      My doubt: 1. If I have so much damage in my small intestine (villous flattening) then how was I keeping fine for 6-7 months ( eating eggs, soy, rice and meat) - was constantly losing weight though - but was able to work out regularly - not much fatigue. 2. If it is other food allergens ( out of mentioned allergens, I take eggs, soy chunks, almonds only) why does it happen only few times and not always - I keep well for 7-8 days and then fall sick again - this without any change in diet.  
    • Oh, Trish at the GlutenFreeWatchDog tested Planter's honey roasted peanuts three years ago.  The can did not state gluten-free, but showed no gluten ingrediants (per Kraft policy).  Test result: less than 5 part per million which is pretty much gluten-free.  
    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
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