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Severely Glutened...


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10 replies to this topic

#1 JenHarris

 
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Posted 01 July 2011 - 05:45 AM

I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. :( (I was on a gluten challenge til the middle of April and then went back to gluten free but got glutened at a restaurant by salad dressing.)

I'd almost forgotten how bad I can feel. THIS SUCKS!!! I only discovered I'm gluten intolerant about 6 months ago (although I've had the symptoms all my life.) We've discovered my 2 year old son is gluten intolerant as well, so at least we caught it early for him.

I guess I can be thankful that my throat hasn't swelled up like it does sometimes, but at least that goes away with benadryl. I haven't had body aches and the whole list of symptoms since April when I was constantly eating gluten for the challenge.

Just needed to vent a little. I get so frustrated I want to cry. I'm still getting used to the fact that there are so many things I can't eat anymore without checking labels, and it's hard to realize that I can't trust anybody when they say something is gluten free. My in-laws were visiting and contaminated the jelly jar right in front of me and I didn't notice until my husband caught me before I put it on my gluten-free bread. I mean it was a lesson for them how sensitive I am and they were nice and understanding about it, but it's still hard to constantly be educating other people.
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#2 kareng

 
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Posted 01 July 2011 - 06:30 AM

I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. :( (I was on a gluten challenge til the middle of April and then went back to gluten free but got glutened at a restaurant by salad dressing.)

I'd almost forgotten how bad I can feel. THIS SUCKS!!! I only discovered I'm gluten intolerant about 6 months ago (although I've had the symptoms all my life.) We've discovered my 2 year old son is gluten intolerant as well, so at least we caught it early for him.

I guess I can be thankful that my throat hasn't swelled up like it does sometimes, but at least that goes away with benadryl. I haven't had body aches and the whole list of symptoms since April when I was constantly eating gluten for the challenge.

Just needed to vent a little. I get so frustrated I want to cry. I'm still getting used to the fact that there are so many things I can't eat anymore without checking labels, and it's hard to realize that I can't trust anybody when they say something is gluten free. My in-laws were visiting and contaminated the jelly jar right in front of me and I didn't notice until my husband caught me before I put it on my gluten-free bread. I mean it was a lesson for them how sensitive I am and they were nice and understanding about it, but it's still hard to constantly be educating other people.



Have 2 jellies, butter tubs, PB, etc. Put some bright colored tape on the gluten-free one & put your name on it. Anyone who misses hot pick tape with Jen on it is just inconsiderate or mean. Probably shouldn't be in your house. :blink:
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#3 lovesaceliac

 
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Posted 02 July 2011 - 03:42 PM

I am so sorry. I have felt the same frustration (cried some of the same tears) as I've tried to prevent cross contamination issues from making my gluten-free husband so ill. He's been gluten-free for two years and last year I finally convinced him that the entire house needs to be gluten-free as well. We do great at home, but even when we bring our own food to eat dinner with family he inevitably comes home sick. We're planning a trip to visit family next weekend and I'm already anxious about it. We've never made it through a trip w/o him gettin glutened at least once. So discouraging.
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#4 JenHarris

 
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Posted 03 July 2011 - 04:56 AM

Weird thing is, just after writing the above post I started chilling and running fever. Ran fever (little over 100) for about 16 hours, couldn't eat, and then fever was gone. Woke up yesterday morning feeling better except for a headache and my stomach's still very very sensitive, and I had a round of extremely loose stool yesterday too. Stomach is still sensitive today. I am starting to think the fever may have been gluten related???

Can super sensitive gluten intolerant patients run fever with being glutened?

As of right now I've only been diagnosed Gluten Intolerant. My initial round of Celiac testing came back negative (including biopsies, but only 2 were done). I was not happy with the first doc at all and went to a new GI doc. My new doctor says I wasn't on a proper gluten challenge and the right blood tests weren't done to be completely conclusive. He wants to redo all of the testing (including biopsies- getting 7 this time) and go ahead with the genetic test. I'm not starting that all until this fall.

By the way.... I hadn't been out of the house to be exposed to anyone in the previous 72 hours, and I had not been around anyone who was sick at all in the past 2 weeks that I know of.
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#5 dilettantesteph

 
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Posted 03 July 2011 - 09:39 AM

I am so sorry. I have felt the same frustration (cried some of the same tears) as I've tried to prevent cross contamination issues from making my gluten-free husband so ill. He's been gluten-free for two years and last year I finally convinced him that the entire house needs to be gluten-free as well. We do great at home, but even when we bring our own food to eat dinner with family he inevitably comes home sick. We're planning a trip to visit family next weekend and I'm already anxious about it. We've never made it through a trip w/o him gettin glutened at least once. So discouraging.

You wonderful woman. Your husband is so lucky. All our worrying and persuading has to come from the other direction. It isn't taken very well either.

I agree that with super sensitives the whole house needs to be gluten-free. We tried very hard to do it shared and just couldn't.
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#6 Marz

 
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Posted 23 July 2011 - 11:14 AM

Can super sensitive gluten intolerant patients run fever with being glutened?


I get a low grade fever when I get glutened, either a few hours after, or the next day sometime, along with chills and the big D. Low grade fever can continue even when D has stopped, it's quite weird. Before I went gluten free, I kept on getting the chills/fever feeling, and wondering what the hell was wrong with me!
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Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

#7 melikamaui

 
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Posted 25 July 2011 - 10:39 AM

Weird thing is, just after writing the above post I started chilling and running fever. Ran fever (little over 100) for about 16 hours, couldn't eat, and then fever was gone. Woke up yesterday morning feeling better except for a headache and my stomach's still very very sensitive, and I had a round of extremely loose stool yesterday too. Stomach is still sensitive today. I am starting to think the fever may have been gluten related???

Can super sensitive gluten intolerant patients run fever with being glutened?


My son runs a fever when he has been contaminated. Sometimes they are even pretty high. Scares me to death!
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#8 jebby

 
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Posted 26 July 2011 - 04:48 AM

[quote name='melikamaui' timestamp='1311619165' post='718624']
My son runs a fever when he has been contaminated. Sometimes they are even pretty high. Scares me to death!
[/quote

I run a fever for a few days after getting glutened too. Usually 100.8 to 101F.
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#9 Skylark

 
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Posted 26 July 2011 - 08:32 AM

Luv, you might just have a bout of stomach flu. Remember that not everything is gluten.

Feel better!!!
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#10 Laurarose

 
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Posted 07 August 2011 - 05:53 AM

I got cross contaminated from the peanut butter jar and didn't have symptoms until the middle of the night. Now I feel like I've got stomach flu... complete with body aches, terrible backache, horrible cramping and nausea. I'd made it over a month without even getting slightly glutened. :( (I was on a gluten challenge til the middle of April and then went back to gluten free but got glutened at a restaurant by salad dressing.)

I'd almost forgotten how bad I can feel. THIS SUCKS!!! I only discovered I'm gluten intolerant about 6 months ago (although I've had the symptoms all my life.) We've discovered my 2 year old son is gluten intolerant as well, so at least we caught it early for him.

I guess I can be thankful that my throat hasn't swelled up like it does sometimes, but at least that goes away with benadryl. I haven't had body aches and the whole list of symptoms since April when I was constantly eating gluten for the challenge.

Just needed to vent a little. I get so frustrated I want to cry. I'm still getting used to the fact that there are so many things I can't eat anymore without checking labels, and it's hard to realize that I can't trust anybody when they say something is gluten free. My in-laws were visiting and contaminated the jelly jar right in front of me and I didn't notice until my husband caught me before I put it on my gluten-free bread. I mean it was a lesson for them how sensitive I am and they were nice and understanding about it, but it's still hard to constantly be educating other people.

[font="Georgia"]I am very new to this, was just diagnosed two months ago and I am having the hardest time. I am beginning to feel like there is gluten everywhere. it seems worse now that I know. I have chronic hay fever and want to cry all the time, but I am too exhausted. Please tell me its gets better.
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[font="Georgia"]Laura -->-@[/font]

#11 dilettantesteph

 
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Posted 08 August 2011 - 05:12 AM

It gets better. I felt like giving up on life pretty often at the beginning because it is so hard and I kept getting glutened. Plus, I think my brain was messed up from all that gluten. If I hadn't had children depending on me I might have done something about it.

Now life is beautiful and I feel like I have the energy and enthusiasm of a child.

Hang in there. It will get better!
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