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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Need Advice From People Who Have Experience With Enterolab.
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4 posts in this topic

everybody,

I'm looking for help from those of you with experience with Enterolab. Never thought I'd be looking at possibly using their services, since I am covered for just about anything that could possibly come up. But my son isn't so fortunate with his insurance. I have been tested positive with HLA-DQ2.5 genetic marker, and I have come to realize that I just will not be worry free until my son has been tested, to know whether or not he needs to monitor things in the future. So, I'm considering paying for Enterolab to do the genetic test on him. I just wanted to know if any of you have had experience with them, and if those experiences were good or bad.

I guess I would love to hear from someone who tested more than one person in the family and had some positive and some negative test results. Silly as it sounds, I just want to hear from someone that they don't just tell everyone they have tons of allergies/intolerances and genes etc. Call me paranoid, but there's so much incompetence out there... I just need to hear from people who have used Enterolab, so that I know its an okay place to do this. I understand that they send the sample to Red Cross for processing, so I guess it should be valid. Thanks in advance for your responses. It will ease my mind. I'm considering calling them Tuesday morning to order his kit.

Have a wonderful Independence Day everybody! Enjoy your gluten free BBQs! :)

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Here are my thoughts on Enterolab. I wrote this in another thread and to make it easier to find since I keep repeating myself I stuck it in my forum blog. In brief, yes they do tell too many people that they are positive for gluten intolerance.

Also, as far as I know, Enterolab only tests HLA-DQB1 so you will only see the DQB1 *0201 from DQ2.5. If you want the alpha chain result to be sure you would have to get him tested elsewhere. Enterolab does tell you all your B1 results rather than yes/no for DQ2 and DQ8 which some people really like.

I would recommend you get genetic test pricing from Kimball and Prometheus. They do not report all of the B subunits like Enterolab, but they test for A1 *0505, which you need.

http://www.kimballgenetics.com/tests-celiacdisease.html

https://myceliacid.com/

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[fonft=Comic Sans MS]

Here are my thoughts on Enterolab. I wrote this in another thread and to make it easier to find since I keep repeating myself I stuck it in my forum blog. In brief, yes they do tell too many people that they are positive for gluten intolerance.

Also, as far as I know, Enterolab only tests HLA-DQB1 so you will only see the DQB1 *0201 from DQ2.5. If you want the alpha chain result to be sure you would have to get him tested elsewhere. Enterolab does tell you all your B1 results rather than yes/no for DQ2 and DQ8 which some people really like.

I would recommend you get genetic test pricing from Kimball and Prometheus. They do not report all of the B subunits like Enterolab, but they test for A1 *0505, which you need.

http://www.kimballgenetics.com/tests-celiacdisease.html

https://myceliacid.com/

Thanks for your comments, Skylark. I'm really not so concerned about the genetic testing from Enterolab, since they get it done through the Red Cross, and even though they only test the DQB chain... in our case that doesn't matter since I'm DQ2.5 positive and the alpha and beta chains are always connected. If he has the DQB positive, the A will also be positive in his case. I was more concerned with their "other" tests... for food intolerances, etc. I don't want to pay for them to test if they just tell everybody they're intolerant to what ever they request a test for. ;) I will check with the other two labs that you suggested though... and see how the pricing is for the genetic test. Thanks again for taking the time to respond... I really appreciate it, Skylark. :) Happy Independence Day!

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That makes sense. If you just want to know yes or no for DQB1 *0201 from you, Enterolab may be the cheapest option. :)

Happy Independence Day!

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