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Need Advice From People Who Have Experience With Enterolab.


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3 replies to this topic

#1 MsCurious

 
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Posted 01 July 2011 - 03:04 PM

everybody,

I'm looking for help from those of you with experience with Enterolab. Never thought I'd be looking at possibly using their services, since I am covered for just about anything that could possibly come up. But my son isn't so fortunate with his insurance. I have been tested positive with HLA-DQ2.5 genetic marker, and I have come to realize that I just will not be worry free until my son has been tested, to know whether or not he needs to monitor things in the future. So, I'm considering paying for Enterolab to do the genetic test on him. I just wanted to know if any of you have had experience with them, and if those experiences were good or bad.

I guess I would love to hear from someone who tested more than one person in the family and had some positive and some negative test results. Silly as it sounds, I just want to hear from someone that they don't just tell everyone they have tons of allergies/intolerances and genes etc. Call me paranoid, but there's so much incompetence out there... I just need to hear from people who have used Enterolab, so that I know its an okay place to do this. I understand that they send the sample to Red Cross for processing, so I guess it should be valid. Thanks in advance for your responses. It will ease my mind. I'm considering calling them Tuesday morning to order his kit.

Have a wonderful Independence Day everybody! Enjoy your gluten free BBQs! :)

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~ MsCurious ~
"If you keep doing what you're doing... You'll keep getting what you're getting!"

tTg IgA IgG borderline 1/25/11 Posted Image
HLA DQ2.5 Positive 2/11/11
Biopsy 4/11/11
100% Lactose/Dairy Free 4/11/11
Gluten Free 4/14/11
Life is SO MUCH better gluten-free!

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#2 Skylark

 
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Posted 01 July 2011 - 04:05 PM

Here are my thoughts on Enterolab. I wrote this in another thread and to make it easier to find since I keep repeating myself I stuck it in my forum blog. In brief, yes they do tell too many people that they are positive for gluten intolerance.
http://www.celiac.co...ists-viewpoint/

Also, as far as I know, Enterolab only tests HLA-DQB1 so you will only see the DQB1 *0201 from DQ2.5. If you want the alpha chain result to be sure you would have to get him tested elsewhere. Enterolab does tell you all your B1 results rather than yes/no for DQ2 and DQ8 which some people really like.

I would recommend you get genetic test pricing from Kimball and Prometheus. They do not report all of the B subunits like Enterolab, but they test for A1 *0505, which you need.
http://www.kimballge...iacdisease.html
https://myceliacid.com/
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#3 MsCurious

 
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Posted 01 July 2011 - 05:07 PM

[fonft="Comic Sans MS"][/font]

Here are my thoughts on Enterolab. I wrote this in another thread and to make it easier to find since I keep repeating myself I stuck it in my forum blog. In brief, yes they do tell too many people that they are positive for gluten intolerance.
http://www.celiac.co...ists-viewpoint/

Also, as far as I know, Enterolab only tests HLA-DQB1 so you will only see the DQB1 *0201 from DQ2.5. If you want the alpha chain result to be sure you would have to get him tested elsewhere. Enterolab does tell you all your B1 results rather than yes/no for DQ2 and DQ8 which some people really like.

I would recommend you get genetic test pricing from Kimball and Prometheus. They do not report all of the B subunits like Enterolab, but they test for A1 *0505, which you need.
http://www.kimballge...iacdisease.html
https://myceliacid.com/

Thanks for your comments, Skylark. I'm really not so concerned about the genetic testing from Enterolab, since they get it done through the Red Cross, and even though they only test the DQB chain... in our case that doesn't matter since I'm DQ2.5 positive and the alpha and beta chains are always connected. If he has the DQB positive, the A will also be positive in his case. I was more concerned with their "other" tests... for food intolerances, etc. I don't want to pay for them to test if they just tell everybody they're intolerant to what ever they request a test for. ;) I will check with the other two labs that you suggested though... and see how the pricing is for the genetic test. Thanks again for taking the time to respond... I really appreciate it, Skylark. :) Happy Independence Day!
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~ MsCurious ~
"If you keep doing what you're doing... You'll keep getting what you're getting!"

tTg IgA IgG borderline 1/25/11 Posted Image
HLA DQ2.5 Positive 2/11/11
Biopsy 4/11/11
100% Lactose/Dairy Free 4/11/11
Gluten Free 4/14/11
Life is SO MUCH better gluten-free!

#4 Skylark

 
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Posted 01 July 2011 - 05:25 PM

That makes sense. If you just want to know yes or no for DQB1 *0201 from you, Enterolab may be the cheapest option. :)

Happy Independence Day!
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