Neuroloigical Issue And Breast Discharge
Posted 03 July 2011 - 06:20 PM
Sorry if this is to much info. About 2 years after the birth of my daughter I was still having a nipple discharge (I never breastfed). I just kept figuring it would stop sooner of later. Eventually I was sent to an endocrinologist, my prolactin levels were not high yet I still had a discharge. Looking back there were other sypmtoms as well, headaches, sinus / allergy type issues, fatigue, joint pain). Anyway I recently finished all my testing. It was about a month between my endoscopy and my follow up appt for my results. I went gluten free for that time (for the most part, maybe a slice of pizza on the week end or so). At my follow up I was told results were negative. I spen the last week eating gluten products and I am realizing that I am paying the price with how I feel! I know a lot of people have neurological issues. Is this something that could be connected to a gluten problem? Anyone else have a pituitary gland problem?
Posted 03 July 2011 - 11:20 PM
My right breast has had a slight discharge for oooh, 8 years or so? very slight - barely noticable in fact. I just put it down to the fact that I breastfed four children and have never really thought about it. I shall keep an eye on this now and see if it disappears off the gluten.
What I do know is that I have had various symptoms for many years, and never even realised it until I went gluten free - and then got glutened again. My period for example was never regular. Ever. I could go up to a year without having one, but never had a problem concieving except with my daughter. She took a year which I suppose in the grand scheme of things isn't really a long time. Gluten free for a year, my period is almost monthly now. Not to the day, but within a five day time slot. I'm not sure I like it
I have always had a really nice time with body hair too. I need to buy shares in Veet! Off the gluten I noticed a huuuge reduction in this.
So many things that were accepted as normal for me, I'm now realising were down to the big G. Things that I had just put down to 'weird hormones' )
Bottom line is, if you feel you're paying the price for eating it, positive or negative results do not matter. Don't eat it.
Posted 04 July 2011 - 04:29 AM
Posted 04 July 2011 - 08:43 AM
Posted 06 July 2011 - 08:52 AM
Problem but even she is out have a great time in life..she just needs to rest more & her prognosis is to have a fully normal life Expectency & do quite well. She is much better than I am but they don't think mine is from a pit tumor (I actually wish it were). Ok, I'm gonna reread & make sure I didn't mess up telling u this. I'm kinda in the brain fog (to put it mildly) today. Ok, I'll wrote once more. Hugs!
Posted 06 July 2011 - 09:30 AM
Guessing the gyne, Endo,& maybe neuro (that's who wanted me to get mine checked but my other docs don't know enough & the neuro wanted my cardiologist -ok, I'm way younger than I sound with all these docs..ugh! - to order it & those two docs got into a big argument over it..it was really dumb..too many cooks in the kitchen! So, I still have not had my scan & I really have no symptoms but neither did my friend, the MD, I think. It depends where the tumor is. However, now that I've scared u (I'm sorry!), I'd say my first trip might be to gyne, cuz discharge seems could be anything, especially hormonal. I don't know how old u r, but not sure that matters. Seems this gluten thing can mess up tons of stuff. My endocrine system & hormones are all out of whack. Is your vitamin D a problem? Mine is untraceable without D3 supplements. Rx D2 in mega doses doesn't even work. I know vit D deficiency can cause breast problems. No one knew why my D was so uncontrollable until an Endo at a big research Hosp said duh, it's her malabsorption! So I have about every defiency known to man (and woman)! And, those have led to all kinds of problems. So, my advice, for whatever it's worth, after untreated almost lifelong celiac that destroyed my health, stellar career, & just abt every aspect of my life, is leave no stone unturned if u have a symptom you KNOW is abnormal & fire your docs if they aren't willing to find the answers they would demand for themselves & their own family. U still can PM me. Not sure how much more I can help. But I'm willing to ask my MD friend her take on your case & what she would do. If I don't answer right away, I'm dealing with my health. Unfortunately, my own outlook isn't too good, but if I can help others, then it has served a good purpose. I'm on my iPhone now & not sure I can pm on this thing. If so, I'll pm u my contact info. Don't give up. I really think you need a doc to seriously check this out throroughly & then u can stop worrying. I am not saying to worry like OMG, it's sometging terrible, but u know if it's not normal & if it's not, then get it taken care of before u really have to worry. I let my celiac go too long & now it's causing serious problems. I listened to my GI doc over all the docs who asked me if I ever heard of celiac, which my mom swore I had cuz I lost wt as a baby until I was on the diet. My antibodies came back negative (ok they didn't have those tests when I was a baby, just diapers!), because now we know immunesuppresant drugs I took for RA causes false negative tests but my symptoms never went away (I decided this was normal for me) & I was a child-sized adult, with osteoporosis in late 20s (first they tested), & all kinds of signs of malnutrition despite all my efforts to gain wt. My hormones are a mess, even though I'm very regular except when my iron hits rock bottom. I have too much estrogen for a 20 yr old, and umm let's just say I'm not 20, just 29 AGAIN! u get the idea. So, pit tumor possible but who knows. I'd find out until I got a definite answer if I were u. Good luck! Hope this helped more than scared u. Honestly, I wouldn't be scared at all after what I've been through, but I wouldn't be complacent even if docs are...
Posted 06 July 2011 - 06:33 PM
I appreciate your concern and advice. Mine (like everyone else's story here) is a long one. To cut it short. For me, looking back my main symptom was headaches like no other in my life that started after the birth of my second child. (was also my secon c-section). I spent 2 years being bounced around from doc to doc trying to find the cause of my headaches. In that time I did have an MRI done. Eventually I did see an endocrinologist who treated me with dosinex. It took a couple times and a couple of years of going on and off the dosinex, but all seems to be fine for now. I have just finished all my testing, which was negative. However I am 100% sure certain levels of gluten are the cause of my headaches. I believe the burden of pregnancy and surgery is what triggered a gluten "sensitivity" for me. I have many other symptoms that correlate with celiac, but I will call myself "gluten sensitive". Now I just need to learn to stick to the diet!
Posted 06 July 2011 - 08:42 PM
Posted 07 July 2011 - 08:19 AM
My son was diagnosed as celiac as a baby after two hospitalizations for dehydration. His doctor described it as your's did, a pancreatic enzyme deficiency. After two years on a banana, rice and lamb only diet, he "outgrew" it and has been eating gluten since. He is now doing testing to see if he actually is celiac or was misdiagnosed as an infant.
I'm not a doctor; well I am but not a medical doc, a prof with strong background in neuropsych/physiology & a neurological problem myself, which led me back to my celiac dx from after about age 1, off the diet most of my life when docs back then decided it was pancreative digestive enzyme deficiency.
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users